I have been diagnosed with obstructive sleep apnea, but since my stroke in 2009 I am also having attacks of central apnea - I just stop breathing when asleep or resting flat on my back.
I might add that CPAP has not helped me at all for obstructive apnea - to such an extent that the insurance co. took it away when they looked at the data stored therein.
Acetazolamide is used off label to treat central sleep apnea and altitude sickness, since it seems to enhance the body's ability to maintain it's usual absorption of oxygen.
So my question is this: Is there some kind of law that prevents average doctors from prescribing drugs for non FDA approved uses? Or is it insurance companies?
What kind of doctor would I need to go to be treated with this drug or some other respiratory stimulant? Some kind of specialist? What kind? How can I find a doctor who has enought experience or knowledge - in a hospital, in a medical school?
What do you say?
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