I was put on Oxybutynin almost a year ago. It started because I have severe Crohns disease and woke up one morning after an extended flare up unable to walk. I went to the hospital and they found a blood clot inside my heart blocking off 90% of blood flow (amazing, I know.) Due to that and quickly dropping blood pressure I was forced to stay in bed for 5 weeks, then I slipped into a coma for 36 days. Being in a coma for that amount time they had put in a Foley. I had to stay on a Foley for 10 1/2 months straight. After removing it they said my bladder would struggle so this drug would help. It's been about a year since then, I've been in a wheelchair ever since. I'm hoping this background info will help anyone of you with my question.
I have trouble remembering how well this drug worked when I started with, everything is still fuzzy from that time because I still taking drugs to help sedate me some. The last 2 months I've noticed problems and I'm wondering if it's the drug or an infection. The drug just doesn't seem to work. I still have uncontrollable urge, go anywhere between 10 to 18 times a day (I've started a journal of it), and sometimes I go hours with the feeling that I have to go and it's always just a little amount. I wear adult diapers but seriously, how long can a person do that? I'm scared to leave my house because it's not easy using a bathroom away from home when you have to deal with moving a wheelchair and then getting around in said chair. I'm just wondering if I need to be taking higher dosages of this drug or if I could possibly have an infection? I've brought it up passingly to my doctor and he just said that many wheelchair bound patients experience these problems and that I should advoid caffeine. (I don't drink booze, don't smoke, and stay away from coffee but I do have a hard time turning down a Pepsi). Could it be something as simple as cutting soda out of my diet? Or should I seek out another opinion from a different doctor? It's hard to tell sometimes if I have an infection due to my Crohns disease always causing back and stomach pains, and I have kidney stones often as well which sometimes has the same problems as an infection. Anyone's opinion would be helpful. Thanks!
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