Remicade & Teeth (Page 3)

Has anyone seen any effect on their teeth when they have been on remicade for a long time. My dentist seems to think this is my problem. Thank you. Please, someone answer as soon as possible.

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Yes mine have! I had beautiful teeth starting my infusion Remicade treatment. Within a year my teeth began to get black dots, which led to several cracked teeth. Then the decay became so bad( about 3 years into infusions) I have been getting a lot of extractions. I have seen 4 different dentist and none have experience with long term Remicade patients. Some have made me feel like it's my fault, I am not caring for my teeth right and so on. This is a huge topic in my life currently. Please keep in touch and let me know what you find out, if there's many others like us out there. It's nice to know we're not alone.

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I have had two tx of remicade, and after the second tx my upper and lower gums throb and my tongue burns. I have implants in my upper and my own lower teeth. I asked my dentist and he said he did not see anything. He did one of those X-rays that circle around your head and was going to discuss with other dentists, but said it could be from Med's.

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I have been on Remicade for two years now. Within the first year I started to experience sensitive to hot and cold and now hard food is almost a do not eat.
After the two years I had no progress with Remicade for my Crohn's.

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I believe that Ramicaid is affecting my teeth as well. My teeth hurt and I am sensitive to cold. They seem thinner too like I can see through them. I was on steroids for ten years and I fought hard not to let the steroids destroy my teeth and I managed to keep them from being destroyed and in five months that I have been on Ramicade my teeth are worse than what the steroids did. Make no mistake I do not believe that steroids are good either just saying that I started Ramicade in February and my teeth are bad already, not good.

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My teeth also have hurt one of my teeth have broke. Also my mouth has hurt after infusion

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Yes, my teeth are decaying at gum line. Had to get several crowns since I've been on this med. My dentist states it's the remicade that's causing this. I'm off now but is on Imuran now. Waiting on 2 more crowns now. The talk was to remove all my teeth but I'm totally disagreeing with this. I DO NOT want to
wear dentures, I'm too young (56). Lol. But loosing all of your teeth is no laughing matter. If I had known this, I would have said NO WAY to this treatment.

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Yes, I have been on biological drugs for many years. 4 of the last 5 years has been Remicade. I had 4 teeth fall out last week right at gum line. No dental insurance! Will medicare pay?

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I've been on remicade for a year now and as of tonight I've had 2 teeth get holes by the gums. I had the first one removed and will be calling the dentist in the am to get this one pulled as well. Before remicade my teeth have been healthy and no issues. The holes go straight to the nerves as cold and heat cuz pain...

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I've had to get several crowns, fillings due to Remicade causing decays to my teeth, mostly at gum line. Very very expensive. I value my teeth and smile. It has cause me to be depessed about my mouth. I know hold my hand over my mouth to hide my teeth due to embarrassment

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Re: JB (# 5)

i am having problems also like that. lots of extractions now because of decay and i get cleanings every 3 months

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Re: penny (# 50)

Hi Penny, AND ALL.

My name is George and I am number 20 on this thread. I have had about 10 extractions due to Remicade causing tooth decay and essentially I believe that since the drug is meant to suppress the immune system, it can suppress other parts of the bodies' immune defenses. It is supposed to attack the overactive immuno-protein , Tumor Necrosis Alpha Factor (TNA-F) which the protein (as far as I know) is the cause of inflammation in Crohns Disease and Rheumatoid Arthritis Patients. It does a great job in suppressing TNA-F, however it acts like that of a smart bomb; it kills the target but often has collateral damages such as our teeth! I checked the FDA Adverse Reaction Registry (which collects data from people like us who report it to them) for tooth problems related to Remicade. The reported cases were not high. I suspect that the affected patients with the same Tooth issues as all of us simply have not reported their cases. We cannot be the ONLY ones with this issue. Having said that, I would think a next step for ALL OF US is to spread the word across social media. I have never sent a MASS Notification such like this one and do not know how to. I will start researching how to go about this.

DOES ANYONE KNOW HOW TO CREATE AND SEND A MASS NOTIFICATION INFORMING OUR ISSUE AND URGING OTHERS TO REPORT TO FDA, AS WELL AS HERE???

Someone below mentioned that we should report it to the FDA and they provided a link which I used (Thank You) to report my Dental decay issue. It took 15 mins!!! Here is the hyperlink (copy & paste in your browser):

https://www.fda.gov/safety/medwatch/howtoreport/default.htm

We should all work together to get the FDA to investigate Remicade and Tooth Decay.

THANK YOU FOR READING :-)

geo

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Re: kat (# 3)

I have had darn near my whole mouth worked on. Crowns and bridges. My dentist says they are decaying from the inside out.

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Re: Denicia (# 52)

Hi Denicia, I am so sorry to hear of your consequential tooth decay. We all have to stick together and report these adverse effects. Please go to the web link in my post (# 51) to report your case to the FDA.

It only takes about 10 to 15 minutes and it is our starting point for collaborating an attempt at reasonable compensation from the Owner of the drug (Remicade).

PLEASE EVERYONE! LOG YOUR ADVERSE EFFECTS AT THE WEBLINK IN POST # 51!!! Without it we can't move forward towards our shared goal of being compensated for not being warned of these adverse effects.

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I have had 2 teeth cut out a couple of weeks ago and I just broke a tooth on a soft peanut butter cookie. This one and one other had fillings in them. One did not.

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I have to have all my teeth pulled because so much decay set up in mine. Im only 44.

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