Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 20)

431 Replies Updated



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Liberty Says:


People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.



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381
Dead Says:
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Re: HOUSE (# 363)

Yeah I think most opiate use is. I know that by now.

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382
Dead Says:
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Re: Dead (# 328)

Yeah so it didn't work out that bad after all. The idiot's insurance gave me $1,174 and my 97 Corolla had a small dent and the rear quarter that I got most of it out but I don't really give a damn about it. So, I'm ready for the next idiot to hit my car. I hope they have insurance cuz so far I made couple of thousand off the car in five months of idiots out here smashing into it so little. Then long as it stays somewhat and looks like it's a low miles older vehicle lucky then you to pay I want somebody to total it out make it so it's still driveable and don't look like it's totaled out that's the whole idea because in New York people are driving like big a-holes. They are all on drugs playing with their phones acting like morons drinking. In Long Island New York Suffolk County.

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383
madashell Says:

Re: Dead (# 382)

They drive like inconsiderate, entitled morons here in California too.

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384
Dead Says:
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Re: Kaydollasign (# 299)

You said it!

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385
Tlzek672 Says:
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How can I help? This has gotten rediculous. I am in Marion county, Florida. We just moved here from Pittsburgh. I love it here but havent been able to find a doctor who will accept medicaid and provide the medicine that enables my husband quality of life. Please don't judge because he is on medicaid. He worked very hard for many years. I'm so tired of being treated like we are doing something wrong for simply wanting medication that we know works.

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386
Laura Says:
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AUSTRALIA needs to do the same.

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387
Vintage Lady Says:
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Re: Tlzek672 (# 385)

This is typical for FL... for many years, Florifians on MEDICAID have been discriminated against. I moved my family to FL from CA back in the seventies. In CA, we had been on their Medi-Cal care, called MEDICAL. Any doctor, dentist or hospital honored this insurance and the healthcare was excellent, along with most other public aid... it didn't seem to me like it was ever an issue. People are or were more looked at through their own individuality. However, in FL, we found that people on public aid were very stigmatized and grouped together as a less desirable caste, almost am 'underclass or untouchable'.

I have worked all my life. Because I didn't marry until into my thirties, I worked hard and played hard, your classic Baby Boomer. So along into my 17 yr marriage into my 40s and 50s, a stay at home wife. Didn't work for more than ten years, lost all my disability credits. So at separation of marriage, worked for a little while, but by then, my body was finally broken and I was older and finally, unable to work. I had to go on SSI (no easy feat, dragged on for 3 years. Now am told, I am certified for about $86.00 in EBT, until 2020, but still have to recertify in 2019, a year later... WTH? SO tired of all this seemingly unneeded reviewing and still being discriminated against.

Now, only on Tylenol 3 and Diazepam. I am a caregiver to my 86 yr old mother with Alzheimer's. I HAVE to stay healthy and that includes PAIN-FREE! I used Lorcet and Soma (an inexpensive, tried and true prescription sleeping pill, later classified as a muscle relaxer. $30 tops, cash price for 30 ct. Good prescription for chronic insomnia since the 1950's. All of the sudden, it's a BAD DRUG!! AND then, with the war on opioids, and trying to find a new doctor in 2011, when finally got SSI approved, my old Dr doesn't take Medicaid, so bad time to try to find a new doctor. They said I was Doctor Shopping... OOOO... BAD THING! Finally found a good place. Have my Percocet, Soma and Diazepam. No more Lorcet like I've had prescribed overv20 Yeats (I didn't sit behind a desk, I worked industrial construction). Slowly, but surely, first it's the Percocet, now down to Tylenol 3 with my doctor because pain management is a joke. One place say, yes, we accept Medicaid, but we don't prescribe narcotics to our medicaid patients... so what's the point?

Anyway, the Opioid Crisis started basically in South FL... patients from all FL, as well as near and farther states were in South FL, once a month to get their illegal and unneeded oxys, etc, and in record numbers for their recreational and income drugs. Ruined it for all opioid prescription users, not just the illegal element, by dumping us all in one basket. But now if you have private insurance, you can usually find a doctor who Wil carry on with your prescription regimen, but if you have Medicaid, there is that stigma again, and your choice of doctors is limited. And they all cry. LAWS... NOT GUIDELINES, as an excuse not to write our needed pain and life helpmates of prescriptions that made life close to normal, instead of just bearable, as is the case now. Sorry, didn't mean to write so long... just very frustrating and not getting any easier, especially in being an elder caregiver to my mom. Good luck... hope you have found what you needed. I don't know what I am going to end up having to go through to have a pain-free life, anxiety levels kept down and able to sleep... no more Soma for me, thanks to the controlling pharmacies who 'know better 'than your doctor... Hugsss...

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388
Vintage Lady Says:
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Re: Terry (# 372)

They are NOT LAWS.. only guidelines...

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389
HOUSE Says:
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Re: Vintage Lady (# 387)

Hello, I just wanted to say that this is an excellent post! You are truly right on the money about medicade and pain meds!!

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390
nimshie29 Says:

Re: Laura (# 386)

Do you have chronic pain?

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391
Dead Says:
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Re: Vintage Lady (# 387)

New York's the same way.

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392
Terri Says:
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A class action lawsuit is in the works. Also join your state's Don't Punish Pain Rally group.

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393
Vintage Lady Says:
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Re: nimshie29 (# 390)

Chronic Acite pain daily... Arthritis ,Sciatica, both sides... L-7 Herniated Disc... Scoliosis, MIGRAINES... possible Fibromyalgia and RSD. I can't take Gabapentin (Neurontin), had bad reaction. Among other things linked to getting older and caregiving to 86 yr old Mom with Alzheimer's. I have to be at the best I can for the both of us... it's getting harder since I don't have the correct pain meds. I feel like I am going to get Acetaminophen Poisoning, taking so much, and for breakthrough. Have appts for testing forMom coming up... a chore just to get us both ready... Why can't we get noticed as a serious issue by being lumped in with illegitimate abusers/doctors. It's ceating a hidden health crisis for pain patients who REALLY NEED THEM AND TO BE ABLE TO GET THEM THROUGH OUR PRIMARY CARE DOCTORS AS BEFORE... SOMEONE OUT THERE WHO KNOWS WHAT THEY ARE DOING NEEDS TO DO SOMETHING! PLEASE HELP US!!! Hugsss y'all...

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394
Charlene Says:
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Hi, I just wanted to say this... In my email box today I received a letter from Purdue pharmaceuticals saying that a new wafer has come out for pain management patients. I don't know much about it but I could share info about it.

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395
methadonehater Says:

The opioid "crisis" is a JOKE! Darvocet is not the same as codeine. Codeine is not the same as hydrocodone. Hydrocodone is not the same thing as Oxycodone. Oxycododone is not the same thing as oxycotin. Oxycototin is not the same as morphine. Morphine is not the same thing as heroin. Heroin is not the same thing as fentanyl. Why are all these drugs being treated the same way under this insane opiod "crisis" nonsense?

People who have chronic pain aren't going to jump from darocet to fentanyl unless their options are limited to going to the streets to get God knows what to handle their pain. These decisions should be made by a doctor, not made by the desperation of people who need to have their pain managed by going to the streets.

May every one of these law makers who are pushing insane laws in the name of the opioid "crisis" get cancer or have an injury that causes chronic pain, day in and day out. Perhaps that would change their minds.

Prohibition has never worked and never will work.

The powers that be will only be providing a huge black market for these drugs. Guess what, if there is money to be had, and desperate people to pay to get out of pain, the black market will THRIVE. I don't think anyone wants that.

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396
marin5 Says:
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When The Vicodin brand name that I had been prescribed 2 1/2 yrs ago was stopped cold, telling me they are not making it anymore, and gave me no alternative, It made me very angry and resentful against the pharmaceutical conglomerate! For about 6 or 8 months before that, My pharmacy had started telling me that they couldn't fill my script, no explanation. So I had to take my legal script and call other pharmacies, as I'm disabled and mostly confined to home! I got it to last for about 6 months, but then these pharmacies were telling me they didn't have enough of the product. I finally had to take about half of my total script to have something. Then it all ended with them saying that my pain meds were not being made anymore! Back to my anger: I wanted to get all of this drug out of my system and never take it again. I didn't know how to do it, but I started reducing it to half what I took. I was on 8 Vicodin - 2-four times a day so I went to 2-2 times a day, but I couldn't stand the pain, so I went to 2- 3 times a day for a couple of weeks, but I didn't know what I was doing. I kept forgetting how I was doing it and would go into terrible withdrawal sometimes thing I was sick with a flu, I did this for a couple of months and finally had it out of my system but with nothing to replace my pain meds!

I tried patches that helped a little on certain pain places on my body, And tried CBD from, good companies, but it never reached my pain. I have so many painful diseases wrong with me, so maybe too many! I tried the oil under my tongue, Tried the capsules, and one company I get 60% off so I could get higher potency for much less, but still nothing helped, and I kept getting bad reactions from different ones that might have had fillers in them. I had same trouble with meds all my life allergic reactions! So I just opted out of all! I have been taking 8 hour E/R Tylenol 600mg. It helps some but I need more, but I have not had any opioids since about the 20th of December! I want to eventually go on LDN if I can find a doctor. as my Doctor told me in 11/2018 that he doesn't know enough about it even though I gave him info about a year ago. I also asked about Marijuana (not to smoke), as I have COPD Chronic lung disease. But edibles or others would help my pain. But he is against it! I may have to find another Doctor!

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397
roro Says:

We need a class action lawyer to sue the govt & doctors for cruel & unusual punishment & malpractice. Doctors should be fighting for their patients, not hiding under a table with their tail between their legs. This is malpractice to be sure & govt interfering in medical treatment of law bidding citizen is cruel & unusual (unjustified) punishment. It is not our fault others take opioids illegally. This is like executing a murderer's brother because you can't stop the brother from murdering. It stops nothing but unjustly affects a law abiding person.

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398
Mejane Says:
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Re: Terri (# 392)

Please instruct me as to how to join the Class Action Suit & any other info you or anyone of my fellow legitimate chronic pain patients have on this amazing medschat site. Everyone, you must access NIH’s NPR NATIONAL PAIN REPORT online. There is hope for us; they are working hard as our advocates. Amen.

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399
Hop Says:

Re: marin5 (# 396)

Production of Vicodin was never stopped. The amount of acetaminophen was reduced because Tylenol has been linked to liver failure. Whoever told you Vicodin was no longer made lied to you. It has been marketed as Hydrocodone which is a generic name for several years.

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400
Mejane Says:
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Re: roro (# 397)

You are right on it! I read today on this site that there is a class action suit in progress. I’m trying to find out who is leading our fight via this suit to join. Let’s all find out more info on this so we can all be heard.

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