Zepatier Diary & Discussion
(Newest replies first)

About to start Zepatier and would like to hear from others who are taking it or have taken it.

-How's it going?
-Did it work?
-Would you do it all over again?
-How are you feeling?

REPLY

REPORT

I am finishing my 8th week of ZEPATIER with no side effect.
Only within the first week ( or two ) I was feeling tires and some headaches. Now, there gone.
For me it is not the drog who concerns me, it's the fact that I have ( and had before the treatment ) this awful brain fog, in a way daily tasks seems so difficult to be handled.

Other than this, I am OK.
I will go through it till the end as I am F4 and I cannot leave it uncured.

REPLY

Was this helpful? 1

Each person will have a different experience with a drug.
Yes, this drug can cure Hep C.

The adverse side effects were intolerable for me. But maybe not for you.

I guess each of us must weigh the risks Vs the benefits. We all have different stages of Hep C.

One person could sail through it ...
Some will have joint pain and age 10 yrs from it afterwards.
Or develop liver cancer anyway, even with the virus gone.

I've noticed only two people posted updates on thier experience with it.

Where are the hundreds that are trying it or have finished it?
Where are their stories?

I'll check back in a few years, maybe by then we'll have a bigger picture.

REPLY

Was this helpful? 0

Yes I would do it all over again. My last blood test I was virus free. I’m about to do another test and expect it to be also virus free. The cure rate is 97%. If you have ever known anyone who has died of liver failure you will complete the meds. The side effects are NOTHING compared to dying of this disease. Stay strong !

REPLY

Was this helpful? 0

I was diagnosed 20 years ago with hcv 1a. I have lived with it this long with minimal side effects! But I have babies and wanted to rid myself of this disease so it wouldn't take me away from them earlier than necessary! A doctor suggested Zepatier and here I am 4:30am after the 5th dose and I feel yucky but not yucky-yucky. I had moderately severe stomach cramps/diarrhea about an hour ago. Then I felt a strong urge to vomit while all that was going on! My face was flush and I almost felt like I was going to pass out. I am.hoping and praying this passes but I feel the cramping and yuck coming back :( This just makes me sad because I NEEDED to be able to do this with little no side effects!
Ill keep ya posted.

REPLY

Was this helpful? 1

Re: Monica (# 19)

Mine were pretty mild. I started going to the gym before I started the meds and continued 3 days a week. I wanted to try and stay ahead of the fatigue. The first month I did take naps which isn't usual for me. I continued to work. Take some vitamin D3 it helps you feel better.

REPLY

Was this helpful? 0

Hi everyone. I would like to know more about the side effects of Zepatier as I will be starting on it tomorrow for the first time.

REPLY

Was this helpful? 1

Re: Dredre (# 11)

My eyes were dry. I used moisturizing eye drops hourly. I'm going to do my 3 month post treatment blood test soon. Everything is much better! If you feel itchy take vitamin D3 it will help and finally eliminate the itching. Don't quit

REPLY

Was this helpful? 1

Re: Tracy5 (# 1)

Hi, I was diagnosed with Hep C in '95. I tried a drug then called Interferon A which didn't work and caused severe depression. I vowed never to take it again and decided to just live with the virus.
I'm now in my late 50's and have just started (3 weeks ago) Zepatier. It made me quite sick in the first week but now I'm getting used to it and apart from headaches I have no noticable side effects over and above those that come with hepatitis.
So' here's hoping. Good luck with your treatment.

REPLY

Was this helpful? 1

I'm done with the 12 weeks. I see the Dr my follow up in a few days. Anyone taking this please don't quit ! I started going to a gym while I was taking it and that helps with the fatigue and state of mind. I really just wanted to sleep all the time but I fought thru and went to gym. I feel good! Many symptoms have gone away.

REPLY

Was this helpful? 2

If I had more support when I first started taking it I may not have quit taking it after a week.
I agree we need more people talking about it who are taking it. Please anyone reading this and is taking Zepatier, please post how you are feeling side effects, anything, thank you.
It would make people feel they are not the only ones who are not feeling quite right while taking the treatment.
I know if I had some support I might have kept continuing to take it.
Even though some of the side effects like headache and insomnia were unbearable.

REPLY

Was this helpful? 0

Hi I'm just coming into my 4 week . I didn't really know how i would feel or how I'm meant to feel. My expectations are to rid myself of hep c 1a. I feel like my body is being squeezed all over and burning up. I constantly feel very drained . Its all I'm doing is just concentrating on the treatment making notes as i go along and then will do the same when I've finished.i feel it would be more helpful for people starting treatment that a group or somewhere you could go just to talk how you are feeling because its not only about hep c its other things that you have going on as well. hep c impacts on everything and sometimes it just nice to talk and meet others that are feeling the same.I not wanting to put other off its more support would be good. I feel hep c can isolate you and also really mess with your head. Jacqui

REPLY

Was this helpful? 2

Please keep taking this med. I'm in my 60's and have 10 days left. I will be so relieved to get this virus behind me! Years ago someone close to me died of Hepc liver failure. You do NOT want to go like that! It was horrible and tragic. The meds we have today will cure it. Sadly it wasn't available for him. The side effects we have are nothing compared to liver failure. Good luck

REPLY

Was this helpful? 1

Yes, I felt the dry eyes too. I had to buy moisturizing over the counter eyedrops. During the first week I took Zepatier.

REPLY

Was this helpful? 0

I just took my first dose of Zepatier last night. My eyes have been burning this afternoon. Has anyone experienced this while taking this drug?

REPLY

Was this helpful? 0

New update:
So I went for a 8 week viral count test and it had gone up from the 700's to over 6 million again.
Taking the Zepatier for one week did make the count viral count go down, but since I couldn't tolerate the side effects, and stoped taking it, the counts way back up again.
And I have been feeling nauseas, brain- foggy and tired since stopping the drug.
Its as if my body is having to fight the virus all over again.
I am concerned about this and hope it's not doing worse harm to my liver.
I almost wish I didn't start the drug at all. It just messed up my body chemistry and was too strong a dose for me.

REPLY

Was this helpful? 0

Hello Tracy. Thank you for sharing your zepatier-experience here. I'm sad you had to stop treatment. Hope you are doing fine and can treat successfully later on.
I'm a 48 year old Nowegian girl. Hcv 1a for 25 years. Treated with interferon, ribaverin & victrelis in 2012/13 for 28 weeks. Sadly relapsed, and it was a horrible treatment. Had to have 2 bloodtranfusions. Now the 10th of March I starten 12 weeks of Zepatier. Didn't feel anything until day 3... for about 2 - 3 weeks I felt really tired and weak. Had a couple of headaches...but now for the last weeks I feel much better! Almost like normal! Sleep well and have my energy back!
This treatment is so much raser than the old interferonbased!
Take care, love from Kirsti.

REPLY

Was this helpful? 1

Helene, thank you for your answer!
I am happy to hear you will continue abd finish the medication, despite the side effects.
I regret I did not. :(
Please write again soon.

REPLY

Was this helpful? 0

I would like to answer to Tracy5. First thank u to share your experience with us. Pls excuse me for my poor english I'm french. I begun the traitment le 2nd of march and I confirm it's hard. I have headaches, insomias and Intense muscle and joint pain. I wanted to read some expérience to know if some other persons have these Side effects. I am also small and thin but I want to continue to finish with the virus. I would like to share more but it's difficult to me in english. Take care of u Tracy5.

REPLY

Was this helpful? 1

Update! Went to have the 4 RNA quantitative blood work done, even though I had stopped the Zepatier after day 7. Do you know my ALT & AST Scores were half of what they had been, and my viral count went down from being in the Millions to under one thousand! So this Zepatier does work. If I get a 12 week count done, I'll update again at that time.
I know by discontinuing the pills, the virus could keep growing again.

REPLY

Was this helpful? 0

Well, on day 7, I decided to stop treatment.
For me, it was too strong.

A normal sized person will probably be able to handle the headaches & insomnia better.
But I am very short & thin, and for me, the headache & insomnia after day 4 became too strong and unacceptable.

I hope others will continue where I left off and share their experiences. I'm sure there will be many positive ones.

To the companies who make these wonder drugs, please consider making the pills available in different doses. One size does not fit all, sadly.

REPLY

Was this helpful? 1

high pertensition drug ## I have been taking this medication for years, but in Canada, the drug store, does not know wha...

8 REPLIES

I am having hereditary chronic asthma. I am 40 and otherwise physically very fit. I attend gym and go on walks, keeping ...

3 REPLIES

I'm 69 years old and have been on 50 Fentanyl patch for about a year. I've gone down to 37 and having stomach cr...

1 REPLY

MOA OF ZIPSOR ## Zipsor contains the active ingredient Diclofenac, this is a nonsteroidal anti-inflammatory, used to tre...

2 REPLIES

There seems to be some demand for a GLYX-13 discussion (now known as Rapastinel) so I would like to start one here. ## G...

111 REPLIES

I'm on suboxone and would like 2 chat with others. Is that possible? ## I'm on suboxone 2 and mould like 2 chat ...

13 REPLIES

Find a doctor who will write me prescription for my lower back pain was taking 15 mg of oxycodone. Live in Baltimore cit...

2 REPLIES

I need to know what this drug is used for? ## sinus infections ## My infant son was perscribed this medicine to help wit...

9 REPLIES

I have to start taking Sintrom today. Do l have to take it at the same time every day, and if so, when is the best time ...

3 REPLIES

cathil Says: Tuesday, 9/19/2006 5:45:47 PM oops forgot the rest! as I said I have been on methadone for several years no...