Myelofibrosis Fever

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Mark Says:

You could experience a reduction in those symptoms within the first week or it might take some time.

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David Says:

Hi Mark,

Judging from the wording of your post, I couldn't exactly interpret whether you were replying to someone in particular or just stating some facts you found on the internet about "myelofibrosis fever (MF)"?

In either case, what I can agree with is that the prognosis of MF is in fact different for every patient.

One important thing to be aware of if you have Myelofibrosis, is that even if you don't experience any symptoms, a doctor could still find "signs" of it during a physical examination (i.e. an enlarged spleen or pale mucous membranes). So it would probably be best to have yourself checked out periodically until you know for certain that it's gone.

I hope this advice helps!

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Mark Says:

Actually, I am a 14 year PV, 2 1/2 year MF patient who was on Gleevec for almost 9 years and recently switched to Jakafi because the Gleevec was causing my creatnine to go up. I responded within a week easily to the new med with my spleen going down from about 5 cm below the costal margin to around 2 cm. I am a modern MF patient. I never had any constitutional symptoms at all and have pretty much been asymptomatic from the get-go. My counts however were dropping. Since I have gotten on the Jakafi, I am up 2 points on the hemoglobin from 10 and my platelets dropped form 106 to 75 which I expect them to rise over the next couple of months. My WBC has always been normal since I got on the Gleevec. Before that, it went up to 17.

The question was how soon can I expect results. The answer is from a week to several months. There isn't anything more that can be answered with so little information.

BTW, I have a medical degree.

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Melinda Says:

MARK=SORRY TO WRITE-as this has nothing to do with your situation. I was reading, looking for new posts to see of anyone posted on Levaquin, cipro, or avelox today. I saw you have a MEDICAL DEGREE-not sure what your MED. DEGREE constitutes, but if you are you able, do you know much about Flouroquinolones? Cipro, Avelox, and Levaquin-yes-there are some more. We have a HUGE social media group that suffers from side effects and Drs. do not listen to the majority of the patients. I am one since 2009 and suffer greatly with pain and mental issues-never did before this and one day on Levaquin --that was it. Lost everything in my life, work, ability to walk, sleep well, so much more and most that have side effects are like this. There is current research by two institutions and a 3rd soon joining. I wanted to know if you had any awareness of these side effects at all as I have not seen anyone from med. community on here before. I am a teacher..should I say disabled at home 8 months before being able to collect some retirement. That is how severe the pain of this is...AGAIN-if you prefer not to answer-I understand and I would not keep bothering you either way....I just wanted to tap your brain and see what you know of these meds... thank you Melinda

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