Long Term Side Effects Of Harvoni (Page 2)

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they don't have enough people in individual offices to report they have patients with long term problems. In our groups there are many with long term side effects. The doctor's try to pin it all on other stuff without really knowing. They just aren't listening. I know my body, I know the changes I have experienced. I am just really disappointed that there is not knowledgeable people out there for post HCV and post treatment hcv survivors. I need a support team that listens, they don't. I have extreme frustration to the lack of support after treatment.

REPLY

REPORT

I have most of the same problems, and of course my doctor says it's something else, they even suggested food poisoning. Who has food poisoning for six months? I feel so helpless

REPLY

Was this helpful? 1

Yes! I am now on drugs for premature atrial contractions. The PACs are so bad they make me feel like I am being choked. Also, I cannot tolerate the outdoors if the temperature is above 86 degrees. I feel like someone has started a fire inside my body, I get soaked from prespiration, and I feel like I will collapse at any second. It's very hard to explain to the people I am around. Also, the fatigue from my fibromyalgia has increased tremendously. My first go round with Inteferon and Ribavarin left me with type 1 diabetes and I had reservations about the Harvoni but my doctor assured me I would be fine. The ironic thing is I'm 65 and never have had symptoms of Hep C. I'll always wonder if I made a horrible mistake with treatment. Think about your options. No one ever discussed the possibility of life altering side effects or complications.

REPLY

Was this helpful? 6

It has been a yr since i finished Harvoni. I suffer from extreme back, knee & other joint pain. I am also extremely exhausted all the time no matter if i hv slept for hrs in the afternoon. I am awake for about 3 hrs before i feel like i am so exhausted i want to cry if i can't get immediate rest. Its just horrible!

REPLY

Was this helpful? 2

I'm 55 years old and I too suffer from those side effects. I have now been diagnosed with fibromyalgia. For self care I am taking a lot of supplements and spending five hours a day 5 days a week in a therapeutic pool and I go to a chiropractor twice a week. I use a theracane to do trigger point massage on myself. My hope is that I will be ok in two years, but my doctor told me there is no cure for fibromyalgia. No matter what I do, I can't fully get rid of my back, neck and knee pain so I avoid sitting or doing anything that hurts my back and neck and knees. I was just approved for SSI benefits.

REPLY

Was this helpful? 1

I am one year post harvoni and I have never dealt with the type of pain I am still dealing with since treatment: low back, hips, tailbone, feet, legs, you name it, it is painful. I am taking 100mg demerol twice a day and it barely helps the pain. This is horrible, I can't do anything productive! Going nuts.

REPLY

Was this helpful? 1

I too have post long term side effects from Harvoni last taken November 2015. 3 months after ringing of the ears and joint pain on left knee developed! Also high anxiety, I had to visit a Therapist & Psychiatrist ! My Gastrointerologist still today refuses to acknowledge my complaints from Harvoni! My bloods also came back with a High RA and animic readings! I took my last blood test last week . And I will find out this week on updates on blood results!

REPLY

Was this helpful? 2

I have found that the best way to heal the body is to spend a lot of time in the beach and in the ocean.

REPLY

Was this helpful? 1

We can't all afford a beach resort, or even a trip to a beach for healing.

REPLY

Was this helpful? 3

I, too, have been quite ill post Harvoni, it is almost 2 years. I came down with a dreadful illness called GASTROPARESIS, basically meaning my food does not digest in the nomal amount of time. This makes my time on Harvoni seem like a picnic - at least it had an end. This illness is not curable. I spend most of my time in bed. Does anyone think this could be from the Harvoni?

REPLY

Was this helpful? 1

I would report it as a possible side effect of Harvoni.

REPLY

Was this helpful? 0

I'm going through the same thing. I took benzos while on treatment, and when I got off of them I see the damage the treatment did. severe anxiety, clouded thinking, just feel totally sick. When you talk to doctors they think you are crazy. I had terrible side effects from epclusa, it feels like I'm still taking it . It's been 5 months, feel like I'm going crazy. I hear ringing and music all the time in my head. I got so bad my daughter had to come get me. I lived alone, have a job I'm probably fixing to loose, I can't function anymore. I'm really scared I'm stuck this way.i think epclusa damaged my nervous system.

REPLY

Was this helpful? 0

these new hep c drugs destroy our nervous systems causing pain we did not have before treatment. I did Harvoni and a year later I am still in severe daily pain with it being worse at night. My feet hurt terribly, low back and hip pain is horrible. Also I recommend everyone get at least a yearly liver ultrasound. I have seen several people on other forums who have now died of liver cancer after being treated for Hep C. Our Dr's. need to listen to what is happening to us and list our side effects on the drug labels and adds, so others can make a decision to treat or not. People are being misled into doing a treatment with so few side effects listed it makes me sicker just thinking about all the people thinking it is a walk in the park. For some it may be but for many of us it is horrible and life devastating.

REPLY

Was this helpful? 4

I am currently taking Harvoni for hep C. My liver ultrasound results were stage 4 cirrhosis. I have ten days left out of the twelve week treatment. For the most part I have felt pretty good. I have a question for you (the person that posted) what are the side effects on your eyes? I have not experienced the other issues "yet" and will keep my eye on what you have shared and make sure to reply. I will pray for you!

REPLY

Was this helpful? 0

I was treated through a Veterans Hospital for 12 weeks. I completed the treatment 6 mos ago but wasn't able to return for a final Blood check or Ultra sound. I am assuming the Virus is gone. I will return as soon as i am able for the finals.
I am writing today to make others aware of some Long Tern side affects I am having.
The Joint stiffness and cramping others complained about was one that I also expeirenced for a short time. Now I only have minor fatigue in the mornings which mends itself after i am up for awhile. The one side affect that is driving me nuts is this itching of my Hands and fingers. There is no visible rash associated with the itching on my hands but I do notice a rash on my elbow and crotch area. Scratching of course makes it worse. I have Anti-Fungal cream for the visible rash which works as long as I apply it several times a day. But the Itching of the hands is driving me nuts. The more I scratch at it the better it feels. Like a Poison Ivy or Oak always feels better after scratching. Can't figure this one out. Anyone else having a Rash or Itching issue after Treatment? Thanks ItchyJoe

REPLY

Was this helpful? 2

I took my last pill Thursday June 28th. I have been suicidal. My eyes have been watering constantly and when I went in for an examination the eye doctor said my blood vessels are bursting and I "COULD" go blind overnight. I am scheduled to see a special eye doctor in a week or so. This never happened to me before. Why now that I am on harvoni? I have not got my blood panel back yet I just pray god had healed me. If anyone out there is experiencing the eye watering bad vision ect. I've had depression but never have I been suicidal...... For legal purposes I'm not treating suicide or to hurt anyone else. Things have never been this bad before....EVER!

REPLY

Was this helpful? 1

Michael, you are among friends. We that suffer are few but should be heard.

REPLY

Was this helpful? 0

Michael why if they think you could go blind is it taking so long to see the eye doctor, specialist???? That is typical of doctors though. I am so sorry your going thru what you are and your not alone. There are so many of us suffering since treatment without any help from the doctors that gave us that poison. Sure we are cured of Hep C but we are left a shell of who we once were.

REPLY

Was this helpful? 2

I am waiting for a specialist that comes to my small town only once or twice a month. The must have been concerned because they made the appointment the same day I saw the O.D., with this specialist. I have not been given a diagnosis. The eye doctor stated that it could be hypertension ( my blood pressure has ran dangerously high for over a year now and I am taking four pills a day for high blood pressure. My norm runs around 180 over 100. The also said I may be diabetic but every time they do an A1C is comes out "borderline"? I have had both hips replaced, my knee is "end stage" and will need to be replaced soon and now they say i have issues with my back (bulging discs and early stages of degenerative disease. The right hip was done in 2013 and there is indicators that the parts may be recalled.

REPLY

Was this helpful? 0

I have another question if Harvoni is causing all these side effects why aren't we (harvoni Patients) being helped and compinsated?

REPLY

Was this helpful? 4

We need to do something other than filing complaints with the company that makes the drug harvoni, which is in Ireland.

REPLY

Was this helpful? 1

What are the long term effects of the brain and mood changes in people taking 30mg of oxycodone for years? Do they act w...

6 REPLIES

My wife has been using Nexito Plus for the past 4 years. She is doing good, but she feels sleepy in the morning time and...

3 REPLIES

my boyfriends complaining after taking large dosages prescribed by doctors for sleep that he feels loss of sight, blurre...

3 REPLIES

My doctor just prescribed me Tramadol for a chronic back pain issue. If I take this med every night, will there be any l...

2 REPLIES

I have been taking clopidogrel 75mg + atorvastatin 10mg + metoprolol 10mg + telmisartan 40mg for the past 3 years since ...

1 REPLY

I am 41 yrs male.For the past one month occasionally one or two of my fingers move sideways without my control and then ...

1 REPLY

My father has been prescribed ecosprin 75 along with Dytor plus 10mg, prolomat XL and cardace 2.5 by a cardiologist. He ...

1 REPLY

I was just prescribed this medication by my doctor, because of irregular periods. For the past 2 years I have had my per...

1 REPLY

side effects of long term use of paracetamol ## I have elergy since 8 Years. First Sneezing start after that,Water comes...

1 REPLY

For the last 2 1/2 years, I've been receiving venofer infusions (series of 10 every other day) approximately every 3...

31 REPLIES