Help Others In Getting Their Pain Medications Go To Care2petitionsite And Sign Demand That Chronic Suffers Get Medication Now (Page 10)

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valerie Says:


Here it is, your sincere effort to help us all get back our right to having our pain medications now!! sign this petition to get action and be a part in changing the DEA'a plan that is surely not working. Give us back our lives, Let the junkies overdose is they so choose to. Go to "Care2petitionsite" now sign the petition on "demand that chronic pain sufferers get their medication now, by valerie. I thank you for your support. Feel free to share it because the more signatures that we get the sooner we can make this a reality.



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181
Bella Says:
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Re: Hop (# 179)

My question is why is everyone on here taking opioids for ten plus years? Has surgery been considered? If not this is the perfect example in how the DOCTORS are to blame for giving out then taking away your drugs. Personally I would not want to be strung out for ten plus years on meds. There are alternatives to opioids. Pain and depression are side effects from them. The more you take them the more pain you have. This is how Big Pharma makes their money. More pain more pills. Sometimes you need physical therapy, massage, acupuncture, even CBD either in conjunction with pain meds or at least try to do other things. MS and things of that nature is horrible pain as well as RA in which these have no cure. But back pain loose discs etc... need surgery. Seems most here have legit pain but some here just want drugs from what I read.

I was in court today went with a friend to comfort her and they called a case involving a 21 year old skinny little thing via satellite tv from jail. She was scared and crying on the video and the reason she was in jail because she was in possession of heroin and broke probation. My heart bled for her. She didn’t need jail but rehab. This is what I mean when I say the system is broke. Nobody cares and I wanted to just hug her. I started to cry and the judge looked to me and he said to transfer her out ASAP to a rehab. I didn’t know this girl but my gasp got attention. I know this has nothing to do with adult chronic pain, just wanted to show you the system is broken when you want help.

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182
Archie Says:
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Can someone,please tell,that is taking pain killers daily effect kidney/liver or any part of the body.Actually I have severe pain in my spine everyday and because of the pain I am unable to move,/ get up or even sleep.i take diclogesic or tramasureplua tab daily.But I have been told that if I consume pain killers everyday, my kidney will fail.please help or please advise me

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183
Beth Says:
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Re: Archie (# 182)

Plz sir, go online or google it, narcotics/opiates and they're effects on my body, long term or short. It will break it down for you, easy to read and understand!! To answer you, YES OPIATES HAVE DETERMINABLE side effects!! They most definitely damage the Liver and Kidneys. So a person needs to really take them with caution!!! When you no longer need pain medication, do your body a favor and withdraw!!! I've had 10 surgeries in 6 yrs!!! Barely heal from one & have to undergo another! So barely get off them and back on! I came up with my own detoxification, taking 2 mg Buprenorphine, 1 a day. Now last yr. my Dr wrote it for 'as needed'. I taper myself off in about a month or longer, then I feel good again!! Hallelujah! Btw...if you're taking the kind that has tylenol in it, you're getting a double whammy! Tylenol is very dangerous to the Liver. Good Luck!!!

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184
Bella Says:
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Re: Beth (# 183)

Sorry Beth this doesn’t apply to you I just didn’t no how to start a new topic on here although it really isn’t knew at all. To those who read my story on the Sackler family who are billionaire makers of OxyContin and do not give a rats a** about you, their name was removed today at the LOUVRE MUSEUM in France in which they donated millions, because their profits above people have caused numerous deaths. Just wanted to clear this up again for those who blame the addicted kids.

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185
Etech Says:

Hello all in here speaking of long term opiate use. I would like to reply to most in here so instead I will reply to all that know who I am speaking of. I resent the fact that the feds MAKE you go every month to receive them and if you don't, I've heard "Well you don't really need them then". I believe pain meds should be taken as needed.not on a methodic every day basis. What I have done had been going for about 6 to 8 months every month to receive whatever they will prescribe, then stockpile them and eventually quit going to the doctor. That gives plenty of time for the body to metabolize them. I've been doing this since 1993, I'm a little older now and take that into consideration too.

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186
Bella Says:
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Re: Etech (# 185)

Guess what I know others who are stock piling as well and in some cases it may be good to do so. I hear of wars and such where you will never be able to get any medicine. So can’t knock you for that.

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187
Charlene Says:
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Re: Etech (# 185)

Hi, I have a question?..it's not directly to your statement.....I notice others say they have to go to pain management doctor every month for refills..I take my son to pain management doctor here in Florida,..he doesn't drive, disabled...anyways he gets 3 lortab 10s a day.and we go every 3 months, never well only once at the beginning for a U/A. And not once have we been told to bring in his medication for a count....so is it just different state laws, or just up to the doctor??. If anywhere would they be tought on would be her in southwest Florida, we had pain management doctor on every corner with cars and people lined up, it' was crazy because I was going to pain management back then and I'm serious I'd leave the doctors office and go get my scripts filled and I started to notice that the people who were in the office and then to the pharmacy it's like the two were connect, I don't know..but thx for the info..

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188
Etech Says:

Re: Old grandma that knows (# 171)

Hi Old G. Just some info on this link about Kratom you may be interested in. FDA getting involved.

https://www.fda.gov/news-events/press-announcements/statement-fda-commissioner-scott-gottlieb-md-agencys-scientific-evidence-presence-opioid-compounds

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189
Cakes Says:
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Re: Bella (# 181)

I agree that addicts who are not selling and are not violent should not be in jail! I think the courts are trying to make this right!

I also know we had many problems previously where people who did not need opioids were getting them! I think for the most part that this too has changed! It came with severe consequences to those with chronic pain. You see I am a chronic pain patient! I have been on opioids for more than 15 years. I am 61 years old now but I injured my cervical spine while working as a flight attendant when I was about 43 yrs old. I refused surgery initially but after about 2 years when everything (traction, physical therapy, chiropractic care, diet, exercise, homeopathic care... You name it; it did not help me enough to allow me to go back to work! Finally, I agreed to do surgery; it changed my life forever! If I had been able to look into the future, I would have never done it. I was taking 2 or 3 Vicodin a day until surgery and then nothing helped me! I am a good example of why surgery should be a last resort! After surgery I did not get better instead I gradually got worse! My surgeon did not believe me until they finally found the cause! Two of the titanium screws broke in half!!! Initially, I thought if they took the screws out I would be at least some better but it was not to be! The screws are at C4 and are so far up that it was too dangerous to remove them unless they started to back themselves out then it would be life-threatening and they would be forced to do something! Taking hardware out of the spine is difficult but taking them out when they are so far up could leave me a quadriplegic!

So, after having good care for years it became difficult to get medication that my doctor prescribed. Then my doctor got a visit from the DEA and became afraid! I had been on high dose opioids; fentanyl patches almost from the start. I had been able to reduce my dose years ago after PT helped me some and steroid injections also have helped. I have been doing them for years! The steroids scare me terribly but I have to do them or I need more pain medication so it is a trade-off I pray will continue to pay off for the test of my life! When the taper started less than a year ago I could not make the cut. I went thu hell before I got a new doctor (always pain management doctors) I am still angry! I was forced into a tapet that I could not follow! I was honest but it got me nowhere! Finally medicare paid the majority of more than $30,000 to implant a pain pump in me that delivers (guess what?) Opioids to me! If you read about the dangers of the pump, I do not believe you would want it either! That is not alI, I will have to have a new one implanted every six years. I have had it only since February and have had to replace a hand help piece which cost me $650 and left me in hell again for a week!

I do not know what more I can tell you to try and make you understand that cervical spine surgery is very dangerous. No one told me before hand that about 3% of us turn out this way! It seems small unless you count everyone that has this type of surgery but even more important, even if they only did 100 of these surgeries; how would you like to be one of the 3? Then worse yet; have the care that gives you the most relif taken away from you? At 61 I now have interstitial cystitis, osteoarthritis, osteopenia, severe DDD which was probably caused by steroids I was given for about 5 years (from the time I was 25 till I was 30) for an autoimmune problem called chronic urticaria (sp). It is hives that started attacking my organs! Oh I do not drink or smoke (I have tried to live my life as healthily as possible! I do believe that there is a way to help those of us that need high for opioids and at the same time keeping them out of the hands of those who do not need high dose! What if we had to be seen and screened by multiple doctors who all had to agree? Then certify us so we would be able to get our medications for as long as we needed them; reassessing us if need be? Thank you for your thoughts, I know we may not always agree but seeing things from both sides may change the way we once thought!

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190
Cakes Says:
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Re: Hop (# 180)

It seems like fighting back gets them in trouble! They are treated like drug dealers! I am mad as hell but honesty I would not subject myself to jail time especially after seeing what the consequences have been to other doctors! Their was a doctor I read about in California I think. He saw many patients from all over the USA who needed high dose opioids in which other doctors had become afraid to treat them. He continued to treat patients until he too got a visit from the DEA. (Drug Enforcement Agency) He retired in a matter of months. I think his last name was Tennant! Look it up! I feel your pain!

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191
What to do Says:
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Re: Old grandma that knows (# 170)

Another old granny here! I want to get older and live instead of living it in bed! I have tried it once in the form of tea when waiting for the pharmacy to fill my medication which was about a week late. I really do not know what I bought but pitched it after one try! I would like to try again but in powder form. Where might I find it. South Florida!

Thanks much from one granny to another

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192
What to do Says:
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Re: methadonehater (# 150)

We do not have years to wait! Every day is a challenge; putting it lightly

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193
What to do Says:
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Re: Bella (# 133)

I do not understand! I am angry at what has happened to chronic pain care! I feel it has made me more sympathetic of others however. How can I expect someone who does not suffer chronic pain to be sympathetic to our cause if I can not be sympathetic to others causes.. yes that includes addicts, and families who have lost loved one no matter the reason!. Why would I even think of calling someone the J word when I know someone out their probably looks at me in that same way! No it is not because I lost my baby to a drunk driver but it certainly humbles me!

Remember: There for the grace of god go I!
We are here to support one another and not tear each other down!

My prayer is for all who need a prayers!

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194
Charlene Says:
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What to do (# 189) --

Kratom tastes badly, the only way I can take it is to capsule them myself, or you can order these edible discs from Amazon also, the only other thing I can take it and it's a last resort is to toss'nwash... if you buy the capsule order them in size 00, they are larger and you can make them pretty fat, that way you don't have to take so many... and I know a few very reputable vendors who will always help you buy the best. For me I take only greens, maybe red kratom once in a while, like if I need it close to bedtime.

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195
Hop Says:

Re: Bella (# 181)

I have been experiencing chronic pain for 25 years. I spent 10 years trying meds other than opiates to get relief. I was headed for disability at the age of 30 but my family could not survive on the payments. I needed to find a way to work until I qualified for my pension. No one told me 13 years ago that the medication offered by a respected pain management doctor could have serious long term effects. I was told if you try this you can control your pain for 2-3 days without remembering to take a pil every 6-8 hours. There would be no breakthrough pain and waiting for next dose to work. It would have less impact on liver and kidneys because it was not ingested. I agreed. I stayed on the medicine working full-time and raising my 3 kids. I had little if any side effects. Then the DEA, FDA, and other alpha groups find they made a mistake. These meds were dangerous and were for short term use only. Ok - so what can you offer as a replacement? I was told the same meds from over 20 years ago that made me fat, tired, unable to work or care for my family. I feel people like myself are victims in this situation. I am weaning off the medication with no idea of what will control my pain when I am done.

I don’t think most chronic pain patients would have taken these medications if pain management doctors did not encourage it and tell them it was safe if used as directed. Now I feel judged by many as an addict. Technically I am addicted but it’s different than being a drug seeking person that doctor shops for meds or aquifers them by illegal means. I don’t want sympathy; I want understanding. I would not have taken any medication if I knew the truth. I waited 3 months to get an appointment with the well respected pain management doctor employed by a well respected hospital in NY City. He offered relief, I took it because I trusted his expertise in pain management. Afterwards I was seen by a local pain management doctor that kept me on the same dosage for over a decade with no changes. I never abused the meds, felt high, or asked for more. This crisis began as a result of big pharma giving perks and incentives (financial as well as trips, etc) to docs that would prescribe these particular meds. Big money has been made by pharmaceutical companies and doctors because of trusting patients like myself. This is the story that deserves to be told.

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196
Bella Says:
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Re: Hop (# 195)

At such a young age you never mentioned what type of pain you have? What does it derive from? Kids doctor shop because that’s what addiction does. So don’t go and blame them. How else can an addict get anything? When refused they turn to Heroin so I can’t hear your reasoning for this. One thing I do agree with is it is the pain management doctors fault because they are puppets of Big Pharma who put profits above you.

It is different for kids who are addicts FROM THE STREET than going to an apt with pain management.

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197
Bella Says:
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Re: What to do (# 193)

What are u talking about? All I heard was you are unsympathetic to parents who lost kids from overdosing and dying. End of discussion.

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198
Jen Says:
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Hi I was wondering if everyone or those who choose to, could name their State and the MME limit based on CDC guidelines or their State gudelines if any there are subjecte f2f to. Im in Oregon 120 MME is max and they are trying to push patients lower.

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199
Deborah Says:
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I don’t think it’s fair for people not to get their medicine when they need it

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200
methadonehater Says:

Re: Bella (# 196)

Bella, that is nonsense. Big pharma is being sued. What is your point?

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