Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 24)

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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Re: Vintage Lady (# 457)

Sorry Ms.Vintage. if I am wasting your time. It is was not my intention to. I do not want to waste anyone's time in here. I've tried to get on the Pain Train as where I belong too so to speak but seems like I'm getting shot down for it. I have to deal with that too with my own issues. So, if I've wasted your time or anyone else's for any matter, I'm sorry and will not make any more suggestions.or seek any matters to try to persuade politics to see it our way. It's a team sport as I see it and everyone should contribute. I was only trying to do my part.

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Re: BiggerBrat (# 454)

Hi, BB. Sometimes experience is the best thing. Just getting around to reading your post but well done. It takes quite some time to get to everyone's post and glad I got to yours. Seems like a great strategy you had. Kudos brother..

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Re: Vintage Lady (# 457)

Belsomra is a sleep medication. Maybe it has off label usage as muscle relaxer. I tried it but after a few days I was feeling hungover all day so now I am not sleeping again. Good luck to you.

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Re: Etech (# 461)

Etech! Please keep on posting. There’s always going to be those chosen few who we just can’t please in life. Don’t let them spoil it for the rest of us who truly appreciate the time you take in sharing your research, thoughts, intuition & genuine concern.

God bless you!

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Re: Hop (# 463)

I’m the same way with any prescribed sleeping pill &/or muscle relaxer’s. I recommend to all MELATONIN SUPPLEMENT. It really works; no side effects & no day after sluggishness. It is a miracle!

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Re: Mejane (# 464)

That is very sweet of you Mejane. I just try and I'm not always throwing strikes but I at least know what we are fighting for or against. But we must stick together on issues like this. In fact we may be doing something. I copied and pasted this and I'm not sure if it's about us but it could be a start. Here is the paste sweetheart...

STAT Plus: After a pharma lobbying blitz, Congress softens legislation on drug patents
By NICHOLAS FLORKO

(I did make a couple of edits but it looks like something is working)

Pharmaceutical companies appear to have succeeded in watering down legislation that would've made it harder for them to accumulate patents.

(It may be nothing but nothing could lead to something).

Thank you for the reply Mejane.

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Re: Vintage Lady (# 457)

Hi Vint, seems like the kind of drug I could use. When I got my first generic ambien they must have been watered down. I used to get the brand until I had to leave a good job I had with great hospitalization. I remember the first generics of the ambien and they were so weak that i couldn't believe I took one. Then Mom came to the rescue with the brand that she was getting at the time. talked her into giving me one. and ZZZZZ 'til the next day. Many people say it's all the same but many have spoke in here about them and I believe they are right. Might try to talk my doc into it. But you probably know how it goes when they are dead set on something.

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Re: Mejane (# 465)

I think you are 100% right on your post 465. They don't see through their eyes because they are not opened.

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Not sure on where to start a probable not so new topic about DOES A LACK OF PHYSICAL PERFORMANCE OR DISABILITY CAUSE DEPRESSION FOR YOU.... so I'll settle here or ask the MEDCHAT folks to put it under the right topic category if worthy.

This is my story and I ask you to compare and share your story too if you feel somewhat the same.

When I was starting to get to the top of my profession, I seemed happy. I was making 3x more than I was with disability. But it got to the point where I could not even walk through the N.O. Convention Center with a small cell phone taking measurements. When I got to the CC door after walking a car parked mile, my back started to give out and it was either call 911 or find a place to lie down because I was going down. I chose to find a dark corridor and lie down. I recovered a little after the break enough to drive home and take Lortab and Soma and sleep it off. It was pretty obvious where I stood physically. At the time, my company was being bought and they were phasing out my position. I was offered another position in another dept. The job would have been a little more laborious but still a great position with the company. The catch was if it didn't work out, I would have lost tens of thousands in severance pay. So I took the severance and filed for disability.

Since I've been on disability along with other personal things, I think not working caused a major part of the anxiety and depression really started to hit hard for me, that is. My question is, has anyone been in a somewhat type of situation and mainly because of a lack of physical ability and probably caused mental problems with you? Sometimes the depression hits so hard that I don't even want to even fix a sandwich to eat and find it easier to eat a giant size of potato chips for supper. Do you find depression as debilitating as I do sometimes? Don't get me wrong because it is not this way all the time for me but I find myself sometimes in a real "slump." I know that I have to have a purpose to keep going and right now it's mostly taking care of my 94 year old Father. That too is not easy with my limitations. Could any of this sound familiar to you?

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Re: Etech (# 469)

Depression is part of the cycle of pain. A doctor said, "How can you not be depressed considering pain you're in?" I can't take most of the depression meds-I'd rather not as they're worse than the depression. Sometimes I wish I was dead, the pain, the lack of decent meds to treat the pain, hence the depression. I think it goes hand in hand with the pain. How can all of us NOT be depressed? We have to fight to get our disability, fight to get decent meds, always fighting something, right? I wish we could get a break from the hell we are living in. For me, I take it a day, an hour, and sometimes a minute at a time. It's easy to get overwhelmed. We have to remember to reach out. I'm grateful for this website, I'm not alone...

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Re: Etech (# 469)

Hi , you can start a NEW questions and answers / TOPICs above at the top of the page in Blue.. to your left it will say FOURMS
Click that and it will bring up a SUB MENU...the second one down will be post your Question or Story..
This thread was started in 2014 ! Wow...!
It's gone thru many different Topics and Questions
Good kuck

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Re: C (# 470)

Thanks C I was like in between pain and depression thinking they go together so I was hoping the editors would read it and put it in the right place. Sometimes the navigation in here gets a little confusing for me. I was hoping they wouldn't post it if wasn't under the right heading...but since I'm in this area most often, maybe they let it slide. Sorry if it's not your type of music.

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Etech (# 471) --

I did just as I told you to do and then typed in "Depression and Pain" and this came up. I'll copy and paste it next, also 2 other questions about it came up so 3 total with 6 replies to all 3...

Begin copy and paste:

"Robert Says: Wed, Mar 08 '17, 3:42 AM

I have been in ever increasing pain for the past 11 years. First, i was told it was in my head.then fibromyalgia. now neuropathy, gabapentin and Robaxin help but the pain is winning over. how do i discuss getting at least tylenol#3 to add in? I am 48. I walk a lot. I try to stay active. some days I do not get out of bed.talking to a doctor about prescribing seems to be taboo. I do not want my doctor to label me as drug seeking. I am not. I am seeking help for better quality of life. I also have major depression."

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Re: C (# 473)

Moderators : Please close this Thread. The subject has been changed several times. That would encourage new threads opened. And why do All of my replys have to be approved? If you don't want me to post just say so..I'll leave .no problem

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Re: madashell (# 470)

Hi madashell, that was the point I was trying to make. I kind of thought that pain and depression can go together hand and hand but some people are different and that is why I didn't know where to do my post on. It is very hard to deal with pain every day and I feel the same way too. If I were not alive, I probably would not be in pain..... "C" found the Title or Topic it probably should be under but for now on I'm leaving the depression issue alone anyway.

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Re: C (# 474)

To answer your question, we are not singling you out and absolutely welcome your participation on the site! We have to employ automated spam filters to prevent abuse of our pages, but unfortunately this means that we need to cast a wide net and catch a number of legitimate posts each day as well. With that being said, when our moderators do come across a legitimate message such as yours, it is approved right away.

With regards to closing this thread, we normally do not close a thread unless it violates our terms of use. That being said, if there is a more current thread about this subject that you or someone else has started, we would like to link to it from here so that others viewing this page will have a chance to view it. Please feel free to send us a direct message through our contact form if you have anymore information along these lines.

Thanks again for your feedback and we hope that this helps!

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Re: Tina (# 233)


I have osteoporosis, 10 fx vert t5 & all my spine is so f***ed up, bent, scoliosis, kyfo, so don't tell me about pain. I'm now 53 and have been with it in my 30's & u need pills to work. I've been on disability for 20 years. You wanna trade problems. I want a doc to put a rod & bolt my whole spine to make it straight as normal & u need to take pills to work.

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Re: Mejane (# 465)

I tried melatonin and sadly it did not work for me. I know many that get great results from it.

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Hello all of you misunderstood people in chronic pain including myself. I have an article that may seem unrelated, but if you read it, it makes sense to our cause, AND they want to blame opiates for deaths??? Just some more propaganda they want to feed us. FOR REAL...Death will not stop and cannot be stopped no matter what the cause is as I heard from the most prolific mass murderer Charles Manson, (not to glorify him) but he made a little sense when he said "weren't we all born to die"... Please read this and try to blame it on NARCOTIC prescription drugs!

The articles I get come from writer Shraddha Chakradadhar who works for "stats: MORNING ROUNDS" that I receive emails from (actually too many) every day. But I find many interesting. They find and accumulate medical statistics and inform people. WELL....HERE YOU GO WITH THE ARTICLE....

1 in 20 patients are exposed to preventable harm in health care. Roughly 1 in 20 patients experience health care harm that's preventable — and some of those experiences can lead to death or long-term disability, according to a new analysis published in the BMJ. Researchers looked at data from 70 observational studies that included more than 337,000 patients, most of whom were adults and lived in developed countries. Nearly a quarter of the cases of preventable medical harm were related to medication or other treatments. The study also showed preventable harm is more common in ICU and surgical units. In a related editorial, health experts say the research "serves as a reminder of the extent to which medical harm is prevalent across health systems, and, importantly, draws attention to how much is potentially preventable."

I think BMJ stands for Biomedical Journal? I don't know for sure, just a wild guess. If you know, please let me/us know. Did you notice "RELATED TO MEDICATION AND OTHER TREATMENTS." were written? And not once did they mention that unforgivable word, OPIATES!
Makes me wonder what the medications and other treatments are. Especially to know what the other meds are. P.S: Anyone interested in these stats, I will give you the link if it is approved by MEDSCHAT.

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Just another TidBit of some interest to some. If it doesn't fit here, no need to post it.

Overdose deaths fall for the first time in three decades. New preliminary statistics from the CDC show that deaths from drug overdoses likely fell last year for the first time in three decades. Some 68,000 people died in 2018, and although that number may go up, officials don’t expect it to exceed 2017’s total of more than 70,000. Still, the overdose rate is about seven times higher than it was a generation ago. “While the declining trend of overdose deaths is an encouraging sign, by no means have we declared victory against the epidemic or addiction in general,” HHS Secretary Alex Azar said in a statement. The current drop is due to fewer deaths from heroin and prescription painkillers, but deaths from fentanyl and cocaine are still increasing.

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