Epclusa Ruined My Life
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Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

303 Replies (16 Pages)

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Re: Jason (# 281) Expand Referenced Message

Hi Jason I lived with hep C for over 10 years and felt fine. I had no medical problems or issues other than hep c ,but had no problems from it. My problems started 2 weeks into taking medication at first my doctor at the time nurse practitioner told me the numbness and tingling in my hands was a side effect from epclusa. The doctor was quick to tell me she was wrong and that I had carpal tunnel. Well my symptoms kept getting worse and the doctor wouldn't listen. 2 weeks after taking my last pill my symptoms in my hands and arms were so horrible I went to the ER. I was admitted for 5 days. Turns out epclusa can make autoimmune disease that is dormant flare. I now have transverse myelitis which is the swelling of your spinal cord. I have neurological problems now, before epclusa my teeth were fine now several cavities and lose teeth due to sjorens syndrome, I have reynards syndrome also now. Severe joint pain, chronic fatigue, tinnitus, and I don't know what else because I'm still being diagnosed with issues. I went from a healthy adult except with hep c to a chronically I'll person who has had to quit a great job and apply for social security because of all these health issues. I wish I would have did research on epclusa before allowing this doctor to prescribe it. I would have never taken it. Epclusa ruined my life

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Re: 10 2023 (# 293) Expand Referenced Message

A great read I agree completely. I'm 70 now did tx 6 yrs ago now I'm a mess. copd, asthma, bad nerves, nausea. Please contact me if I can help. Wish I never touched that poison. I'm in Australia.

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301

Re: Toni (# 299) Expand Referenced Message

So sorry for how you're feeling. I felt the same way for about a year, and only in the last four or five months have I begun to feel a little better, though I'm still left with severe anxiety. If you don't mind me asking, could you refer me to any information you may have regarding Epclusa paying out that money? I'm very interested in reading anything about that. Keep your head up, drink lots of water, eat right, and be as physically active as your strength permits. You'll start to feel better, it just takes a while. There were times when I literally thought I was dying, and I wasn't in a good place mentally because of it. But for the most part, it's cleared up. Diet is everything: eat right and consume plenty of veggies. Hope you feel better soon!

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Re: Toni (# 299) Expand Referenced Message

Sorry to hear your story,where are you ?I'm in Australia I did treatment over 5 yrs ago I got rid of virus but I now have asthma copd ,neurology problems puffy feet found out last week I've lost 12 kilos in a year my Dr can't explain ,every time I mention epclusa he tells me how great it is obviously brainwashed ,iv just turned 70 wish I'd never touched epclusa my breathing is stuffed felt healthier pre treatment. Best wishes

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299

Re: Skpp930 (# 7) Expand Referenced Message

I had hep c from being stupid at 15.1 year and turned life around.Lonh story short,altho having cirrhosis, my liver enzymes were impressive,normal.Told Ecuplsa would give me,maybe mild headaches.
Felt like I was dying.Reported it to Dr many times and checked me for everything but.
Finished and my Liver Enzymes are to the roof.Exhausted,lost hair,basically my life.I was lied to on so many levels,then find out this Company paid $178 million to push this poison NEVER told of SERIOUS side effects and death.
I have been crying for two days and can't even trust my Dr,as trusted with my life! I have a child,on the spectrum who depends on me.Yet so sick,vomiting,weak etc.I was much better off before treatment with blood work to prove it!
I am beside myself with sadness for my child and anger towards the Dr and Company lying about this drug for the BLESSED BUCK.Sickening.

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298

Re: Kathi (# 19) Expand Referenced Message

I'm on my 2nd week of treatment and I've got shoulder pain so bad I cry, it started on the Left but has migrated to both shoulders now, across the top of my chest and into my neck and jaw. When it first started I thought I was having a heart attack. When did your muscle pain begin?

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Re: 10 2023 (# 293) Expand Referenced Message

Hi. I'm in Australia. I can relate to your story. I now have COPD, asthma, swollen feet, neurology problems I'm sure and all I get from drs is "oh no epclusa wouldn't cause any problems, it's a wonderful med". The liver clinic has a lot to answer for.

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Re: 10 2023 (# 294) Expand Referenced Message

Good luck. I really hope you have success. I'm in Australia, if you need any feedback.

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Re: 10 2023 (# 294) Expand Referenced Message

Just wondering what did it do to you? My fiancé got a liver disease after taking it and he was perfectly fine before. He’s currently in the hospital. He’s very bad off.

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Re: Jason (# 279) Expand Referenced Message

Keep all your paperwork, or get all medical files and have ready. Contact your dispensing pharmacy and file complaints thru them to FDA and Gilead. Then be willing to speak out about your story. I am close to finding an attorney or attorneys that want ro tackle this beast with me and any others hurt by this drug. Keep checking news, etc. I THINK ITS VERY POSSIBLE.

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293

Re: Kathleen (# 13) Expand Referenced Message

I took epclusa 12 wks. In 2022 at age 64. Breezed thru without any issues except tinnitus. 3 months after last dose all the stuff started. Weight gain, severe leg pain, vertigo, dizziness, blurred vision. I can't do anything without a struggle fear and pain. My thyroid stopped working, cholesterol levels went crazy and I am so dizzy all the time life is completely a mess. Been to cardio docs, ENT docs, next is neurology cause no one knows why all this suddenly started. I filed complaints through dispensing pharmacy that went to FDA and Gilead. I'm seriously considering a lawyer next. We all need to become part of this to stop this poison from hurting anyone else. I was NOT informed about any of this, by anyone. My fault for wanting to rid myself of hep c ? Not enough disclosure to make an educated decision. The clock is ticking for me and I am damn mad. I use to be a vibrant healthy happy person. Active as all get out. Now I struggle to walk anywhere, daily tasks etc. I know THEY KNOW who has taken this drug. I won't stop pursuing this, neither should all if you. Thank you everyone, I know I am not alone in this and need medical science to be accountable to all that have been harmed. Speak out!!!

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292

Re: Kathleen (# 72) Expand Referenced Message

My Friend is 65 he just started it 4 days ago. Dr. Told him Hep C for 30 years because of his liver damage. Anything I should tell him? 10/17 /23 Dr told him 80 ounces of water a day too. ( that's all)

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291

Continued from my last post... Also it did more harm than good by making it really hard to cough. I've not had a proper night's sleep in what seems like weeks now, feeling really exhausted. My Dr prescribed antihistamines which I found out made it really hard to clear my chest in the night. I would probably be on oxygen if I didn't smoke. I've tried quitting, but it's the only vice I have left and stopping probably won't make any difference. I'm hardly going to start running marathons LOL.

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290

Re: Kathi (# 23) Expand Referenced Message

Did you have the liver cirrhosis before the medicine or after you took it? My fiancé did not have cirrhosis before the medication but got it after he’s currently in the hospital in ICU on a ventilator for the fourth time this year. I’m glad I found this for him. I hope your doing better

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Re: Al (# 274) Expand Referenced Message

It may kill the disease but it also kills your soul.

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Re: Kathleen (# 18) Expand Referenced Message

I'll back your lobbying!

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Re: Davoe (# 70) Expand Referenced Message

I am into my second week and am now so exhausted that I just want to stay in bed all day. I'm tired, hear buzzing in my ears, am severely depressed and ache in every joint in my body.

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Re: Jason (# 281) Expand Referenced Message

Hi Jason hope your going ok ,I' m in Australia sounds like we all get treated the same ! It's been yrs since I did treatment probably 5 yrs ,can't believe how fast time goes these days ,I don't know if epclusa causedy current asthma copd nausea anxiety ,all I know is I felt ok pre treatment ,I really miss the old days , everything is so expensive these days not sure if it's just Australia idont think so ,every time I hear the news on tv or radio it's always bad news ,I think it makes me feel worse so I try and avoid the news ,anyway mate just letting you know your not alone ,I think there are a few soul survivors left ,I have lost just about all old friends from 70s 80s ECT, it has almost been like being in a war ( not really ) just surviving hey. ,,Take it easy it wouldn't be bad being a tattoo artist these days in Australia everybody ses to have one back in the old days " ha ha ' they kind-of had a message bet you wish you were still doing tatts! Take care

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Re: Skpp930 (# 5) Expand Referenced Message

How much hair loss did you incur ? Thank you for sharing

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284

Re: Kathleen (# 17) Expand Referenced Message

How much hair kiss did you suffer? Thank you for sharing

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