Epclusa Ruined My Life (Top voted first)

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

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I have just finished 12 weeks if epclusa may 28th. I have started losing my hair. I have pain in my knees and shoulders. The joint pain just started. If I would have been told of all the side effects such ad ferling poisoned and totally being unable to stay out if bed I might have looked at other options. My hep c is at zero viral count but my stage 4 chirrous is still with me.
I guess its a death sentence but lost almost three months of my life in a daze. I would warn others to check options. Best of health to all of you.

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Re: Skpp930 (# 8)

Hello skipp930. I also have has some hair loss. I just am so beyond belief that my doctor, the pharmacist, nor my nurse practitioner told me anything about epclusa. Other than the fact that it would get rid of my hep C. I feel like they did not explain anything well in the pamphlet provided at the pharmacy concerning all of the devastating side effects it had. I still can't get over the fact that I just found out it's a black box medication. I feel that everyone on a epclusa is a guinea pig. I hope you get some relief feeling better soon. I hope that the people on this forum can inform people and make them have educated decisions about what they need to do for their health. Good luck skip.

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Re: Suzanne (# 2)

My hair is falling out more than before. This anxiety is different than regular anxiety. It's like your mind and body are not able to relax anymore. I know it has damaged something in my brain that controls gaba, or something that calms you down. I feel like my mind is slowly going away.

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Re: Skpp930 (# 7)

And I've done everything about my diet, but nothing changes it! This stuff kills a lot more than Hep c.

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To anybody considering up epclusa, please read on. Do not expect your doctor or your PA to tell you the truth about epclusa or the side effects. They are motivated by kickbacks for ordering this medication. In 2018 in California I was determined to have Hep C and cirrhosis of the liver from a blood transfusion. I took a epclusa religiously for 90 days and it was the worst experience of my life. I almost lost my sanity. I have ringing in my ears 24 hours a day 7 days a week, I've gained weight, I can't sleep well, I have pain in my joints and all of these things never occurred before the 90 days on epclusa.

If you continue reading you will see. Over a year-and-a-half conversations between people on this forum that are expressing their fear and regrets about epclusa. Please reach out and ask many questions. Use the internet, but use this site because this site is dedicated to people that have actually taken at epclusa. Not somebody that has a read about it or heard about it through another. Please be aware there is no quick fix and that it will change your life in many ways. Good luck and I hope you find a cure.

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Re: Verwon (# 1)

All of this was due to epclusa. It's been a little over a year, still haven't got my hair back, and no, I eat healthy. Still have to be medicated, still no memory, still wake up with body parts like they are vibrating. I wouldn't advise anyone to take this poison! If you went through it with no problems, just wait, they will start up. Many have said they didn't feel anything during treatment but they do now. I'll never feel a normal day again. All I can say is, when god is ready to take me, im more than willing to go, to get out of this nightmare!

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Re: Lou (# 22)

Hi lou. Sorry you are going through this. I will tell you what ive experienced. I started epclusa feb 29th 2018. Within days i was bed bound. I felt like i was being poisioned. I kept telling my n.p. and she made light of it. After 3 weeks i was delirious and going to my appointments without memory of it. My family had to help bathe me. Feed me and make sure i took it. After going on the acoustic Forum I realize I was not alone on that Chris has only been out since 2016. At that point I felt that I was a guinea pig for the company and that they were not going to tell me the truth. I've been off epclusa since May 29th and I'm still very ill my body hurts my memory is shot I have pains in my arms of my hands and my feet and I still can't sleep. I had to go on Ambien the whole time I was on epclusa because sleep would not come. I had nightmares over and over again and we're just a miserable human being. I now have a zero viral load but I also have non-alcoholic cirrhosis of the liver stage 4 which cannot be cured so I don't know what my next step was.. I wish you the best and I hope to hear from you on the Forum and to everybody else out there Scott and Kathleen have a blessed day.

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Re: Davoe (# 62)

Hi. I finished my epclusa june 5th.
It was a hell of a ride.
Felt poisioned evety day (duh). Considering that I was being poisoned. I was not told by my Physicians the side effects that would come with epclusa I'm not sure it would have changed my mind about taking it but I was very poorly informed. Even going on the internet I did not know of all the side effects that could happen and it's been eye-opening to see all the things that have changed in me since epclusa. I am a woman I had beautiful hair I know do not have very much hair it is very thin it won't grow back very well and as far as nerve damage I'm not sure my spine hurts all the time now and that's never happened before and my shoulders hurt. I did have pain in my hips but that is gone. It's been a long struggle to get over epclusa and to get a clear head and to try to look ahead to the Future. Tell me what happened with you and how you were feeling I'm very interested to know

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Are there any elderly say over 60yr olds who have finished hepatitis c treatment, and now have aching joints exhaustion, numbness ,edema ect, would like to hear from anyone who may have experienced these symptoms ,or is it just me.thanks

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Re: Kathleen (# 10)

I pray for your sake you're right. It's been a little over a year, I'm still the same. A lot of people that didn't have any trouble when taking it are now. I'll pray for you. It totally ruined my life, my job, my brain, my body, everything. I wish I knew what feeling normal felt like for 1 day. It never got better when I took it, just worse and worse.

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Re: Verwon (# 1)

Hi Barbara. I have not experienced nerve sensation. What I have experienced is a restlessness and the inability to sleep longer than four hours at a time. I spent my first eight weeks of epclusa in bed. I would call my n.p. and she would act so surprised when I would say I felt like I was poisoned. I could not function. I felt like i was in a fog. I had no energy. Everything was a chore - i.e bathing/walking. No one prepared me for what was to happen. I have hair loss. I have changed. I am no longer full of life. I have a zero viral load but just completed epclusa may 29th. I wont be tested for viral load or progression of cirrhosis stage four until August. I am going to lobby for physicians to have mandatory sessions with patients to explain what is to come. I wish you the best.

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Re: skpp930 (# 11)

Why does big pharma not respond to all of our comments? I feel like my life will never be the same. I was deprived if any dangerous side effects. My hair has fallen out. My aches are constant. I wish I could post everywhere how awful it has been. God be with you all.

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Re: Lou (# 24)

Hello lou.
You should be done with epclusa by now.
Its been 5 months since i funished my epclusa.
My side effects are widening.
My wrists and shoulders hurt.
I have shooting pain in my legs.
My hair is so thin.
So many side effects we were not told to expect.
My hep c viral load was zero after one month but too much scarring in liver.
Im terminal with no check out date.
I never drank or did drugs.
Its just a toss of the dice.
All I can say is do all yoy can to stay strong. Dont take this medication and get healthy without realizing what a blessing and gift you have recieved.
Lou made it to California.
Hopefully my health will mellow out for awhile.
Good luck to you all. Take meds same time everyday..as if your life depended on it.

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It's now 12 MTHS since finished epclusa treatment stopped virus so far ,but I feel worse now then pre treatment exhausted all the time nerves are buggered numbness hands and feet ,if I had a choice I would not touch treatment and don't depend on any support from liver clinics or drs.

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Re: Kathleen (# 105)

I feel you Kathleen. I was exhausted and felt displaced the whole time on treatment but I pushed through just for results, for the cure... Without warning. I should've read all about the bad after math, but... Omg!!! There's is NONE according to BIG Pharma! Epclusa made me wake up every morning after the "cure", feeling angry and not myself, and bloated and all the skin on my body is just full of fluid and I gained 25 lbs! I've always been thin! No matter what! I am so not myself and this drug is to blame. I've factored in all possibilities... And Epclusa is the DEVIL in disguise.

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Epclusa has ruined my life. I took it from the second month in 2018 to 5th month and 2018. I had hepatitis C and cirrhosis. I feel worse now than before I took the medication. Xclusive has Zapped my strength. My will to live. I'm exhausted all the time. I have become reclusive. And I have no quality of life. I was never told before taking epclusa that I would have reactions like this. What I would call the physician's assistant and say I felt like I was being poisoned she would downplay it and just tell me to get more rest. I don't think I want people to know how dangerous this drug is especially with it only have been on the market for less than two years when I started taking it. Please be careful study all your options and make a choice with more than one position on what is best for you. I am 71 years old and my life is over and I owe it all and feel it's all because of aepclusa

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Re: Kathleen (# 17)

Hey I’m on my 2nd bottle massive side effects I feel like I’m dying daily my sanity is holding on by A strong massive weight loss no appetite aches pains rash sores bruises brain fog memory problems the list goes on ??

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Re: Kathleen (# 13)

My viral load was 0 in the first month! Yeah, it got rid of hep c and killed a lot of other stuff my body needed in the process!

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I'm happy to share that my hair loss has stopped and I believe it is growing back. Also my nerve pain in scalp is gone. I still have minimal nerve pain in my shins, and forearms that come on with stress but is much better than before. No more tendonitis or hand pain unless I use my hands repetitively for too long. I am about 10 months post treatment. I am much better than I was six months ago. It's been a slow come back though. Still hoping for more improvement and getting back to normal

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Re: Skpp930 (# 8)

I took Epclusa for three months last summer and I am still having severe anxiety and insomnia, muscle pain, mental fog, fatigue. Doctors are useless and always have been. I didn't even bother to go back. I was abandoned during treatment and had to ask my naturopath for help. I now take CBD oil (find one with 250mgs in the bottle and take 1/4 dropper on the tongue. Don't swallow right away, roll it around for 90 seconds then swallow), Bach Flower Essence which really works (I use 1/2 dropper full as often as I want and also roll it around on the tongue). I also take L-Theonine 200mgs at night (an amino acid), Melissa 1.5 gms at night (an herb also known as lemon balm, and it comes in capsule form), Taurine 200mgs am and pm, (another amino acid), magnesium 800mgs at night, and I stopped eating meat, dairy, and wheat but still eat lots of eggs, butter, veggies, potatoes fruit, brown rice so i'm not going hungry). I take Turmeric for pain. All of this has helped a lot. You should be able to find everything except CBD at any grocery store or herbal shop. If cannabis is legal in your area, it is here, you can find CBD at any pipe shop. CBD is not available on Amazon so don't confuse hemp oil for CBD oil, it's NOT the same thing. The listing must say "CBD" and give the milligram per bottle to be considered true CBD oil. But there are CBD oils available from private websites and it's not horribly expensive. Cannabis also helps a lot if you use a pure indica strain but go slow. I really hope this helps you find relief. MDs never help with side effects. They are useless in my opinion. The regimen I listed has stopped most of the anxiety and insomnia. Pain is still an issue but all of the supplements I listed helps it from being unbearable. If you can only afford one thing, I would choose the CBD oil. If you can afford to, I would see a naturopath for guidance. But you can do all of this by yourself too.

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