Prolia Side Effects (Page 110)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Hi Nancy~I Googled the same thing as I wanted to know too. Most I could find was one place where some people posted they had Prolia side effects long after stopping the drug. I did not find any quite like you. They usually started to experience a side effect with the third or fourth injection so quit. You are the first I have read to have it after stopping. Have you decreased calcium intake or any other easy answer? Your body still has a lot of Prolia in it. It's a scientific matter of carbon based half lives. MDs like us to believe it goes 'poof in six months which is a total impossibility. Maybe your muscle problems are not Prolia related at all. I sure would get that checked out very, very well with the best MD's I could find. Perhaps it is something totally different and was (is) caused by what was a faulty immune system which has led to 'xyz'. Be well~Pood

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Hi Nancy! Thank you for posting your experience on here. I have no idea about the "after studies" but maybe someone else on this site can answer that. I AM curious however why you didn't get the June infusion and am also curious as to how your bone scan is Now compared to Before the infusions. Did you see a lot of improvement, any improvement? thanks for any info.

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Have there been any studies done on "after effects" when stopping Prolia? I was on it for 3 years with no side effects, however, My last inject was 1/15 and I did not get the June injection. In last fall I started have upper leg muscle issues (which are suppose to be possible side effects when taking. Are there any studies of withdrawal or issues when stopping Prolia?

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Poodle, I just started on medicare so I don't know how they work as fare as bone density test. I had one done last July before medicare. If medicare allows one I will see if I can have one this Jule as well. If I can I will keep everyone updated as well.

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Poodle, what it says on the container is that the calcium is 550 (as MCHC) 550mg I don't know what the MCHC means. I do that add'l calcium each day1200 mg. but this OSAplex was recommended by a friend who said it helped her and she does everything natural. It has helped me. Like I said,, I had the one shot of Priolia in June2014 with side eff. so I stopped, then started this product in and my last BD had a little better results. I don't know if it was wishful thinking on my part but I am happy so I continue to take it.Maybe it's the other ingredient that are in it also. I copied everything as it is written on the container.

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Interesting we've not heard any more details from Patricia! I had more questions. And I know others did as well.

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Victoria~how much calcium is that per day? I did not understand what you wrote. Each pill has that much in it or all three of them in a day do. Please explain. Thank you~Pood

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WOW! Patricia. That is down right amazing. You are a rare person indeed and, in the end, I hope it is everything they tell you it will be. When are you going in for a bone density scan so you will know how much has been deposited? Stay well~Pood

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Patricia. Happy you didn't have any ill effects like the majority who post on here. and how much did your bones improve? Thanks for any info. Will you take more infusions? Amgen is saying it might take 10 years for improvement.

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I'm glad you are doing well. Many of us have not been so fortunate

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If you are thinking about taking Prolia, please reconsider. The awful things that happen to your body does not happen all at once. It happens after a while.
I have been off Prolia for one year and I am still having a milder rash than
I had at first and still have excema on my legs which I treat daily. I just hope the company takes this product off the market. It does not help anyone.

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I have had 3 each being 6 months after the one before with no ill effects

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Tess, it looks like you had yours in the same month as I had mine. What kind of metabolism problems are you having? I don't believe any of us has discussed this issue and especially after this amount of time. Hopefully, it will work it's way out of you soon. Be well~Pood

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I only had one shot of Prolia (April, 2015), and it is still wreaking havoc on my metabolism.

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Hi all~Just getting an inkling here that our poster 'Moms' was an internet 'troll', just toying with us. Look at the time and dates of the posts and all lack of communication. Had someone a real question, the best place to start is reading all the posts and if one still has questions, then ask. This particular thread goes back to the beginning when Prolia was released. It certainly has not changed much since that time except for the fact we know more information now. Is it just me, or does anyone else have this 'feeling'? Pood

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Rrdul~My mother had horrid osteoporosis. Could not even shut a door without a rib bone snapping or perhaps on in her back. I took her to an orthopedic surgeon in another city and he put her on Mia-Calcin, now known as Salmon Calcitonin. She never broke another bone. She would fall and get right back up. She finally died of old age at 96. I was taking Salmon Calcitonin too. It didn't work quickly enough to suit my Dr. My osteoporosis was caused by my Dr. She had me on 10-20mg of Prednisone every day for one solid year. Then she 'tried' to mitigate her damage by using Prolia which was worse than the cause. I'm going back to Salmon Calcitonin as I noticed on my bone scan I did improve on it, just not a huge amount, slow and steady wins the race. Something to think about for next time. Be well~Pood

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I have been taking OsAplex made by XYMOGEN, I take the 3 capsules that are in each packet once a day. A 60 day supply is $72.00 from brimhallsupplements. A little pricey but I've been taking it for 2 years now and my bone density test has actually gotten a little, not a lot but a little better. I'll take that over worse. This is what is in OsAplex:

Ossopan 1100 with vitamin D ch-OSAA Capsule
Vitamin D3 (as cholecalciferol) 2000IU 500%
Calcium (as MCHC+) 550mg 55%
Phosphorus (MCHC+) 198mg 20%
MCHC+ 2.2g **
Microcrystalline hydroxyapatite (as MCHC+) 1.32g **
choline (as choline-stabilized orthosilicic acid #) 60mg**
Silicon (as choline-stabilized orthosilicic acid #) 3mg**

** Daily Value (DV) not established
+ Microcrystalline HydroxyapatiteConcentrate
# Cholin-Stablilized orthosilicic acid (ch-OSA) is a registered trademark of and manufactured by Bio mimerals n.v.,Belgium

Other ingredients for Ossoppam 1100 with vitamin D3: HPMC (capsule), vegetable stearic acid, vegetable magnesium stearate, medium-chain triglyceides and silica.

Other ingredients for ch-OSA: Microcystalline cellulose, HPMC (capsule) & purified water

A doctor didn't prescribe it so I just used one of the doctors listed on the site. Shipping I think was $10 but you can order as many as you want for one shipping price. I hope this information helps someone.

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Rrd~There is a medical paper circulating in Europe (English speaking countries) entitled 'The Emperor Wears No Clothes'. Please try to find it and read it. You will discover what your Docs are doing for your bones is plain WRONG and there is a PROVEN WAY FOR BONE ENHANCEMENT that they all are doing now. They swear it works and so does the MD that wrote the paper. It was published in one of their medical journals. When we say take the correct supplements and do light weight bearing exercises we know we are telling you the truth - the truth your Dr. doesn't want you to know. Be well~Pood

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Rrd~ as to calcium in a 'normal' body we need a minimum of 600mg two times per day with 1000IU's of Vitamin D. With Prolia which needs calcium or it will rob it from your muscles and put you in the hospital, you need 1200mg twice per day with the same 1000IU's twice/day of Vitamin D. Perhaps if you take your supplements correctly, you may get a little better here. I cannot quite believe your Doc is so naive. You also need to put some magnesium in there during the week too. It helps keep the nasty muscle cramps down and helps build good bone. Any MD worth their salt will tell you we are deficient in these areas. Hope you up your dose here and get better. When you have your calcium tested, it will be just a tad high but not dangerously high at all and you will be commended for having the Magnesium…just maybe 1500mg/week if you are not getting bad cramps. Be well~Pood

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Moms! Are they recommending Prolia for osteoporosis or as a cancer drug for you? If it's for osteoporosis I sure hope you know you truly have osteoporosis or are at risk for it. I've heard that some of the bone scan machines are not so efficient anymore. I'm quite sure my dad was diagnosed improperly for osteoporosis and was given the drug "just because". I hope you'll just be very sure in your own mind that you feel you are in need of Prolia. I'm glad you found this sight and there is so much info on the internet about Prolia. So far I have not heard of one person who has had improvement in their bones due to taking Prolia. I can only see that it's done more harm to people. It has to be your own call after doing much research. You can also research Dollars for Docs and just by chance see if your doctor gets paid from Amgen. Some people say this might be a clue as to why doctors prescribe certain meds, because they get extra kickback from a specific drug company. Just one more thing to check into.

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