Macular Telangiectasia Type 2
(Newest replies first)

Updated

Has anyone been treated with Ciliary Neurotrophic Factor, Recombinant, rh-CNTF for macular telangiectasia type 2, or have you been introduced to this medication as a possible treatment?

4 Replies

Earliest Newest Votes
4

Hello Vince and Steve...sorry for the late reply. I have not had any formal treatment yet. I have been put on a waiting list to see a specialist in Bethesda, Maryland where the American National Eye Institute is. I have heard from my specialist here in Canada that lucentis for my particular Mactel Type 2 non-proliferative condition may actually harm the eye further. Steve, is this what you have - Mactel type 2?....what has been the response thus far from your treatment?

Was this helpful? 0
3

Hi folks - am 28 and been having treatment for this for 9 months now - to date i have had 5/6 lucentis injections, laser surgery etc but not the above that you mentioned. There is two more of us online that am on contact with via the rareshare site rareshare.org/communities/idiopathic-juxtafoveal-macular-telangiectasia

Was this helpful? 0
2

fayaz, I am interested in communicating with others that have been diagnosed with this eye disease...

Was this helpful? 0
1

Hello Vince. I realize that your question is a couple months old and I do not have an answer for you but I have the same question as you as I have just been diagnosed with this. The troubling this is that there is no cure or confirmed treatment that will alleviate the issue from what I have read and this is very concerning. Could I kindly request that if you receieve any responses to let me know of them as well? I would highly appreciate that. Thank you. Fayaz M.

Was this helpful? 0

More Discussions:

macular degeneration as side effect of prexium plus

I have fundus photographs done annually as I have a retinal naevus. One year after starting Prexium Plus for Hypertensio...

1 REPLY
Wet Age-Related Macular Degeneration (AMD)

What is wet age-related macular degeneration (AMD)? Wet AMD is a very serious form of AMD and is a major cause of vision...

jetrea injection to close macular hole

Had jetrea injection yesterday.I guess what I am experiencing is vitreous floaters. They started big time by around 4pm ...

3 REPLIES
does phendimetrazine adversely affect macular de

I was taking Adderol for ADD, but it wasn't helping that much. My psychiatrist started me on Phendimerazine Tartrate...

2 REPLIES
Type 1 diabetic needing subutex

I'm a sever type 1 diabetic and have been on and off suboxone close to four years. Everytime I'm on the suboxone...

9 REPLIES
types of nerve pills

pink pill, ## I'm sorry, I can't tell you anything from just the color. That actually means nothing in regards t...

5 REPLIES
Type One Diabetes from taking Bendectin

In 1970 I took Bendectin for morning sickness. My daughter developed type one diabetes at age 7. I've read a lot of ...

4 REPLIES
type2 diabetes medicines give me headaches

I recently diagnosed with type 2 diabetes. I tried glipizide, Metformin and extended release metformin, Glumetza, Onglyz...

2 REPLIES
TYPE 1 Diabetic Girl 7 yr - Glycomet 250

My doughter is 7 yr old & Type 1 diabetic since last 8-9 months, Recently docter has advised Tab GLYCOMET 250 twice ...

2 REPLIES
Type of percocet

What type of percocet is a white round tablet with 44 on the top and 148 on the bottom? I've looked and got so many ...

1 REPLY