Savella Class Action Lawsuit

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Hi, I was diagnosed with chronic fatigue syndrome about 5 years ago and was put on Savella for about 2 yrs. I developed tachycardia and chest pain and will be on a beta blocker for the rest of my life. Anyone else have problems with this one?

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I have read stories from so many people about their terrible experience with Savella, but none have had the same symptoms that I did. I took it for a month in 2011. After the first week, called my doctor crying because I was in so much pain. She said it was because I was not on the full dose. After two weeks I had to go to urgent care, it was a weekend. I could hardly walk, the pain was unbearable, my legs and feet were so swollen. I was red and purple. They said I had edema. My doctor started weening me off of Savella. That took two more weeks. My hands started swelling and turning purple. I could not close my fingers. I ended up taking three weeks off of work. Over the period of about a year, I was in the ER three times. I saw every specialist in the city. I had tests for everything. I lost feeling in all of my fingers. If I laid down to sleep, my arms would burn and go numb. I had to sleep sitting up. I lost 50 pounds. I couldn't lift anything above my waist. I couldn't grip anything because I could not close my fingers. It was hard to walk, I felt like I had to move in slow motion. I had an intolerance to cold. Finally, I got in to see the RA doctor that had originally diagnosed my fibromyalgia several years before. He put me on prednisone and methoyrexate. I started getting better and could function again! I had to have five MRI's, my arms legs and hands. They showed I had severe inflammation in my tendons and muscles. I was diagnosed with an "orphan" autoinflammatory disease....which I did not have before I took Savella. It is similar to Lupus. It is now 2015, I am so much better! But I still have on going problems. I had to take prednisone for two years. It is a wonder drug, but I am happy to be off of it. I contacted two different lawyers about my troubles with Savella. Neither would take my case. My doctor bills were over $50,000....and I had great insurance. I had to file bankruptcy.

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2

You certainly did have problems with Savella...I actually had severe muscle weakness from it as well, and I got an infection in a tooth that had to be extracted, plus a severe kidney infection while I was on it. I also contacted the lawyer that helped me with my case against Yasmin (which gave me a DVT), and he said 'no' to suing the Savella people. What is going on?

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3

I was put on Savella for Fibromyalgia and had to go to the ER with excruciating headache, elevated BP 200 and something over one hundred and something, nausea and vomiting, shortness of breath, extreme sweating. I believe if I had not gotten there when I did I would have suffered a stroke or died. I was put on a titrated pack and told the doctor that I was having problems. He insisted that I continue to take it, "my body would adjust." I stopped taking it on my own but by that time it was too late.

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4

I am truly sorry to hear of your difficulties. I have been on Savella for several years now and it's saved my life. I was experiencing all the same symptoms you describe regarding muscle weakness, barely being able to move (slow motion), breathing difficulties, swelling, etc. and also experienced easily overheating, extreme pain, lack of sweating, and others...all BEFORE starting Savella. Some days, the only way I could get up the stairs, was to crawl. I should probably mention that I was overweight, but not by a lot. All of these issues have been in check since I started taking Savella. If it were taken off the market, my quality of life would be back to zero...I would be back to being able to do nothing. Now I can do everything I want. The primary side effect I've experienced is a rise in blood pressure...I have that controlled with an ACE inhibitor and all is well.

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5

I took savella for fibro which I did NOT have. I was diagnosed with it after they ruled out everything else, except that what is 'normal' for thyroid wasn't normal for me and my adrenal glands weren't functioning properly and I can't process protein like most people. I found all of that out by going to a natural practitioner who actually looked at my blood instead of running it through a machine to determine what 'normal' is for everybody. He put me on all natural supplements and in 10 days I was pain free. But prior to that I had been on savella for 10 months.....I did not have the severe issues that you all had, but I have had the tendons in my wrist weakened. I even had one rupture while I was lifting weights (which was a listed side affect). I have lost over half the hair on my head and it has never grown back. I now have costochondritis in my chest, which I know is because of the fact that I have EDS and the savella made certain things worse. I can live with the wrist, as I have been off of the meds now for 5 years, and all natural supplements for 4 years and still pain free, I just have weak wrists now and it makes for doing my job as a photographer with professional equipment (which is heavy) hard to do sometimes at long day weddings. But, I get it done. The chest issue doesn't happen all the time, but I do have snapping and popping that hurts when it does flex, but what I really can't stand is the fact that I had a beautiful head of full hair, and now, it is see through. No matter how I style it, it is see through, and my eye lashes are so puny that even mascara does NOTHING. I hate going out in public because my hair is so thin, the wind blows and its everywhere and my scalp is visible. Sure would be nice if they would do something with a class action lawsuit!

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6

There isn't any movement on a class action suit against Forest Labs/Savella, and I am truly sorry for the affect it had on you. Can you try using Latisse on your eyelashes? I had thyroid cancer and my eyebrows and eyelashes are sparse as a result, but Latisse made my lashes long and dark. I also used to use women's rogaine product on the top of my head to thicken my hair, but I don't seem to need it anymore.

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7

I have been on Savelka for 7 years, no problems whatsoever. Since trying to go off, I've had uncontrolled tachycardia, pain and weakness so bad I cannot even fold laundry, and episodes of shortness of breath that have sent me to the ER twice, a cardiologist and pulmonologist. If you EVER go off, do do over six months to a year, please.

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8

Omg. Within 2 weeks of starting Savella I started having chest pain. I thought it was due to stress. After being on it for over a month I was rushed to the ER with chest pain and shortness of breath. My bp and pulse were theough the roof. I have fone off of it and have been off for a few weeks, but am not quite back to normal yet. I also seem to have developed a case of asthma at 42 with this.

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9

Just got abruptly taken off Savella after diagnosis of SVT...on beta blockets developed high BP...ablation next week

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10

I had very similar results, I had swollen testicals which I had to endure excruciating pain for cpl weeks ,after telling doctor, going to er ,having 1000 test run,and ultimately taking myself off of it (not advisable of the doctor) I suffer with headaches beyond belief, never had any issues like this ,soooooo wish I never took the savella ,big mistake ,will be in line at lawyer office once its available, I'm sure it will soon BAD DRUG !!!!!

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11

I developed severe chest pain, high blood pressure and a high pulse after a month on it

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12

I am just so sorry for everyone that have problems from this stuff. I would feel pretty good now if it wasn't for the SVT that wakes me up from a deep sleep many times a night.

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13

I had similar testicle pain. Tested me for every STD known to man. I was in soooo much pain I had to use Ice. I eventually took myself off. My wife, now ex, even thought I had been sleeping around and this drug caused my 14 year marriage to end. I am pursuing a lawsuit at this time on my own.

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Re: Gozer (# 13) Expand Referenced Message

I was put on Savella several years ago. My biggest complaint was that my mouth stayed SO dry that I couldn't even talk. I was constantly drinking water and using Biotene. I would have had to drink that stuff constantly to help. Nothing helped! I didn't even take it for a year, I think and all this happened just within that time. I have always had great teeth and no cavities. Right after I went off of it, I went to the dentist I had 5 cavities. Right after that, all my top teeth starting chipping off and had to be taken out. Then I had only my two eye teeth left. Got a partial for that and didn't get to wear even a year because my right eye tooth has been loose for months, causing pain and soon after that I lost a huge chunk in the left eye tooth. Now I'm paying a fortune to have all my teeth taken care of and having to get plates. I CAN NOT AFFORD THIS. There has GOT to be an attorney that will take this case. I am FURIOUS!!! I have dealt with the side effects of this medicine for over 5 years. SOMEONE, PLEASE LISTEN TO THESE COMPLAINTS!

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Re: Donna (# 14) Expand Referenced Message

Gozer, I also had to have a molar pulled and a bridge put on because of the large infected area I got when I was on Savella. I also had an unusual urinary tract infection that was difficult to treat. Not to mention the fungal infections of my fingernails, to the point that they were quite loose and painful.I believe Savella does something to the immune system and I haven't had infections since I got off of it.

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Re: Donna (# 14) Expand Referenced Message

I am still in pain trying to get these teeth pulled and still have to spend a fortune on a full set of teeth. Also, I had an infection in my big toe. I tried everything on the market, but eventually had to have the toenail cut off. I stay furious while dealing with this dental work I'm having to have done. I look terribly going out in public with these 2 teeth sticking out. Something has to be done.

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17

I developed major chest pin and probably would have had a heart attack, had I not stopped Savella. It restricted all of my blood vessels, also making it very difficult to breathe. This happened within a matter of months.

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My problem was that it made me suicidal. I wasnt on it for long and it became a compulsion to end my life. I found myself on the suicide hotline in the middle of the night in 2013. I was admitted for a week and they took me off Savella. Unfortunately it seems to have rewired my brain. I had one serious attempt but my husband came home early and found me. It's always in the background sort of like a whisper. People are shocked when they learn this about me as I'm a very positive person with a "sunny disposition". I have to list Savella as an allergy so doctors can avoid giving me a similar drug. To put it in perspective, it feels like an delicious dream that tugs at me. I would never say I'm suicidal, but I always have an exit plan. I wear a bracelet that says "STAY" Just in case the compulsion returns. Thank you Savella for my parting gift.

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19

Yes. My blood pressure went through the roof. I couldn't breathe. Almost had a heart attack. It's because it raised my neuroepinephrine, which narrowed all of my veins and arteries.

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20

Does anyone know where the Lawsuit stands and if anything is even being done about it?

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27

Was put on savella Tritiation pack & found my heart beating out of my chest extreme headache sweats walking around criticizing myself like a crazy person and becoming extremely agitated angry almost having blackouts with rage. The stuff is extremely dangerous, I’ve noticed quite a few of the informative websites that were up a few years ago that discussed the violence and aggression that Savella caused in menopausal women and post menopausal women have all been taken down. The power of big Pharma to change our access to information. Run like the plague if somebody tries to put you on this garbage especially if you’re a woman 55 or older. I can’t wait for a lawsuit because I actually had to go to court for trying to hurt someone while I was Huntsville. It could’ve put me in prison . And the doctor got away Scott free. Awful awful stuff

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26

I haven't a word about the lawsuit against Savella

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Re: Donna (# 14) Expand Referenced Message

Still trying to come up with the money to pay for a plate. Something has GOT to be done. I called an attorney and they were going to look into it. Haven’t heard a word. What a surprise!!!!

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24

Re: Colleen (# 22) Expand Referenced Message

I had rapid heartbeat, chest pains, hives, and high BP. They put me on right after taking me off lyrica for hives, high BP and major water retention in my legs. Was put on furosemide for water retention and had to have allergy shot at ER. Twice if I recall

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Re: Colleen (# 22) Expand Referenced Message

I'm sorry. I had to start all over, and now get acupuncture once a week and found some supplements that help, even just for awhile.

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22

I was put on Savella and had similar symptoms. After having bad reaction to Lyrica. It was like one nightmare after another. I’m afraid to try any other now.

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21

Re: Donna (# 20) Expand Referenced Message

I don't think there is a classaction suit on this stuff. If you survive taking it, you'll just have to deal with treating the cardiac symptoms or whatever it did to you.

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