Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 21)

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Liberty Says:


People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.



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401
Matt Says:

Yes guys, we must call, email, and leave voicemails for all of the senators, representatives, and governors for your respective state!!!! I have called each one of the above about 2 or 3 times! But it's gonna take everybody continuing to bombard them with call, emails, and voicemails. To find your representative and who your senators are, go to: whoismyrepresentative.com

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402
BimmBimm Says:
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Amen I've been cu off since August. 60 yrs old back & leg is awful since 2006. Spinal stimulator being replaced but won't give any meds. What times we are in. Taking your own life is now a pain relief option. Lord help us.

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403
Charlene Says:
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Hi everyone, hopefully all of you are doing well..I'm excited to see we can all get together and fight back....??..now I am a buprenorphine patient. What really let me to this type of medicine is because I to was on percocet 10s.. I had noticed as far as myself goes it was getting harder and harder to get the medicine I needed to control my pain levels... I was starting to notice that every time I went to my doctor the medicine was getting harder and harder to get..now I am more less, I'm on the quiet side and not pushy, even though it was around 2009, and I do live in Florida to were as boatloads of people would come in van loads to take back to another states....I also would hear people saying oh I got this and that. And I'm thinking hmm how come I can't when it was obvious to tell who needed the meds or who was a stoner just getting their fix. So I started getting scared and heard about this new medication buprenorphine. I don't think I was an addict or anything but I still needed something for my back and nerves that are shot. And more .....well just anyways my appointment was yesterday and my blood pressure was up, you know the white coat syndrome..because I untended to ask for a few changes I just wanted to ask to change my DEPRESSION medicine from nortriptyline to cymbalta because I heard it helps for pain and nerves. Depression...he seems almost scared just doing that..what I'm trying to say it's not just pain medication the doctors seems frightened about. Its almost like they all have been contacted by whom ever to be careful about what you put your pen to pad...and I most definitely think this is because its Florida, if we all know about notice it, seems the doctors should be aware of this to. I see it and notice it every appointments I have a son who is on disability so I watch the doctor for little signs like this. They are timid...I often wonder why I couldn't get the help I needed and how come the users always seem to get their fix. Maybe because of my shyness I don't know. But I think who ever is scaring these doctors not to help us. Should be grounds of like you said a lawsuit for how they just all kinda dumped on the people who seriously needed help.. if anything happens to someone they should be held accountable for our health..I once read on one of these medschat group this guy who sounded like he was just about ready to commit suicide, I was so scared for him with no one to contact for help. All I had was a name and this site.

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404
marin5 Says:
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Re: Hop (# 399)

They told me my brand name Vicodin is not being made anymore and is the only one I can take! I was taken off of hydrocodone years ago because of having adverse reactions to it! I wouldn't take any of it again anyway! It took me over two months of going through hell to get it out of my system, but I finally am rid of it now for over 3 months! Cold turkey! But now I am in excruciating chronic pain trying to find something natural to replace the opiates! I think they do a job on our insides! I am not constipated anymore either!

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405
methadonehater Says:

Re: Terri (# 392)

How can I help in this class action lawsuit?

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406
Roro Says:
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Re: marin5 (# 404)

If you have internet go to Youtube and look up patriot nurse. She has a video on pain relief. You could find other videos as well but she is also a sufferer of chronic pain (to a degree?) but gives credence I guess... May relief come your way.

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407
Mejane Says:
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Re: methadonehater (# 405)

I'd like to know how to join this class action suit as well. Pls keep us posted. Praying for us all!

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408
Keeka Says:
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Re: Terri (# 392)

Are you willing to start a new thread with whatever info you have re: a class action lawsuit in the works as well as your suggestion to join the don't punish pain movement? This thread was opened in 2014. Thanks!

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409
Mejane Says:
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Re: Keeka (# 408)

I’m thinking we should approach Atty Morgan of Morgan & Morgan P.A. as he led the fight as an advocate for chronic pain patients/med marijuana legalization. Obviously he was successful. We as legitimate chronic pain patients are being victimized, abused, etc. Like you, I read on this site a class action has been started. I’ve requested more info on it & how to join it but to date no reply. We definitely have a solid case here that could help many victimized. We need a brave attorney willing to take on those who are creating & implementing these new laws & guidelines that truly violate us long term legitimate chronic pain patients whose lives seemingly overnight have been turned upside down.

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410
madashell Says:

Re: marin5 (# 404)

That's what they told me, name-brand vicodin is not being manufactured any longer. Are doctors aware of this? When my doctor gives me a script for non-generic vicodin, I cannot get it filled. I've tried mom and pop pharmacies, big box, etc. Any suggestions/ideas? How can this be? I wonder if this is a trend, having read the poor responses from this website. Meaning, not too many people seem happy with the meds they receive lately. How can we demand quality medications and vitamins? My meds are garbage even tho my doc writes non-generic on scripts.

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411
etech Says:

I am so tired of hearing that Trump is going to shut down Big Pharma. However I am in favor of these big companies overcharging us (the little or Medicare/medicaid/low income consumer) but I think he is fighting for the wrong reason. As I see and read it, he wants to shut it all down. Why can't he put his energy in the right direction? Just think of it. You won't be able to get the meds you need to survive nor get chronic pain meds. Correct me if I am wrong but I believe that is his goal who all depend on the meds they need as he thinks we don't need them. As someone wrote about a police officer that got shot. Could he need pain meds? How about out our brave men overseas fighting hard and getting wounded badly. What are their views on that? No pain meds...just suffer and you'll be ok because it's not me.

I don't think so Mr. Trump. I think you are barking up the wrong tree. Or the DEA too. Your job as a DEA employee is to stop the illegal drug infiltrating out borders..So you proceed anyway without the cause. Street drugs are exactly what they are. Why do you persist to stop legal prescribed drugs just because they become of street usage? So you say you save a life doing that. But did it start out as a street drug? If so, I was prescribed street drugs by a very legitimate doctor for at least 30 years. If you continue to make pharmaceutical drugs illegal then you will try to abolish all drugs that people depend on and you will make the people who get prescription drugs go into the street to get chronic pain sufferers relief yet making criminals out of them. How about the flow of drugs coming from the cartel's So you can't keep them from the borders so go for the legal drugs that help US citizens. How about your DEA agents? Do they get shot or hurt on the job? What if they don't have drugs to relieve their pain. If they don't get injured which probably rarely happens, what will help them? Maybe they are not, doing their job for taxpayers. And for Mr. Trump, have you ever had any illnesses? Right now you may feel healthy and young, but believe me, your time is coming because no one lives forever and you will get old too. My 94 yr. old father has to take between 10 to 15 medications a day to keep him alive. So you can blame yourselves when there is nothing available to take away your ailments at your twilight years.

Then you all can blame your ignorance for things to come. As for the people now that are suffering, what do you care if it is not you. For every king pin you arrest, there will always be someone to fill their shoes. Just as history has repeated itself over and over, yet it seems like nothing was learned. The wheel keeps spinning and the ignorant keep getting flats. If you want to stop or at least curb the drug problem, you are going about it the wrong way because it is not working. When somebody has lost their loved one because of an overdose, all you can think about is getting rid of all the drugs and not the real problem that caused it. Can you people actually realize what is happening? I don't believe it could be explained to you because it's probably above your level of intelligence. So keep the wheel in progress.

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412
Tom H Says:

Re: etech (# 411)

They cut us off of our pain meds because of the so-called opiate crisis and because of the people who did abuse them and died from overdoses. If that is how it works, how about ending the alcohol crisis? How many people have died from the abuse of alcohol? And how about ending the tobacco crisis? How many people have died from heavy and abused smoking habits? That makes about as much sense as what they are doing with the pain medications. If they had taxes placed on the opiates, there would be no crisis. They won't end the alcohol and tobacco products because of their tax revenue that keeps them swimming in their money addictions, money drunk crisis, which has been slowly destroying this country. I was on the opiate medications for 12 years and never abused them and never increased the dosage. Also, like most people who were on the pain meds, we never got "high" on it. We got some pain relief that allowed us to live somewhat better lives. I got tired of the BS trying to get the meds so I went and got the medical marijuana card. I have been off the opiates for 8 months now. The real CBD oils do work, but that is starting to become very inconsistent, probably because of the demand and lack of suppliers. Sometimes they work great, other times there isn't much pain relief. Plus they do tax that medical product, which should be against the law since it is used medically, but they have to line their pockets in some way or they won't keep it legal. Just like the alcohol and tobacco! I bet if they could place a tax on the opiates, we'd all have our meds back!

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413
Laura Says:
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Re: Charlene (# 403)

I am in Australia and they are becoming very careful here too. My motherhad her gallbladder removed 16 months ago and has been left in unbelievable pain 24/7, the doctor should be made accountable. Mum had to go back to the hospital twice on the weekend all they do is just send her home & tell her to take more pain killers. Dr Jason Wong should be charged with misconduct like his partner Dr Braun is. Braun has been getting away with destroying his patients lives since 2006

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414
Mejane Says:
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Re: madashell (# 410)

Same here. For over a year now each month my Dr writes specifically “medically necessary brand only percocet” as I’ve had horrible side effects from generics oddly enough this past year after being a legitimate managed chronic pain patient for 15yrs with no issues/problems/side effects. However, every pharmacy I’ve tried says same “it is not available to us thru our wholesaler, blah, blah...”

The side effects have become unreal w/ generic brands & no one will listen. They are also very weak in strength. It is not a tolerance issue with me. I’m fortunate that way.

Something is definitely up with the formulation of the active ingredients & the inactive fillers of all oxycodone meds; seemingly overnight! I thought it was me until I came across this wonderful site bittersweetly seeing we are all in the same boat.

Our hands seem to be tied as on top of it our doses regardless of our needs have been gov’t regulated cut in half & many people cut off completely. This is like 3rd world torture. We must pray for a miracle.

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415
etech Says:

Re: Charlene (# 403)

hi charlene, my doc put me on suboxone for pain and pain only. I think at first he was a little paranoid about putting me on anything else because i was a recovering Alcoholic that binged one time. After not drinking for years he got braver and started me on 180 mg. of Morphine. I finally had to tell him it was too much because all that didn't help. So I actually drew back myself to about 60 to 90 on bad days but the morphine did not help as well as it should have. The problem is when you take suboxone, everyone thinks you are an addict an don't realize they are prescribed for pain also. I had so much trouble getting another pain clinic accept me because of that. So try not to prescribe you suboxone and keep you on buprenorphine. I also called my doctor the mad scientist because he was always doing different things such as taking DNA to see if I had the "addictive" gene And according to him I don't good luck on your pain seeking drug.

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416
BiggerBrat Says:

Re: etech (# 411)

I don't believe that at all. I'm pretty sure President Trump has been informed about chronic pain patients and the need for legal medications that work to provide a quality of life these people otherwise wouldn't have. It sounds like you've come across more propaganda people are constantly spewing to try and make people hate the President. I've written to my senator several times about this problem of lumping in chronic pain patients with drug abusers and I have letters from him that everything is being done to assure chronic pain patients aren't looked at as dope heads. We all need to be writing to our elected representatives and making them aware this is an "opioid crisis" in name only and is really just more drug abuse and honest, law-abiding citizens are being dragged into this fight unwillingly. One thing I know about President Trump is he has great empathy for the suffering of people at all levels. I started keeping a log of the time I take my Vicodin pills and the hours in between doses. My pain is intense but varies. I've found the "log" has also prevented me from taking pain pills too soon since I don't allow myself to take any pills if at least 8 hours haven't passed. I've also found that even more than before, my "30 day Rx" lasts even longer than it did before.

Here's the thing, according to all the lunatics against "big pharma" that "THEY" are making addicts out of people and need to be punished, I can say I am not an addict and ONLY use the Vicodin to control pain. How do I know I'm not an addict or addicted? I'm almost 74 years old and I've been taking Vicodin since age 45. My medical issues have gotten worse over time, NOT better, but when I am in intense pain (more so now than ever before), I can count on my Vicodin to alleviate the pain. When I was 45 I went days at a time without sleep. I considered suicide on numerous times. My doctor said he was worried if he gave me a narcotic Rx I would become addicted. I asked him, which would be worse, me dying from lack of sleep (it does happen) or committing suicide for a lack of quality of life or having a semblance of life and becoming addicted to a narcotic drug. He wrote the Rx for Vicodin. What has happened is people think pain relief should be instant and they take too many pills and they do become addicted and run into other problems. I don't blame "big pharma" for that, I blame doctors for not properly educating patients about narcotic drugs and how to prevent addiction. People that "self medicate" are not helping our cause. They take too many pills, use up the 30 Rx way before 30 days are over and then start looking for other sources of pain relief. If people were properly educated about how to take their pain pills we wouldn't have this problem. "Take 1 tablet by mouth every 4 hours as needed for severe pain. Max daily dose=6 tablets" (right off my bottle of pain pills) is total BS. Using my log, I generally take only 4 pills in a day.

There are days I go 20 hours without taking a pain pill and never go less than 8 hours because I tough it out if it hasn't been 8 hours. My Rx is for 7.5-325 pills. I've had stronger dosages in the past but didn't like how they made me feel. The directions on the bottle should tell patients relief will not be immediate, do not take more than 1 pill in less than 4 hours or 8 hours or whatever it takes to get and keep pain under control. I also recommend people keep a simple log to look at when taking pills. Basically, I write down the time I am taking my pill and in between the last time I took a pill I write down how many hours it was in between taking pills. I keep this going down in a column and can get 3 columns to a half sheet of paper and then turn the sheet over to continue on the other side. There are times I'm in pain, look at the sheet and its only been 6 hours since the last time I took a pill so I will wait for the 8 hour mark. If you're addicted, no way in hell a person will wait in pain to take a pill. The addiction will over-ride the need for pain relief, that's a fact. Good luck getting your pain under control and please think twice before repeating spurolous comments about the President, big pharma or anybody without absolute proof.

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417
Roro Says:
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Re: BiggerBrat (# 416)

I agree with you. The cdc started way before Trump was even elected... If I remember correctly, cdc opioid prescribing recommendations were written in 2016... Trump was not prez till jan 2017...

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418
myst7 Says:

Please send your story to JUDICIAL WATCH, it is a Government Watchdog group. If you are a caretaker with someone fighting their right to proper pain management, if you are suffering, if you know of anyone who has committed suicide due to the CDC guideline that is being taken as law and not a guideline...

I sent them an email begging for their help before any more people take their lives. I shared of a Government sponsored and policy backed doctor-patient agenda to rid Government of the worthless eaters as Gov calls us who can not function without pain treatment... I know of 5 suicides in my area of untreated chronic pain patients, 1 a disabled best friend with MD bedridden, a cousin with brain cancer, a vet... there were actually 5 successful suicides and 1 car crash of a pain patient (who not sure if suicide or not). All these but 2 person gets disability also. Another point, 1 was crippled with Lyme, worked with my husband, and had been unable to return to work. He never made it through the disability process. With all the comments on this thread Please contact Judicial Watch and beg for help. Thank You.

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419
Mare Says:
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Re: BiggerBrat (# 416)

I agree with you. I’ve been trying to get my back fixed for years to no avail. They would rather give me meds then spend th money to fix my problem. I could have been fixed with a simple disk replacement years ago!

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