Prolia & Hair Loss (Page 16)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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REPORT

Lots of people lose their hair.i have.i am now going to lose 3 teeth in front I’ll need a new bridge 24000$ and my in’s is no good.keep watch on teeth

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Re: LB (# 293)

I am haveing major problems with my teeth.i now am losing 3 in front one broke off,losing all the bone in my mouth jaw bone,the dentist is taking out 3 and putting in bridge,at 2,400$. I think h company should have to pay.

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Re: Catalina (# 283)

I was going to get a bone scan before deciding to take the next Prolia shot. (I have only had one). However, regardless of the results (good or bad) I am not going to get the next shot. I have had the hair loss, raging mouth infections, and bone pain. I have been fighting the hair loss with my dermatologist and have slowed it up a little, but still lots gone and hair is way thin. Mouth infections recur. Bone pain comes and goes.. especially in my back (had no back pain prior to the shot). After reading the posts here, I know I have been blessed that none of my side effects have been debilitating... but I am not going to push my luck by taking another shot. This site is a place where honest feedback occurs re: Prolia and helps decision making. I am grateful for everyone's participation.

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Re: Poodle (# 12)

Yes I have been experiencing hair loss since Prolia. Doctors and pharmaceuticals don't inform us about that.

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Re: Lizzie (# 303)

My bone scan after one disastrous shot of Prolia showed a very slight improvement, however I wonder whether it was worth it because of the terrible side effects I suffered. I lost all my hair, but it has regrown and is now quite thick and has a curl which I never had before. The vertigo has now gone but the UTI‘s and also the restless leg syndrome are still persisting after 12 months. People should be warned about these side effects especially the hair so it is important that all bodies involved in monitoring drugs should be notified including your doctor, specialist consultant and Amgen. If only I had found this site before the shot?

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Sad lady (# 306) --

Agree! If I had found this site prior to taking the shot, I would not have taken it. My doctor told me none of his patients experienced any side effects from Prolia. When I reported my side effects to him, he said it was not the Prolia. (I guess firm denial is one way to be able to say that none of your patients experience side effects). This website address should be posted in every doctor's office.

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Re: Charlene Guidry (# 304)

I have had three Prolia injections, the first in June of 2017, so I have been on it for about fourteen months. Over the past few weeks, I have noticed that I have increasing amounts of hair falling out, and in the past year I have experienced fatigue, which I had written off to age.I have also had joint pain in my knee since the beginning of the year. An x-ray showed the knee to be in good condition, but the pain does not respond to treatment. It was the hair loss that compelled me to search online, and I am totally shocked to learn that Prolia is denosumab which is a chemotherapy administered to cancer patients. This is totally shocking to me, and as a breast cancer survivor who experienced hair loss, I am depressed to be experiencing that again. Between the two specialists I consulted before starting treatment with Prolia and all of the materials I reviewed, both online and those given to me at their offices, there was not a word about Prolia being a chemo drug. Also, it is not mentioned in the television ad for Amgen. My last bone density done in May showed an increase in the hip bone, but I had experienced a significant loss in the spine in the last year in spite of being on the drug. Between the knee pain and the fatigue, I haven't been exercising as much. I am thinking I would be better off dropping the Prolia and engaging in a focused exercise program instead.

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Re: Marilyn (# 307)

I too was having hair loss after one injection of Prolia. Plus I was losing strength and weight. I opted to not take it anymore and do s more healthy approach to fighting bone loss.

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Re: Marilyn (# 307)

After just one injection I lost all my hair and had terrible side effects some of which are still with me after 15 months, however my hair has grown back, so those that do lose their hair have some consolation that if you stop Prolia then your hair will return. Despite several letters to Amgen they continually deny it saying that the only person during the trials that lost their hair was having a placebo. Clearly they do not have access or can be bothered to read this website. There are many side effects, far too many for this drug to have been approved so easily. Hopefully people can be warned by us that this is not a drug that helps, but instead causes terrible damage to your body, and worse than that the mental distress that comes with all these side effects.

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Re: Marilyn (# 307)

I had 2 injections...the last in March 2015. My hair still has not recovered. I had really long hair, and now it's medium length due to loss and breakage. I'm depressed, because my hair has akways gotten compliments. My jaw is bad now...TMJ and my immune system is poor. I would say it's all age related (age 70) but I really think Prolia is a big part of all this. I would never recommend this drug.

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Gamp (# 309) --

I do not think it is "age related". There are many people on this site who are younger and experience what you are experiencing. I am older than you and never had any hair loss or mouth pain or bone pain until Prolia. I hate the hair loss more than anything which is dumb because that is just vanity, but it is what it is. Just have faith that this will eventually level out for you. Do not let yourself feel "old" because of this awful drug.

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Re: Lizzie (# 311)

How many shots have you had, and at what point did it level off? I am 75 and feel like my quality of life has been destroyed. Before starting Prolia, I was walking four miles a day, and now the joint pain in my knees is so bad that I cannot do that. Seems to me that walking and exercise would do more to build bone than being poisoned with this drug. In the year since my first shot, I have dealt with one thing after another. In addition to the hair loss, vertigo, joint pain and fatigue, I was diagnosed with acid reflux, which I have never experienced before.

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Re: Marilyn (# 312)

I only have had the one shot.. the second is due this month but I will not be taking it. Side effects seem to level off but then just cycle back in in again. Hair will stop shedding for a week or so and then start up at a faster rate. Mouth infections disappear and then reappear-- they are stronger than the previous bout but do not last as long. Bone pain just seems to pop up at random and lasts a few days, disappears and reappears in a different body part. I am encouraged by what I read here with several people regaining hair after a while ( along while in some cases ), but pain and teeth problems seem to linger.

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Re: Lizzie (# 313)

I have had three shots, the last one in June. The fatigue has been with me since the first one in June of 2017. The joint pain started the first of this year, soon after the second shot and has been persistent for months with no relief. I had a very severe vertigo incident early in the year that I wrote off as the flu, as I was quite ill for several days and it took several weeks to completely shake the dizziness. My doctor said he was certain it was not the flu, and more likely benign paroxysmal positional vertigo. And now with the third, I am dealing with the hair loss and acid reflux. I was hopeful when you said symptoms leveled off, as I was thinking you meant that would be the case over time with more shots. My experience indicates that the side effects multiply and increase over time and with more shots.

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Re: Marilyn (# 312)

I also have terrible pain in my hip and legs which I never had before . Also acid reflux which I had never ever had before this injection. Not being able to sleep more than 3 hrs per night since this poison was put into my system , and so much more. Like permanent UTI s and so it goes on. It is a poison without doubt and a very profitable one for Amgen who continue to deny all side effects.

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Yes I had to quit Prolia after 2nd shot, had rash then begin to notice hair loss very thin. I never had real thick hair so I will need a wig. You can see my scalp. I am upset but over the fact there is one drug left a new one that I applied for, we are appealing it. Took Forteo good results. Took fortical, and another nasal spray. Cannot take Fosamax or related drugs have Barret esophagus. Gerd. So just waiting for approval and praying.

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Re: hope4me2 (# 316)

How long has it been since your second inj.? Has it been long enough that you don't believe your hair will grow back in?

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Re: Marilyn (# 312)

I have read from other posts that they feel the Prolia interfered with their immune system and gave arthritis a hold on their body. While I have had bone pain it has not been consistent. Have you had your knees exrayed or tried to seek some relief for them? Four miles a day is awesome! I am hoping this is temporary for you. The acid reflux is really a hard problem for me and is debilitating... I am hoping that it will abate some when I do not take the shot. I had reflux prior to the shot, but it has been really bad since the shot. Don't know if I can blame the shot, but we'll see if it gets better.

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You bet. Every one I’ve heard about is having this same problem. Mine is so thin that on top I use the stuff Joan Rivers sold, it's to paint your scalp/thin spots so your scalp does not show. And the other problems like teeth, just had one that broke off at gums had to have it took out and and in order to put one in, had to have the one beside it took out so I could have a bridge put in. My insurance would not pay a penny, so that cost over 1,500 dollars, the bone is deteriorating and I can’t wear dentures. I think enough taking has been done. I think something else needs to be done and this company pay for all the damages done from this Prolia shot. It is to blame.

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YES!! But I didn't notice it until the third injection. I think that is because the increase in loss was gradual, but now large amounts come out every time I shampoo.There was nothing in the information I got from my physician or at the Amgen site that advised me this might happen. I would not have started Prolia had I known about this beforehand. My specialist did not discount me when I complained about it, so I know I'm not the first of his patients to have this problem. He suggested that I could try Fortea instead. Has anyone had experience with that, and what were the side effects? Since Fortea is daily versus having a drug in your system for six months, he suggested I could stop it if problems surfaced. I am having numerous other issues that I believe are related to Prolia, because I never experienced them before: Fatigue, acid reflux, persistent cough (complete ENT evaluation revealed no other source), vertigo (one extreme episode right after an injection), eye pain (Ophthalmologist could find no other source) and the hair loss.

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