Nervous System Damage From Epclusa (Page 10)

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Barbara Says:


Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.



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181
Lou Says:
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Re: Kathleen (# 180)

Yes we have same kind of people here ( Trump supporters )reason I had to get gas is my water is heated by gas not electrify ,that just means I have to take gas bottle to service station get refill about every 3 months there not to bad when empty but can be bit heavy when full ,but not too bad, it's crazy how it's hot where you are same time real cold here !! Can't believe how fast this year is going ,sure been a strange one with virus outbreaks ect, not that I know much about your politics where you are but I don't like what Trump stands for or his superior attitude , I don't know how some people look up to him ,oh well don't like politics much ,when ever someone good gets in over here ,they usually don't last long unfortunately ,it's 8am Tuesday morning here ,and bit cold today ,thanks for reply always fun reading your posted kinda like having a pen pal with similar things,on other side of world,lol,take care try stay cool ,gotta have a coffee my brains not working yet ,cheers

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182
Lou Says:
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Re: Kathleen (# 178)

Hi Kathleen ,must only be 110 days to go before voting ,I think people all over world are praying for change ,before he starts something he can't stop ! And the whole world will suffer,I'm not worried for myself I'm old done heaps ,I worry for grandkids ,.I can relate with your leg problems ,my legs have been getting so painful lately , usually in afternoon legs start aching ,I just can't believe all these new problems since doing treatment ,I was reading about neuropathy apparently common after having virus for yrs ,no one seems to want to believe drs ,liver clinic ect,plus only treatment I could see for it was cortasteroids and more tests more money ,nothing I can take seems to ease symptoms , maybe it's worse in winter ,try stay off your feet especially in hot weather ,heat is so exhausting ,IV been watching Steve Corbett late show his pretty funny I think ,usually I wake up about 2 am that's when his on tv ,anyway take care look after yourself ok ,stay cool,lol

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183
Kathleen Says:
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Re: Lou (# 182)

Yes voting soon. News says he is going to pardon himself. Just waiting to see him grilled on the barbie. From the experiences you are having I wonder why you are not getting better doctor care. You know they know about Epclusa and probably keep selling it because they get rebate.
In USA my insurance paid $1100. a day for Epclusa. Almost $100,000 for the 3 months. I feel as though I have put my family through soooo much because of this. I can't do the things that I am used to doing. I'm afraid to leave the house with covid19 because I'm compromised. Such a hard place for you and I to be in. I really am ready to go..Don't want to but have lived and done most things. Seems like it would be a relief from Epclusa side effects. Everyday is a struggle. You know! Two days ago it was 106 degrees here. It's been miserably hot so far this summer. Oh did your doctors ever say you could get a prescription for legal cannabis? Just curious. Take care. Be well, hope to hear from you soon.

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184
Lou Says:
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Re: Kathleen (# 183)

Hi 106 that's really hot,I find it really zaps your energy especially if hot at night as well,I'm not looking forward to summer, I use to enjoy warm weather,.That is really expensive for Epclusa,I think our gov has some kind of deal going with Gilliard,that's why never see anything negative about Epclusa, maybe our gov has shares in it,nothing would surprise me, there was a lot of advertising about saying for everyone to do treatment , unfortunately once finished with treatment very little support from anyone ,I find IV got to tell my dr about the disease more then he tells me mmm.im sure your family would be happy they could help you when you needed help , I won't start taking about family,IV had my daughter on telephone today 3 child on way I think she forgot about morning sickness plus she is 37yrs old ,grandkids are great ,anyway try keep cool been watching weather map where you are .

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185
Kathlren Says:
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Re: Lou (# 184)

Hi. My son lives with me. I probably would have died if he was not here. He is a truck driver and delivers to rite aid pharmacies only. He is 48. Never married. No kids no baggage. Not gay. He does not mind shopping for me. He witnessed the change in me on Epclusa. Within 4 weeks he saw a drastic change in me. Said Epclusa is poison. I agree. Yea bad timing for your daughter to have baby. Totally crazy world to bring children in to. But I wish I had grandkids. Its so hot here. Its a dry heat. Luckily my bedroom gets east sun so my room is not so bad at night. Stay well. Wear your mask when going out. In California everyone has to wear them in public/places. I am a believer. Chat soon.

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186
Lou Says:
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Re: Kathlren (# 185)

My son is 42 lives in Brisbane ,Brocken marriage 10 yr old daughter he gets to see fairly often ,his a delivery driver also. I'm just sitting in my car in biggest nearby town, wondering if I shud go try see my dr my asthma hasn't been very good lately woke up having coughing episode this morning ,I drove past surgery and there's a line of people waiting to go in, probley do breathing more harm then good standing in a line up of people ,gotta hope that I didn't get cough while waiting !,no don't think I will go in IV got an appointment next week anyway ,I never had anything like asthma before treatment ,if I mention that they always say must be from having the virus before Epclusa treatment. Can't win.!!!

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187
Kathlren Says:
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Re: Lou (# 186)

Yes glad you did not go get in line. I think people can/do get sick at fr office. I dread going. I guess Epclusa has made me almost a hermit.
Seriously. All I do now is watch cnn and other news. Seems like all they talk about is covid19/schools reopening or not and Trump. But drawn to it because its only way to stay connected/informed. Chat soon. Stay home...

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188
Lou Says:
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Re: Kathlren (# 187)

We are very similar ! Your day sounds lot like mine,I would be lost without tv,your right we have one station international news it's all about coronavirus or Trump ,I'm sure there must be lots more cases people in 3rd world countries who can't afford to go to drs to get checked, there's people over here who continue to go out scared they will loose there job ,or miss out on something if don't go out drinking ,nothing we can do about it ,I hate the way world has changed.later...

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189
Lou Says:
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Re: Kathleen (# 183)

Hi hope you are going ok with the hot weather an staying safe ,you may be able to advise me on my latest problem ,I noticed small blister on my shin yesterday felt like a slight burn feeling , anyway looking at it today ,now looks like a skin infection about 2 inches square so has just about tripped size,have you heard of anything like this ,now I'm going to have to try make appointment to see dr tomorrow probley means more antibiotics ,what confuses me is asthma cortasteroid are known to cause infections and we both know what strange things Epclusa can do,I'm getting really sick of every week seems to be a new problem ,I'm just wondering if you have heard of Epclusa causing skin irritations ,sorry to bother you I really don't know anyone over here who may know anything,it's really hard to even see a dr ATM means risking health going to drs , stay cool if possible ,cheers

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190
Kathleen Says:
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Re: Lou (# 189)

Yes..I keep getting rash on my nose. Starts with pin size bump. Then it immediately bursts and clear fluid comes out. They turn in to scabs that last almost a month then moves to other places on my nose.
Its so frustrating.
Luckily no one can see it because of mandatory face masks in public.
Thanks Epclusa.
Since you have it too the its pretty clear where this came from.
My skin never has done this until Epclusa.
I hope others read our posts and start asking questions to their doctors.
I watch the dodo animal shows. Are you familiar?
Had cat scan yesterday.
Do you have to have them often too?

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191
Kathleen Says:
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Re: Lou (# 189)

You are not bothering me.
Its wonderful to have this Epclusa forum to be able to spread our knowledge to the innocent people who might think twice and ask their doctors a million questions.
These spots on my nose spread to make others. Just a small patch. Seems to break out then move to other spots.

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192
Lou Says:
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Kathleen (# 190)
Thanks so much for reply, I'm in bit of a panick today just trying take deep breath s ,I took double bandaid off my shin this morning about a tea spoon of clear liquid dripped straight out, just like your s !!I bathed with alcohol swob put another bandaid on.my legs look to me to have fluid build up a bit ,maybe it's a natural way to drain fluid off I dunnow what to do can't get into drs booked out ,keep U posted ok gotta try ring another dr,thank you!!!

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193
Lou Says:
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Re: Kathleen (# 191)

Hi Kathleen, well it's been 10 days today trying to clear sore in my leg,dr put me on second lot of antibiotics today,these ones suppose to be stronger ,I mentioned to dr that I had nothing like this before Epclusa !! He just said "oh no that wouldn't cause this " anyway just seems to be getting bit bigger and inflamed plus sore ,got to wait till Monday see what the results are from swab they took off , I'm not really expecting them too find anything besides being ulcer on leg,may have to go to hospital for couple days if doesn't start healing not looking forward to that,as you can imagine hectic at hospital, these new antibiotics make me feel bit breathless nausea ,hope your ok ,take care.

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194
Kathlern Says:
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Re: Lou (# 193)

Oh Lou, you and I just cant live normally after Epclusa. I keep getting pin point sized red dots on nose. They spread and last a month or so. Glad I have to wear mask when going out so no one can see them. I am watching a new series called isolation outback i think. Its about a couple roaming the mans brothers thirty five thousand acre property. Its really cool..but next to dying the spiders scare the crap out of me. My goodness they ate lzrge and very scarey. California has more covid cases than I could imagine. I've been out once in two weeks for cat scan. Im not wanting to be out and around people. Im so sorry about your leg. Can you tell your doctor that you are on Epclusa forum and that you and I are having same problems. Hotter than haties here. Do you have to wear masks there? I just want you to know that chatting with you has given me peace of mind. That your friendship and courage have helped me greatly. Well I'm going to sleep. Hope you are feeling better on antibiotics.

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195
Lou Says:
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Re: Kathlern (# 194)

Hi, Kathleen,well I'm sitting in hospital bed lol,had to go to hospital my leg after 2 and half prescri ptio s was just just getting worse and the antibiotics making me nausea sick plus ankle puffing up ,just had injection penicillin plus different antibiotics ,feeling bit better already I had a cat scan on my lungs hour ago ,just got to wait now don't like being in hear everyone coughing including me my asthma playing up anxiety I think,will get back to later ,no I haven't seen that show on tv .take care.

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196
Kathl Says:
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Re: Lou (# 195)

Wow I'm so sorry. I was thinking about you. Hoping your leg was getting better. I'm afraid to go to the hospital. Afraid of covid-19 lurking in every corner. Epclusa..the gift that keeps on giving. Are you in pain? I'm happy you are getting medical assistance. I'll give a shout out to the universe and ask for healing for you. Stay well my friend.

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197
Lou Says:
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Re: Kathl (# 196)

Thanks my friend,I'm out of hospital now ,so glad,I'm feeling much better they gave me injection penicillin type anti biotic,leg is finally bearing,the antibiotics my dr gave me were terrible made me sick ,thanks for your thoughts ,I just felt like messaging you while in hospital ,I know U can relate ,glad I'm out of there.its 4 am so will try for bit more sleep may be ,talk soon.

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