Myelofibrosis Fever

3 Replies Updated



Conversation Starter

Mark Says:


You could experience a reduction in those symptoms within the first week or it might take some time.



Showing Replies 1 - 3 of 3 RSS Feed


Page of 1     Sorted By:
1
David Says:

Hi Mark,

Judging from the wording of your post, I couldn't exactly interpret whether you were replying to someone in particular or just stating some facts you found on the internet about "myelofibrosis fever (MF)"?

In either case, what I can agree with is that the prognosis of MF is in fact different for every patient.

One important thing to be aware of if you have Myelofibrosis, is that even if you don't experience any symptoms, a doctor could still find "signs" of it during a physical examination (i.e. an enlarged spleen or pale mucous membranes). So it would probably be best to have yourself checked out periodically until you know for certain that it's gone.

I hope this advice helps!

REPLYSHAREREPORT
Was this helpful?     0     0  
2
Mark Says:

Actually, I am a 14 year PV, 2 1/2 year MF patient who was on Gleevec for almost 9 years and recently switched to Jakafi because the Gleevec was causing my creatnine to go up. I responded within a week easily to the new med with my spleen going down from about 5 cm below the costal margin to around 2 cm. I am a modern MF patient. I never had any constitutional symptoms at all and have pretty much been asymptomatic from the get-go. My counts however were dropping. Since I have gotten on the Jakafi, I am up 2 points on the hemoglobin from 10 and my platelets dropped form 106 to 75 which I expect them to rise over the next couple of months. My WBC has always been normal since I got on the Gleevec. Before that, it went up to 17.

The question was how soon can I expect results. The answer is from a week to several months. There isn't anything more that can be answered with so little information.

BTW, I have a medical degree.

REPLYSHAREREPORT
Was this helpful?     0     0  
3
Melinda Says:

MARK=SORRY TO WRITE-as this has nothing to do with your situation. I was reading, looking for new posts to see of anyone posted on Levaquin, cipro, or avelox today. I saw you have a MEDICAL DEGREE-not sure what your MED. DEGREE constitutes, but if you are you able, do you know much about Flouroquinolones? Cipro, Avelox, and Levaquin-yes-there are some more. We have a HUGE social media group that suffers from side effects and Drs. do not listen to the majority of the patients. I am one since 2009 and suffer greatly with pain and mental issues-never did before this and one day on Levaquin --that was it. Lost everything in my life, work, ability to walk, sleep well, so much more and most that have side effects are like this. There is current research by two institutions and a 3rd soon joining. I wanted to know if you had any awareness of these side effects at all as I have not seen anyone from med. community on here before. I am a teacher..should I say was....now disabled at home 8 months before being able to collect some retirement. That is how severe the pain of this is...AGAIN-if you prefer not to answer-I understand and I would not keep bothering you either way....I just wanted to tap your brain and see what you know of these meds... thank you Melinda

REPLYSHAREREPORT
Was this helpful?     0     0  


Viewing page 1 of 1     Reply


More Discussions:

SECONDRY MYELOFIBROSIS
JIM HAS NOW BEEN ON RUXOLITINIB FOR 8 WEEKS AND FEELING AND LOOKING MUCH BETTER THAN BEFORE HE STARTED THE MEDICATION. P... 3 replies
tratment of myelofibrosis with Ruxolutinb
I have stage 3 advanced Myelofibrosis and have been taking Ruxolitinib (Jakafi) for almost 9 weeks. I have had almost 50... 4 replies
ruxolitinib for primary myelofibrosis
I am interested in how soon after starting with ruxolitinib one can feel improvement of symptoms, specifically, fever/ch...
Ruxolitinib working for Post-Essential Thrombocythemia Myelofibrosis
I'm 3 yrs into Post-Essential Thrombocythemia Myelofibrosis, and I'm wondering if anyone out there has taken Rux... 3 replies
fever tablet
i m last three days in fever. I take tablet and going fever than then tablet action out fever will come back & today... 3 replies
Fever N Cold TabletsN REMIDY FOR SOARTHROAT
I want the remidies for fever cold n soarthrot . i want tips for health every day pl tell me both medicines n home remid... 3 replies
fever treatment
Hi, my nephew has been suffering from a fever for 1 day, so can we give him Ampilox c tablets? Please reply fast. ## Thi... 2 replies
fever after blood clot in lunbloodclot, fever
My husband had a large clot in his lung. He ran a fever the whole time, was on antibiotics, Was given clot busting meds.... 2 replies
fever and headaches, toothache with gum infection
I have swollen gums and severe toothaches with headache and fever, already went to the dentist, they proscribed antibiot... 2 replies
fever
medicine for fever ## Well, really, it depends on what is causing the fever, if it's from an infection, then you nee... 2 replies


Post a Reply

No registration needed.
Simply fill out the form below.

 *

 *


 Optional, stays hidden.
Get notified when a reply is posted here.




4) Text Verification: *
Prevents SPAM.

Click here to show the question



This form will be submitted securely


TRUSTe

Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use and Privacy Policy. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.


Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. This page was last updated on 9 April 2014.

We are committed to your privacy.

Copyright © 2005-2019 All Rights Reserved. MedsChat® is a registered trademark of Limelight Innovations L.L.C. 9888 W Belleview Ave #5000, Denver, CO, 80123, USA