Coming Off Invega Sustenna (Page 13)

Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

REPLY

REPORT

Re: Sandh (# 237)

hi sandi i guess i dont understand a legal document with who? your of age so i guess i dont understand unless they have parental guardianship over you it seems like you would be able to make your own decisions on wheather you choose to take the medicine or not if your of age

REPLY

Was this helpful? 0

I was in the hospital for 2 months where they gave me these injections, and they let me out only under condition with the cto agreement where I would keep getting the treatment, my parents had the parental guardianship, the agreement was supposed to be for six months but my parents cancelled it half way through

REPLY

Was this helpful? 0

Re: Sandh (# 242)

so being that your parents canceled it half way through whats this mean for you?

REPLY

Was this helpful? 0

That doctors and parents no longer can make a decision for me, I make my own decision. And I say no to the drugs

REPLY

Was this helpful? 0

Since I don't have my memory I don't even remember why they forced these drugs on me. I say no to these doctors. Whatever damage they caused I'm going to fix myself up on my own.

REPLY

Was this helpful? 0

Re: Sandh (# 244)

well alright then thats great well you know what you need to do then for yourself but it does sound like you need a little more positive support in your life negativity is the last thing you need just cause these drs and pshciatrist have a label dont always mean they know whats best alot of them are all about getting paid they read out of a book just like we do the only difference is they dont tell the worse of the worse they rather us stay blind to the real facts so they can keep you coming back for more then once your hooked they gotcha cause we put so much trust in them not anymore im good wel you take care of yourself ill be near

REPLY

Was this helpful? 0

Re: a concerned parent (# 246)

Thanks :) I appreciate it, the best thing for me right now is to be alone for 3/4 months cause it doesn't help being around my parents. I'm Indian and grew up abroad and they are from back home.. we have thinking differences and conflict. Once this med is out of my system and I start recovering I'll be fine.. I'm just afraid of the damage 3 months of meds caused. Will my brain recover from this? But thanks, you're a great help and you have it worse than me. I hope we all make it out fine. Let's smash invega.

REPLY

Was this helpful? 0

Re: Sandh (# 238)

It was court ordered by the judge. I was hospitalized, and shortly after I was diagnosed with paranoid schizophrenia. I'm not sure if I really have it, but I admit that I was hearing voices in my head. I don't think my psychiatrist knows that for sure, but she recommended that I stay on my meds until April. By doing so, there's a better possibility of me not relapsing. I'm weaning off of invega sustenna, so I have one more dose to lower down to. I start that dose in February. The side effects that aren't listed are intense. The sexual dysfunction, foggy headedness, and not to mention I wake up every day feeling like s***. I just want a second chance at being me again. This stuff stole my entire personality, confidence, and charisma. I just want it all back.

REPLY

Was this helpful? 0

Re: Sandh (# 247)

Im sorry to say but invega ruins your life and it doesn't come out of your system

REPLY

Was this helpful? 0

Carly (# 248) --

How many months has it been since your last shot? Sooner or later it'll eventually come out. I'm 8 months off, not much improvement but light emotions.

REPLY

Was this helpful? 0

Re: Jamaal (# 248)

I feel the exact same way, well do wut you have to do. it's a super slow process .. keep going and I'm sure one day you will be fine, good luck

REPLY

Was this helpful? 0

I am female, 27 yrs old and have been taking invega sustenna injection 150mg for the past 1 year. I don't see any change in my behaviour and I want to stop this. Can I stop?

REPLY

Was this helpful? 0

Hi. I will share with you on what I've experienced and learned. Getting winged off invega sustenna is always less stressful than going cold turkey. If not, there's always activated charcoal which detoxes the body from bad chemicals or toxins in the body. Just don't want to take it with your vitamins 2-3 hours prior cause it will detoxify every chemical out your system. You don't want to take activated charcoal any longer than 3-4 weeks tops. Niacin aka vitamin b-3 comes in 500 mg and curves symptoms of schizophrenia. This is used in hospitals when someone has a drug overdose or chemical overdose. So far working well for my daughter who's dealing with this illness. She's taking 3000 mg daily, plus vitamin c 3000 mg which builds your immune system, also vitamin d-3 when your lacking outside sun which is good, b-12 which is good for the nervous system as gives you more of a positive mindset and mood. Oh yeah, a regular daily vitamin b-100 complex is good as well. Fish oil with omega 3,6,9 in it or even better - hemp seed sold at walmart in the baking aisle. Or you can do the oils off the shelf - avocado oil, sesame oil, flax seed oil, all sold in the baking aisle.

I have noticed the vitamin c 1000 mg and the niacin b-3 1000 mg does calm my daughter down when shes feeling aggressive and hearing voices. Plus b-12 in the morning. She does continue to talk to herself a lot but calmly and she does a lot of trying to remember and writing her thoughts down on paper which is comforting too. Also her mood is positive, laughing, smiling, but still foggy thinking, but she's ok. She actually tells me she's happy. And sometimes goes into her cleaning mode and wants to clean everything in the house and I let her but watch her closely depending on what she's using or trying to clean. One important thing I forgot to mention is making sure they're drinking lots of water which is important when taking lots of vitamins. Also staying away from the caffeine and sugary foods, milk, etc., cause for her this doesn't go well with her psychosis as it tends to flare it up. I'm not a dr but a parent whose dealing with this illness with my 19 yr old daughter. You can try it or keep taking the medicine these psychiatrists keep dishing out, which is killing us. I'm choosing to take my route especially after realizing it's all about money and keeping us unknowledgeable to the truth and damaging side effects of all these psychotic medications that is messing us up in in the long run. Yeah I know everyone reacts differently, but from what I've experienced hasn't been no good in any of it. What about the word cure instead of manage? That word doesn't even exist in their vocabulary so go figure. Personally I've lost all trust in the professionals. There are very few out there that know their stuff and really care about the well being of us as an individual and will take the time trying to look into things that can better us as an individual. Anyway this is for me and mine. Good luck and god bless.

REPLY

Was this helpful? 0

Re: Sandh (# 238)

hi during this time that you recoverying start building up you immune system with vitamins ,niacin vitamin b-12, lots of vitamin c and b-12 good for the mood swings you'll get better but it does take time to come out of your system and 8 months is about right depending on the mg you were on and how long you were on the medicine so do yourself a favor and don't let these drs convince you that you have to be on these meds. to get better cause they will try to keep you on them and keep increasing your dosage as you go they like keeping us unknowledgeable to the real side effects we face down the road just saying

REPLY

Was this helpful? 0

Thanks Ruth, are you giving your daughter 3000 mg naicin ??
Im slowly doing better especially when I take megadose of vitamin c
Its a nightmare nobody knows how long it takes to recover. The drug takes forever to come out of your system but taking one day at a time

REPLY

Was this helpful? 0

How’s everyone doing? I’m almost at 9 months off still preety numbed, not much improvement

Wut a nightmare, I want to move out of my parents house when will I get back on my feet, and put this experience behind

REPLY

Was this helpful? 0

Re: Sandh (# 240)

Hi. Just out of curiosity have you ever tried niacin before? And yes I give my daughter 3000 mg of niacin throughout the day with her vitamin c. Sometimes just 2000mg depending on how she's doing and when you said you take mega doses of vitamin c, how much is that in a day? Just curious. I just purchased some nature made stress b-complex tablets at walmart that seems to do really well with her stress level. It's got b vitamins + vitamin c & zinc. I also got her a sleep aid at walmart. It's new, it's called "Natrol" melatonin +5-htp in it. It really does good for sleep. The 5-htp in it helps the brain to relax at night which is good for her cause normally she talking all through her sleep so her brain is not relaxing but now it is. Well anyway, just thought id share this info with you. Maybe it's worth a try. Good luck. Hope you start to feel better.

REPLY

Was this helpful? 0

Re: Sandh (# 245)

Have you found any meds thats helping with your memory? my daughters is still living in a fog and cant remember certain things she walks over to do something and she forgets what shes doing weve tried ginko biobla but im still looking for something a little more effective

REPLY

Was this helpful? 0

My memory is slowly improving, I sleep fine that’s the only time I feel better and normal, also I dream at night and I remember my dreams in the morning. Memory is slowly getting better I guess. I read ginko can cause bleeding in the brain, try cogni q instead.

REPLY

Was this helpful? 0

Re: concerned parent (# 257)

No Ruth I haven’t tried naicin yet, 3000 mg is good that’s how much dr abram hoffer took and recommended to his patients. Great work. I still have to order naicin once I take will let you know how it goes. I’m scared about the flush that’s why delaying. I’m guessing another 6 months of hell for me. Cause a lot of people after a year off are still affected and I’m only at 9 months. Chance of me getting better is around summer. I’m taking vitamin c 5000 mg in the morning and 5000 mg before bed which helps me get through the day.

REPLY

Was this helpful? 0

I have been on the Invega injection 234mg for over 5 years with one period of time going off it for 7 weeks. During this...

7 REPLIES

I was forced 6 injections. I'm dying from it. IT is the worst torturous death you can imagine. over 50 side effects....

29 REPLIES

After my serious episode they started me on 156 invega sustenna injection. Lets see the first 2 weeks I am extremely tir...

8 REPLIES

Can it be dangerous to take Invega Sustenna? Are the risks worth the benefits of this medication? ## as far as I know, 4...

6 REPLIES

I am having a lot of secondary effects after stopping invega. 1. anhedonia 2. cognitive problems 3. walking problems 4. ...

5 REPLIES

How many mgs of Risperdal Consta are released daily from the 2 week shot of 12.5? Additionally my son had an awful react...

1 REPLY

i have stopped taking propranolol 80mg 3days ago and would like to know if there is any side effects coming off them ## ...

201 REPLIES

I've been taking propranolol 80mg once a day for over 2 years for anxiety that caused me to have severe chest pain a...

7 REPLIES

Wanted to share my experience with coming of this drug with others because I have looked towards others experiences the ...

4 REPLIES

I started on 15mg mirtazapine 7 weeks ago and titrated up after 4 weeks to 30mg for 1 week; then back down to 15mg for t...

3 REPLIES