What Is The Best Replacement For Oxycontin. High Dose Long Time User For Chronic Pain. It Seems Like Nothing Else Works As Well. (Page 2)

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I was on the Oxycontin 80mg 3x a day for 16 yrs. I have been tried on alot of other things . I went on methadone w/ 2 40mg of oxy then they quit making the methadone that iI took. None of the kadian or other things in that class have worked. I am now taking ms contin 100mg. a day w/15 mg. 2x a day it is not enough and my Dr. who gave me a hard time off and on about the oxy's now refuses to do the irs that are still available with any other meds. I've took the opana and at the time it seemed fine but pricey that has been a couple of years ago just to see. They have a cap I did not take the er's though. My Dr. is funny about writing large numbers of meds. This ms contin could work but he will not for instance give 60 more mgs. He would rater write 200mgs.3x a day because of amts. of pills Go wonder. Thing is getting to that dose requires going through the additional meds unless he jumps me directly up. I am tolerant after so many years and in worse condition as well. Is the regular morhine stronger than the sulphate in anyones opinion? At least with these categories of meds there aren't these strcict 8 hr. guidelines ect. Nothing has ever lasted 12 hrs. for me. Thanks Anyone with comparisons or experiences with having to come off the new oxy's let me know. My Dr. said I was the only pt. to complain about getting sick. I find that hard to believe. Only slight mentions of little differences. Please help



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21
Gatorz86 Says:
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When is all of this happening? Does this mean those of us with chronic pain will have to take 2 IRs daily?

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22
Skydog Says:

I was in the same Boat. I know have a great combo of 100mg Fentanyl patch every 2 days and 60mg Oxycotin My pharmacy CVS carries the old Oxys so I think that is the Reason I'm getting good relief. Good Luck I have been there and really feel sorry for You.

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23
Jolene Says:

I am so sorry for all of you. We are getting treated this way because of the people who use and abuse. I am on 4-10mg Methadone a day plus 1 & 1/2 -8 mg Dilaudid, 6 times a day for breakthru pain. It is nothing that we have done, please believe that. The people who abuse, doctor hop, doctor and emergency room shop are to blame. I have Spinal Stenosis, Scoliosis, degenerative disc and joint disease, osteo arthritis and a partial amputation of my right leg. I cannot walk more than about 10 feet at a time without having to sit before my legs go out from underneath me because of the Spinal Stenosis. I am in major intractable pain. Sometimes my medications work and sometimes they don't. My physician wants to up me as he knows my pain isn't being controlled. I don't want to be upped because when I had my amputation, my pain wasn't controlled for four (4) days. My nurse got on the phone to the doctor on call at the hospital because I was screaming in pain. I could hear him screaming at the doctor to do something for me because I was suffering. And I was suffering!!! I am with all of you... I suffered until I found my wonderful pain physician. I tried this doctor. They'd tell me, "I don't prescribe narcotics". Or "I don't treat chronic pain"!! For 20 + years I suffered because that's how long it took me to find a legitimate caring pain physician..One who has never been in that kind of pain does not know what pain is like. Fortunately, my pain management physician loves his job and what he does, cares about his patients pain and is wonderful at what he does. Some doctors just don't care and frankly, don't want to have to deal with the D.E.A..I don't blame them. They have rules to follow like we all do. But to change someone's medications to so something that wont work is ridiculous!! And not to mention, cruel too! People have pain. Its a fact. That's why they have pain medications. They are to treat pain.

My husband is dying. He has Huntington's Chorea. If you aren't sure what that is, its a genetic disease that destroys the brain and spinal column. It doesn't cause pain that I know of but his body was abused his whole life from the work he did. He worked very hard his whole life and had to go on pain management. He was taking 3-10 mg methadone and 2-25 mg tramadol a day. They finally upped him to 3-5mg Vicodin a day and slowly (and I mean very slowly) upped him to 5 a day of the 5 Mg's. So they finally upped his Methadone to 4 a day but a few months later, downed it to 3 again. He is in pain as I am. He says to me, "In dying, what does it matter what I'm on"??? I have to agree.. Why do we have to suffer if we are in pain and suffering?????? I think what its going to come to is us people are truly in a lot of pain and not faking it like the abusers are will have to stand up, or sit in our wheel chairs and fight for our rights as pain management patients. Because I'm sure if the government has their way, we will all be suffering.. They don't care from what I've experienced and it also sounds like a lot of you have too!!!! It really pisses me off that those of us who are suffering, will continue to suffer because the government wants to be in our business where they don't bloody belong. Stand up for your rights!! I hate the people who have ruined it for us pain patients who take our medications as prescribed and follow the rules. Its the ones who have addiction problems over pain issues who have really messed it up for people like us who have severe pain.. I know many people like that. And I hate to say it but people who honestly take their medications as prescribed are lumped in with addicts...Those have addiction issues more than pain issues. That's why it took me so long to find my pain physician.. I do feel for people who get addicted. Addiction is a disease and people who are addicted need help, badly.. But they shouldn't put pain patients in the same category as addicts. If I abuse my medications, then call me an addict. Until then, I and my husband are pain management patients!!!!

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24
Sad in Sunny Marci Island Says:
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I too have severe pain. A lot of the posts that I've read are people complaining of pain, but not doing anything about it. I have been in pain for 8 years, it started with what I thought was horrible arthritis in my fingers, knees and back. I went to a pain mgmnt dr and he STARTED me out on 240, 30 mg Oxycodone (7 a day), 90, 10 mg Diazepam (3x a day) 30, Lunesta, (at night), 120, 350 mg, Carisoprodol or Soma (4 x a day).This works the best out of all my meds. It took care of my pain, but I have a very high tolerance to pain meds. So after 3 years he upped my Oxys to 320 a day. My knee pain after 2 years with this Dr did not get ANY better, I found out I had a torn miniscus & I was losing the bone in my right knee. A year later, I had to have surgery again on the same miniscus & they said my knee was worse than it was in the last MRI. The pain meds were not touching the pain, I think it has to do with MY tolerance. I started to get debilitating migraine headaches, so he prescribed me another prescription called Sumavel Dose Pro, it is an air based inj. that I use on my leg, it feels like a bee sting, but they work in seconds. About 3 years ago, my pain mgmnt Dr just up & split town. Needless to say, I had to find another Dr so i decided to use a pain mgmnt neurologist because of the headaches and fibromyalgia. Now I managed to do something awful to my back. He took one look at my chart, that I was lucky enough to get from the nurses cleaning out my old Dr's office, & my Dr asked me how I was still standing up with this much medication in me? I told him I didn't feel any different than he did except that I was in excruciating pain. He cut my meds WAY BACK the first day that I saw him, believe it or not, my pain was less in my knees, I'm going to need a knee, but now I take 3, 60 mg ER Oxycontin, 4 15 mg Oxycodone for break thru pain (mostly because of a botched titanium disk that I had put in August 3rd) & it didn't work. SO MY DILEMMA IS: I'm pretty much immune to my meds, (& I take Lyrica, but after reading one of these posts, I will most likely go off of that too & it screws up with SHORT TERM MEMORY LOSS, ill just have to deal with my fibromyalgia. I didn't know weight gain was a side effect, I can't remember any thing & I couldn't wrap my head around why I gained so much), I'm having surgery again in 4 weeks, Dr is putting 3 rods screwed from my tail bone up to L7. I KNOW my meds won't work. The Fentanyl patches that I got after the last surgery only lasts 2 days & it really doesn't help the pain, I'm almost tempted to use two Fentanyl patches at once, this is a much complicated surgery.There keeps being mention of another drug in these posts, I can't remember it now, but I'll try to edit this when I find it. Do they still make Secanol? Is that for pain, or just to help for sleep? PLEASE, for all you people out there that are taking 80's & don't think you can, I didn't see a difference with the Dr cutting my Oxy 30s to 15s & my Oxycontin's from 80's to 60's, & before my back surgery in August, I was on 2, 60s and only 3, 15's a day. Had an epidural shot in my left lower back yesterday, have to go back in 2 weeks for another one. Yesterday's shot didn't even work. PLEASE HELP???

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25
DreamY Says:
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I seen someone telling you to try the patch which baffles me. Trust me. I know what I am talking about. You DO NOT. I REPEAT DO NOT WANT TO EVEN CONSIDER THIS. It is 50x stronger than other opiates. You just try getting that monkey off your back. I lost 70lbs in 1 year. I'm down to 94lbs! ! Well I was 3 wks ago. I am now already up 19lbs. Which does scare the crap right out of me. Lmao. My sz 0 jeans that I wore 3 wks ago no longer fit. Just praying I cut out all the eating soon. But after not eating for 5 yrs other than once every 5 or 6 days (and I'm a type 1 diabetic) so I am enjoying actually trying to gain weight for once in my life. I went from sz 0 to size 2 soooo fast. Sorta freaking me out. And I never ever abused my patch. Wore them as prescribed. But he had me on 100mg patch every 24 hrs instead of the intended 72 hrs.

But my Dr is a major quack. We have a shortage of Dr's here and all 4 of us still derostered (fired) him 3 wks ago. 3 of us insulin dependent, me and kid's and hubby had kidney out last month. So obviously we all really need a Dr. That's how bad and not to mention veryyyyy touchy too!!!! We'd all rather be without a family Dr than to remain with him. He tells us our neighbors diagnosis. Which is sooo highly illegal. I've recorded my last 8 monthly visits. I've got sooooo much on tape it's not even believable! Anyway I've obviously went way way off track here. Sowwie.

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26
zaborav Says:

Try Palladone SR hydromorphone or the Canadian HydromorphContin. Available up to 24mg, 32mg has been withdrawn.
Otherwise, why not consider immediate release oxycodone on a qds basis?

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27
Angel Says:
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Hi, I got injured on the job, tried therapy and back needles which didn't help. Herniated disks in my neck & back. I went from 40 mg OC to 60mg ×2 a day for 15 yrs. Paid by OWPC. April 2016 I was let go of because of a loop hole..the 2 and & 3rd referee BS Dr. Been 6mos no meds BC no insurance.. I'm lying on my back 90% of my miserable life suffering and wish I would just die in my sleep. Politicians should focus on OWPC who conceal patients from their only source of health coverage..My pain is worst or equally to all here..I understand. Government & Drs should feel what we feel for just one day! I hope they all die.. because thats what I wish for tonight so it can be done with. No one should suffer this agony.. Suicide runs in my family..but I won't open that door because of my kids & Gkids who I haven't seen for 3 yrs due to travel limitations.. Can't type no more my emotions got the best of me I can't see the letters anymore.. A FAM member of mine is searching the underground for a replacement.. I'm afraid he's gonna get caught an go to jail or hurt out there..I'm done..see you in the next life..

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28
Mac Says:
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I take oxycontin ER, 40mg, 3x a day, and oxycodone 30mg IR 3x a day for breakthrough pain, plus Soma 350mg 3x a day (muscle relaxer that works great in combination with oxy IR). I have Blue Cross insurance which is terrible now, used to be great. As if April 1st 2017 (last month) blue cross stopped covering my oxy ER. I went from paying $30 a month for 90 pills to now $1093 for it a month. It's breaking me but the only thing blue cross will cover now for ER is morphine sulphate. Last month I asked to try it because it's a difference of $10 compared to $1093!! My Dr prescribed me morphine ER 60mg, 3x a day. By day 3 I was at between a 20-30 on the COWS scale, sick as hell. All I had to combat it was my 30mg oxy IR. I was living on my breakthrough pills only. The morphine did NOTHING, even when I took 2 at once to help the withdrawals. I went back 15 days after being prescribed it, turned over all the morphine I had left to my pain dr,... He took 1 look at me and said "you look like s***". I begged to be switched back to the oxy ER, and he took my meds and wrote me an immediate script putting me back on the oxy ER.

Almost had a stroke when this pharmacy told me it was almost ELEVEN HUNDRED DOLLARS. But I hadn't slept more than 2 hrs a night in 2 weeks and was constantly either semi ok from the breakthrough pills, or very sick in between. Plus it took me 4 Tylenol PM just to get that 2 hrs sleep. The bioavailability of oxy is around 90%, with morphine ER in oral form it's around 10%. That's what the problem was. As soon as I filled my script I was feeling great again, rebound pain gone, and now sleeping 8 hours a night again. I honestly don't know why they even make morphine in oral form, totally useless, especially being dropped 120mg of oxy overnight... I hear the immediate release morphine at 6omg would've possibly worked for me but then I would've lost my 90 oxy IR a month breakthrough. So to control my pain I now have to work 5 overtime shifts a month JUST for the 1 prescription. The 90 immediate release breakthrough pills of oxy only cost me $10. It's just unreal. Big pharma are just legal drug dealers. 25 cents for each pill and then sell them for $12.50 each to people who are barely covering all the bills and payments to live. They're bastards. Greedy bastards. And the insurance company thinks they are doctors and can dictate to a patient they never met and have no medical training on what medication the patient needs. Why even go to the Dr then? It's getting totally out of hand.

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29
Livingwithcancer Says:
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I feel you. The abusers are the ones that have done this to us, and that in cludes the doctors. I just with in the last couple months had my time release upped to 40mg. 3x day. You can deff. Tell when it's not working!

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30
Cecilia Says:
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Dear Doc,

I think the government getting into the middle of Dr and patient care is horrible. That is not the problem. It is when Dr's strip medicine from patients that things get horribly bad. That is when they go to the streets looking for relief. The government needs to bust the dealers, not the Dr's who are trying to help pain victims.

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31
HOUSE Says:
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Re: shirley (# 2)

Stop typing in CAPITAL LETTERS, it's annoying! Also, you should really think about using Auto Correct... You may go now.....

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32
Sue Says:
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Would recommend Opana Oxicontin? I have to order them from my pharmacy the generic brand.

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33
Ty Dollar Sign Says:

Re: shirley (# 2)

The only people reaping from litigation against pill mfr.'s are the crooks running the cities and states, NOT the actual people who were lied to and told that the drugs weren't addicting, oh no not them. This world is now A** BACKWARDS.

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34
Ty Dollar Sign Says:

Re: shirley (# 2)

The only people reaping from litigation against pill mfr.'s are the crooks running the cities and states, NOT the actual people who were lied to and told that the drugs weren't addicting, oh no not them. This world is now A** BACKWARDS.

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35
Ty Dollar Sign Says:

Re: Mac (# 28)

Serious question, how do you even work under all that medication? You're on some serious strong sheet so no wonder you looked like sheet, you were in withdraw. People don't ever think about what would happen if they can't get their meds. anymore when they start out and agree to take all that. Sorry, but that is a lot of strong medication and I don't know how you can even perform at work.

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36
Ty Dollar Sign Says:

Re: Sad in Sunny Marci Island (# 24)

Geezus how did you even function on the 12 oxycodone 30 mgs alone???? My God that is some strong sheet! I used to take that back in 2011 and very quickly became addicted to it and it made my pain 10 times worse! The more I took the worse the pain became. I only take 3 hydrocodone per day now and have been on the same dose for 8 years! I also had a torn miniscus and never got any more stronger pains or anything, I elected not to have the surgery and it did get better but still swells and hurts sometimes.

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