Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 22)

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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Re: madashell (# 410)

Who manufactured your brand name Vicodin ? Brand name medications are very expensive. Due to that few, if any insurance companies pay for name brands medications. Unless there is no generic. Or a doctor writes on a prescription the brand name is medically indicated. Which requires a Prior Authorization.

It sounds like the manufacturer that made your generic Vicodin stopped making it. Find out the name of the manufacturer of the Vicodin you use to take. That information is on your prescription bottle. It is also on the information the pharmacy gives you. If you do not have those items. Try and remember what the pill looked like. Put the color and imprint in google. That should help you find out who the manufacturer is or was. Once you know the manufacturer. it should be easy to find out if the medication is brand or generic. Call the manufacturer and ask if they still manufacturer this medication.

Fillers and binders can affect how a medication is absorbed. Which can affect how a medication affects individual patients. Try different generic brands. You should be able to find one that works well for you.

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Re: BL (# 421)

I took the generic years ago and had allergic reactions and my Dr at that time took me off them and put me on the brand. Told me not to take the generic! I have too many things wrong with me, and am always allergic to the fillers!! I also have Chronic lung disease!
COPD!

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As much as we have been talking about this issue in different message threads...nO have seen nob cadence that anyonevwith any kind of conduit towards something or someone who has the power, r sourcesvor ears of any kind ND of person who can actually do something to help our predicament. The Owners that Be have decided that cutting off opiates as a pain killing prescription for legitimize pain patients by lumping with illegal addicts is the easiest way to Win the War on illegal opiate use. We, the legitimate pain patients are going to pay the price... lookout for Big Brother...just a little late...

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Re: marin5 (# 422)

I would not hurt to look up the manufacturer for the medication you took for so long without any problems. Perhaps the manufacturer is having problems. Unfortunately, pharmacists are not always honest about issues with manufacturers. On the other hand, it is common for them to not know exactly what is going on.

In order for your insurance to pay for a brand name. The prescription would have to be written for the brand name. In addition, your doctor would have to check or write Brand Name Medically Indicated or No Substitution Allowed on each prescription. The insurance company would also be required to do a Prior Authorization at least once every 12 months. It does not matter if the doctor told you to only take brand name.

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Re: Vintage Lady (# 423)

The manufacturer is usually a 4 or more letter abbreviation on the right side of the script info after the mg listed..... such as hydrocodone 10/325 MALK for Mallinckrodt..... You could probably type in who makes (type in medicine mg rating then abbreviation) and get a lot of info from your search engine... dont try to put in a perfect computer address, no www nor whatever... It's not the 90s anymore. Just type in the question like you would ask the person next to you..... Hope this helps someone... I have friends ask me to look up stuff they say they can't find... My answer is ok but you can do it you're just trying too hard, just ask it right in the address bar. Like I said it's not the 90s anymore... yeah most of you more than likely know this but hey if 1 person is helped that would be a good thing.

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Re: Vintage Lady (# 423)

ARREST DOCTORS FOR (OVER 65) ELDER ABUSE. Call the Dept. of Senior Services in your town, and tell them that you want to know how to get your doctor arrested by your local police/or your town's police but having them arrested for knowingly your medical history. Why did he stop intentionally, knowing you would suffer without pain medication? GO DO IT. Have your local TV station be there, hurt them where they hurt you, they took your life away, take their license and income away and send them to jail. What about their families? Did they think one second of your needs to continue to have your life and family back? NO.

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Re: BL (# 424)

Purdue Pharma makes OxyContin. I believe the so-called "opioid crisis" was the invention of someone or a group of persons whose goal was to harm Purdue Pharma. If you go back to the beginning, someone conflated illegal Heroin with prescription OxyContin. Over time, the attacks became more generic which is how Morphine, Hydrocodone and all other Opiates got caught up. FYI, Purdue's family owners were deemed legally complicit. I knew my life that was pretty great because of OxyContin, was over when I started seeing the articles against OxyContin. Today, it has been acknowledged that the big problems within the actual drug addict community are Heroin and Fentanyl (delivered primarily from China.) This is not new information. It was always the case and the real statistics support my contention. When it began, I called Purdue and I begged them to fight with me. They did the opposite and they have suffered for that decision. I would point out lastly, that Purdue is not alone, they brought millions of American citizens into the Hell of their own making.

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Re: Tom H (# 412)

it all boils down to money. l guess big pharma has more money than the tabacco and alcohol industry. the glad-handing between big pharma and our government is the bottom line. period.

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Re: Laurag (# 426)

Its not the Doctors. Its the DEA that are making doctor's cut back plus some states have new rules.. it's cruel but you have to call your Congress and Senate. Not the police.

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Re: C (# 429)

I've talked to my GP and others in the medical profession about all of this. My doctor thinks the "Opioid Crisis" isn't the crisis and nobody I've talked to where I get healthcare thinks it is either. My doctor told me "nobody ever got into trouble or had any problems if they followed the directions on the bottle". She's absolutely correct. LOOK, we've had a meth crisis, a crack crisis, a heroin crisis, etc., etc., one crisis after another all of which puts emphasis on a "drug abuse crisis" in America (and the world). The difference between all the other "DRUG" crisis' in the US is none of them involved entities with DEEP POCKETS. Who were ya gonna sue? The Colombian drug lords? So in this opioid crisis we have the bad, evil doctors pushing pills put out by the bad evil pharma companies, yeah right. That's all a crock. I had to fight with my original GP (he moved to Atlanta years ago) to get him to prescribe any narcotic pain relief for me. I had to convince HIM that quality of life trumped being addicted to a narcotic. Doctors and pharmaceutical companies have deep pockets and my experience with government when in a courtroom situation is you are guilty unless they even allow you to prove you are innocent. I'm old and if my memory serves me, drug companies figured out how to put naturally found plant chemicals in pill form to alleviate pain people experienced and doctors wrote prescriptions to people for these pills as part of their pain management. I have NO recollection of doctors or drug companies being involved in people stealing opioid medications from people with very legal Rx's for these medications. I have NO recollection of doctors or drug companies being involved illicit drug trade of stolen opioids or the ingredients to make illegal pills after the garbage comes across the borders. I have NO recollection of doctors or drug companies being involved in selling or pushing illegal pills on the streets of America. So somebody answer me why in the hell are state AG's and other government agencies prosecuting doctors and drug companies??? And in case nobody looked past the socialist/communist rhetoric of many politicians, doctors and companies are in business to make profits from their products and services. The so called "OPIOID CRISIS" is a manufactured crisis that finally has an address and deep pockets politicians can go after. A local doctor here where I live was set up and prosecuted by the Pennsylvania AG for prescribing pain meds when she supposedly wasn't certified in "pain management". Thank GOD the jury realized the agent who went to her and complained about pain to get her to prescribe him narcotic pain meds was a phony sting and she was exonerated. Problem now is doctors are scared to death to prescribe any pain meds at all. So our Pennsylvania government requires people suffer in pain when the cure is readily available. The problem "we", those of us suffering is we don't have the lawyers in our midst who are also suffering. I'm ready and able to testify on behalf of the doctors and drug companies but I have to clue how to get in touch with them. I've sent emails to no avail and realize they don't read or respond to personal emails. If "WE" all could make it clear "WE" want to testify on behalf of the doctors and drug companies, maybe they will let us know how to become part of their defense. They have the lawyers and the ability to fight for them and those of us in acute pain.

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Re: BiggerBrat (# 430)

Excellent Post!! Really tells it like it is!

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If you have not seen this NOTICE please read this. This is for ALL Chronic Pain Sufferers. Here is our opportunity to make a difference and make your voices heard.

regulations.gov/document?D=FDA-2018-N-1621-0001

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Re: CreativeLackie (# 432)

This was held in 2018. I wish we knew about this then cuz it’s 2019 & we are all still needlessly, at no fault of our own, suffering. Us legitimate, by the book, CHRONIC PAIN PATIENTS blind sighted. Sad part too is the slashed dose of med we are given the generic formulas have been altered purosely making us sick.

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Re: Mejane (# 433)

I posted that back in 2018 everywhere...it was extended about 4 times. I had it on Facebook, this place and the nationpainreport. I also just posted some results from people telling their stories. Now Drs by law cannot just stop medication and force tapering. These are new guidelines.

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Re: C (# 434)

Hi C! Thks for taking the time to reply! Do you have a link/page I can find your commentary, etc?

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Re: Mejane (# 435)

I will be posting others...

Hiya, and Thank you so much for listening. This is a link from the other day.. I'll have more soon

https://www.scientificamerican.com/article/pain-patients-get-relief-from-war-on-opioids1/

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Re: Mejane (# 435)

Hi again, here is a link to the put your zip code in. When you do it brings up ALL your Reps in Washington with a letter... add your story to it if you like. Add your phone number and request a call back to talk to them. Then click send. Ease share it so people like us know... We can be recognized but only if we organize.

Thanks so much to this place Medschat to allow us to have this venue to speak and spread updates.

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We are organized. Look up your state's Don't Punish Pain group. Get involved and show up at the national rallies.

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Re: BiggerBrat (# 430)

Well said BiggerBrat.

I would like to add that what goes on between patient and doctor is none of the state's business! Never has been

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Re: C (# 437)

Hi C! Please provide the link! Thanks!

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