Tamoxifen Too

Updated

I did five years of this as I was advised that this would help. I think I had more things wrong with me in that five years than I'd had in the previous 60!
I did ask, 'Why five years?' and was told that that was considered the right amount of time. ??? I'm not sure whether it was doing me good, or the drug companies, but when you are first diagnosed you are frightened and believe whatever they tell you.
The surgeon told me they don't use the word 'cure' - that was encouraging - but the radiologist told me I could possibly never have anymore problems now that it had been dealt with. I chose to believe the radiologist.
I did ask about the alternative drug Arimadex, but was told it causes bone thinning. I did get hot flushes again when I was on Tamoxifen, which had disappeared prior to taking the drug. I also got that heavy feeling you get before a period and an examination revealed that the lining of the uterus had thickened, but was told this was normal, nothing to worry about and it would thin down again when I stopped taking the drug.
I've been off the drug for 9 months now and feel fine.

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1

Thank you for sharing your experience with this medication. Do you feel like Tamoxifen had a serious impact on the quality of your life? Your feedback might be helpful to others on the site who are still on this medication or are have considered taking it.

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now they are saying 10 years is better to be on tamoxifen. Really? I was told by my oncologist that statistics show a greater possibility of extended life if you take tamoxifen for 10 years. What tests can be done to determine if you truly *need* 10 years of it? I'm wondering if it's something cooked up by the pharmaceutical companies for more money? After taking it 4 years, I thought night sweats would get less, but they are still frequent and hot!

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