Prolia Side Effects Duration
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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happen?

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Re: cindy (# 3)

It will be 3 years on March 7 th since my one and only Prolia injection. I still suffer from angioedema episodes to my ears and face. It happens for really no reason. The pain in my back is excruciating at times but I find if I push myself to walk at least 2k per day then I can struggle through it. It is the worst poison in the market. Maybe people should really look at what we are being told to take in our normal lives not jut the vaccine. Anyway all in all I am better than 3 years ago but will never be my energetic self.

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Re: Poodle (# 13)

I don't understand why this is not causing more of an uproar. I foolishly allowed myself tp be bullied into having 6 or 7 shots with the last being 2 to 3 years ago. My jaw and thigh bone aches are persisting. My GP (not either of the 2 who gave me shots) insisted as late as last week when I approached him for some sort of relief that the side effects go after 6 months. He either lied or has been hoodwinked by Amgen. I regret the day I ever had them. No one ever told me of possible side effects. That is such extremely bad patient care. I too wonder how much the big Pharmas are raking in as well as what the docs get as kickbacks. They will all deny this of course.

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Re: Kazz (# 309)

I've never heard of getting a relay drug. I was never given anything. Most of my doctors dismiss my claims of Prolia being so bad with side effects.

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Re: Nikki (# 314)

Thank you, Nikki. Good health to you!

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Hi y'all,

I've had my first iron infusion and I can't wait to start feeling better. That same day I had a phone visit with my rheumatology PA. The x-rays I got a few weeks ago said my osteoarthritis was now in both hips. It's mild and she said on my right hip I have a spur on the bone. I've had osteoarthritis in my fingers for years and was a bit surprised about it settling in my hips. Am wondering if this has anything to do with the Prolia.

Does anyone know or have any experience with spurs? I'm going to call the office and ask if they get bigger and what do they do about them.

The PA asked if I wanted to try a NEW osteoporosis drug that came on the market 6 months ago. She didn't say the name. I told her sure go ahead and give me the information. Am I going to take it? No. Not even with a set of borrowed lips. My thought was to get the information so I could help others on this forum in case your doctor tries to suggest another drug.

Well, I looked up this new drug and guess who makes it....If you said Amgen you win a prize! This is what I found in a Google search: The U.S. Food and Drug Administration (FDA) approved the new medication romosozumab (brand name Evenity), from the drugmaker Amgen, which appears to dramatically boost bone density. Apr 12, 2019

Just from the name of this drug we can make a pretty educated guess Evenity is in the same drug class as Prolia.

Thanks for the help and I hope some of my information is helpful to someone.

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Re: Nikki (# 308)

Have not had my iron checked... thanks for mentioning it... will get it checked.

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Re: Kazz (# 311)

I second that!

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Re: Lizzie (# 307)

I too will never take another ostio drug....after my 2 shots of prolia dont think i would have survived a 3rd....this drug causes more problems than its worth

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Re: Lizzie (# 307)

“Extremely rare”....”Not related “. This is a common refrain. They refuse to believe that Prolia could cause serious side effects. I had severe muscle spasms and weakness, three Dr.s dismissed me, claiming it must my Fibromyalgia. I kept saying that I have had Fibro since before they were born, even though it had not been identified. Finally I went back to New York to see the Physiatrist who treated me when I lived there.
Anyway, it turned out that I had a severe low calcium level, dangerously low. Never allow them to dismiss your symptoms.

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I had lots of side effects from prolia they started about 6 weeks after the injection. Bad headaches...dizzyness...vertigo...chronic constipation. ..
Hip pain...dry mouth and lips...strange taste in my mouth...ear infections....utis...and many more....now when stopping you need a relay drug to protect yourself from compression fractures to my my spine....its a terrible drug that drs are very trigger happy and anxious to inject you...wish I had never heard of prolia...

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Re: Lizzie (# 307)

Lizzie and anyone else,

Have you experienced iron deficiency anemia? I've had problems off and on with anemia for years but I've never had it as bad as I do now. My blood count level was 9.5 in December. Monday I went to a hematologist and learned my red blood count level is 7.6. He said I have iron deficiency anemia and need an iron infusion once a month for the next 5 months.

I learned yesterday that people who are gluten intolerant and who have Celiac are prone to anemia because gluten free produces aren't enriched with iron and many of us also have issues with eating meat and dairy.

Thanks y'all for the help!
Nikki

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Re: Nikki (# 296)

Re: Communicating problem to doctor. I had a similar result. I found one study that referenced hair loss and also told him about the problems mentioned on this site. The doctor stated that, while those side effects were listed in the medication pamphlet (except of course the hair loss), they were extremely rare. He had given it to over 100 patients with no problem. He said that, while my physical problems after taking the drug were real, they were not related to the drug but to other age related issues. I never got my second shot... its been about 3 years and I think I might be close to normal. I have not gotten another osteo test... what is the point? I will not take any prescription osteo drug.

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Worst drug side effects I have ever experienced.

It gadd sex taken 4tears to resolve the extreme muscle pain,tightness and weakness. The joint pain is permanent. I strongly advise against this drug.

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Worst drug I ever took. I strongly advise against it. I always swore I would never take the Osteo drugs, but I allowed myself to be frightened into it.
My first shot was in a July of ‘16. Within a short time I had severe muscle pain and weakness plus joint pain in my hands and feet. I went to three doctors and they blew me off telling me it was ‘ Just your Fibro”, having had Fibro since long before it was recognized I knew that was not the case; they all insisted it could not be from Prolia. Finally I went back to my physiatrist in NY, who treats with Yoga. He immediately ordered blood work. My calcium level was dangerously low, my Parathyroid gland dangerously high. Like a fool, I took another shot in January of ‘17, then no more. The symptoms of pain weakness and extreme fatigue continued. It was so bad I could not exercise. It was not until January of this year that it began to resolve, not, however for my feet and hand joints.
Now I am finally exercising and following Save Our Bones.

This is a potent, powerful drug with serious side effects. I advise against it.

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Re: Betty (# 303)

It took three years for relief of the muscle pain, weakness, spasms, etc to resolve.
My joint seem to be permanently deformed and painful.

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Re: merle64 (# 11)

First and only inj 4 months ago. Three 3 months after injection I started with headaches. The had my teeth cleaned and my teeth hurt for days. Anf my jaw bone hurt. I will not take any of these osteoporosis drugs again. How long does it take to leave your system!

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Re: Dawn (# 299)

Thank you, Dawn. I'm interested to see what comes of this.

Nikki

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Re: PunyDeb (# 300)

I am so sorry that you are are experiencing such serious side effects.

It is unconscionable that you must endure this, and even worse have little recourses.

We need to start putting people before profits instead of the other way round.

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Re: Shirley (# 186)
My T-score is -5.3 due to childhood kidney disease. I took Prolia for almost two years. Every time I received an injection, I developed a UTI. Furthermore, I also developed severe dental disease after a lifetime of perfect dental health. I've been off Prolia for 18 months and my kidney function continues to deteriorate. I have no way of proving that is the cause, but I regret ever having a single dose.

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Re: Nikki (# 296)

Just wanted to get this out there. If you live in Canada a legal firm called Mackenzie Lake did take Merck, pharm to court related to Fosamax and there was a settlement.i am going to contact them on the Prolia issue to see if they have an interest in a class action suit or something like that. Look the Fosamax case up on the internet as it was 2017 I think.

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