Extreme Joint Pain Throughout

36 Replies Updated


Conversation Starter


Dave Says:
 
I have severe joint pain throughout my body. It has been extremely severe these past few months. Unable to drive on bad days. Barely able to walk. Milder attacks allow me to drive and walk w/ a cane due to herniated and broken lower disks. My PM doc has put me on 200mg Nucynta ER 2x daily and 100 mg Nucynta for break through pain. Most recently they put me on 30mg Morphine ER which did not seem any better than Nucynta. Does anyone have any idea why every joint in my body would become so painful as to immobilize me? On bad attacks the Nucynta 200mg ER, 100mg for break through pain and 150mg Lyrica barely make a dent in the pain. Besides weight gain, I now have diabetes as I have been taking Nucynta, Lyrica for over 6 years but the 200mg ER was recently added and I was removed from the Nucynta 4x or as needed- some days I would need just one Nucynta 100mg/other days 2 or 3...rarely did I ever take 4 in a day. The Lyrica 150mg helped at times but now with these extreme joint flare ups it seems no drug can stop the pain. I hate Oxy's as besides the terrible constipation they made me feel really 'drugged'. Nucynta does NOT affect me like that nor do I feel any 'drug high'-same with the Lyrica 150mg...sober as a judge. These past 6 months the pain has been so severe I have considered bringing this to a final conclusion. If anyone has experienced extreme joint pain throughout your entire body for days on end and with no relief from med's I would be grateful for any suggestions you may offer. I am going to see a highly rated rhuematalogist (sp) but he is booked up until late July. Thank you for anything you may think I should know.

Showing Replies 1 - 20 of 36 RSS Feed


Page of 2    Next Page     Sorted By:

1
Verwon Says:
 
What kind of tests have been done? Have you had an MRI, or consulted any specialists? There has to be some reason for you to be in so much pain, according to NIH reports, it could be due to some types of arthritis, MS, or various other conditions. Thus, it is really hard to say, but given its severity, you may be better served by consulting a neurologist.

The FDA warns that opiates carry the risk of being habit forming and may cause side effects, such as nausea, dizziness, headache, dry mouth, and constipation.

I know you said it's been severe the past few months, but how long, overall, have you been experiencing this? Is there any family history of MS, or arthritic conditions?

Post a Reply   Share page   Report post

Was this helpful?  0 2  
2
Dave Says:
 
Thank you for the response. This joint pain quite literally started in mid 2009 and became progressively worse in waves. My pain mgm't doc (who sent me to a neurologist/rheumatologist and diagnosed me w/ PMR-poly myalgia rheumatica) got me off the oxy's and tried a few other drugs (cymbalta [?] it was awful) and finally onto Nucynta 100mg 4x a day, valium 5mg 3x a day, Lyrica 150mg. Prior to these increased/heightened attacks...I was able to deal w/ the pain. The two herniated disks and 1 broken disk were the cause of the sciatica...learning how to walk a certain way by planting my right foot down as I walk w/ a cane has become critical in avoiding sciatica attacks. My pain mgm't doc was great in that he listened and when I did not feel the need to take Lyrica or Nucynta he was OK w/it. I received facet inj's. as needed. Then I moved. I have settled in and things seemed 'normal' for me until I went to the same pain mgm't co.'s office up here where I moved to and the doc is the opposite of my doc that I had for the last 8 years. He changed my med's- put me on 200mg ER Nucynta 2x a day and I have the 100 mg Nucynta for break through pain. He would not prescribe the adderall I need in the AM as I can not have coffee due to Barrett's esophagus so it takes me hours to get going in the mornings.

The Nucynta 200mg ER does not last for 12 hours-more like 8 hours...and both Nucynta and Lyrica cause weight gain...so I try to not take them anymore than is necessary to bring pain levels down from sciatica/joint pain-myalgia episodes. Now, out of nowhere I am getting debilitating joint flare ups that are extremely painful and just trying to get out of bed is a 15 minute chore. I can not walk per se...I shuffle...this a pain event that is a solid 10. It abruptly calmed 7 days ago -but not totally as when I wake my hands will not make a fist or grab; pain in all joints at around 5/6 level and the Nucynta 200mg ER coupled w/the Nucynta 100 mg and the Lyrica 150 mg 2x a day keep me functional. When I had that extreme flare up joint episode the drugs did very little. I do not care for the pain mgm't doc at this office but I do like the PA and I have been seeing her. This last visit I asked her if I could share something OFF the record w/her and she said 'of course'. I told her if these extreme joint flare ups become/occur w/any regularity I would rather just remove myself from the equation as having that much pain- lasting for about 36 hours straight-then it backed off for 12 hours and came back again....this joint pain so severe you do not want to risk sitting down before you check everything and make sure there is no chance you might have to get up because you forgot something!

Getting up is a very painful event. Using the head is a painful event. And yes, they did an MRI back in 2011/2012-my previous doc wanted one. I have use a stand up MRI facility because of the Barrett's. And to make things more depressing I read a medical article where the average person should not-NOT-have more than 3-5 CAT scans in their lifetime; in 1999 I must have had at least 8+ because of gastric surgery; then again in 2007 at least 6+...so I am sort of screwed already w/all these CAT scans that have been done.In the military I was on a base where they sprayed agent orange/agent blue and some of the drums leaked out and we walked through the stuff without knowing it until it seeped into our boots and we had sort of a 'hot foot'. The VA says there was not any agent orange/agent blue or white on Guam as I thought back in 2009/2010 when the myalgia kept growing worse that it might have been from exposure to those smelly chemicals. I also wanted the VA to help me w/my back as the damage to my back was during my military service as during heavy rains I slipped and fell on my butt/lower back and fell down a set of cement stairs.

The back injury was severe enough to bruise my lower back but the VA said there was no connection even though I had lower back problems my entire life. The VA says no even though my Honorable Discharge and DD214 clearly states I was discharged due to medical reasons! My PA has me scheduled to go see a rheumatologist that is very highly regarded-problem is he is booked until 7/27 so I made the appt. for 7/27. I cannot live with a flare up like this last one where I could barely move my arms/fingers and shuffle around-even shuffling is painful! I have lived w/ myalgia and sciatica attacks for the past 8 years- but this new joint flare up is unlike anything I have ever experienced and I just can not deal with it as it nearly immobilizes me! even sitting down-NOT moving -the pain is off the charts. Perhaps w/some luck; I do NOT have one of those extreme myalgia episodes again before I see the highly regarded specialist doc. Pardon me if I rambled. Pardon me if I left out words or misspelled them....thanks again for the courteous response.

Post a Reply   Share page   Report post

Was this helpful?  0 0  
3
Mary Helen Says:
via mobile
 
Hi Dave i have severe Rheumatoid Arthritis and fibromyalgia the doctor prescribe prednisone it's a steroid and it helps a lot with the pain but it does make you eat a lot also

Post a Reply   Share page   Report post

Was this helpful?  2 0  
4
Aunty Says:
 
Have you ever been checked for Lyme Disease? Your symptoms do sound like my nephew. When they were finally able to do special testing to confirm the diagnosis, he tested positive. They still aren't sure what type. Treatment and recovery has been rocky, but he is getting better. I do think this disease is often missed and allowed to progress without treatment. Plus, his PTSD hasn't helped him either!

Post a Reply   Share page   Report post

Was this helpful?  0 0  
5
Don Says:
via mobile
 
Hi Dave I'm a 62 yr old male myself. I was super man my entire life until 38 yrs old i suddenly had severe joint pain in entire body. It started in fingers then back hips knees arms etc . My primary care was a great dr. With the extreme speed of this arthritis onset. He had a blood test performed to test for HIGH IRON. I came back at 1400mg of iron, not the 0 -250 range we normally are at. I further had DNA test on blood found out i had a often overlooked blood disorder called herditary HEMOCHROMOTOSIS. This disorder is a mutation in genes which your body cant rid itself of iron. High iron causes severe arthritis joint pain joints locking up heart disease, gastro intestinal problems, anxiety, pain of all types, confusion etc. Treatment is immediate, removal of 500ccs of blood weekly until iron levels meet excepted levels . It took me 5 yrs of weekly phlebotomies to get back to safe area. Now a 90 day removal fir life. I still have arthritis joint pain but not the total body lock up as before. You should get tested for this easy to confirm or deny disorder that many drs overlook.

Best wishes
D.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
6
MadMan Says:
 
Hi Dave, hope this finds you well! First and foremost I'd look into getting those discs fused in your back if possible. I've had 4 neck & back surgeries over the past decade; I'm walking again, mostly pain free & rarely with a cane. I struggled getting off the opiates, so don't use them for too long and depending where you are located - medicinal cannabis was a huge help getting me off pain pills and giving some relief without being all doped up on pharmaceuticals. You'll want to try varying differences of THC to CBD ratios...good luck!

Post a Reply   Share page   Report post

Was this helpful?  2 0  
7
Terry Says:
via mobile
 
Dave, Have you ever taken the acne medication Accutane? What you are experiencing sounds like someone suffering from the devastating effects of this drug. I hope you haven't taken it, but if you have it may help to know why all this pain is occurring now.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
8
Lucylove Says:
via mobile
 
I know you said you didn't care for the Cymbalta.... but I am on a Cymbalta and Adderall combo. Due to Cymbalta making people so very tired. Plus studies are finding that the adrenaline from Adderall helps give you the push to go and move. I was crushed by a horse at 9.

Total "experimental" rebuild of hip and lived in hospital for over a year. Decided to ride again a few years later after I had learned to walk again and was cleared by doc. Only to end up with 3 more debilitating fractures over the years. Now at 45, my docs are amazed I even walk . But..... hang in there. This combo seemed to work fairly well. Also I wear strongest Butrans patch and have Vicodin for breakthrough pain. Doesn't matter if people want to stigmatize me..... all I know is after trial and error over years, this ended up working "fairly" well. Still walk with cane, cold and rainy days... forget about it. But I can see how people would not care for Cymbalta on its own.
Hope you find relief.

Post a Reply   Share page   Report post

Was this helpful?  1 0  

9
GLB Says:
 
For me Prednisone has nasty side effects, dealing with damage of my foot tendons, dental problems, and foot pain, and joint pains....Prednisone is GOOD for a short time for what it is prescribed.. And a short time....being hungry and gaining weight is the least of the side effects..I will NEVER touch another pill of prednisone. I'd rather endure the pain which is usually on the short side, then with the long stretched out side effects, and costly (teeth) PT etc.. It can take month or more to get out of your body: side effects while taking it,side effects when tapering off, and then comes the real surprise..the damaging side effects I am going through for the past 3 month....pains. not able to walk or sleep from the pains..

Read up on the side effects of prednisone, as most MDs will not tell you... It's the med from HELL....and a wonder drug when needed..but weigh in the consequences....use any form of turmeric- ...topical as well as drinking or eating as a spice.....avoided difficult surgery for a friend of mine..also available in pill form...good luck


Post a Reply   Share page   Report post

Was this helpful?  1 0  
10
billtinsf Says:
 
Hi Dave: I had great success in fusion--had my entire lumbar fused---26 screws, 3 cages and two rods. That was seven years ago..before that time I had numerous surgeries starting in 1970 that were minimal in success. The fusion worked..it was a long recovery, BUT WORTH IT!!! The strongest meds I was on was hydrocodone 10's(after initial surgery recovery meds). I get around well, and am walking straight and minimal pain. I would definitely suggest it. Check our your options, orthopedic groups. Google them, and ask friends for suggestions. good luck, and I will be available to answer any questions,

Post a Reply   Share page   Report post

Was this helpful?  1 0  
11
deborah Says:
via mobile
 
Have they checked you for Fibromyalgia? I have and had severe joint pain for years and it took them several years to diagnose me. Sometimes my pain is so severe I cry daily the pain never goes away no matter what I take

Post a Reply   Share page   Report post

Was this helpful?  1 0  
12
hiratio Says:
 
Hi,
I wouldn't mind betting it is the Lyrica causing you all this grief. It's a horrible horrible drug with so many non listed but known side effects from Pfizer. Speak with your GP as they are now becoming aware of the problems Lyrica now cause, if it is Lyrica you will have to be weaned off it.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
13
Dave Says:
 
TYVM for the med's up on Lyrica. I will ask a specialist they want me to see who is supposedly one of the best in the country. Problem is he is booked out to 7/27/17. They said if there anyway they could get me in sooner, they would. Best wishes and blessings to you and your loved one's!


Post a Reply   Share page   Report post

Was this helpful?  0 0  
14
Dave Says:
 
My empathies are w/you Deborah. Mine literally came out of left field starting w/ a hand and spread quickly to the point I could barely ambulate w/cane. I eventually found a pain doc who got me off oxy-contin and onto a drug that handled the pain down to a 4/5 as I was dealing w/sciatica and for the joints he tried some drugs that would make it so less painful- Cymbalta-was trippy and I could not sleep. Then he tried the Lyrica and that seemed to work. This was in the early stages back in 2009/2010. This past 6 months have been the worst ever. (forgot to mention that my pain doc had me go see a rheumatologist; after a half dozen visits/exams they diagnosed me as having PMR (poly myalgia rheumatica) and reaffirmed my pain doc's med's....and said I was very fortunate as some pain doc's dose their patients w/multiple drugs that makes the patient high and they become addicted. I have no feelings of being high; but I know when the drugs kick in as even though my legs feel like they are made out heavy metal and ache, my joints begin calming down. In the AM when I wake up-8x out 10 my hands do not work. They are like prosthetic hands- I cannot use my fingers nor open my hands-w/two hands I can drink some water to get my med's down. From what my pain doc told me- PMR is the big brother of fibromyalgia. The C reactive protein test constantly changes and the drugs have turned me into an overweight diabetic. My current GP said if I do not get my A1C back under 5.0 when I see him next he is going to put me on insulin. He also referred me to a Dietician to help me w/food choices as I need to drop 50 lbs. And to be blunt, when I get those joint flare ups ALL throughout my body I seriously think the best way to cure this gross, overwhelming pain, radical changes in diet, is to punch my own ticket. I have no family nearby. No one will really care. The world will keep on spinning and I will finally be at a peaceful rest. I have been thinking that it would be best to do this in or outside my home as I do not want to upset my pup's and if I am outside, I will take a smaller firearm w/just one round in the chamber. I will call my local PD ahead of time so there will be no chance a child could find/see me. I have decided to wait until the specialist does his exam/tests and if they work. My best wishes to you and those you love. (I am in my 60's-former Marine and Vietnam Vet- full life; but these last few years have grown more worse each year.)

Post a Reply   Share page   Report post

Was this helpful?  0 0  
15
Dave Says:
 
Thank You, Bill --for the info...as every one I have talked to spoke negatively of the spinal fusion as a couple years later their back pain had grown worse (?). The worst problem I am suffering through right now is chronic severe joint flare -ups. The VA has been no help and attempting to go there and accomplish anything positively productive is a waste of a day.Private care has at least helped to the point of getting me off the oxy's and onto a similar drug w/out the dopey feelings. The joint flare ups are near totally incapacitating. I am going to a very 'experienced and skilled' rheumatologist -problem is he is booked out to 9/27. Appreciate the comments!

Post a Reply   Share page   Report post

Was this helpful?  0 1  
16
Dave Says:
 
No Terry. No accutane used. TY for asking and hopefully helping others who have taken it...to question the side effects.

Post a Reply   Share page   Report post

Was this helpful?  0 0  
17
Dave Says:
 
Mary- sounds like a double edged sword...is the pain it relieves worth the process of trying to keep the pain away/dumbed down. The drugs I take now do the same thing-not so much eat more but prevent weight loss/cause water retention, etc. I have to go see a dietician and hopefully the extra special rheumatologist that is booked out to 7/27. If he fails then I think it may be my time to leave. I am a Vietnam Vet, older, lived a full life and if I cannot even pick up a fork until about 45 minutes after the med's kick and take me from a 10 down to 6/7 so I have limited mobility...a day filled w/limited mobility. My LTC policy I bought through MetLife years ago-like 20 years ago has declined my claim as they feel I can do most of Activities of Daily Living even though there are days I can barely get out of bed; my hands are semi-closed and NOT free up until I take my med's which take 30-45 minutes to kick in. When a flare up begins-even w/the med's, every joint in my body flares up...it is so debilitating that every move is extremely painful. TYVM for your response!

Post a Reply   Share page   Report post

Was this helpful?  0 0  
18
Dave Says:
 
I am seeing a rheumatologist on or possibly before 7/27 and I will present al ned's being taken (BP, Crestor, B/S med's) -perhaps your post will be of benefit to others as I am all for deleting as many daily med's as possible. Many blessings to you and those you love.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
19
Ck Says:
via mobile
 
Have you tried an elimination diet? Dairy was causing my joints to hurt. Now I stick to goat milk/yogurt.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
20
Ck Says:
via mobile
 
Have you tried an elimination diet? Dairy was causing my joints to hurt. Now I stick to goat milk/yogurt. For the person whose nephew has Lyme disease, check out research on,Teasel (Radix Dipsaci) root.

Post a Reply   Share page   Report post

Was this helpful?  1 0  


Viewing page 1 of 2     Reply

Next Page >


Possibly Related Threads:

Extreme joint and muscle pain, neck stiffness, tightness of chest while on Eliquis The neck stiffness started while on Xarelto. After switching to Eliquis is the pain spread throughout my body. Into my b... 15 replies
Extreme fatique, joint pain, muscle weakness with Eliquis for AFIB I was having extreme fatigue, joint pain, muscle weakness after starting Eliquis and started to having black stool with ... 63 replies
burning pain throughout respiratory system while getting 6 years on hydroc/ 7 month arthi-d I am know experiencing allergic reactions to all forms of herbals, loti... 1 reply
Extreme pain in left arm and left leg - Cervical spondylosis I've had cervical spondylitis for 10 years. For the last 3 months, there has been numbness and a lot of pain but onl...
Extreme Back Pain Any suggestions for something stronger than vicodin? It really doesn't work anymore. I take two 7.5mg doses every 4 ... 3 replies
Extreme knee pain on Oxybutynin After only two weeks of taking oxybutynin 10 mg once a day, I am suffering from severe knee pain. Has this happened to a... 3 replies
Xarelto Extremeties Painful Falling Asleep Sensation Hello great tool and great forum! My name is Toby, I am 36 year old male whom was prescribed Xarelto due to Thrombosys S... 2 replies
mexico pain management for extreme lower back pain In Canada I was taking an extra strength robaxacet for extreme lower back pain due to an old work injury. I am currently... 2 replies
Nuvigil side effects Extreme neck spine back pain I started nuvigil 1/4 of 150mg tablet or 37mg in the morning. The first two weeks were great , it was like my mind was a... 3 replies
How well does this med work for extreme back pain How well does this work for extreme back pain and bulging discs? ## Magnesium Salicylate is an analgesic and nonsteroida... 1 reply


Post a Reply

No registration is needed.
Simply fill out the form below.

 *
Please be detailed.

 *
You may use your first name, or for more privacy, make up a nickname.


 
Optional. Always hidden. This allows us to notify you when a reply is posted here.





4) Text Verification: *
Prevents SPAM.

Click here to show the question



This form will be submitted securely


TRUSTe

Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.


Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. Site content is Copyright © 2005-2017 MedsChat.com and is protected under U.S. and International Copyright laws. All Rights Reserved. This page was last updated on 8 June 2017.

We are committed to your privacy.

Copyright © 2005-2017 All Rights Reserved. MedsChat® and The People's Medicine Community® are registered trademarks of Limelight Innovations L.L.C.