hilda Says:
Daliresp Experience (Page 6)
Updated
Darlene Says:
I have been on Daliresp for one month. I have noticed significant improvement in my lungs. By that I mean the mucus is gone, wheezing is gone. My lungs seem to be getting clear and do not feel as heavy as they did before I started taking it. I have had my bouts of depression, I am never hungry, which is a problem because I am underweight as it is. Just wondering if anyone else has had success with this drug. I was hoping to get off oxygen at some point. Don't know if I can achieve that or not.
122 Replies (7 Pages)
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101
Hang in there if you can I started with 500 mg every other day too much aide effects but it help my breathing now I take a half every two days still have side effects but not as strong I will keep trying cause it works. I was on flovent as well but trying to cut back on that cause it makes me hoarse and. Coughing all the time hope this helps anybody
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102
Mickel Says:
I have been taking Daliresp for almost a year and have noticeable improvement in my ability to breath. I no long need oxygen all night and only when I'm over active during the day. I do try to take a day off it every several days to both see how I can handle daily activities and give my liver a little break. I have noticed little to no problems doing this. I too am very underweight and have no appetite, now I try to eat a little something every couple hours throughout the day instead of a couple big meals that I burn off breathing and never feel full or hungry either.
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103
Wanda Says:
Am on it and very scared of the side affects but now my panic attack are worse not sure I want this
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104
DAVIS Says:
I HAVE BEEN ON DALIRESP FOR ALMOST 3 WKS. IT HAS DONE WONDERS FOR MY COPD. GOING TO HAVE TO GO OFF IT BECAUSE ITS COST
ADAVISVISCANT PAY FOR IT. DOES ANYONE KNOW IF MEDICARE PAYS?
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105
hilda Says:
Yes but your doctor has to get the medical approvement first
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106
sue Says:
Can you take half a dose of daliresp (250 mg)? The full 500mg dose is causing me to cough constantly. Also, how long does daliresp remain in your system?
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107
Judy Says:
I started looking at this chat room this morning and I'm so impressed that Lynn and Darlene are still posting since 2011. I've tried Daliresp twice and had to quit because of side effects. I'm in late stage COPD and suffering since Nov. with cold & flu-like symptoms. I had a Mastectomy 2 weeks ago and my Pulmonary doctor has upped my meds and put me back on Daliresp. Reading your messages is really helping me want to stay with it. As of three days ago my breathing got much worse and yesterday was my first dose of it. I really want to stay with it.
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108
Sawsms Says:
How old are you? What kind of surgery did you have in FL? Thank you.
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109
Ronny Says:
I had previously taken daliresp with no side effects. Went off it for four months and resumed three days ago. I am experiencing nausea and would like to know (1) how long this side effect lasts and (2) what can I do to relieve the nausea?
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110
hilda Says:
Thank you for the info about not giving up on taking daliresp cause I start than stop but I am so tired of not being a left to breath unless I take prenizone so I am trying again it with half of 500 everyday
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111
hilda Says:
Yes .Medicaid pays but you have to get medical approval first
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112
hilda Says:
Re: Shan (# 98) 
asked your doctor about vitamin e 200 or 400 mg about three times a week it is very good for leg cramps
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113
Barbell Says:
Re: Lynn (# 13)
Thank you for saying to stick to it, I am having insomnia, runny nose and back ache but worth it as you say
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114
Judy Says:
Re: Judy (# 107)
Well, I told you in May I was trying it again, but just too many side effects while trying to get well from the other problems I stopped after a week. But, hope springs eternal and I will try it again when my only problem is COPD.
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115
Barbell Says:
Re: Ronny (# 109)
Using Pepto Bismol for symptoms is great and relieves nausea.
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116
June Says:
Re: Lynn (# 13)
I have been on Deliresp for 2 yrs. In the beginning I had bad side effects. temmer and sleeplessness. I told my dr. and he prescibed two medications to conteract the bad effects. I call deliresp my miracle pill. I would hate to have to go back to how I felt before.
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117
Fran Says:
Can I just stop taking daliresp or do I have to wean off it? I have been taking it for several years and my doctor said I should stop taking it.
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118
JC Says:
I have been taking this drug for about 6 months. I have had very good results. I have had no flare ups at all during this time. I do use oxygen at night and an inhaler in the day, but I have improved noticeably. Now I am having trouble getting Medicare to pay for it. We just went on Medicare and our group insurance was much easier. I'm thinking of tahing a trip to Mexico (I live in Texas) to purchase it. Any thoughts? I have lost weight but I have made an effort to lose.
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119
JC Says:
Re: frank (# 3)
If it is going to work for you, you will know right away. I knew within a week. There is no in between. It does or it doesn't. I understand it works well only in about 10% of the people. Thank goodness it did for me. Now to pay for it. My insurance paid but Medicare is balking.
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120
Ruth Says:
Lynn (# 71)
I just got my first order of daliresp from canada. Planet Drugs Direct 3 months for $260.00. Have been ordering other medicines from them for years and have been very satisfied. The only negative is it takes a while to get it. I have taken it for 4 days and have been coughing up a lot of mucus. Sure hope it helps.
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