Curious If Ampyra Is Right For Me?

Updated

I was diagnosed with PPMS. My right leg feels stiff when I walk. I was thinking that Ampyra was intended for the other types of MS.

But reading of the side effects, I'm doubting taking it. I am working on getting a Walk Aide. It works wonderfully for me. It's just expensive.

So would Ampyra be right for me?

6 Replies

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1

Unfortunately, the information in your post is very limited, which makes it hard for anyone to advise you on this.

Learn more Ampyra details here.

What medications do you currently take?

Any form of MS can be touchy and unpredictable to treat, so all must be handled with care.

Have you consulted a doctor about using it?

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2

Thanks for your input Verwon. I didn't think about the other meds.

I take Baclofen for my spasticity and LDN. I was taking Rebif, but my insurance said that I 'wasn't qualified' for it. And I have to say thank you for getting me off it because I was feeling suicidal.

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3

Hi,

I'm writing from Canada, where AMPYRA is called FAMPYRA; I thought this drug was used with ALL types of MS, and if it wasn't showing any positive signs within 4 to 6 weeks, then it is not really working.

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4

Ampyra should help with the stiffness. I take it with Baclofen. It's not my magic pills, but I am sure both med/ help some. What kind of walk aide do you use? Is it like walkaide.com? Can u share some thoughts?
thank you

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5

Ray, what kind o walk aide are u getting. Can u please share? I too would want to see if that will help me. Which company are u getting yours? I talk baclofen and ampyra, but need more to ambulate better.
thank you and good luck

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6

I have ppms and just started it yesterday. My neuro said a lot of my fatique is caused by having to try so hard walking. My right leg also very stiff if I walk. Exhausting. May be a coincidence, but today I felt more awake, I didn't have my "stoned" look I typically get within a few hours of waking up. Did have issue sleeping but I am sticking with it for at least 2 month free trial to be finished. I am tired of struggling to think every step I take. Good luck. Give it a try. First day in a long time I felt better longer. Legs ache a little but I hear that passes too.

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