THE LOST YANKEE Says:
I'm a 50 yr old grandma with end stage renal failure! With that being said I also have chronic pain, slipped disc, a bulging disc, neuropathy, severe nerve damage in my neck and down my shoulder, severe hip pain in not just one but both hips now. I have been on pain meds for about 15 yrs....And always feel like I'm being judged every time I walk in the doctor's office! I figured I would change docs and started with a new clinic. The first few months was ok I guess...Then whammmy, he said I'm discharging you at this time because you came back with a positive drug panel for "6 mam" which I have learned is heroin! I have not ever seen nor do I have a desire to see it or do it!!! But now I am without a doc and my meds have run out. I stretched what I had for as long as I could! Now I'm kinda freaking out! I'm in severe pain, I'm a damn basket case (crying at the drop of a hat) just really depressed and lost! I'm always in pain anyway but my medicine made it easier for me to deal with it! I dont know what to do and need help fast!!!!
It may be that an individual doctor is reluctant to deal with you because of professional liability or potential legal exposure. My thought would be to send a clear statement to one or several of your local medical groups laying out your physical/medical situation, with a copy to your state and federal political reps. Your situation is clearly distinguishable from that of a junkie. One would think that neither the profession or the government can just turn their backs on you. My best wishes.
Thanks to the pillbillies we that are in severe pain can not get any relief. I suffer from RSD which has no cure the docs just have to manage the pain with meds. It is getting harder and harder to find a doc to prescribe meds. Some days I hurt so bad I just want to end it all. Thank you politicians for screwing up my life in order to protect the heroin addicts.
I'm sorry for what you're going through! A couple of questions: Did you challenge this doc's statement re. Your alleged heroin use? Did he perform a second test? The possibility of a false positive is high. In any case, you need to get a hold of your medical records from this guys office. You're entitled to them - they're your records. See what he documented. I believe there is also a way to check a lab's records as regards their accuracy rate. Get some documentation to back yourself up and go see another doctor. Don't give up on this! Hang in and stay tough!
have you thought of medical marijuana? might help. I think I would go back to that clinic and ask for a redo on the panel that said heroin was in your system. It is most likely a mistake. Your local paper might find a story in that. good luck to you. I have many of your problems without the renal failure and just wish the best for you. I also suggest walking. any time spent doing that will definitely help you to feel better. get out of the house and try a walk around the block.
I too have RSD. I also deal with osteoarthritis, fibromyalgia and sjogrens. It's so difficult to express to others what RSD Pain feels like. The closest that I come is to say that I feel like someone peeled my skin off, leaving every nerve exposed. Even wind from a ceiling fan is more than I can take on my feet and legs. Then for good measure it feels like someone hit me with an electric cattle prod. Then there's the fatigue and inability to concentrate or sleep.
6Lucky Cat Liz Says:
I am a 70 year old grandma. Here's what I suggest. Re-think what you're going to do about your problems. In my case, I discovered my problems couldn't be addressed and solved until I knew what they were. I could only begin to find the answers to what was going on - in the whole, not the specific part, of whatever was most horrible about my problems. We want to solve our problems, not relieve the symptoms. Go to a more creative medical problem-solver. The kind that look at the whole of you and helps you according to you. Individualized medicine.
7lost yankee Says:
Yes they did do a repeat evaluation but will not return my calls so my KIDNEY DOC actually requested the records because i was so distraught over it! i also went back to the previous doc and they did a repeat evaluation on me, and said they could not treat me because i had that last positive drug panel!!! And i called about 10 more pain doctors and they basically said the same...
8lost yankee Says:
yes i have but i dont like the feeling smoking does to me.....
I hurt all the time my lower back and shoulders and neck I get a tingle feeling in my left leg and it goes numb. At times my lower left stomach gets a knot feeling where I can't move. I told my doctor but all she does is sends me for blood work. Any suggestions
10lost yankee Says:
thank you for all the responses...and i sd i have 2 more drug screens that have come back negative....and you wanna know the real kicker i calleled my family practice doc that also has a doc that prescribes subutex and they are gonna treat me for my pain there but not with what i really want or have been on, but at this point im ready to give just about anything a shot.!!!!
i am aso it touch with pain network editot and he is checking into what can be done about this situation....
i am aso it touch with pain network editot and he is checking into what can be done about this situation....
Now I hear that the FDA guy is calling for a war on opiates because 100 people are dying each day from it. I'd like to know are they dying as a direct cause of opiate or are they dead and also a opioids prescribed user? This will make getting strong medication impossible. I would of said harder but it's next to impossible to get medicine for pain as it is. Now that you have a "positive " hit for heroine it's suppose to be impossible for you or "any" doctor to prescribe you any pain medication. I'm sorry for your pain and the trouble your having I really hope your other doctors who seem willing to help you through this and get things cleaned up so someone can prescribe you some relief.
12Michael H Says:
I feel so bad for you and I wish I could help you. I am sure you went through horrible withdrawals. Did your doctor do a second test? Thee are false negatives and false+. Did he offer to give you medication to get you through the withdrawals? There are always avenues such as reporting them to the licensing authority. Request another test, find out what company does hair testing and what their percentage of error is. Suboxone can help with the withdrawals, but personally I wouldn't stay on it any longer than you have to. You are in my prayers!
I suggest that you seek treatment for the depression-- it is likely to help with pain as well. You need a support group. Please call your insurer for a referral for pain control. I agree a holistic health provider is the best option
It is tough being in such discomfort while at the same time trying to solve a complicated situation. "...i called about 10 more pain doctors and they basically sd the same..." - I recommend you avoid banging your head on the same wall and focus on conserving your precious work time and effort and try to accomplish much with the least effort. When I suggested below that you contact medical groups I had in mind for example your state office of the National American Medical Association. Also run a Google search on pain management and doctor referrals. Prepare a succinct description of your condition and circumstances that can be emailed to all of these folks and have a friend or family read it for effectiveness. Copy your local state and federal politicians and also send it to newspaper editors. Your goal is to reduce the continuing discomfort asap, so you want to think it terms of effectively shotgunning this to all that might help. Good luck!
Rochelle, you might consider going to an orthopedic doctor that specializes in problems of the spine. Also in recent years, there have been many practices of anesthesiologists that also deal with pain emanating from the spine. One of those practices may be beneficial to you. The tingling and numbness you're experiencing in your legs may be due to a problem in your lumbar spine that is compressing or irritating your sciatica nerve. The sciatica nerve is the largest and longest nerve in your body and runs from your lumbar spine all the way down both legs. Either one of these type of doctors, provided they specialize in the spine, should be able to help you with your neck and shoulders plus your lower back and legs. If you can get help with those, it would take care of most of your problems. I will warn you, these type of problems don't always get better quickly. So be patient, it will be worth it. A note about your neck and shoulders: often these problems are merely caused by tight muscles, although they are so painful you would swear it has to be far more serious. I spent 15 years in terrible pain after a head-on automobile collision. Once I got really serious about doing the appropriate exercises, pushing myself well beyond the point of pain, only then did my pain subside and has not returned many years later. You should be able to find neck exercises on the internet, but if not, ask your primary care doctor to provide you with some. Good luck to you.
16lost yankee Says:
Yes they did do another drug panel on me but will not return my calls...and my kidney doctor even requested my records and what they sent him was the one i already had and showed to him, so they are going to call and fax them again and specify all of my records! thankfully i didnt have to go thru withdrawals...they sent a script in for it, but i didn't even get that for 3 or 4 days cuz i didnt want to be on it and be accused again of doing illicit drugs!! I just want to clear my name of these awful accusations!! And YES i also do other things to help with my pain, its not just the pain medicine!! i take many vitamins, use heat, ice so on..... i dont know what good it would do for me to report them they have that right not to treat me!! And yes i realize there are people dying from overdoses but they are dying from illicit drug overdoses and that's not legal...so i don't know why i or anyone has to suffer becuz of some *****! i have never failed a drug panel in the 10 yrs i have been going! Never missed an appt....and always had my bottles with the correct medicine in them, that's why i don't see why i am not getting punished!
17lost yankee Says:
yes you should definately seek out a pain doctor and neurolist if you have the insurance...because they are very expensive as my husband has no insurance and cant barely walk his back hurts so bad..
I'm so sorry to hear about all your medical conditions.Unfortunately I have condiitons from my head to my toes, seriously! I am a fall risk from grand mael seizures, manic/bipolar/schitsophrienic, poor eyesight, extreme dental work needed, stomach problems: i do not have bm's sometimes up to 2 weeks or more, so i seen a specialist, and the test shows a large mass (poop)in my large intestintestine and a 1,5cm hernia so i need a colonoscopy i have RA in both knees, degenerative arthritis in my shoulder and my feet hurt so bad to walk on them, my insurance co. gave me a top grade walker/or seat for family to push me around. my life is so limited. I fall constantly, i have to have someone with me at all times. i have insomnia,etc nothing compared to your situation. find a pain management dr in your area, take your records. find one til you find one you get a good vibe from, you know, someone you gel with. gl
19lost yank Says:
I am so sorry to hear about all your problems..yay it really sux being sick! I also have many stomach problems and have 2 have an upper and lower scope done cuz I'm bleeding internally and they don't know why!
20lost yank Says:
Yay, the lab is actually being sued for 250,000 for falsifying records...I have my kidney doctor getting my record be cuz they will not return my calls...and yes I most certainly questioned the test, but it got me nowhere!
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