Prolia Side Effects (Page 117)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I am looking for people who are dialysing and have received a prolia injection. I have read that you must drink 2 liters of water and it is for cancer patients. But if dialysis patient does not urinate where goes the poison. I want to know if people have died from the Prolia.

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Forever Bummed (# 2319) --

My friend's dad died within 3 months. Please refer to post 2296.

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I would like to know myself as I have been diagnosed with Osteoporosis myself. Do they give you anything for pain? Right now my shoulder that was broken years ago feels like it’s gonna fall off!!

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I had Prolia injections, and the side effects for me were horrible! Muscle aches, joint aches, pain all over my body, vertigo. My last shot was in 2015. Had the shots, trusted my oncologist and was given no info on side effects. After my last shot, I started to research Prolia and the side effects. I will never take another injection. I have reported it several times to the FDA, as I said for me personally the side effects have been horrible and I am still suffering from them, not sure my body will ever be the same. A horrible drug for my mild case of osteopenia! The same drug is given to bone cancer patients, and should be given for that only! I also have contacted Amgen the drug company that makes it and they have no answers for me pertaining to the horrible side effects. I hope this is helpful.

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Re: Billie (# 2323)

I have Pamidronate infusions for Osteoporosis as i have 5 fractured vertebrae , it is great with just mild headache / flu symptons for 48 hrs after the infusion. It has allowed me out if a wheelchair to an almost..not quite.. normal life as it has pain killing properties. You have to fighr for it though.as it is used for bone cancer .i refused Prolia injections after coming on this forum. This drughas turned my life around

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Re: Billie (# 2323)

In my experience, 3 Dr.'s blew off my pain. Since I have Fibromyalgia, they said it was Fibro. This was not the same pain. Finally, I went out of the area to another Dr. He immediately ordered blood tests for Hypocalcemia, and it turned out my Calcium was dangerously low. This is a serious condition and, left untreated, can be fatal. My first symptom was jaw spasms.

It is most important, if you have severe pain and spasm to be checked for Hypocalcemia!

Even if the levels are normal, severe muscle and joint pain can occur. Prolia pulls the Calcium stores out of the muscles to remodel the bones.

I am 15 months past my last shot, and am getting my life back.

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Hi, I had 7 injections of Prolia for osteopenia on the advise of my doctor. The worst mistake I ever made. The drug has horrible side effects that I did not research before the injections. I have experienced almost all of the side effects of this drug. Aches, joint pain all over my body. Stomach problems got worst, vertigo, have had 4 falls since I took Porlia. My body was strong, I tolerated 7 injections before the effects became unbearable so I started my research. My last injection was 2015, and I am still suffering from the side effects. There are more negative reviews on line than positive. I have report is to the FDA and Amen, the drug company that makes it. They are now using it for bone cancer patient, and except for that it should be taken off the market. I would not recommend that you take it, as I said it was horrible for me. I hope this helps.

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Sara (# 2307) --

Yes, I was told that yesterday by my female bone health doctor. Scary.

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Two days after I received my first Prolia shot, I felt as if I pulled a muscle in my groin. Instead of getting better after taking ibuprofen and using heat and rest, it continued to get worse. The pain spread from the groin, around my hip and buttocks, to my lower back. It’s now been over two months and I can’t lift my right leg more than an inch off the ground without pain. When I try to take a step, I get severe pain from my groin, down my thigh to my knee. I’ve had one steroid injection in my hip. I felt a slight improvement the next day, and after that, no improvement. It continues to worsen daily.

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Re: EllenI (# 2329)

You might want to get an x-ray. Same thing happened to my dad only he ended up falling because he lost his balance within the first 2 days after the shot, went to ER and they did and x-ray. said he had a fracture from the fall but Prolia can cause a fracture on it's own. Especially in the thigh bone! Thats just how it works! Very strong in the beginning especially. They wouldn't believe me that the fracture was from the Prolia and that's why he fell. NO ONE WILL LISTEN TO US!

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Re: Forever Bummed (# 2330)

No, no one will listen to us about how horrible the side effects of Prolia are. I have on doctor my GP that agrees with me and he did not get notified that I was taking the injections or he would have stopped me after the first shot. It is a horrible drug. Should be taken off the market.

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Re: EllenI (# 2329)

After my first pain in my jaw, then it was groin, tops of thighs and low back. This pattern would have remissions send exacerbations. Eventually all my joints became painful and swollen. This pattern is listed in side effects. It took time for it to resolve, although it never fully has. It is important to have your Calcium levels checked, as it is also signs of Hypocalcemia.

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Re: Forever Bummed (# 2330)

There is a class action suit against Amgen for those with a broken femur thru no fault of their own. All one has to do is step on it and it breaks in two at the thigh bone. You may want to tell your father. Be well~

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I would actually be willing to start a a class action suite against the makers of Prolia! I lost my complete full permanent bridge because I followed my doctors recommendation to take the Prolia injection. I am now having bone and tissue grafting in my lower gums. I had to have my original implants removed , new implants put in and wear a denture. Now the bone continues to be lost and I have to go with no teeth in the bottom to see how this grafting works, so much pain and money invested!!

My husband used to work for an attorney who is also a friend, who is willing to help!

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Re: Shirley (# 2334)

Shirley, I can wholly understand what you're dealing with. I, too, have lost a front tooth due to Prolia. My immune system was so precarious and I got an infection in my tooth . Eventually I had to have it pulled as it got so loose. That was 9 months ago. My jaw bone would not hold an implant so 6 weeks ago I had a major bone graft and now have to wait to get the implant and then wait for the tooth replacement! I no longer see the MD who prescribed Prolia. I recently had my bone density done and I'm considered medium risk. My GP is hesitant to put me on any meds due to my bad experience with Prolia ( many other sides effects as well as my jaw bone) . At the moment I'm taking large amounts of vitamin D and eating a high calcium diet. I live in Canada and don't know of any class action law suits. The money I have spent on various dental procedures(considered cosmetic and not covered under my plan) as well as creams, physio etc has been over the top.
I am so sorry to hear of your on going problems. We women are Guinea pigs when it comes to drugs for menopause, bones, etc. I've tried to contact the media to do some investigative journalism on this drug to no avail!

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Re: Shirley (# 2334)

Just got my last implant after loosing all of my top teeth caused by Prolia. They cost a fortune. I would be willing to get in a class action law suit. I no longer see the doctor that told me there were side effects.

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Re: Judy (# 2335)

I’m also in Canada. You are not alone...March 30 will be a year since I fell in the trap and accepted my GP’s advice to receive this poison called Prolia that obviously leaves juicy dividends for somebody... definitely not for the patient.....I lost a year of my life already as I have never again been able to go back to being the healthy, fit, active, happy woman I was. I’ve had dental issues, a severe thyroid disorder with an ophtalmopathy; have lost my beautifully healthy hair, my nails are like onion skins.... I also developed a heart artery stenosis, I lost 20 pounds in the first three weeks, my arms and legs were covered with erythemas for weeks, the pain was so unbearable that I had to be taken by wheelchair to the Emergency Dept of the closest hospital... I still continue to have migratory pains and my joints...and I recently heard that many Prolia users have developed Lupus...and other type of auto immune disorders.... I’m a self-employed professional who has been unable to work for a full year......It has become obvious to me that ee are the victims of some sort of clinical trials we did not agreed to parttake or sign ourselves in... We should be at least compensated for the objective losses we have incurred in....I’m keeping my eyes open in case any group action takes place....

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Re: Shirley (# 2334)

Hi Shirley, I am in with you, there should be a law suit against Amgen Drug, they make the horrible drug, Prolia. It has done quiet a number on a lot of us. Thanks for your post. The FDA is doing nothing.

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Re: Gloria (# 2338)

I agree, but I don't see that happening.

My mission is to share my experience with anyone who will listen, in an effort to discourage use of this drug.

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Re: Sal (# 2339)

Thanks so much for all your comments as it made me refuse the drug, so pleased I did.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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