Help Others In Getting Their Pain Medications Go To Care2petitionsite And Sign Demand That Chronic Suffers Get Medication Now (Page 2)

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valerie Says:


Here it is, your sincere effort to help us all get back our right to having our pain medications now!! sign this petition to get action and be a part in changing the DEA'a plan that is surely not working. Give us back our lives, Let the junkies overdose is they so choose to. Go to "Care2petitionsite" now sign the petition on "demand that chronic pain sufferers get their medication now, by valerie. I thank you for your support. Feel free to share it because the more signatures that we get the sooner we can make this a reality.



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21
PISSEDATSEEKERS Says:
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Isn't it an amazing coincidence? The petition that Valerie has just started is already shut down! Wonder what branch of government did that

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22
Corinne Says:

You are not a "junkie"!! If you need the medicine for pain, you need it, period, to live a semi-normal life. I'm sick to death of people referring to chronic pain patients as being addicted as physically yes, we're addicted, just like a diabetic is "addicted" to the insulin they need. But the diabetic and myself both would easily give up our insulin and pain pills if I had no pain and the diabetic didn't need insulin; that's called mental addiction..... then you're only a junkie if you're taking it just to feel high but have no pain. I never dreamed the government would interfere with certain pain medications as to be honest, none of us want to be on them; I know I don't but if I don't take my pills, I absolutely cannot function. I wish those government know it all's could walk in my shoes for one day or even a couple of hours. They'd soon shut their mouths and sink back to wherever they came out of the woodwork.

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23
Momo Says:
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I feel that by signing a petition without the firm agreement and support from each states Senator, will not change a thing. The real concerns of those of us with legitimate chronic pain issues is getting mixed with others who look like junkies and are using this forum to find drugs by any means possible. There are some websites that already have movements and support that are working to make changes that will have positive results on the regulations put into place by the CDC, and over enforced by the DEA and unfortunately are having negative impacts on the doctors we need. Get involved with one of those organizations where your efforts will be of a benefit.

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24
PISSEDATSEEKERS Says:
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We chronic pain sufferers need to come up with an easy to remember petition that everyone can recognize and get ALL of the chronic pain sufferers to sign it, then maybe we can get something done. It's time to remind these "medical professionals" that they work for us, not the pharmaceutical companies or the insurance companies. If we'd all stick together and start boycotting the doctors, hospitals, and pharmacies, maybe we could get something done. They're not doing anything to help us anyway although they took an oath to help people in need or distress. Maybe when they stop making anything they'll start standing up to the DEA and the CDC and make them aware that this is a serious medical issue, and not an illicit or illegal drug problem. The government just got angry because the drug companies were/are making all of the money and they're not getting a big enough cut! Think of a good and simple name for the petition. Post the name on here. I'll certainly help if needed, and I'll damn sure sign!

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25
Debi Says:

Hello, I was absent for a while as i was trying to deal with my up and coming appointment with a Pain specialist. First thing out his mouth was we need to get you off these pain meds. Not, are you in pain, how are your meds doing? Is there good pain control? NOTHING. It took me 14 yrs to finally get TWO pain meds, one ER and the other is a breakthrough pill. It was a pain specialist that put me on these drugs in the first damn place. Now, just because *****s who abuse their meds and die, why are we the ones picked on?? Please answer me. Only TWO pills have put me with QUALITY OF LIFE. I was actually making my bed with out help and dressing myself, barely cook, cant clean up as my back it so messed up. Now, after all these horrible pain problems, and now they want to put me on god knows what. Half of the NEW pain medications cause so many horrible side affects, and deaths of using what they are putting together some pill each day. God help us.

I will do what i can to help with this problem, but cant hardly clean my own home. I am finally in a good pain control, and he wants to start all over again!!! I feel it's such a waste of time as i will end up still in horrible debilitating pain for the rest of my life. Also, asked to put me on MENTAL DRUGS for pain. The only thing wrong with my mentality is the area in the brain is not working and i need something to help me. Not start me all over again. By the time they get me off of the opiates, i hope i have some years left with some kind of quality of life. One specialist tried to tell me it was in my diet. Really? Also when my husband and i went to this specialist, we got there at 0900 and left at 1305 in the afternoon.

They made me do blood work, a U/A, and I was answering to 2 different Dr's. A waste of life and a day, when i went to this new Pain Specialist. They need to find something different to harp on, not the actual pain sufferers who live with pain 24 hours a day. I hate myself for saying this, but i hope he breaks or mames himself that will leave him in horrible pain, and look back at the people he said didn't need a certain medication, that works. What are we putting in these new so called, pain medication they are toying with. Its a damn joke. This was my first appointment and after seeing 4 different medical persons, blood work, U/A's, PT, they have their own PT person, go thru all that nonsense, billing my insurance. Hoping i don't get billed for actions they did to me. I cant work and only live on my SS and now have to worry about getting off the meds that help me. I get blood work done every 6 months, and i am fine. 14yrs on my medication. I dont have the strength to start all over again. Plain and simple. 64yrs old and have to go thru this crap all over again. Its just such a waste of time and money. Insurance company will only pay for medical, not being weaned off medication, and i just cant afford any bills. I have enough already. I would be very interested in signing your petition.

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26
Debi Says:

I pray you read my plea. I live in western Missouri and will go to Colorado if it will help me with my chronic pain, fibromyalgia, bad DDD, and RSD in my left leg and foot. I went to a pain dr here and the first thing he wants to do is get me off pain meds. I am a 64yr old woman and have been on pain medication for 14yrs. I don't think i would even want to live with pain as bad as mine. My sister took her life because of the back surgeries they have done to her, put her on pain meds for years then take it away, without any help from anyone. She was a happy, loving person and now gone because of all her back pain. She left a letter stating she cant imagine her living the rest of her life in terrible pain. She took a bottle of TYLENOL from the drug store and checked into a hotel and wrote to the family and I watched her die when i got to the emergency room. Her heart stopped but she was already brain dead. It tore our family apart, my parents gave up and died 6 weeks from each other. So i beg of you to please get in touch with me for a Dr in Colorado. I'm in dire straights, please will you help me? {edited for privacy}

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27
auntbear Says:

I had to go to a pain clinic because the Dr.'s in my area are scared to death of losing their licenses. The pain clinic dr. doesn't care about how much pain I'm in, only about giving me spinal inj's., which he does in his office and gets paid 100% of the charges and only 45-65% for office visits, which is what would be needed if it was just meds. He even told me he didn't care about my 84 year old father's well being because he isn't his patient. I told him up front I couldn't do anything that would take me away from my house very much or for very long because my dad stays with me during the day and has Dementia and has fallen 2 times while I was at a dr.'s appointment. My Dad is very important to me so I don't understand how this guy can say he doesn't care about Dad when anything that happens to my Dad has a direct affect on me. Pain clinics want to tell you that you have to jump through hoops to get a small fraction of the meds you had been taking and get their money. They don't care about how the patient is doing, and to quote my Pain Dr. "doesn't care about my quality of life, only wants to get me off meds because Americans think there is a pill for everything- he is American."

I say "they" because I have several friends and you can see that the bads ones, and there seem to be a lot of them, don't care about quality of life which to me means they don't care about the patient because there is no life if there is no quality! I also believe that pain meds are helpful when you have a condition or more likely conditions that are so painful you can't get out of bed and just want to die, until you find that Dr. that cares and gives you pain meds, at a dose that won't kill you but will give you quality of life. But those Dr.'s have their hands tied and their licenses held hostage because of those that take them illegally, don't follow directions, and/or buy impure drugs off the street and die. I feel bad for them but I don't think my life should be ruined because I haven't done anything wrong and didn't ask for these painful illness's, like ruptured discs, bulging discs, degenerative disc disease. spinal stenosis- narrowing of the spine so all the nerves are smashed together, arthritis in the spine and other places, and list goes on but you get the point! I pray something will be done to stop this madness and also hope they are keeping track of the number of law abiding people who can't take anymore pain and the dr won't give them anymore meds so they think the only relief is death and kill themselves. But maybe we aren't as important as the people who get the meds illegally and overdose or get poisoned by what was mixed with the street drugs and no one will monitor what happens to us.

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28
Sunflower Says:
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Re: Tara (# 9)

Very well said. And HALLELUJAH!! None of us should ever judge another! My best friend in San Diego....her name is Tara as well. I have ALOT more to say but am in just too much pain presently.

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29
His Wife Says:
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Re: Debi (# 25)

Did they give you any meds, or do you need to go back for next appointment? If they don't help you, make appointments with all the PM places you can find. Go to the appointments, and cancell the others if you find one you like before the last appointment you made. This will save time in between doctors.

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30
matt Says:
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I have pain from having a fusion on T3-L3: Thoracolumbar Scheuermann's Kyphosis and just recently an L5 / S1 fusion. Kept me on Dilaudid for 3 months at 4mgs every 2 hours. No tapering off. Now they are saying that I need a pain pump. So they can put Dilaudid right on the nerve. Hopefully that will work, then I can get on methadone. I was going into the hospital so much they thought I was homeless. Weird how they love upping my gabapentin dose 800mg qid and tizanidine 6mg... My psychiatrist prescribed me Valium 10mg tid, trazodone 150mg with 20mg of Ambien at night. He knows I'm in legitimate pain & epidurals don't help. I have nerve damage from over-correction. I've also been taking oxycontin since I was 14 & I'm 32 now. They sent me to a radiologist for the pain pump. On SSI SSDI. With medi-medi.

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31
roro Says:

Re: matt (# 30)

read your paper work tzansadine and gabapentin are not to be taken together ---- the pain pump has been suggested but what happens when medicare decides noot to cover the cost in the future (kinda scary aand i am twice as old as you are maybe i am just paranoid) i hope they get you to a bearable pain level ------ be well and may much good come to you and yours

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32
myst Says:

Do a search for opioids on Care2petitions. There are many petitions to sign. 1 petition is 1 too many. Another website that keeps patients up to date is Countable.com. It is the newly written and passed bills that you as a voter can go and vote. It gets passed directly on to your REPS. Comment on why you vote the way you do. They work for US, not the other way around. Type in opioids in the search and there are many... every bill they pass for the opioid crisis they are taking away #UnitedNPain patients meds. Also keep up on pain blogs, they are so spread out that it is hard to organize... National Pain Report is very informative! There are doctors and patients fighting for our rights. I tweet Trump about our plight, he talks terrorism and I post about pain patients and the terrorism being done to them here in the USA by Gov., dumb docs and media, pharmacies, nurses the list goes on. Trump complains about fake media stories. I tweet to him the fake stats and media reporting opioid crisis people are being misled by. My mom is one and she thinks it's the mishandling of scripts/overdoses. I told her it is illegal drugs causing overdoses. I have written letters to Doctor OZ, the doctors tv shows, mty Reps. Do you think I have been written back too? No. But I put them out there. The messages need to be spread on social media. Hang in there.

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33
myst Says:

Take a copy of this law with you to your next doctor appointment:

U.S. Code › Title 42 › Chapter 7 › Subchapter XVIII › 42 U.S. Code 1395 – Prohibition against any Federal interference

Nothing in this subchapter shall be construed to authorize any Federal officer or employee to exercise any supervision or control over the practice of medicine or the manner in which medical services are provided, or over the selection, tenure, or compensation of any officer or employee of any institution, agency, or person providing health services; or to exercise any supervision or control over the administration or operation of any such institution, agency, or person.

(Aug. 14, 1935, ch. 531, title XVIII, 1801, as added Pub. L. 89–97, title I, 102(a), July 30, 1965, 79 Stat. 291.)

Congress DEA, CDC, and FDA are breaking the law Period.

I also sent copies of it to my Reps and I am not asking for care, I demand the proper care or cure me... 2 options. If you can't cure me do not waste Taxpayer money on unproven treatments that cause more harm than good. Read the pain blogs and spine blogs. Patients attest to the FACT that shots in the neck and spine cause more harm than good. I had 2 shots done in my neck; second shot nicked a nerve. I was already on my death bed from the pain so didn't notice how the nicked nerve would feel. Then after surgery I awoke to pain. I begged the RN to kill me because the pain was out of control and nothing helped. Well, I have long-term damage from the shot and 12 years of doctors not believing my pain was real. Neuro after MRI's called me at 6pm to say he was so sorry. I told him I do not lie about pain, I have turned down pain meds when offered when I did not need them and when I do need them and am suffering and blood pressure is close to stroke, I was made to suffer.

I do believe a day of reckoning is coming down on our Gov for their inhumane torture and treatment of their weakest citizens. The Chronically disabled by pain. Denying you proper pain management is illegal and inhumane. Please, if you remain quiet you will never be heard. If the pain is too much, have a family member, neighbor or friend type up your story.

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34
Deb Says:
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I live in Massachusetts so I'm not sure where or how this will help you but I will sign your petition. I am on pain management. The problem I am having right now is affording my medication. Last year going through my mom's dying of cancer and my daughter's dying, I was late with payments on my health insurance so I was canceled by my state insurance. I purchased another plan but I cannot afford my medicine most of the time. Yesterday I paid $100 for a month of my pain medicine but had to leave other scripts unfilled, most of the time I have to go without. I am on disability, due to side effects from chemotherapy. I worked my most my adult life mostly two jobs supporting two children on a single parent salary without government assistance. I applied for extra help for my medication. I had that help until Trump and was told that I make too much money on disability, thank you mr. President. I did qualify last year but this year I do not and my medications were over $10,000 last year and they will be the same this year. I am a cancer patient and my cancer is not curable, it is only treatable so this will be a lifetime struggle. But at least I am getting a prescription.

My brother who has followed in the family footsteps with a lot of the same chronic pain we had a lot of the deteriorating disc diseases, he has had several operations on his neck, back, shoulders. He has also had cancer and was on pain medicine but unfortunately he had a bagel with poppy seeds and a PCP dr. was prescribing for my brother, whom we've both seen for 5 years. He got back a U/A and said that he had morphine in his system. It's very clear on my brother's medical records that he is allergic to morphine which my brother has no way of even getting nor has wanted. Usually the Dr's office has you leave the U/A in a cubbie in an unlocked unattended bathroom, although my brother did not put two and two together with the poppy seed Bagel until a couple weeks later when he was going crazy wondering how that drug had gotten into his system. He was thinking of everything. When do we get the right or how do we get the right to fight back if our diagnostics come back positive for a drug that we know we have not taken such as his did?

The doctors have gotten such a strict guideline now protecting themselves, they must almost turn that back on the care & faith of the patient, it seems. In the meantime my brother is suffering with no pain relief and the amount of people in my pain clinic is unbelievable. My doctor is not accepting new patients until the month January 2019. It is only March 2018 and what will be on my brother's record when he goes to see a new doctor? Although we are in our late 50s he is my little brother and I feel like I need to help him, protect him but what do we do and how do we do this? I know you probably don't have the answers but it's scary to think that potentially something that I eat could cause me the right to get pain medication.

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35
myst Says:

Re: matt (# 30)

I would be surprised if Medicare approves a pain pump. Aren't they very expensive?

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36
Sparky Says:
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I’m not sure where this message should post under but I am approaching the 1 year mark post op on my Spinal Fusion. Well, so now I am released to Pain Management and have an appt this week. She mentioned injections and I had way too many prior to my surgery so I do not want any more. I have, my idea, to titrate down to Tramadol from Hydrocodone. No more scripts to pickup and take to the pharmacy AND WAIT FOR HOURS!! She called it in and was ready for pick up a few hrs later. The pills are a lot smaller than they were prior to my surgery. Wondering what they removed from the medication. Anyway, I was wondering what else does Pain Management do?? I believe my PCP would prescribe my Tramadol. I will go for my first visit. Any advice to me about what to expect about pain management, the ARNP I am going to see and what they do? It was my choice to step down in medication and am feeling the withdrawal of the medication step down. So any advice for me before I go?

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37
Grangerl Says:

where do I sign up for CT? I need pain meds for Chronic pain. I was in a Pain Management Group for years. But he was in the newspaper for prescribing the highest amount of prescriptions. His reply was "because these people are my patients of all categories of pain management. Well, I was discharged because he did not like the other Pain Clinic I went to for an appeal according to his contract. I did not know that he was asked to leave. So the proof from a blood test showing no Methadone given to him the same day meant nothing to him and he violated his end of the contract, and I reported him to State of CT Licensing, and the Dept. of Investigations is sending me an official auditor.

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38
David Says:
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I have had my hips replaced twice and I have degeratave arthritis all over my body I have been on two pain meds for 13yrs and just recently in February 2018 I was told by my pain Dr I had to go down to the equivalence of 200 mg s aday of morphine in 3 months I have been reduced more than have of what I been on for the last 10 year's it's hell and I am not doing good at all I need to find another Dr and it's not easy.

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39
Mark Says:
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Re: myst (# 35)

It's not so much the expense of putting in the pump. That's actually cheap as compared to filling it and finding someone who will fill it. There's actually quite a few doctors who will put an infusion pump in you, but no one wants to fill them because they lose a lot of money filling them. I remember when they first came out 2 decades ago. Doctors jumped on them like it was the newest cash cow in the field of medicine! The FDA, FBI & DEA were all happy because they thought this will take all the pills out of patients hands because anyone needing that kind of medication will have to get a pump! Well needless to say it was a bust... The cost to fill the pumps was enormous! Insurance companies didn't want to bare the cost and a majority of pump patients within 5 years were back on pills too... Spinal cord stimulation is the only option that has lasted the test of time and it's one of the treatments the government now wants patients to have before long term opiate therapy is considered along with surgery, numerous Injections and nerve abalations. Even though there's a percentage of people who don't respond well to spinal cord stimulation. That's a big out lay of money in a copay if it doesn't help! Just more government playing doctor and they're very aggressive doctors these days... Next the government will probably suggest a frontal lobotomy if you can't stand the pain without narcotics! Although yes I'm joking, but in a few years if they don't change their Nazi stance on pain medications. Who knows?...

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40
myst Says:

Re: Mark (# 39)

Thank you for all the info. I could see where gov would see it as an easy way to get rid of pills. I do not think it is a 1 size fits all deal.not everyone would be able to do that and I am sure there are complications with it also. There are some people if it can or could go wrong it does. With a pain pump I am sure that just like taking pills there will be Chronic pain patients who need more than the average because they become tolerant and need higher doses so it would continue to work. Me personally if it is the only way to get any pain management I would do it.

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