Epclusa And Leg And Back Pain
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Has anyone taken Epclusa and experienced back and leg pain? I already have 2 herniated discs but it seems that since I started the medicine it has increased my pain and started pain in my legs.

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Re: Lou (# 30) Expand Referenced Message

Thanks Lou, I too am feeling like crap 8 months after Epclusa treatment. Sailed thru 12 weeks just fine. A few months after my thighs and knees began to ache. I gained weight in my hips and thighs despite strict dieting. Water weight ? Maybe 5-8 pounds. Ears ring, dizzy before treatment. My thyroid levels put me from a 0.8 to a 7.3 in a year. Cholesterol all messed up too. My leg pain is scaring me. Too late to go back now.Whats done is done. Big lack of info and help on us survivors is the worst. Someone needs to do some serious follow-ups regarding our issues. Big Pharma tries to help us and yes, virus gone but at what cost to our future lives ??

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Re: mary (# 13) Expand Referenced Message

I forgot to say that get vit D levels checked ,seems treatment did a lot of damage to me , including immune system vit D.good luck Mary let me know if any clues on making someone responsible ok.

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31

Re: mary (# 13) Expand Referenced Message

Me too!! Big time, I'm in Australia feel like my life is now ruined,we were guinea pigs for Gilliard and liver clinics,I'm sick of going to funerals caused by Epclusa or Harvoni , people need to unite !!! Why shud they get rich on us !!

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Re: HepCFree (# 17) Expand Referenced Message

Hi I'm in Australia where are you ,I'm also suffering since epclusa been diagnosed recently with COPD late asthma ,also heart problems last week was told vit D deficient ( 24 ) have to take capsules supplement 4000 iu a day constant knee pain back pain constipation scared to get tested for anything else ,pre treatment I went to beach enjoyed traveling felt fine for a 67 yr old who had hcv for yrs I wish I never touched it and still had the virus !every time I try to explain to Gilliard or liver clinic they say same thing " oh never heard of that before" which is obviously a lie ,IV dealt with a lot of different people over the years but never experienced lies like this from the so called experts lol, they need to be taken to court asp ,IV by to 4 funerals in 12 mths each deceased had done epclusa or Harvoni ,we need people to unite all over the world who have been damaged,they had the hide at liver clinic to say don't read the internet articles I'm so glad I did , anyone wants to compare with me ,be really interested thanks ,Lou

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Re: Alex (# 8) Expand Referenced Message

Alex ,just read your Poste about epclusa ,I did treatment 2017 still having heaps side effects numb puffy feet swollen stomach nausea infections ect just recently had blood test now I'm vit D deficient big time, trying to find out if treatment I did may have caused it .hope you are going ok ,I'm in my 60s in Australia ,any info appreciated.

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28

Has anybody suffered puffy feet and nausea post Epclusa Harvoni?

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Re: KB (# 22) Expand Referenced Message

Exactly same thing happening here in Australia ,I felt better before I did treatment,take care

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Re: KB (# 24) Expand Referenced Message

Hi kB what part of the world are you ? I'm in Australia and it's very hard trying to get any info ,liver clinic and drs don't like to admit that we are guinea pigs ,I finished treatment few yrs ago and still getting side effects ,wish I never touched there wonder med !!

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25

I finished Hep C treatment with Epclusa 3 yrs ago. Dealing with puffy feet. Anyone else suffering long term side effects from Epclusa or Harvoni? Thanks

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Re: Lou (# 23) Expand Referenced Message

I exactly agree about the guinea pigs. It’s like we’re part of the clinical trials.

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Re: KB (# 22) Expand Referenced Message

I think we all need an apology a big one from Gilliard and our government s ,we are not guinea pigs !if anybody out there want somebody to help get some kind of action from Gilliard please cont me ,who knows how long we have on this planet, maybe that was there idea get rid of a few million people ,afterall.only a minority ,

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Re: Lou (# 21) Expand Referenced Message

I wish I had done more personal research before I started this. The information on side effects is worthless, the long term results are non-existent. I stopped yesterday after 6 weeks, I think I had every side effect, physical and mental, that anyone has mentioned. I’d never been in this much pain for this long. I told my pharmacist that the lack of post-treatment evidence is disturbing. She said it’s because once you’re cured there’s no need for more information. I felt like I’d stepped into an alternate reality. I have messages in to my doctors.

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Re: Eva (# 7) Expand Referenced Message

That's what there favourite reply is,never heard of that before , IV had ejust about every side effect ,no virus but my immune system is stuffed now looks like I may have coronary problems ,14 mths after treatment wish I never touched there wonder drug felt better pre treatment.

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Re: Eva (# 3) Expand Referenced Message

If you're like me, it won't go away. I wish I never touched it and listened to their propaganda about how easy treatment is. I don't know, since when has anybody tried to help or cared for a minority group, especially if there's stigma involved? Good luck to everybody. It's been a year since I finished and feel like crap. I felt better pre-treatment.

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Re: Eva (# 3) Expand Referenced Message

I'm a yr past treatment with no virus ATM, but have so many bad effects now, too many to mention. I can honestly say I wish I never touched Epclusa. Get back to me if you want details.

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Re: mary (# 13) Expand Referenced Message

I agree with you Mary. This stigma has got to stop! Don't take away the only thing that works for me!

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17

Epclusa contains sofosbuvir (sovaldi) which is in all the Gilead Hep C products. Take a look at threads on Harvoni and you will likely see all the same problems that you are experiencing with Epclusa. There is nerve damage, joint pain, back pain, cancers, digestive issues, kidney damage, heart issues, lung issues, digestive issues, you name it. I am three years post treatment with Harvoni and every side effect I had during treatment is still with me. Wish I never took it!!! Report your issues to Gilead and to the FDA. They are supposed to be protecting us here and not doing such a great job in my opinion. Good luck all!

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16

I have never been as sick in my life as when I started Epclusa. I took 12 weeks. Ended may 29th of this year. I was told i contracted hep c 39 years ago from blood transfusions transfusions. Felt awful for about a year. No energy. Bad coughs. Went to er once because both kidneys so painful. Had two knee replacements and was asked each time if I had ever had transfusions. Yet no one checked me for hep c. Even though i am a baby boomeri.I now have chirrosis stage 4. My back hurts. My hip hurts and I feel like I fell through the rabbit hole. No one told me how dangerous Epclusa is. Or side effects All I learned came from internet. I have been depressed. I cry all of the time. Feel isolated. I am on ambien because my sleeping pattern has changed. I cant sleep more than 4 hours at a time. Has anybody else experienced the same? I wish the best health to all of you.

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15

Report all side effect to the FDA website. I took Harvoni over three years ago and you are having similar problems with your treatments. It doesn't get better. Also had Vit D and Vit B12 totally depleted and while I take Vit D and got my level better B12 no longer gets absorbed through my stomach. Injections for life. Pain is off the charts everyday. Search the Harvoni sufferers here and you will see what we are living with. Best of luck to you.

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Hi everyone, I want to let you know that I read up on the kidney pain. My lower back pain was the worst ever pain in my life and it was ripping from inside my guts to my back. My legs were falling out from underneath. No pain meds took it ways. Then I started drinking filter ionized water and it all changed. Back pain was gone and my mind so clear. The filter is very expensive so I been buying it by the jug paying $1.25 for half gallon refill in a brown glass jug. I was not able to get the plastic bottle water down enough. This water my body loves drinking and it has enables me to stay on this medicine which has given me a new life.

So water water water and try to find a real filtered water place by you. The filter co was called Life ionizer and I notice they has a few models but I am so lucky to just be getting refill jugs. I no longer have the back pain. Rode bike twice. Walking round the block. And MOND VERY CLEAR. I was supposed to be on Marvyret for type 3 but did not get approved for the $$. I see people having really scary side effects. What I really want to know is what is the difference in these genotypes. Where is that specific info. Why was Marvyret FOR TYPE 3? Is there a common kidney issue with type 3? The EPCLUSA filters they kidneys so we have to chug water. The Marvyret does not filter thru kidneys. So are they saying type 3 people get kidney neuro damage?? Still would like more info.

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