Prolia Side Effects (Page 145)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Gloria (# 2879)

Well said, Gloria! I blame myself for falling for it, not researching and finding a site like this or Save our Bones, and I am a nurse! I allowed myself to be frightened into believing I needed this poisonous drug. Now I encourage thorough research before accepting the standard line.
it. There are a few instances when Prolia or any of these drugs are indicated, but it is a short list, such a people with a bone cancer that is a metastasis, on long term steroids, heavy intake of alcohol and that is it. The issue is most physicians prescribe it based on bone density alone WRONG, there are other tests to measure bone loss. Most of us do not need these bone loss drugs.

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Re: Sal (# 2878)

There are very strange effects people are getting which are not going away unless people find something miraculous to help themselves. I know of a woman in Spain (my student's mother-in-law) who gets mouth sores from it four years later (always they are on her outer lip) and a small tear keeps coming from her left eye. Everyone is very different. I am seeing improvement using ASEA to rejenerate cells of my body. I'm trying to be patient waiting for the "cruise ship feeling of walking" to go away and the movement always going on internally. That one seems to be the strongest. It was my final effect that came to me after my fourth and final injection. If I can get rid of THAT one, I can finally say I have been cured. (taking Coseva spray , which gets toxins from the body) Between ASEA and COSEVA, these are the only two things I have found this year to help me. I was getting worse instead of better after being off Prolia a year. How do side effects get worse with time instead of better?? That makes no sense! Amgen is the devil! I am glad you found help for yourself. Let's hope more and more people can come here with "cures" for those suffering from weird side effects.

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Re: Sal (# 2881)

Well said, SAL!

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Re: Sal (# 2878)

by the way Sal, look into ASEA for your joints. I can't believe the miraculous thing that happened to me when I started taking it!! over the past six weeks I have gradually been able to stop wearing a mouth guard and I can feel regrowth of skin on the inside of my mouth. I had been gradually losing all my inside mouth skin until I found ASEA. Now I am just praying for it to get the rest of Prolia out of me. I feel like I am halfway there!! (just google ASEA. People are recovering from all kinds of problems they could find no relief from. It's also good for bones and joints)

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Re: Andrea (# 2884)

I will do that, many thanks.

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Re: Gayle (# 519)

Did you ever end up with side effects from Prolia and did you take any more injections?

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Re: CLV (# 2886)

The side effects were life altering, and also a potentially life threatening hypocalcemia, which by the way three physicians blew off as Fibromyalgia. I went back to where I used to live to see a physician there, he saved my life.

No more Prolia or any other Osteoporosis drug. I am on a crusade to educate women about these drugs and about Osteoporosis so they won’t be frightened into it like I was.

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Re: Sal (# 2887)

I salute you as I am in the same quest. I had such a severe reaction from this drug that I am now struggling with the after effects. My normal co trilled asthma has turned into epithelial asthma and I have test to define if I have drug induced lupus with pulmonary hypertension. It has been hell and this is after one injection. This month on the 7th will be 6 months. I have now been told by doctors that it may take 1-2 years for the effects to subside or maybe never.

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Re: Dawn (# 2888)

I am so sorry that you are going through this.
As if I wasn’t foolish enough to take this, I went and took a second shot??. I allowed myself to be frightened into it even though intellectually I knew better. Anyway, that is about how long it took me to recover from my side effects, except for the joint damage, that is forever. I tell anyone who will listen about not just Prolia, but all of these Osteo drugs.

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Re: Sal (# 2889)

The saga continues. I had some kind of an allergic reaction last Monday. My eyes swelled way up and I looked like I lost a fight. I stopped the only thing that I had changed in the past month, my vitamin D. I had been told to double up on that when I refused the Reclass injections. The next day after putting prescription drops in my eyes I was covered with hives and my eyes swelled up again. I have been taking over the counter Benadryl and I am still trying to clear up my scalp. I don't know what will happen next. I see my Doctor on Wed and I am sure she will just say I am old! Any one reading this should know it has been over a year since I stopped the Prolia. First bad reaction to stopping was a terrible cough for 3 months.

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Karen Wadman (# 2890) --

It never ends for us, does it. I am so sorry. You are probably right, your Dr. probably won’t listen. I do believe that Prolia affects our immune systems.

Please keep posting.

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Re: Karen (# 2890)

I understand totally. I have had all kinds of adverse effects and I am almost 6 months post-injection. I am going to work to organize a class-action suit in Canada and though I know it will be difficult I will make enough noise to have those who created, sold, prescribed and approved sit up and listen and maybe if it affects their reputation maybe then this stupidity will stop. I just need to feel a little better in between the reactions. If possible but I have 2 years to get this on record and can assure you unless I die first from this I will. I also have some proof in writing that Prolia has caused my general health to deteriorate.

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Re: Dawn (# 2892)

Cheers to you. I wish you success, if you can include those o& us in the U.S., I’m in.
It is bad enough that this poison is peddled, but why do Dr.s not listen to us ? They tell us it is safe, then when we complain of side effects, they tell us no one else has complained of them. My Dr. was understanding of my decision to discontinue Prolia, but never came out and admitted m6 symptoms were caused by Prolia. This what happened with Opiates, Big Pharma convinced the Dr’s they are safe, and the Dr’s believed them. I myself am a chronic pain patient and was offered an opiate , this was early on , when I questioned it’s safety I was offered reassurance that it was safe, well, I , a “mere nurse “ didn’t believe it, why couldn’t the Dr.’s. ? I see a parallel here, the bottom line for Dr.’s, don’t believe everything Big Pharma tells them, and listen to patients. For patients, we need to educate ourselves, and be our own advocates.

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Re: Karen (# 2890)

You are not alone in this. I started to have allergy/sensitivity reactions to all kinds of ordinary things post-Prolia. Some of them were metal jewellery, underwires, elastic, mushrooms, soy sauce, and even a local anaesthetic. I worried that I might have an anaphylactic reaction to something I could not predict, something previously benign.
Two years later I can eat or wear anything I like. It was a very unsettling episode.

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Re: Sal (# 2891)

The storm is supposed to hit here in FL on Wed. and I have the Doctors appt. on that day. I will get back to all with her response which will be nothing much once again. Medicare doctors do not want to do anything for the money that they pay the doctor and that I also pay the doctor with co-pays. It will cost over $200.00 to this doctor and she will walk in and roll her eyes at everything that I tell her. I am going because the emergency doctor that I saw with that bad reaction was one of those not quite a doctor yet and she just had me continue using the drops that my husband uses that I had used in that emergency! I wonder how Canada manages with their health care? We are not doing well here in the U.S. at all. Medicare patients are frowned on because the doctor wants more money for that 5 minute visit!

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Re: Karen Wadman (# 2895)

First, I wish you well, and hope you don’t receive much damage.

On the state of our health care, I could spend hours on the subject. Do you know that most bankruptcy cases are do to health care costs ? My niece was financially destroyed due to their child’s cancer, they had insurance, to make things worse, she died anyway.

Anyway, in Europe, they have a different model, instead of a business model, their taxes support health and education. Their tax rates are not that different from ours ( I know because all my relatives live there ), it is that they prioritize.

Best wishes on resolving you issue.

I am happy to continue the discussion offline. I don’t know how to that though.

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Re: Karen Wadman (# 2895)

Our Healthcare system is better even with its challenges. Tell you 5 min doctor that you have a chat line with many people affected by this drug. You can use my history if you want. Good luck during the storm.

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Re: Sal (# 2893)

I will keep you appraised. Please stay in the chat group.

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Re: Dawn (# 2898)

In my efforts to educate people about Prolia I have often referred to this chat group, usually they say : “. But my doctor says I should take it “. How do we counter this ?

I myself became scared, and agreed to take it. The fact is, I always said that I would never take this, or any of these drugs, yet my emotions took over. There must be much more education. It wasn’t until after I experienced terrible side effects that I found not only this site and educational sites such as Save our Bones and Better Bones Blog.

It is hard to fight the big boys, i.e. Big Pharma., but I will never give up.

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Is Prolia worth getting? Should Prolia be off the market, is it that harmful?

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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