Side Effects Of Bactrim (Page 22)

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I need to know of any side effects that may occur while taking this medication.

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421

Re: Chris (# 420) Expand Referenced Message

My heart goes out to you. Sounds like we have had a similar reaction and we were on it for about the same time. Sometimes I wonder what would have happened if I would have actually completed the whole course instead of stopping half way into it. I wonder that would have at least preserved the gut microbiome distribution.

Question for you. How are your kidneys? Mine happen to he on borderline stage 3 I wonder if I had some kind of toxic shock and my kidneys couldn't have cleared it in time. I wonder if there is some correlation with that.

Yes, It is very frustrating and I have had the same responses from doctors saying that it cant have been the Bactrim. Yet is is well known that antibiotics mess wiht your very complex gut microbiome and yet no one except for the naturopathic community talks about that. My next step is to focus on that. Im even considering FMT but its not approved by the FDA for other than C. Diff, so I will have to do that on my own. I'm going to go to a naturopathic doctor in about a month to have my gut microbiota analyzed.

Another question. Do you have loss of sensation too? Or is your neuropathy only pain and tingling? It feels like the brain fog and tiredness are coupled to the neuropathy. I do feel like my dizziness has gotten better and is on a positive trajectory. The loss of feeling is so depressing. I have also developed ED because of the loss of sensation which of course also contributes to the depression even more. This whole thing really broke me.

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422

Re: Kurt (# 421) Expand Referenced Message

I will chime and tell you what I did to get over it. It took about 3-4 months to get over 95 percent of the symptoms. Some days I still feel a little off and lethargic. About a week after finishing Bactrim I had a dull buzzing headache, blurred vision, severe anxiety and depression.

I basically treated it like the Bactrim had wrecked my gut biome. I did some research online as to what would help restore my gut biome. I followed the following protocol for sixty days.

Every day - 1 tbs psyllium husk, 1 tps acacia fiber, 1 tbs inulin, and I then alternated modified citrus pectin and glucomannan, 1 prescript assist and 1 VSL #3, 1 serving amazing grass green powder.

In addition to this, I got over my fear of having a cardiac arrest, even (anxiety) and started taking some boxing classes. As for diet, I was eating two large raw salads a day. Kale, beets, peppers, onions, tomatoes, three types of sprouts, oregano, s*** tons of garlic (my wife hated me for this), broccoli, cauliflower, whatever I could find that was raw. The dressing was a good olive oil and Bragg's apple cider vinegar. Eventually, the headaches went away, the anxiety went away, the vision became normal and I feel pretty good again.

Now, as everybody on here. I have zero way to prove it was the Bactrim that caused my symptoms. BUT.... it was the only thing that was changed in life prior to having the symptoms. I think restoring the gut biome, eating the raw salads, and sweating profusely through the boxing classes "cured" me. But, there were times I wondered if this is how I would feel the rest of my life. So I get peoples concerns.

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423

Re: Brant (# 422) Expand Referenced Message

Hey Brant. Thanks for the uplifting hopeful response. Yes i agree, that this has to due to the gut microbiome out of balance - I'm so glad to hear that your approach worked! The more I read about it the more it makes sense. over 90% or your neurotransmitters are produced in the gut and there are over 500 different bacteria strains living in there. Taking the bactrim was like clear cutting large swaths of the "rainforest" living in our guts.

Anyway, like you I am also focusing on a heavy pre-biotic diet. I started a few weeks ago and i definitely noticed some improvements in my dizziness. Like you said it takes time and patience. They say its not uncommon for it to take a year to get your gut back into balance. And if you keep feeding your gut foods that feed the bad bacteria (sugars, etc) or contribute to the negative balance, things will never improve.
If you do a google search on pre-biotic foods, you will come up with a lot of the foods you put in your salad. kale, onion, garlic, acacia, citrus pectin, etc... yes the key is raw foods. I've also been eating salads but not enough and not the right pre-botics. I also am drinking sever pre-biotic shakes every day (Genesistoday, Fiber, Garden of life Raw Fiber) which have a lot of the stuff you mentioned. I also eat a lot of sauerkraut, kimchi, kimchi juice (gut shots). I think i need to up the garlic though. I'm single so i won't have to worry about offending anyone :)
What is "assist" and VSL #3?
And yes being active and getting your sweat on is key too. The boxing class sounds like a very good full body routine.

Its interesting that you had problems with your eyes (blurryness, etc) too. That seems to be a common problem with many of us. Mine came on several months later.

Wishing you continued improvement.

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424

Re: Kurt (# 423) Expand Referenced Message

Prescript assist and VSL #3 are both pretty popular probiotics. Oh, forgot to mention there is a guy in town that sells kraut, so I was also eating a lot of kraut.

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425

Re: Kurt (# 421) Expand Referenced Message

Kurt, that's great that some of your symptoms seem to be subsiding. As far as loss of sensation goes, I do have some of that. I had numbness for a while that caused pretty bad incontinence and constipation for about 6 weeks. This has resolved for the most part over the last 2-3 years. I still don't get a strong urge to urinate. I wake up a few mornings a week with numb fingers and sometimes a fingertip will remain numb for the day. My hands are blue/purple quite often, whether they are numb or not. I assume my kidneys are ok. The only thing i notice is a fluctuation in urine quantity at night. Sometimes i don't go, other times i go 4 times. Not sure if I'm just paying too much attention to things. I have tried many diets over the last 3 years. I went one year with no milk, sugar, low carbs, and lots of omega 3's. It did seem to help but i still had flares. I was always a runner but since this happened I get lightheaded during a 25 minute walk. I do work and try to stay active though. Thanks for your response. Hopefully it resolves for us all..

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426

Re: Kurt (# 418) Expand Referenced Message

Hey Kurt, sorry for the delay in response. First want to say that I am off all of the drugs (mostly prescription antihistamines and ranitidine and singulair....which I guess is an antihistamine). Last thing I went off of was singulair about a week ago. I saw a GI and an allergy immunologist and both said probably should get off of all these and let my body heal. The Ent who put me on this stuff had good intentions and thought it might make me heal faster....It Did Not!!! Where I am right now is I seem to be getting better slowly, but very slowly. It's like it has been said before on this site, 2 steps forward, 1 step back. After getting off all the above medication, I do have a new issue and that is moderate abdominal pain "all the time". I have lost 40 Lbs since finishing the Bactrim. I thought it had settled in at 180lbs.....but hit 174 in the last 3-4 days. Right now back up to 178. GI wants to do a colonoscopy but not sure I want it done. Weight loss is concerning but if I can't get it to stabilize I might go ahead and have it done. Pretty sure it is just the Gut very messed up from Bactrim and all the meds. Started off eating good but have now slipped a little and might need to go back to 3/4 paleo or full paleo. KURT to answer your question about my fingers, don't really know if they tire quickly because I honestly don't use them much. I am retired and have the luxury of sitting home most days and reading and watching golf (as opposed to actually golfing 3-4 days per week like I did pre-Bactrim). I think Kurt also asked about fingers tingling? I will say that when I type messages or emails like this, I do feel a little tingly at the tips. But as soon as I stop it stops tingling. I have tried going to the gym a few times since the problem occurred (5 months ago) but it's hard for my body to do much because of soreness. I know I need to start slow and increase slowly. Pain gets in the way a lot. As an example, most days, if I get down on the floor, I cannot get up without help from a table or person. I may have already posted this but that was probably a month ago so thought I would report it is still the same. My prayers are that all who are affected by this bad drug will see full healing and come out stronger on the other side. I am going to try to start getting to the gym more starting tomorrow. Sounds like it is one of the things that helps cure mind and body. Thanks to all of you for posting your experiences, it is a help to all of us. I will end by saying that all of the doctors I have seen tell me they have never seen this stuff last forever. Hang on to that, take care of yourselves, stay positive and keep the faith. Will post as improvement occurs.

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427

Re: Kurt (# 418) Expand Referenced Message

Kurt, Scott again. Sorry I didn't completely answer your question. As far as moving fingers, I can move them quickly and have never tried to move them until failure. My hands started out being very swollen and felt tight when I closed them. At this point they are not nearly as tight which is a sign of progress and that the inflammation is receding. Also forgot to say that fatigue is still a factor but better if I keep myself busy doing things around the house or go into town. Mobility overall is good, just hard getting up and down, even from a sitting position. Knees, hips and all joints are sore. Crazy thing is I have had several blood tests and the CRP test (test for inflammation in body?) always comes back with normal numbers. Another example of what I am going thru....hard to reach forward from sitting position to grab something off of the table. Thanks for all your posts and input. I will try the sauna as you suggested for the joint pain. It's been a while since I read all your posts. Can you remind me if your symptoms included major weight loss and abdominal pain? Thanks again KURT for all your help.

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428

I hate bactrim. Got prescribed it for a uti. Felt fine the first night and my fever even went down. The next night I felt horrible. Ringing in ears. Dry eye. Dry mouth. Stabbing and burning pains all over. Couldn't sleep.

I read up about Stevens Johnson syndrome and it freaked me out. I stopped taking it after 5 pills but I'm scared. Its a 5 days since i stopped taking it and im still having effects. My skin is doing weird things. I now have a blister that popped up on my left foot, and eczema on both feet. Little yellow bruises are popping up even though I haven't injured myself.

My eyes are still irritated and I still get random pains all over my skin.

I'm taking benadryl. I managed to get a prescription for prednisone in case I get a terrible rash or something. I just wish I never took this horrible med.

I'm now on macrobid which I've taken before without incident but now I'm even scared of that.

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429

Re: Swg (# 428) Expand Referenced Message

I was prescribed Bactrim for a UTI also. My skin began to react (itchy rashes) after the second Bactrim tablet. I immediately stopped taking the Bactrin and started taking Benedryl. It took the better part of a week for the rashes to resolve. However, even now, over a month later I randomly present similar rashes. They may or may not be related to the original Bactrim reaction, but they are certainly suspicious. Benedryl (or its generic equivalent) still is effective in treating the rashes. I use both the oral Benedryl and the gel form applied directly to the rash areas. Good luck!

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430

Re: Kurt (# 423) Expand Referenced Message

Eye problems was my first symptom, along with ear ringing. My eyes were blurry, dry, irritated. They're still irritated enough that I can't wear my contact lenses but I'm hoping will get better. I've been off the bactrim 6 days now and still feeling weird

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431

Re: Swg (# 428) Expand Referenced Message

Its crazy how Floroquinolones give people so many of the same symptoms as Bactrim/Sulfonimides, but all the attention is on them. Doctors have a hard time believing that Bactrim is a culprit..

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432

Re: FeedleDee0 (# 429) Expand Referenced Message

It's been over a week since I stopped the Bactrim, and my skin is still itchy, like crazy. My ears are still ringing somewhat. I stopped the Benadryl because I also saw that tinnitus is a side effect of Benadryl, and I didn't want to make it worse..ugh

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433

I was given Bactrim DS over 2 months ago and I broke out with the blistering rash all over my body again and the blisters in my mouth 2 months later is this normal. The dermatologist says it can take up to 6 months.Does anyone have any advice for me this is the worst thing I think I have ever experienced and I have had some major surgeries.

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434

Re: Kris (# 417) Expand Referenced Message

It's been about a month and a half since this, and my symptoms are still with me but slowly improving. My GP, a woman doctor (they did a study and woman doctors as a whole listen more and talk at you less, just saying) and she has worked with me very patiently and admitted doctors as a whole don't know much about severe Bactrim symptoms because it's unusual. Still the odd rash on my neck and extreme skin sensitivity. I press my face gently with finger and it leaves a little raised welt. My immune response is simply in overdrive, and this expplains the ringing in ears and tingling in hands and feet as well. She said it may take months for everything to calm down, but it will happen. She recommended gentle exercise and yoga, eating a very clean diet (no processed foods, carbs, sugars easy on the caffine), and doing everything possible to reduce your anxiety, as it makes things worse. Meditate, lots of rest, and she prescribed Xanax for a short time. You just have to wait it out, and start going out in the sun again gradually. I hope this helps. The doctors who announce "it can't be Bactrim" are probably well meaning but also suffer from "I'm the doctor so I can't possibly be wrong." Find a doctor that listens and doesn't dismiss you as a layman who just needs to listen to the doctor. You'll feel better.

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435

Re: SWG (# 432) Expand Referenced Message

I took bactrim ds in Feb '17 and felt like I was being poisoned for 3 days then called the Dr... He said stop taking it. I had broke out with spots about size of quarters on my legs and one on my arm. They were reddish purple. That was 8 months ago and I still have spots just not as bad. I also still itch and have fatigue.

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436

Re: Brant (# 422) Expand Referenced Message

did you put all this in a shake?? and drink it together...how did you take all this?

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437

Re: Dawn (# 436) Expand Referenced Message

Yes, I drank it all together in a shake each day with a meal. I did some research on the internet and came across the protocol basically in two different places in order to restore gut flora.

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438

Re: Brant (# 437) Expand Referenced Message

Even the probiotics or did you do those separate? I’m being tested for Sibo due to Bactrim and my stomach is torn up so much I have pain eating

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439

Re: Dawn (# 438) Expand Referenced Message

I just took everything all together with a raw salad. I could probably find the links to the protocols I combined. I really think that protocol in combination with finally getting back out and exercising, coupled with raw salads made all the difference. I also took Glutamine which is supposed to build the wall of the intestine. Not sure if I mentioned that in my original post.

Feel free to ask more questions. For lack of better terms I was scared s***less and wondered if I would ever get better. I did!

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440

Tonight is the one year anniversary of my reaction to Bactrim. I took only one pill for an infection (I had been hospitalized with a staph infection and had finally finished my antibiotics when my surgeon decided to start another round to be sure it was gone). I had an immediate severe reaction and went immediately to the hospital. I had swelling of my face, lips and throat, a rash that worsened over the following few days making my skin red like a sunburn. Eventually, a lot of it peeled. My legs had excruciating shooting pains from my hips to my feet. Over the past year I too have had countless evaluations to rule out auto-immune diseases. Doctors will not acknowledge that it is Bactrim and my surgeon actually discharged me citing the fact that I don't react well to antibiotics! I still have constant hip and leg pain especially if I sit or walk too long. I still get occasional flare-ups of the rash and the dizziness and lightheadedness had lessened but last night I had a frightening bout and today has been miserable. I have tried many of the suggestions on this site and will continue to do so. You all validate that this is real and it does give me hope. I never would have thought a year ago that I would still be suffering one year later. It can be overwhelmingly depressing.

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