Is There A Representative For All Chronic Pain Patients

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Christine Says:


Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON'T WORK? NO MATTER WHAT PURDUE OR FDA SAY? We need a rep. for us chronic pain patients, who were controlled and NOW SUFFER & CAN'T DO MORE THAN LAY IN BED CRYING.



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1
Verwon Says:

Unfortnately, other than reporting your complaints to the FDA, there isn't much else you can do. I'm sorry you are having such a frustrating experience with it.

Have you tried to talk to your doctor about using any alternative medications, such as Fentanyl, or the time released Morphine?


https:/­/­www.medschat.com/­wiki/­Fentanyl/­

https:/­/­www.medschat.com/­wiki/­Morphine/­

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Christine Says:

I've been on fentanyl for 15 yrs until they changed patch, it didn't help that's why my dr.put me on OxyContin and that lasted 5 mo. Till they changed to OP, then they stopped working.So my dr put me on Opana,fentanyl taffys& dauladid but my Medicaid says their test were only on ppl.w chronic pain w cancer! CHRINIC PAIN IS CHRONIC PAIN.my Dr. Who I've been with 17 yrs tried but all they do is fall on the only test were done on cancer patients.I almost lost my Rt. leg fr. Knee Down7 fractures, muscles can't be replaced, now in front of my drivers leg ontop of disc surg.and injections failed to work .3/4 of my body is in chronic pain.the Co. Seem to mess up all the good MEDS and I have to start over then I start all over.I can't take this suffering circle .Do you understand what I'm going through? Now Opana can't be found & I heard they're changing that now.I wish I could get the old fentynol patch , I d be a more productive mom an daughter of 90 yr old mom who is very ill.i can't lay in bed in pain & my Dr. Is frustrated too !!!

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3
Mark Says:
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This is just something else the government messed up for people who actually need it, their more concerned about drug abusers than the people who need the meds. This is another Obama liberal bleeding heart BS for drug addicts. Who cares? Let them all OD and die, worry more about the innocent who are suffering and wanting to have a day were dying isn't an option to suffering daily...

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ENJOY LIFE please Says:

the new oxycotin works even better. Do not understand how you do not think this. It is made out of a plastic type so addicts can not use it intravenously. If they do they will die.

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Livingwithcancer Says:
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F.....off. How can you tell an addict to go die when you know what being an addict feels like.

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Tommy Says:
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Help. My current caring PCP left practice and now I need a new doctor or pain care provider in New Hampshire.

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PAM Says:

MY DOCTOR WAS ABLE TO GET ME OUT OF A WHEELCHAIR AND I COULD AT LEAST LEAD SOME WHAT OF A LIFE, NOW I CAN NOT EVEN GET A DOCTOR THAT WILL PERSCRIBE WHAT I HAVE BEEN ON AND I AM BACK IN MY WHEELCHAIR!!! GOOD LUCK TO YOU! I LIVE IN HAMILTON, OHIO AND I HAD ONE DOCTOR THAT WOULD "NOT EVEN TALK TO ME" THEN SENT A LETTER TO MY PRIMARY CARE DOCTOR TELLING THEM I NEED REHAB!!! I DON'T NEED REHAB, I NEED MY MEDICINE BACK, THAT'S ALL!!! IF ANYONE KNOWS SOME ONE THAT WOULD GIVE ME BACK THE MED.'S I WAS ONCE ON IN OR AROUND HAMILTON, OHIO PLEASE LET ME KNOW!!! THE DOCTORS ARE SO AFRAID TO PRESCRIBE WHAT YOU REALLY NEED, "WONT" DUE TO ALL THESE GOVERNMENT LAW'S!! THEY ARE NOT GOING TO STOP THE ABUSERS! THEY ARE JUST MAKING THE PEOPLE THAT "NEED" THEIR MEDICINE BE ABLE TO GET IT, BUT WE CAN'T!!!

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Barbara Says:
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Re: Mark (# 3)

Your frustration, such a weak description of how most of us feel about this continued govt sanction of domination. Certainly I don't want to see addicts suffer or die from their addiction. We're all equal in God's eyes. We're being pitted against each other in another way. The addict isn't to blame for the fictitious opiod epidemic.
We need Doctors, Nurses, pH and Occupational Therapists loudly advocating for and with their patients. Chronic pain patients must contact their local, State and Federal Representatives as well as the FDA and the DEA.

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9
HOUSE Says:
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Re: Verwon (# 1)

Morphine is a total joke and fentanyl is sooo addicting! Ocycontin really helped me when I needed it!

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10
Hop63 Says:

Re: Verwon (# 1)

Fentanyl is the # 1 drug under attack. Even if you find a doctor to prescribe it for you it won’t be long until you are in the same situation.

I have noticed 2 of my generic prescriptions no longer work as well as they did previously. My insurance won’t allow my doctor to write “ dispense as written” as they did in the past. Also different generics of the same medication have different results. Only thing in common is that each one becomes weaker. Calling FDA won’t help unless a particular batch is found to have been tampered with or formulated incorrectly.

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11
Vicki Says:
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I’m right there with you! I only get up to do something the three times a month to go to the doctor. This Government has destabilized my health and some well known attorney needs to step up and help chronic pain patients across the US. Why do Govonors, Senators and the House of Representatives get to make decisions about my pain care? Where is their license to practice medicine??

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12
Sue Says:
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Where do I start? How do I lobby to keep government out of this issue and leave it to medical professionals

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13
Alan Says:

Christine is correct, it works a little, helps keep you level. But as a painkiller it's useless. But it is still very vishesh. Not to mention it's way overpriced thanks to the anti abuse formulations. I understand the hard shell, I don't agree with the total reformulation to stop drug liking. I don't abuse this med. I don't use a needle. There many of us that do not or will not. But because there are those who choose this lifestyle we pay the price in many ways. Now they are poisoning our meds to make us sick, make them ineffective. This was done in the ninetys, same thing. It's a violation of our human rights to prevent being treated so we can live without pain. I never thought I would see the day our government would stoop to this level. It's time to use our legal human rights. Unite. Start by petitioning for our doctor, patient privacy rights. It's the only way to begin to turn this around and the time is now!! Stop doctor, patient, pharmacist, harassment!!

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Sue Says:
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Re: HOUSE (# 9)

What manufacturer do u get your Oxicontin from? So far the Oxicontin I get does nothing to help me?

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Anjali Says:
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Re: Mark (# 3)

Obama had nothing to do w/the FDA guidelines. Check your facts before you spew misinformation..

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16
myst Says:

Re: Anjali (# 15)

The changes started when Obama was in office fact. so Chronic Pain Patients associate their suffering with Obama being in office. I had level 3 neck surgery worse pain after surgery than before and surgeon refused to treat the severe pain several years ago because of changes that us consumers patients were not made aware of.

My family doc called surgeon asked why he was not treating my pain non-treatment hinders healing.Also the hardware put in my neck was a experimental fusion unbeknownst to me it looks like 2 lightening bolts both sides of my neck . Thank God my doctor cared,ER turned me away,Surgeon,nurses,doctors in my doctors practice . 7 days of sleep deprivation from pain from day of surgery I was a mess. Nobody cared because nobody but my GP would go against the surgeon.

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17
HOUSE Says:
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Hello, the extremely sad fact is that because of the abuse of the "old" oxcycontin by those who only used it to get high, the newer more "abuse deterrent" oxy is all that is available...

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18
Sue Says:
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We are selling our house of 40 yrs on Long Island NY and downsizing to Palm beach county Florida. One of my daughters and 3 of my grandsons and 2 granddaughters live in Wellington. I have to find new doctors.

I am nervous about starting over. Gotta get my medical records etc. Hope they keep prescribing the oxycodone and Oxycontin and hope I can fill them. I have OA all over joints now. Just had 1 knee replacement and need other knee and shoulder done besides lower back. When I get settled I want to lobby for our right to get meds we need to function. I am an occupational therapist and cannot return to my profession but have seen first hand what goes on and how scared doctors hospitals nursing homes are more concerned about addiction than quality of life.

Sue

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19
PAM Says:

Re: Sue (# 18)

I AGREE 100% THEY ARE MAKING THE PEOPLE THAT "REALLY HAVE PAIN PROBLEMS JUST DO WITH OUT OR NOT ENOUGH, IT'S JUST NUT'S!!! I WOULD BET YOU THAT IS ONE OF THEM WERE IN THE AMOUNT OF PAIN, THEY WOULD GET WHAT THEY NEEDED!!!!

5

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Barbara Says:
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Re: Sue (# 18)

I hope that you can find a physician who will treat your needs. The alphabet agencies are currently taking comments and concerns regarding how the increasingly stringent restrictions on specific perscriptions are affecting chronic pain patients. I believe the deadlines are within the next couple of weeks. Anyone who has been or is in the medical profession, like yourself, adds increased legitimacy as an advocate. It's such a shame that the government is wasting so much time and tax funding to deceive the Country and harm law abiding citizens who are afflicted with chronic pain causing medical problems.

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