Epclusa Side Effects (Page 2)

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Kathleen Says:

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

94 Replies (5 Pages)

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21
Lou Says:

Re: Friendz4 (# 12) Expand Referenced Message

Hi I'm in Australia sounds same as people here are going through ,not everyone but a lot of people are really feeling bad ,I had no support at all ,seems they just wanted me to sign dotted line ,and sign my life away ,makes me so mad I'm 67 yrs old ,and got through many of the struggles you get living an alternate life style ,which I don't regret ,only to be brought down by so called liver experts ,I must have had a 5 min interview with liver dr ,who assured me it's so easy to do maybe a headache or very slight nausea ,nothing that drinking water would not fix ,ha ha I doubt it ,now this new virus has arrived I feel as if my immune system is stuffed so I expect to come in contact ,IV met a lot of shady people but the ones I had to deal with on this Epclusa treatment win hands down ,the fact that they said wear always here for any problems you may have ,plus support you might need ,what a joke .somebody should have to take responsibility ,for the damage an hurt .good luck everyone.

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22
CHepC Says:

Re: Friendz4 (# 8) Expand Referenced Message

Both Harvoni and Epclusa are made by Gilead and contain Sovaldi. Many of those who took either of these drugs are now suffering. I took Harvoni 5 years ago and my post drug life so sucks. I honestly wish I had my old life back with Hep C. There is also a caution that just because you are cured you are not safe. There are reports of cancers and fatty liver showing up after treatment.....not to mention the myriad of other problems people suffer from such as 24/7 headache, tinnitus, neuropathy, fatigue, rashes, vision issues, dental issues. joint pain, etc. etc. That the medical profession can prescribe this and then dismiss the issues post treatment is disgusting! I hear it all the time from my group of post-Harvoni survivors.

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23
Lou Says:

Kathleen,how are you going since hospital? Every day here seems to be more people getting coronaviris, I hope you are ok ,noticed it seems to be spreading fast ,USA really seems bad, I really don't need it, mentally or physically,my legs are are aching so much today trouble walking plus feet numb puffy feels like I have tight socks on has to be circulation problem, impossible to even see s dr ATM, hope you are ok.sometimes I wonder where these viruses come from.like cud it be manmade or natural,stay well ????

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24
Lou Says:

Hello Kathleen,how are you since your recent hospital drama,hope too are feeling bit better ,Well this coronaviris has changed everything ,I never mixed with people very often so that part is ok,I'm not sure but I think you are on cortasteroids for asthma ,I am on them twice a day,I read on line that they can effect our chances of catching this new virus plus weaken our immune system ,I mentioned this to my dr all he said was don't stop taking the cortasteroid as they are helping my condition,I am just so mixed up who do I believe ??after the Epclusa treatment I was told so many things that were wrong,I don't know if I should just stop or do what my dr says again, I really don't need to catch coronavirus ,I've been coughing a lot lately and I'm really getting bad leg pain from the Epclusa I think my feet feel like I have extra tight socks on 24 hrs a day plus numbness,now they have stopped people going over the border so can't see my grandkids ,I worry they might catch something one has rhumatoid arthritis isn't very strong ,sometimes I feel like IV had enough of going to drs stressing out putting up with pain ,telling my story ect, please try stay safe ,hope you are ok.

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25
Lou Says:

Hi Kathleen ,are you going ok ,been worried ,please let me know how you are , you understand me an my problems, waiting to hear from you.

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26
Friendz4 Says:

Re: Lou (# 25) Expand Referenced Message

The sad part is a majority of us are experiencing the same horrible debilitating side effects and we can’t converse any other way that in here and they will not let us provide our information for contact or use any website information it gets deleted harvoni epclusa post tx is a site to search where we are in a group that descusses all the side effects I can’t leave my information they block it out try to search what site I wrote and you will find us please we need to get this out there

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27
Lou Says:

Re: Sunshyne (# 17) Expand Referenced Message

Hi hope you are going ok !this coronavirus has changed things ,I can't ever see things going back to what they were ,I'm just hoping U don't catch it ,since doing Epclusa treatment my breathing is t good ,I'm same as you would love to see someone take responsibility for screwing up so many lives,the liver clinic near where I live still denigh there horrible DAAs might have caused problems ,just heard of 3rd death from people who did the treatment ,I so wish never did it ,my immune system is wrecked ,stay safe sunshine,what part of the world are you from? I'm in Australia ,use to be good place ,

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28
Lou Says:

Kathleen,how are you ? I'm worried that you may not be well !! Your friend from Australia

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29
Lou Says:

Re: Friendz4 (# 8) Expand Referenced Message

Hi my pains are getting worse wish I never took the crap

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30
Lou Says:

Re: Friendz4 (# 16) Expand Referenced Message

Hi how are you going? Lou here from Australia are you still getting side effects? I sure am. I don't think they will ever go away now, my feet really painful plus numbness, really aching leg joints, anxiety, diagnosed with asthma couple yrs ago plus COPD. Now they have discovered two spots on lungs. It's so crazy I felt near normal before I was talked into Epclusa. Now I'm stuffed, they tell me not to smoke. OMG it's the first thing I felt like doing when they told me about spots on lung, I just about give up!!

Since doing tx no body has even rang me to see how things are going tried ringing Gilead what a joke !! they just deny everything. I've had so many skin infections antibiotics etc, every day I get body jerks or jumps, my dr hasn't a clue, just gets his info from liver clinic that put me on Epclusa, totally useless. Please let me know how you are going, just wish we could do something about the poison they gave us, wish I could turn back clock. cheers

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31
Lou Says:

Re: New day (# 14) Expand Referenced Message

Hi hope you are going ok,my symptoms after Epclusa haven't improved maybe worse,numb acking feet sore legs an joints ,body jerks every day nausea anxiety so many skin infections plus antibiotics breathing problems now they have found couple spots on lungs ,omg I use to feel ok pre treatment ,anyway hope you have improved,can't get much help here in Australia,been reading about Cryo, something can't remember how to spell ,but apparently connected to hcv infection I can relate to some symptoms.take care.

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32
Lou Says:

Re: VerFree (# 2) Expand Referenced Message

Do you know if there is any info on people over 40 who are now suffering or have died from cancers after Epclusa treatment ,I doubt if there would be ,as I have not been contacted since doing the treatment 2 yrs ago ,nor did I have any support whilst doing treatment ,since treatment IV had continual infections numb feet fingers nerve damage painful legs and joints nausea breathing problems ,(lungs ),I've also attended 3 funerals in last 8 mths Epclusa treatment was one thing each person did ,all were reasonably healthy pre Epclusa,IV read a lot on how good Epclusa is,I find it strange that very little is told about side effects people are now suffering.

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33
Lou Says:

Re: Friendz4 (# 9) Expand Referenced Message

Do you know if there is any info on people over 40 who are now suffering or have died from cancers after Epclusa treatment ,I doubt if there would be ,as I have not been contacted since doing the treatment 2 yrs ago ,nor did I have any support whilst doing treatment ,since treatment IV had continual infections numb feet fingers nerve damage painful legs and joints nausea breathing problems ,(lungs ),I've also attended 3 funerals in last 8 mths Epclusa treatment was one thing each person did ,all were reasonably healthy pre Epclusa,IV read a lot on how good Epclusa is,I find it strange that very little is told about side effects people are now suffering.

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34
Lou Says:

Re: Friendz4 (# 8) Expand Referenced Message

Hi I am concerned about a lady I have blogged with on this Poste her name is Kathleen from Carmichael California ,she was very ill from Epclusa treatment ,any info appreciated thanks

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35
Sunshyne72000 Says:

Re: Lou (# 18) Expand Referenced Message

I am in Northern Minnesota USA. Sorry I didn't see your message.
Thank you. I miss my husband everyday.
No attorney will go against big Pharma.
??

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36
Lou Says:

Re: Sunshyne72000 (# 35) Expand Referenced Message

Sorry to hear about your husband! I'm in Australia, still suffering after 3 yrs after stopping Epclusa. Wish never touched it. No support, just lies. Thanks 4 reply

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37
Lou Says:

Re: VerFree (# 2) Expand Referenced Message

Hi just read your kind message again! I'm Lou I have had so many problems since doing Epclusa,IV lost contact with my dear friend Kathleen ,she also had many problems infections ECT,I'm afraid she may have passed on,as she was a regular contributor to this Poste,I'm booked in to hospital next week to have acoranary angiogram I'm worried as I don't think my health or immune system are very good since doing Epclusa,please take care everyone if anyone heard any news from Kathleen please let me know.thank you from Australia ,Lou

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38
Lou Says:

Kathleen are you ok?

Lou

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39
Lou Says:

Re: VerFree (# 2) Expand Referenced Message

I just came across your posts ,I read it first couple yrs ago my name is Lou,IV had problems after doing epclusa treatment as my on line aquatance also suffered severely continual infections Edema ext unfortunately I think Kathleen has finally passed on ,after a long battle trying to get thru to drs an people that epclusa treatment had made her life a missery she tried as I have also,I am currently in hospital with heart problems ,I have had so many problems,thank you Lou.

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40
GulfGurl2021 Says:

I'm almost 30 and was diagnosed 2 years ago with help c during my second pregnancy. I've read a lot about Epclusa and have read the reviews and forums. I'm extremely scared to start taking this medicine. My Dr says that my liver actually looks really good I'm starting to wonder if these side affects are going to out weigh the benefit of having an undetectable viral load? Please someone help me out who's around my age and has pretty healthy body other than the obvious hep c.

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