Remicade For Takayasu Arteritis

8 Replies Updated

Conversation Starter

Efie Says:

am writing to you on behalf of friend of mine who has Takayasu's Arteritis and her doctors have suggested to be treated with Remicade.
From a little search we made ( we are not doctors of course !) we did not find anything mentioning that Remicade is used for her condition which we were told is very rare ( maybe 2-3 persons in a million).
Can you please provide us with some information or guide us how to proceed or even where we can find more information about her condition.
I would be very much obliged to you if you can give us some answers because of the rarity of her condition ( i think she is the only one in our small island).From what i read the above medicine has many side effects and she is very much concerned about this.

Thanking you in advance

Showing Replies 1 - 8 of 8 RSS Feed

Page of 1     Sorted By:
Leslie Says:

Please feel assured that this is a standard treatment for TAK. I've been on it for five years and know of a good number of patients that are on it too. It is an 'off label' use of the med because it is difficult to do a proper randomized trial of a TAK med since there are so few of us.

Best, Leslie

Was this helpful?     0     0  
efie Says:

Dear Leslie, I am very grateful for your reply. My friend has had TAK for years but because is so rare she just found out what was happening to her just last year. We would very much appreciate any information you can give us about TAK because she is very reluctant to use Remicade. She is afraid of the side effects.

Was this helpful?     0     0  
Leslie Says:

I personally have had no side effects. The listed side effects, including lymphoma, are thankfully rare. I trust that her doctor is fully discussing all the treatment options and pros/cons with her. There is a Vasculitis Foundation group on Facebook, as well as several Takayasu's arteritis groups -- look for Takayasu's and Taka---WHAAAA???!!!! on the Facebook search bar. Those would be good resources for her to tap. Where is your friend treated?
Best, Leslie

Was this helpful?     0     0  
Efie Says:

Dear Leslie, Thank you for getting back to me . My friend is treated in our General hospital in Cyprus.(Cyprus is an island in the Mediterranean) She is 42 . Her doctor says that TAK is still "active" She wants to know if u take any other meds besides Remicade. Of course we do not know where are u from but if u know of any clinic or doctor in Englad since she is planning to go to England in a few days. Thank you so much. :)

Was this helpful?     0     0  
Leslie Says:

I am greated at the Boston University Medical Center Vasculitis Center, here in Boston, Massachusetts USA. I personally don't know of doctors in England. She can email my doctor Dr. Peter Merkel who is a lead researcher and has connections around the globe. He may have a recommendation. His email address is pmerkel (at) You are a wonderful friend to be helping her...God bless.

Best, Leslie

Was this helpful?     0     0  
Reshma Shrestha Says:

Thanks Leslie, for the information. I have read lots of your post in Takayasus Arteritis Messageboard.
My younger brother is also having TA and he is 14 yrs old. The disease was diagnosed 3 months before. I need to know more about TA. Please help me out.

Was this helpful?     0     0  
Lavanya Says:

Hi, Please help me with the doctor or with the rite hospital to treat TAK in Bangalore, India as my younger Sister is only 16 and we have no idea on how to proceed

Was this helpful?     0     0  
sonny rivera Says:

this is so sad that there is no cure for takayasus my daughter has takayasus if any of you knows what will the best medication that will at least help her condition please share the information thank you

Was this helpful?     0     0  

Viewing page 1 of 1     Reply

More Discussions:

Is The Remicade Suitable For Scleritis Diease
Has REMICADE IV been tried as a treatment for SCLERITIS DISEASE? And if so, What is the result? Our doctor is advising. ... 1 reply
poly arteritis nodosa
my 13 years old daughter got massive bleed wiyh stool twice. When under gone through XRAYS, ALTERASOUND,ENDOSCOPY,COLONS...
Giant Cell Arteritis/Abatacept Study
We are interested in finding out whether abatacept has been successful in treating Giant Cell Arteritis, before joining ...
remicade & teeth
Has anyone seen any effect on their teeth when they have been on remicade for a long time. My dentist seems to think thi... 53 replies
Remicade antibodies?
I was diagnosed with rheumatoid arthritis and ankylosis spondylitis in 1998. By 2000 I was so crippled I could barely wa... 7 replies
Remicade and Kidney Cancer
Has anyone taken Remicade for Crohn's Arthritis? I also have had surgery for a small tumor of the kidney which was c... 2 replies
for chrones disease ## if i want 10 remicade vial, what are the discount price i got, ## I just had my first Remicade in... 2 replies
remicade and wheezing
Can i take remicade if i am wheezing ## Hello, Nazik! How are you? What do you mean by wheezing? What's causing it? ... 1 reply
Remicade Johnson and Johnson's Suck
I have Psoriatic arthritis and I have taken Enbrel and Humira and they gave me financial help with thier injections. I h... 1 reply
Remicade Johnson and Johnson's refusal Under Insured Patients
I have Psoriatic arthritis and I have taken Enbrel and Humira and they gave mefinancial help with thier injections. I ha... 1 reply

Post a Reply

No registration needed.
Simply fill out the form below.



 Optional, stays hidden.
Get notified when a reply is posted here.

4) Text Verification: *
Prevents SPAM.

Click here to show the question

This form will be submitted securely


Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use and Privacy Policy. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.

Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. This page was last updated on 8 August 2014.

We are committed to your privacy.

Copyright © 2005-2019 All Rights Reserved. MedsChat® is a registered trademark of Limelight Innovations L.L.C. 9888 W Belleview Ave #5000, Denver, CO, 80123, USA