Prolia Side Effects (Page 140)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Verwon (# 1)

I have been suffering with side effects and adverse reaction since my one and only injection on March 7, 2019. I have had all the same symptoms as you and more. I ended up with angioedema of the face and much more. This is a horrible drug and I consider poison. Hope you do not have any further effects as this pharma company has no idea on the long term effects as they have not done any lonte clinical trials.

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Re: Dawn (# 2781)

My best wishes, may you recover quickly from your side effects.

It is criminal that this drug is still on the market.

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Re: Sal (# 2771)

Hi I have similar symptoms arm weakness pain in my feat, arms, hands back, always tired and fatigued. I also have hair loss and my long hair is getting shorter and shorter without having a hair cut. My doctor said I have inflammation and I have an auto immune disease but not sure what it is maybe lupus or something else. They keep checking my thyroid as well. All because I listened to the doctor and took prolia. I took it once in 2016 and all these side effects started to happen after a month. I started to have foot pain but I let that go. Then my hair started to fall out in clumps after a month or more. Now I have muscle weakness where I can’t open my son’s water bottle or container. Does anyone want to file a class action suit against Amgen and the FDA for putting this poison on the market in the first place.

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Re: Debbie (# 2783)

My mother died 6 months after receiving the Prolia.

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Re: Debbie (# 2783)

I would but live in Canada so not sure that would count. I am just like you but my symptoms came sooner. I am so afraid of what might happen next. I had a full blown allergic / adverse reaction and ended up with problems with my eyes and face. Had angioedema. Let me know if I can help in any way with the lawsuit as I am a nurse and have done lots of research. I am a legal nurse consult if that makes any difference and will be trying to see what I can do here in Canada.

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Re: Dawn (# 2785)

Unfortunately, here in the U.S. it is profits before people, so I don’t see a lawsuit happening.

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Re: Dawn (# 2785)

please let me know if anyone in US and Canada can get in on a lawsuit. My life is forever changed . I am doing all I can health-wise to make myself normal again, but my mouth situation does not improve. I had four injections and my last one was last May. I would love to hear from anyone that can get help for the victims of this horrible drug.

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I did not have immediate side effects from my first shot either, I however, 6 months later have the singles, which is a side effect of Prolia. After that I endured 6 more shots, and was never told the horrible side effects of the drug, denosumab, which is an antibody that they are now treating CANCER patients with. I trusted my doctor and did not research Prolia until I started hurting all over, joints, muscles, horrible side effects. I tell everyone to beware, it is a form of Chemo and was a horrible drug for me. Horrible, not sure I will ever be the same. I hope this helps you and others>

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Re: Gloria (# 2788)

OMG, you had seven shots. I am so sorry, Gloria. It is a hideous thing. I keep putting something off but soon, I am going to write a long letter to the oncologist who gave me this thing just to prevent bone loss in me and I did not even have bad bone loss to begin with. The doctors need to know what they are doing to us. They are acting like ostriches with heads in the sand. I was afraid to go back to my doctor knowing he would try to put me on something else that would probably give me side effects too. I pray we can all eventually get prolia out of our bodies.

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Re: Andrea (# 2789)

I hate to say it, Andrea, but it’s all about being “in” with big pharma. I know for a fact that the doctor who prescribed it for me certainly was. She told me that she dealt with them regularly and told me that my reactions had nothing to do with the drug. I am now seeing an oral specialist re my mouth problems who is also treating other patients who reacted to prolia. Finally I’m having some relief with a treatment of Alpha Lipoic Acid(600ml) by Sundown Naturals. It’s taken 3 months but seems to be working! Not perfect but improved!

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Re: Andrea (# 2789)

I did go back to my endocrinologist and she acted as if it was my fault because I did not ask her more questions and I am a nurse. I had one injection and have been suffering ever since. I live in Canada and am going to see a lawyer and anyone else who will listen to how awful this medication is.

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Re: Dawn (# 2791)

I too am a nurse, and I kick myself for not being more pro active with research.

Problem was, I was frightened, so I broke down and accepted it. Big mistake !

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Re: Dawn (# 2791)

I,too live in Canada and would love to hear if a lawyer says there’s a good chance of winning a law suit.
It was not even an endocrinologist who prescribed this for me, but a Obgyn!

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Re: Judy (# 2793)

An Ob - Gyn ? Is that within the scope of practice ?

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Re: Dawn (# 2785)

Dawn, im also in Canada. If any of us hear about legal action against the company that made abd profuts from this horrible drug at the expebse of destroying most oatients’ lives, let’s please share the information. I only had one injection in March of 2007 and my life has not been the same since that ill-fated day. I have developed several autoimmune disorders since..... Drs abroad (South Anerica & Europe) have agreed that Prolia causes autoimmune disorders among other things while in Canada most of the MD’s I have seen are very defensive when i say so and say it is my imagination....

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Re: Maritere (# 2795)

Here, here! Let’s unite as Canadians and somehow spread the word. I tried to contact a journalist who does investigative work on health issues. Never heard back. Now I’m counting on my granddaughter who’s studying journalism at university! Somehow our voices have to be heard!

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Re: Debbie (# 2777)

I was investigated thoroughly for Lupus. I had all the signs and symptoms at the time, including the typical "butterfly rash" on my face. My endocrinologist, who prescribed Prolia for me, clearly saw Lupus as a possibility, although he did not tell me what the tests were for.
My ANA test was negative, although I now know that it is not a definitive test for Lupus. There is a transient, often drug-induced, variety of Lupus. I suspect that this is what I had.

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Re: Maritere (# 2795)

Everyone ,,check out the Save Our Bones website. This week is all about Big Pharma
and what they do to promote their drugs. In addition it indicated the cost of these drugs.

While these shenanigans are again acceptable in the US, you lucky ladies in Canada May have a chance at a suit.

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Re: Andrea (# 2789)

I was diagnosed with osteoporosis @ 30. l am now 58 & was told to take all these different drugs at 30 but refused, they have tried Prolia injections a few years ago but I refused. I did give in one year when I was in my 40s & took one of their drugs for 1 year but can't remember right now which drug it was, it was taken on a monthly basis for a week or two......anyway they tell me my spine is that of a 70yr old so l don't really know what is in store but it's certainly a worry

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Re: Laura (# 2799)

How dreadful for you, I am sorry.

Have you tried supplements. ?

My advice to everyone is to check out the Save Our Bones website. It certainly empowered me.

Be well.

Nancy

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