Tolvaptan For Polycystic Kidney Disease (pkd)

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My son has pkd, and was been told about a new drug called Tolvaptan. Please send me any info you have on this medication. Thank you!

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1

I also have pkd and would be interested in trying this drug. Is it being sold yet?

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2

Tolvaptan hasn't been FDA approved yet. Phase 3 clinical trials are beginning. Check the PKD Foundation website for more info/clinical trials. The Mayo Clinic is one of several centers participating in the trial.

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3

Also, please check the PKD charity website. Tolvaptan is marketed by Otsuka Pharmeceuticals, another possible source of info.

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4

Yes, unfortunately, until it passes the rigorous testing for the FDA, it will not be available and you will have to stick with other treatment options.

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