Diconal Supply Ending

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Sammy Says:
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I was put on Diconal in 1993 after having struggled with real pain and non effective medicaments post RTA/'86, where I lost right leg below knee, with both wrists broken etc etc. Stress am not talking about phantom pains. Presently STILL. have open on end weeping 7.5" below knee stump. Because of ill fitting prostheses my right hip is knackered.. Hip op not feasible since developed venous ankle ulcers on remaining foot. Also have damaged sciatica both sides intermittently flaring. To this add neutofibrotoma, mostly quiet but currently one is enlivened in right shoulder area which lately hurts so much at times though has left my right thumb & index useless! Diconal use has reduced over years to 56 per week. Last week local Boots pharmacist said their warehouses were now empty so they can no longer supply any. There's been breaks in supply over the years but a small reserve has always just got me through. It seems since patent ended some Asian owned company has been making them but charging the NHS way over the odds for its production and the NHS has declared 'no more'. Fair enough but what do I do now, look to Oxycontin or Tramadol? Last time break in supply occurred, about 2 years ago I was offered Tramadol but actually given Codeine tabs instead which were completely ineffective and caused me more trouble than good. Is it true Diconal have been greedily priced out of any affordability and if so has anyone any suggestions as to what I could turn to next please? Thank you.


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John Says:

Hi. I've actually phoned the suppliers and they say that they will be in circulation in November again.

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Sammy Says:
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John (# 1) --

Hi back. Really, that's interesting indeed and I thank you for the heads up. I was/am about to write to same to try and establish what's to do. Since this latest upset I've discovered exactly what is being demanded of the NHS per x 50 box and can hardly believe how much more the generic is costing over the original, from around a tenner to nearly £400! I hope your kind words of reassurance prove to be, breaks in supply have happened several times since my association with Diconal began in 93, this time it may well be goodbye to them. Fingers crossed it won't be. Thanks again, tis appreciated!

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Hula Says:
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John (# 1) --

Hi did you manage to get a date from the suppliers? Will this medication be out of stock for long?

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