Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 24)
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People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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Re: Kelly (# 88)

Interesting reading.... just google this and prepare to be angry!

Drugs of Abuse, A DEA Resource Guide

"....is designed to be a reliable resource on the most commonly abused and misused drugs in the United States. This comprehensive guide provides important information about the harms and consequences of drug use by describing a drug’s effects on the body and mind, overdose potential, origin, legal status, and other key facts."

"The Controlled Substances Act (CSA) places all substances which were in some manner regulated under existing federal law into one of five schedules. This placement is based upon the substance’s medical use, potential for abuse, and safety or dependence liability."

"Once the DEA has received the scientific and medical evaluation from HHS, the Administrator will evaluate all available data and make a final decision whether to propose that a drug or other substance should be removed or controlled and into which schedule it should be placed."

ONE person is making this decision? When did we give up control of our lives? How do we get it back? I don't want to die, but I hate this pain...

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Re: Tues (# 78)

Aren't they already doing that by telling us what size soda's we can buy? (the extra large ones?)

They keep chipping away at our rights, a little at a time, and here we are as a result.

I heard today on my radio "....the DEA announced marijuana leads to opiate addiction."

WHAT?

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Re: Tina (# 93)

I agree w/you...I've been on opiates for 6yrs due to injury on the job. I'm currently on Disability. My Dr has always allowed me to take 2 every 6 hrs o n Norco n Tramadol. Now he's reduced it to 1 every 6 hrs. That does nothing for me!! I'm still in pain. And I don't know what to do. Pls help0+

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Well can you tell people where to write, who to contact? Drs are not listening. I have a spinal cord injury and the pain management dr cut my medicine so he won’t be questioned by the DEA about any of his records. He could care less about the pain I live in. And you are right, chronic pain patients will start to commit suicide, and it’s our Government’s fault that they are over stepping their bounds! I’m tired of being told antidepressants take pain away. That’s a load of crap. All they do for me is make me angry and volatile!

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Hop63 (# 90) --

Not only that but now every doctor you see treats you like some sort of addict.

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Re: Tina (# 87)

Don’t forget to add that before starting on the meds years ago, would any of us had taken the prescription if they said “here’s a prescription for something that is highly addictive, could cause seizures or death”?” No I don’t think so. Also, back then pharmaceutical companies were giving them incentives as well as “wining and dining” doctors to get then to prescribe medications such as fentanyl.

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I hope something gets off the ground. Australia may be the next to deprive genuine chronic pain patients from severe pain relief.

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Re: Hop63 (# 86)

I wonder how many pm drs actually think we believe the lies and bs being shoveled on us. I just want to be treated with the respect that I have always given the medical team that has, up until recently, treated my chronic pain issues. It’s a total slap in the face to be treated like a criminal and sentenced to a life of debilitating pain and for what reason? I feel like I live in a third world country. Is this the new America, where drs slam doors in the face of pain? I guess if I were to LIE and say I was an addict and I’m addicted to my pain pills, there are many special programs for that here in my state of WI. Our governor signed (from what I heard) 32 new bills to fight the chronic opioid epidemic in this state. I’m sure that not a single one of those bills is a positive note for chronic pain and the people living with it.

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Re: HOUSE (# 83)

Yes and I’m sure they will somehow link that statistic to the Tylenol in the various pain meds....{eye roll}....utterly ridiculous

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How true it is. Big government has got a strangle hold on us its disgusting.

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Re: Hop63 (# 86)

And I love when hey throw the term hyperalgesia at you. Or how deadly of a medication it is and should try and stop. Dude, if I was going to abuse this bed I would have been dead four years ago.

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Big red balloon (# 78) --

Hi. My doctor says “the pain medication isn’t working for you anymore”. I asked him “how come I feel better when I am using it then when I am not”. His response “it’s all in your head - placebo effect”. I didn’t know that you could imagine withdrawal symptoms from a placebo. These excuses make the patients feel like idiots. I prefer the truth. I wish you well and hope you get medication that will relieve your chronic pain.

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I’m with you My PCP recently booted me out of her clinic. She put me in Norco 5/325 5 years ago as she said that’s all that would work for my chronic osteoarthritis pain. Never once ran out early ( in fact have extra left over every month) or lost a prescription. I asked her twice about a long acting pain med, that was it. Her words “ I think you should find another primary care provider”.

Thanks, thanks for caring about me. She never even bothered to give me my latest PAP results which had some questionable cells. She is a prime example of doctors fishing for money only. Wish me luck for finding a doctor who cares in Cleveland,Ohio area.

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Re: pessimist (# 71)

I was just dropped from a pain management practice by the MD who owns over 50% of this practice. I'd been a patient for nearly 5 years. He claimed he would wean me over a 2 month period. However, when my insure company required reauthorization he took his sweet time and when I went to an appt having worn a 50 mcg patch for 4 days he said I was detoxed, we all know that's untrue, canceled the order for the lower dose and said I'd require no more appointments. This is malpractice. I'd like to find an attorney.
Recently I participated in the DEA meeting for chronic pain patients to make their voices heard. DEA will be taking further testimony through mid August. Please get your information/condition and treatment submitted. They need to know what the CDC so called suggestions are doing to chronic pain patients. I'd also suggest that you copy it to your Governor, Lt Governor, State Legislators, CDC, FDA, our President, and members of Congress. Best wishes to you I need to limp to hang my head over white porcelain.

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Re: pessimist (# 72)

And they like to "conveniently" forget that THOUSANDS of people DIE each and every year due to the toxic effects of Tylenol! I just read that acetaminophen is THE BIGGEST cause of liver failure leading to DEATH in the USA!!

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Re: Bobby C (# 65)

Yes I hear that. Me too. I’m sick of them cutting me down. I always took my meds responsibly so all these changes are doing nothing but hurting all of us.

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Re: Kelly (# 53)

I wish I would have read and responded to you prior to your pm appointment. I would have said, don’t say a word, just mentioning the word opioid to your dr is a big red flag. I asked my pm. Dr to change the meds I’m on due to their ineffective poor “new” reconstituted formula, he decided to cut me off! He informed me that “pain medication actually makes your pain worse!" Yes, this is the bs we are being fed, lies on lies, it amazes me that these drs graduated from advanced courses in the treatment of chronic pain, receiving certifications allowing them to treat chronic pain, years and years of studying how to treat pain thrown out the window. The new way: let the chronic pain patients suffer. Tell them that opioid treatment is bad! UN FREAKIN REAL!!! My new Moto: save the addict kill the chronic pain patients!

I hope your appointment went well and you weren’t thrown to the curb.

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My mother, 77 years old, has had 25 surgeries since 1977. She has Degenerative Disc Disease all through her back and has had three fusions, three knee replacements, a shoulder replacement (just last month) and numerous other surgeries. She has chronic inflammation and arthritis and is barely able to walk. She is in CONSTANT pain, has been since I was little, and always took opioids for pain. NOW, since Obamacare took effect, the doctors have stopped writing prescriptions for pain meds that she DESPERATELY needs in order to function at all. My mother worked hard until she was forced to retire and go on Disability at a young age. Her back, at 35, looked like that of an 80 year old woman, so her doctor told us. They are forcing my mother to go to pain management which does NOTHING to HELP her and adds to her misery by stressing her out. They put my mom in a room with 20 something DRUG ADDICTS who are on Welfare- and VOLUNTARILY doing harm to themselves while collecting a fat paycheck because they are supposedly "unable to work" OMG. CLASSIFYING 77 YEAR OLD PEOPLE WHO NEED MEDS WITH SAID TRASH IS JUST UNIMAGINABLE but, this is where we are with the Obamacare mess. I think it's SICKENING. I don't know WTH the DEA and Communists in the DNC are trying to do, but, they are intentionally hurting the WRONG people. This mess needs to stop. If a doctor cannot distinguish which patients NEED medication and those people who are ABUSING medication, they need to go back to school and/or learn street smarts and common sense!

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Re: madashell (# 67)

And therein lies the problem! When doctors and their respective patients are no longer able to discuss medically sound treatment options and how best way to treat/manage, not only chronic pain, but all other health conditions without fear of the very scenario we're seeing now, we the people have the right and must to be willing to advocate for ourselves and those who cannot!

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Why does the DEA think they know what pts need. They are not living peo plea lives but they sure are controlling them this is turning into a semicommunist state the Pres even wants his own berlin wall when they start controlling our food we eat and where we can go and say what then.

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