Complex Regional Pain Syndrome

4 Replies Updated

Conversation Starter

Antoine Says:

Studying this subject. It is a poorly understood disease. The only real specialist in the USA is Dr. Robert Schwartzman. He is in Philadelphia and Dean of Neurology at Drexel University.

Showing Replies 1 - 4 of 4 RSS Feed

Page of 1     Sorted By:
Verwon Says:

I have no doubt that you are correct and I'm also sure that just like with Fibromyalgia, there are still doctors that do not believe it exists and that this results in some patients being misdiagnosed and their disease being poorly managed.

Here's the link to a pretty comprehensive article on it, as well as source references with more information:


Are there any other comments or questions?

Was this helpful?      0  
goldie1022 Says:

I was diagnosed with that complex regional pain syndrom after my accident. The ironic thing is I had heard someone talking about on TV a few years prior to my accident and I was like, just another way to get pain meds. It's also called Sympathic Reflex Dystrophy, I have a lot of the symtoms. I have a permanantly broken leg screwed to a titanium rod that I walk on. So, I walk on a broken fibia, the tibia was mainly removed due to mrsa infection getting in the bone. 12 surgeries including a bone graft and it's not going to heal. When I walk even short distances the pain is awful, but it's in my lower back and it feels like knives in both hips. I will break out in a sweat for no reason - I thought it was menopause, but it's one of the symtoms. Regardless, I am off narcotic pain meds except suboxone because I couldn't control them, they controlled me totally. I could take 300 mg's of hydrocodone a day and function - it's when i ran out that I had a problem functioning. The suboxone has completely taken away any desire for lortab - I've had them in my hand and not even cared. They created the sub for people on herion who didn't want to have to go to a methadone clinic. Only certain Dr.'s are allowed to prescribe sub & it is expensive if you don't have insurance. But if you think about how much money you spent on other drugs (if that applies to you) it kind of puts it in perspective.

Was this helpful?      0  
Antoine Says:


You should know that the FDA has recently approved a new medication called Butrans (Buprenorphine Transdermal System 5, 10 and 20 mcg/h). It is specifically made for pain management and made from the same medication in Suboxone/Subutex.

I have used it in Europe, before it was approved in the USA. It comes as a skin patch (skin colored) and should last three days, per patch. So, you may want to switch over to Butrans, as it is now available in the USA. Various names of this medication is the number one prescribed medication in Europe for pain management.

It is manufactured in the United States by the same company that makes Oxycontin (Purdue). Here is the link that will take you directly to the page that gives you all of the information about Butrans; http:/­/­­en/­products-research/­prescription-medication

You will like it, as it is 24 hour relief and you just have to change the patch every three days. No more under the tongue stuff, or ingesting any medication. It works the same way Fentanyl works.

I am sure your physician would have no problem switching you, as you are correct, in that, Suboxone is typically made for people trying to get off of Narcotics, while Butrans is made specifically for pain management. Also, Butrans does not have the Naloxone in it, as does Suboxone.

Good luck!

Was this helpful?      0  
Louby Says:

CPRS - Has anyone had pain relief by getting Botox shots? I have Complex Regional Pain Syndrome after getting a spinal laminectomy/fusion surgery. My right foot swells if I do any activity such as walking, standing, or just sitting with my leg down/not propped up at hip level. The pain can be extreme. I'm taking Lyrica 300 mg d, Cymbalta 60 mg d, and have used large doses of opiates like Opana 80 mg. I've even had a spinal stimulator but it didn't work well and was removed (one doc later told me the stimulator by Boston Scientific is "junk"). I'm 44 and concerned about damage to my liver and kidneys from taking opiates for the rest of my life. I've seen articles that Botox can help with CPRS -- but don't want to spend the $4000 if it isn't covered by insurance.

Was this helpful?      0  

Viewing page 1 of 1     Reply

More Discussions:

Panic attacks complex regional pain syndrome migraine lexapro amitriptyline
My daughter is 13 yrs old. She was diagnosed with Complex Regional Pain Syndrome last year. She started having panic att... 11 replies
Painful Bladder Syndrome/ Interstitial cystitis, and I.B.S.
I've suffered from P.B.S. for over 20 yrs. I am looking for an understanding dr. who would be willing to help me get...
Looking For A Great Pain Management Dr, MD in greater ORLANDO REGIONAL AREA
SERIOUS MEDICINAL NEEDS ONLY. I have the perfect pain management team and the dr is one of the best in country , has mor... 1 reply
REQUIRE compassionate physician for complex pain / opioid
Hello everyone seeking to start or new topic on this very important topic. I have posted extensively as P450 if you'... 2 replies
Bartter Syndrome
Is there any treatment for Bartter syndrome? I mean cure? I have always been low in potassium and magnesium....
Sjorgens Syndrome
I am trying to find out if Evoxac is available up here in canada. If not what other drugs can be taken for sjorgens besi... 2 replies
serotonin syndrome with medication interactions
I'm on several medications like LYRICA 150 mg 3x daily. ZANAFLEX 4mg 2tabs at night. Amitriptyline 175mg suppose to ... 5 replies
Seratonin Syndrome
I was recently diagnosed with Seratonin Syndrome after 3 months of going from doctor to doctor trying to find out what w... 3 replies
nephrotic syndrome
i am father of 4 and half year old boy.he was suffering with nephrotic advised to take predinosolone(wys... 1 reply
Tourette's Syndrome
Has anyone used Respridol for Tourette's Syndrome? My son is almost 9, and may also have ADD. He is not really hyper... 3 replies

Post a Reply

No registration needed.
Simply fill out the form below.



 Optional, stays hidden.
Get notified when a reply is posted here.

4) Text Verification: *
Prevents SPAM.

Click here to show the question

This form will be submitted securely


Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use and Privacy Policy. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.

Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. This page was last updated on 9 December 2013.

We are committed to your privacy.

Copyright © 2005-2019 All Rights Reserved. MedsChat® is a registered trademark of Limelight Innovations L.L.C. 9888 W Belleview Ave #5000, Denver, CO, 80123, USA