Epclusa Ruined My Life (Page 12)

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Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

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221

Re: Kathleen (# 218) Expand Referenced Message

Greetings,hope you are going ok ,I came across a contract you might be helpful looking into Poste treatment ,American liver foundation Harvoni forum,might help finding out about more people now suffering Poste treatment ,I also heard about disease called cryoglobulinea ( not sure about spelling ) but apparently it is found to be attracted to hep C,a lot of the symptoms I could relate to nerve damage ECT if you have time take a look,it was just by chance I read about it,you would think the liver experts or drs, nurses might have mentioned it,I guess you would have seen the fly land on pences head in the debate,I think the fly was noticed more then that rude pig pence ,I couldn't believe how he kept interrupting,can't believe how Trump is going on,just hope he doesnt start a war before he is thrown out, theve got a name for people like him over here ( drop kick ),hope everything is ok and your pets are good, lost my old dog last year I had to put him in a dog hotel just a big kennel really for a day last yr,picked him up that night ,next morning he couldn't walk then I noticed he had 2 poisonous ticks on him,by the time I got to a vet he had passed on unfortunately,at least wasn't in pain ,the guy at dog kennel refused to believe ticks came from his dodgy kennel ,I don't think I will get another dog I get to attached.stay safe.

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222

Re: Lou (# 221) Expand Referenced Message

Read about harvoni. All the hep c drugs including Epclusa are basically the same thing. They just tweak a little.

Yea fly on the head was hilarious. Biden's team sold Pence fly swatters but sold out before i could purchase. They made 35,000 and sold for $10.00 each. Trump had a rally at white house today with 2,000 people. Mostly hispanic and blacks. He is trying to get their votes. It's too late Donald. He is so outta there.

Did your hearing get worse after Epclusa? Mine did. I had to get hearing aids about 5 months ago. Forgot to mention it to you. I swear I felt better before Epclusa. My main symptoms before I knew were flu type stuff that happened quite a few times. Now post Epclusa I'm a different person now. I get depressed but don't tell anyone. Oh well, what can I do?

Glad to hear from you. Always.

I wonder if people go to this site and read what we say? I hope so.

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223

Re: Kathleen (# 222) Expand Referenced Message

My feet have been really painful lately, no obvious marks just pain mainly soles an heal, just another symptom from the wonder med Epclusa. have to talk to my dr this week, only telephone calls no visits at all. I can say is feet are hurting he can't Evan see my feet, all he ever says is useless anyway. Not looking forward for November having more lung x-rays an breathing tests x-rays suppose to show if any change in lung spots from last x-ray I did, I'm just getting so sick of it as I'm sure you know how I feel. As for people reading what we say, hope Gilead is reading!!!! Unfortunately I can't send my email to you, been trying to think how I can.

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224

Re: Kathleen (# 222) Expand Referenced Message

Yes I also get depressed since Epclusa treatment , anxiety exhausted everyday ,I make plans for the next day of jobs that I should do,but when I wake next day I haven't the energy or mental drive to do anything!this is since I did treatment,think I'm worse now IV got the spots on lung waiting, always waiting November is coming so fast ,I'm not sleeping properly worrying about stupid x-rays,worrying isn't going to change anything keep telling myself,lol,this is strange town where I live,unless you go to hotel never meet anybody ,I don't mind really not knowing anyone here,in fact proberly chat to you more then anyone ,these days, oh yeah nearly forgot ,I did loose hearing in right ear for 2 weeks just after starting treatment,but got it back after heavy doseing of a steroid med,ithink they should have stopped my treatment when that happened obvious Epclusa wasn't agreeing with my system.

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225

Re: Lou (# 223) Expand Referenced Message

Hi mate..
You and I have so many of same side effects.
I wonder if pharma reads what we write.
Sad Epclusa was not more up front about what to expect.
They kill viral load but kill part of us too.
Been a waitress 40 years and never felt exhausted like this until Epclusa.
Sorry you don't have friends where you live.
I havent seen my only 2 gal pals in 6 months.
Looks like don is quaking in his loafers. He knows he is through.
Take care.

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226

Hello, i want to say i just found this sight today. I’ve had hep c since 2001 - i treated 2 x with interfuron with ribavirin, both times i has to stop as the side effects were so bad it almost killed me! The serving time i stores i ended up in icu for 10 days on a vent! I won’t go into details because it will just waste time, however my doctor is not wanting me to try Epclusa. I have auto immune diseases act up in the last 2 years which the day are from the hep c and this why they want me to do treatment again!
However I’m reading allot or very negative side affects from these new anti viral medications! I still have laying side affects from the first treatments! I never regained my energy or strength back and I’mSO VERY WORRIED about doing this Epclusa now! Though it would be awesome to cure the Hep c and have the auto immune problems disappear! They have already approved me for the drug and gave me my first meds- i discusses my concerns with the doctor but all she could say is all her patients did fine with little to zero side affects! If anyone had any info on this please let me know! My gut is telling me NOT to do it! I really don’t Know what to do!!! I’ve even heard of some getting cancer after the tx and dying??? Anyone know or heard of this also?

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227

Re: Elizabethgrace (# 226) Expand Referenced Message

Hello, sorry to hear of your problems, it is very hard to say if you should do Epclusa, I hear so many different stories, even my dr I'm sure he does not understand, seems to be different for people some say very few side effects and cured the virus. But for me I seemed to get many things from losing hearing in one ear for a week. Lucky my dr put me on strong steroid med my hearing came back that was 2nd week of treatment, I finished treatment 2 years ago and often get nausea numb feet hands, very sore legs knees and I've had skin infections that needed antibiotics, lack of energy everyday.

I felt better before treatment, the liver people who put me on Epclusa said it would not have caused these problems, but having hep C for maybe 35 years probably caused all the ailments I have. They would not admit that Epclusa may have caused it!! Maybe it didn't, maybe because I'm 67 years old I'm getting these problems now, just seems strange to me that I felt a lot better before Epclusa. It's hard to say for me what you should do - how old are you and where are you? You may have better treatment where you live, every time I've rang the liver Epclusa people they just say I've never heard of that happening before, which is bit strange, as there are many forums with people having problems after treatment. And yes, I know of people who have suffered some have died, just not sure if from the lifestyle we had to live with hep C or the treatment. Sorry I could not help more. Ask me anything, if I can help you. I also have asthma and bad lungs now breathing problems an x-ray I had done found 2 spots on lung just waiting to see if they have changed shape, I am also nervous.

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228

Re: Lou (# 227) Expand Referenced Message

Epclusa is bad stuff.
Side effects are worse than hep c.
Had hep c for at leadt 40 years undiagnosed.
Then found out and started Epclusa.
I felt like I was poisoned every day for 90 days.
It was pure terror.
Within an hour of taking it every day I would feel deathly ill for about 12-14 hours .
Im 16 months out and feel awful. Exhausted. Loss of hair. Need hearing aids because my ears now ring 24/7. My energy level gone.
My life was better before Epclusa.
Please read all you can.
Go to all hep c med forums.
Be informed.
I communicate with a wonderful man in Australia and we have been on this journey together for quite a while.
Please take time to read what we have to say.
I wish you well.
Keep us informed.

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229

Re: Kathleen (# 210) Expand Referenced Message

Hi mate,hope everything ok with you, as good as we can expect I guess,after the wonder med Epclusa that is destroying people's lives everywhere ! So sorry I ever took the poison,an not a thing we can do about it,I'm so sick of telling my dr my latest symptom,I'm sure he thinks I'm making it up,would love to swap places with some of these big pharma liver experts and drs so they experience the hell we have to put up with,since doing the Epclusa treatment not one person either from liver clinic or Gilliard have contacted me, these people are not interested in hcv people only $$$$$$$$my advice to anybody thinking about treatment DONT....

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230

Re: Lou (# 229) Expand Referenced Message

Hi Lou. Country going crazy over upcoming election. Tv always about those ugly old white bigoted men. Some look one step away from grave.
Covid raising in 15 states to the point of too many. Hospitals overrun. Just because people won't wear masks. I mean who do they think they are? Intentionally infecting masses of people.

On top of that the side effects from epclusa making me crazy. Is it worth it to be alive when its so difficult? My life is a series of Epclusa usage.
Thinking of you my dear friend. Wish there was a way for us to email each other. Epclusa site knocked my text to you off because I put my email address in it.

Dinner time. Chat soon. Be safe. Think good thoughts.

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231

Re: kathleen (# 230) Expand Referenced Message

Just got your message, yes I've been wondering how I could pass on my email, I've tried also, been thinking same thing about elections, there's been few shows on tv showing Trump. Can't believe how corrupt he is so full of himself plus rude, why does bad things only seem to happen to the good people?? We both have med appointments next month, can't say I'm looking forward to it, the air quality has been bad lately. High humidity usually above 80% not good for breathing problems, I've been trying to find out percentages of people with post Epclusa side effects, especially people over 50yrs old. Seems to be top secret unfortunately. Take care, I'm really having trouble not smoking. I know it's stupid, but since doing treatment my nerves have also suffered, specialist told me damage is irreversible to my lungs, since stopping cigs my breathlessness seems worse. Take care mate.

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232

Re: Lou (# 231) Expand Referenced Message

Hi lou dont be discouraged about not smoking. It's hard i'm sure. Never smoked cigarettes. None of my few friends smoke but my son does. He goes outside to do it. I still smoke pot but its legal here and go to designated stores to get it. Helps calm me down.

Epclusa has changed the core of who I am. I don't recognize myself any longer. ..my personality has changed. No longer do I feel the need to be amongst people. I'm sure covid didn't help.

Sorry it's so humid there. Its end of October and still in the 90s here.

Epclusa made me sick for the three months I was on it and it made me feel reclusive. So sick didn't want anything or anyone around me.
Will write soon. Take care

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233

Re: kathleen (# 232) Expand Referenced Message

Thanks for fast reply, bit long before election, it's on tv a lot here even, people seem really interested, just about every night there's a documentary about Trump, really hope he gets voted out, a lot of people do, he kind of has an effect on every one, his a worry that he may start a war that will effect us all, I think whoever wins gonna be trouble in the streets protests ECT, I'm same as you I'm sure Epclusa has changed me, hard to get any motivation when nauseas no energy now this lung thing it's getting boring so wish they warned us instead of saying it's a wonder drug, I hope there's someone out there who reads what we say about Epclusa, still trying to think how I can pass on my email to you, I looked at calendar before and it's next Tuesday. I have to do MRI x-ray same day different hospital breathing tests, lucky appointment 11am I have to have nothing to drink or eat (no coffee)also not Evan use my puffer before doing test, gonna be hard usually have puffer first thing. Take care.

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234

Re: Lou (# 233) Expand Referenced Message

Well you have my full name now. I will try to send everyday a letter or symbol to follow. Yes Epclusa sure he c but made my life a living challenge daily. Worried about your lungs. Wish you would not smoke. You deserve some peace. Take this time to try other things, like reading. Do you like? If I had your full name and address I could send you kewl care (fun) packages. Rest, sleep well.

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235

Re: kathleen (# 234) Expand Referenced Message

Hi I was just wondering if since doing Epclusa do you get body jerks or jumps ,I do usually when I'm nearly falling asleep ,I get body jerks ,IV dropped so many drinks when it happens,think it's called myoclonic jerks,I rang the liver people who suggested I do Epclusa ,but as usual said never heard of or numb feet they said it's probley just anxiety don't worry about it ,(in other words they just didn't know or care )I watched a documentary on Trump last night something like 18 women have tried to have him for assault !!scares me a bit how many people at his rallies supporting him, so hope it's not like the last election , everyone were sure he had no chance he can't be trusted too many $ ithink.??

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236

Re: Lou (# 235) Expand Referenced Message

Hii mate.
I get this weird thing since Epclusa that all of a sudden my body Jenks and I involuntary take a deep breath like a gasp.
It scares me. I have so many "quirks" since Epclusa.
My whole body has changed. Like I aged 10 years overnight.
Epclusa is poison and I implore all people considering Epclusa to do a much broader search before starting.

You and I were naive and desperate.
I hope others read this. Take care. Thinking of you and your health.

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237

Re: kathleen (# 236) Expand Referenced Message

Hi mate, how are you? I just can't believe these ailments I get since doing Epclusa treatment, I very rarely even had to go to drsnot like now, seems to be always another appointment, I did the breathing test last week, started off had to go get MRI done 9 am had to have no coffee or food or any puffers I usually depend on to get me moving in morning MRI was nerve racking enough hate getting injection of dye, then I had to wait till 10.30am to do spirometer test (breathing test )still no food or coffee Hy this stage I'm feeling bad anxiety, waiting to do test nurse informs me I could have used my medications plus had food as normal, someone got mixed up apparently!!* Time to do breathing test I failed miserably thought I was going to choke or pass out trying to hold breath then blowing air in metered hose type thing nurse stopped testing I had no energy from no meds or food hot drink ECT, so I'm not looking forward to seeing specialist tomorrow he is a very stern serious guy from India ( rarely smiles )he tells me if the spots on my lung have changed since last x-ray one was 17 mm and 8mm, don't know if that's big or small, probley Epclusa had something to do with it, like everything as you understand I'm sure I can't believe how my health has changed for the worse since treatment, and not one person involved with doing treatment could give a dam, an old friend I know gave me a vapour cigarette replacement thing it's apple flavour, I find it helps me a bit when I feel like cigarette, he buys on line as can't buy in Australia, and now for the super dooper great news no more Donald maybe!!!!! I was bit scared at first thought he was going to scan another win, then it started changing in Dems favour, good on Joe he brightened my life up, take care mate good luck with your appointments with drs

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238

Re: Lou (# 237) Expand Referenced Message

Hi mate. Happy to hear from you. Pretty scary about your lungs.. Epclusa has caused many side effects. I n last 4 days my hands and joints in my fingers hurt. Hard to hold things in left hand. Ecplusa..the gift that keeps on giving. I never heard of Epclusa before I tried it. No warning me. No contact with me after they have read l of my posts I. This forum. I go for ultra sound Thursday which happens to be my birthday. Do you ever think that Epclusa has mentally pushed us to dispar? SOMETIMES I feel like giving up.

With biden being elected is so good for our country. Trump floundering like a fish on hot cement. Putting tweets that are calling the election corrupt. Our country does not fake elections. Only a psychopath could do what he is doing. Gonna start a go fund me to help pay trumps moving costs. He is asking his donors for six million dollars to help pay his legal fees. Man has lost his mind. An obese turtle lying on his back flailing in the hot sun.

Well mate take care. Thinking of you. Just know I truly care about you and your health so stay healthy for me.

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239

Re: kathleen (# 238) Expand Referenced Message

Just quick message ,saw specialist spots ok just scarring,lungs not good,who wants to live forever Afterall ,we've just gotta try hang in ,ok I'm similar to you ,happy bday, good luck thurs.still don't trust that floundering fish ,lol. ,I'd like him to try Epclusa !!!!

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240

Re: Lou (# 239) Expand Referenced Message

Hello. Glad your lungs ok. I just had my ultrasound to check for liver cancer.

I now have new problems. Both wrists and my fingers hurt to much. Eake and I can hary open hands. My knuckles and hands are so bad.
Epclusa has done a number on me. I had none of there issues before Epclusa. I think I talked another lady from taking it. Saw her at hospital. I told her about everything. I suggested she ask doctor for something else.

We are still in post election hell. We are laughing stock of the world. He hasn't been to a covid meeting in 5 months. Just hiding from public... he does not care if whole country gets covid.

Anyway just checking on you to see if you are okay. Too bad pharma won't contact us right? Be safe mate.

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