Xarelto Fluid Retention (Page 2)

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I had to take Xarelto due to two sinus venous thrombosis in my head. 8 weeks of heparin injections showed no side effects. But with the first day of taking Xarelto my body reacted by retaining water. Within the first three weeks I gained 24.46 lb hill exercising 5 times a week and eating as I always did. After retaining more and more water I stopped taking it after three months. I started with a weight of 120 lb at a height of 5''8 and now I weigh 157 lb. I have to ad that I started taking it in the middle of March and stopped taking it at the end of June. I was not able to loose any water/weight. I eat less than I always did before even while I exercise. All doctors couldn't find the one thing that changed through Xarelto. Has anybody ever experienced something like this while taking Xarelto??

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21

I have been going to Weight Watchers since February of 2014 (about 15 months) and I have averaged about a 5 pound loss every 2 to 3 weeks for a total of 90 pounds. I started on Xarelto on March 15th and I first gained weight and since I have maintained even though I am on the same diet as before and I am exercising at least an hour a day, sometimes twice that amount. I have lost 4 pounds since March 15th. I am convinced it is the Xarelto. It is the only thing that has changed. I haven't changed eating at all--same amount of Weight Watcher points per day and I am writing down everything I eat. I get off in October, I hope this isn"t permanent. I am taking 20 units of lasix a day and a couple days a week I am doubling the dose. I am definitely bringing this up with my Dr. next month.

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22

I have been off Xarelto since the beginning of April and so far the weight I gained (about 20 lb or so in a little over 6 months) has stayed. I have "thinned" though, in my stomach (nearly flat) and face mostly but legs, butt and thighs stay the same even though I eat well and exercise. I can see he water that has accumulated there when I do some Yoga poses and it looks like watery cellulite, Yikes! Goodbye shorts this summer.

So far I have lost about 3.5 pounds but I have decreased in size quite a bit. I'm guessing the water is still there and I don't know how to get rid of it. I drink water all the time, and pineapple juice, I eat bananas and cranberries but the water doesn't leave my body. Going to have to ask my doctor for diuretics I think. Any successes on those?

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23

Hi again,

I've seen another doctor which made it right. Put me off from xarelto straight away and gave me warfarin instead, also gave me some diuretic (bumetanide). After 10 days I'm almost as normal as I used to be before anything happened. It is just the ankles that are a little swolen. Hope this helped you.

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24

Likewise, I have been on Xarelto for 3 weeks and am continually feeling bloated. I am feeling less hungry and eating healthily, with small portions but it makes no difference. My stomach feels bloated and this is not listed as a side effect on the leaflet that comes with the medication. I will call my consultant tomorrow and see if I can inj. Fragmin instead. Any other suggestions? I'm concerned with this as an irreversible side effect.

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25

I was diagnosed with a DVT in May and given Xarelto. Within a week I felt strange and started to feel bloated. After 17 days I asked to go back onto Fragmin and have now been referred for an ultrasound as I has suspected Ascites. I have no doubt whatsoever that Xarelto was the catalyst / cause and my stomach is still very bloated and uncomfortable. I will keep you posted...

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26

Yes, I take 20mg everyday. I have gained 24 lb. I take it for afib. Been on for 4 months. I was on Coumadin, but lots of nosebleeds. Now on Xarelto I gain weight, hips,knees and all joints ache.

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27

I've approached this issue from a different perspective. Similar results to everyone here and a spongy stomach with weight gain and diet making no difference. I wonder whether Xeralto weakens the muscles, especially affecting the abdominals. It turns out that I have a Diastasis Recti (separation of the abs) and have started Physio therapy plus following the Tupler Technique with a band and transverse muscle exercises (sit ups are a bad idea). The Diastasis ties in with my Xeralto treatment timing wise and seems an odd coincidence. The core strengthening exercises are changing the shape, size and strength of my abdomen and I feel more in control. I don't think that it's a fitness issue, more muscular although fitness will follow once my stomach returns to its normal strength and size. I'll keep you posted. PS, I'm a 51 year old male and the doctor was surprised about the Diastasis as it is normally associated with pregnancy. Could Xeralto bring about some sort of hormonal change affecting abdominal muscles?

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28

I have been on xarelto for 6 months post tummy tuck/ breast reduction that lead to bilateral PE's. Today is my last dose and I couldn't be happier! I, like many of you have experienced bad headaches and severe swelling. I am a nurse and work very long shifts. When I am at work I get so bloated and swollen that I literally feel as though my stomach may rip open. I wake up in the morning with a very flat stomach only to look 9 months pregnant by mid afternoon. I am unsure of my weight gain but I do know that it definitely has increased. I am so upset thinking that this will not go away now that I am going to be off the xarelto. Has anyone had any luck getting the weight off and has the swelling subsided? If so, what helped or what did you do? Please help this Mom feel good about herself again :(

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29

Since my last post I have lost 30 lbs. Still working out six days a week. In July I got sick and could not eat for three days. That is when I started losing weight. Since July I have felt full after eating very little food. It takes me twenty minutes to finish a bowl of cereal. I get hungry and feel like I could eat a horse, but after about six bites I feel so bloated I have to force myself to finish the meal. I am sure it is the Xarelto, but am stuck because I can not get regulated on coumadin.

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30

Hi, I too am a 27 yo female that suffered from acute clots in my lungs and abdomen ( they found four in left and two in right and two in abdomen) the ones in left lung were worse and caused the bottom of my lung to die. I was on a few different thinners in hospital but as soon and I started taking xarelto the stomach problems have been really bad, I have been on this medication for almost 6months now. I feel like I'm a 100, my muscles are ridged and always feel like I've pulled something (I was hyperflexible before this and excelled in hot yoga now I can't even do a basic stretch) my joints are terrible also. I have had SEVERE back pain, fainting, dizziness, concentration, severe fatigue, sensitivity to sun, terrible headaches and blurred vision, constipation and the other, vomiting, sometimes black tarry stools. My eyes are always dry and blood shot, I don't like this drug I feel too unwell to do anything, ever. They have told me that it's not the medication doing this and they won't take me off (or lower the 20mg dosage) the drug due to my inherited protein s deficiency, prothrombin mutation, factor v Leiden and homozygous mthfr mutations and recent unprovoked clots. no doctor will admit that the drug has anything to do with these current symptoms and says either way preventing clots in more important.. (I have been told I will be on this medication and dosage for the rest of my life) i don't know if I can live like this for the rest of my life, does anyone else know of any other option?

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31

So glad I Googled Xarelto and bloating to find it just isn't just me. I have gained 14lb since being on it. I even had someone I hadn't seen for over a year excitedly look at my stomach and nearly ask if I was pregnant (I could see it on her face and stopped her saying it ). I've been really conscious of it since. I have a review in Wednesday with my doctor which is a week before 3 month course of tablets finishes and will certainly be mentioning the weight gain and bloating.
I just hope I lose the weight when I finish the tablets but won't be holding out much hope now.

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32

Update: since my previous posts I can confirm I do not have ascites and the bloating has not changed. I have a small appetite and struggle to eat a large meal as I feel fit to burst after half a portion of food. I am off all anticoagulants and will try Randy's approach of either fasting for 3 days or using a diarretic to reduce water retention. Like everyone listed, I have little doubt that Xeralto is the cause and that in due course this will be proved. For now my doctors refuse to accept that this can be the case.

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33

I use xarelto(20mg) after evening meal for a 30 day ,..weight 153 pound and now is158 pounds .Retain water in my legs,also they are very red hot and it looks cellulitis.

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34

I was put on xarelto the first week in November when a DVT in my right leg was found. I started gaining weight right away. I have been on a new nut ricin plan for a year now. Went from 235lbs Jan 2015 to 180lbs Sept 2915. Now after being on this med I am back up to 200lbs and rising. I have increased my workouts. However I seamed to have lost a lot of strength having to use lighter weights in pump class. I have tried cleanses. Nothing seams to work. Just so happens I have been charting my body measurments for the last year. My abdimon is what has increased the most. The other side effect that has been prominent is insomnia, or more like super active dreams. Can't wait to wake up so I can relax and rest. I see the doc this week I am getting off this med ASAP.

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35

Has anyone experienced high blood pressure while on Xarelto? aystolic and diastolic.

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36

I had been on coumodin since mis Oct 2015. Approx aren't three weeks ago my doctor put me on Xeralto because of excruciating knee pain. Within four days of being on Xeralto my left knee became so swollen I could not stand. Fire and rescue personnel transported me to ER. Had my knee drained and there was a lot of blood in the fluid. Last nite, @ 16 days after first episode I had to go to ER and of knee drained again. I'm away from home for two months and have talked to personal physician's nurse to keep him in the loop. Last week I had a sonogram and MRI. Negative for blood clot and knee injury. Cannot put any weight on left leg and have excruciating pain if I move leg. Ortho Doctor is having a battery of tests run on the fluid he drew out last night. Any chance it could be Xeralto?

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37

Finally! For those suffering with a bloated and distended abdomen I may have some good news for you. (It's not fluid retention). It appears that for some of us, the Xarelto drug has damaged the lining of the GI tract which results in it becoming too permeable. This condition allows an abnormal amount of toxins and food particles into the bloodstream, which in turn is attacked by our immune system. This condition remains unrepaired even after the cessation of the drug therapy. For 2 ½ years I have tried everything to attempt to return my system to a normal condition with no success, until now. Research the “The Master Cleanse”! It’s a 10 day program that is focused on a specific liquid only diet, but more importantly it has an elimination component that clears, cleans, and flushes your entire GI tract in a “top down” approach. This appears to be the primary factor for me in clearing the GI wall to allow the lining to heal without contaminants. I may have to repeat this “Cleanse” more than once over the next few years, but it is first time in 2 ½ years that my abdomen has shrunk back to normal!! Good luck!

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38

My doctor had me take Zantac 150 mg and an iron pill (for anemia) when I was taking Xarelto. You might want to talk to your doctor about that taking Zantac or an equivalent OTC med to help with the stomach problem..

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39

Yes, I was 228 and after 2 months taking xarelta, I have gained weight and I actually eat less food. I'm now 244 and feel disgusting.

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40

I am so glad to have found this board! I thought it was just me. I have been on xarelto since late February and I noticed that each week when they took my weight at the doctor's office I was consistently gaining 10 lbs per week EVEN though I was eating less and much healthier. My entire body feels swollen but the worst is my abdomen. I can't tell if it's water weight or fat but after a meal or heaven's forbid a banana I am bloat up and look as if I am 7 months pregnant. Extremely tired all the time and I feel as if I am carrying the weight of the world when I walk. Painfully uncomfortable. Why don't more doctors know if this side effect?? My hematologist got a CT if my abdomen to rule out cancer but found nothing to cause the painful bloat. I think she thinks it's in my head despite the drastic weight change immediately following start of xeralto. Hope this is not permanent. Going to request to be taken off of it and then for a recommendation for diuretic.

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