Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 17)

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

REPLY

REPORT

Re: Jaffa (# 319)

Man, your post is idiotic. Why don't you fly to the U. S. & have someone overseas pack up whatever meds you are talking about & have them ship here to you. See how long it takes you to do some hard time. Easy to say & do when you are safe in Sweden. Speaking for myself, I will continue to see my p..m. doc to get legit meds for legit medical reasons instead of being a drug mule/smuggler. Thanks, but no thanks. By the way, what the heck is a DDC chemist? Sounds like a drug cooker or something.

REPLY

Was this helpful? 3

I'm ready, I've been doing anything and everything I can. But I can't do it alone. What do you have in mind. I go through the same thing every time. Don't think it's my doctor. He's under pressure to drop me back. Dropped by half in a few months. Since CDC guidelines came out, I think everyone is being cut back. I'm already in more pain now all the time! What's the point in pain management if your pain is too high?

REPLY

Was this helpful? 5

Re: Kaydollasign (# 299)

Mallinckrodt Is just a horrible brand. I take Adderall and with Mallinckrodt they are maybe half strength. Maybe. I have to go to a pharmacy in the next city to get real medication.

REPLY

Was this helpful? 1

Re: Jaffa (# 319)

Oh my please tell more...give a bit more details , you are somewhat talking in codes..

REPLY

Was this helpful? 1

Re: Sharr (# 324)

I think he’s talking about Fentanyl from the internet. You don’t want to do that.

REPLY

Was this helpful? 2

Re: Alan E Hall (# 322)

I agree with what you're saying so much that I didn't go back to doctors. I had no idea if I was going to be stung out or just dealing with it. Proud to say I'm just dealing with it. This has been 2 months with no withdrawals. I hurt all over but hell with it! I got so sick of having U/A's and being treated like I would sell my mother for a pain pill. It shouldn't be like this period. I was told in 1990 that I would be in pain for the rest of my life so all I would take pain pills for was to dull it a little. I believe that if we have the documents and MRIs showing we're crippled, then there shouldn't be a problem. Sorry, kinda got off what I was saying. Had to vent a little. Good luck everyone. I hope that each of you succeed.

REPLY

Was this helpful? 4

Re: Kelly (# 14)

I am on the exact same meds for chronic pain. Have been on prescribed meds for years. However, check with me Friday after my appt at 9. Rumor has it that the new doc in our PM group has cut at least 99% of patients completely off. My doc just retired. I am so sad thinking at 59 yo, I will end up wheel chair bound or worse. Even these drugs do not take away pain completely. I am 100% disabled. I just found this chat tonight. Thanks for listening.

REPLY

Was this helpful? 2

Re: Ed (# 20)

I'm sick of Long Island. On top of everything somebody backed into my car and now they are charging, telling their insurance company I'm making a claim by lying about what really happened. And now my insurance company is involved. I'm waiting for a police report and hoping it vindicates my story. Just crazy!

REPLY

Was this helpful? 2

I have been watching this with some alarm from Australia. How are you people coping? Have you found a solution to this mess? Have suicides gone up? I hope you have found relief from the suffering that robs you of a life.

REPLY

Was this helpful? 3

I don't know if we can post names of a group on Facebook that is fighting the CDC. Anyone that's trying to get those of us that need our pain meds taken off of them, Don't Punish Pain Rally is fighting and anyone can join them. We have Rallies starting Jan. 29th at the State Capitals, sending letters, and finally starting January the 22nd, we have our first commercial on Fox Business! You have to look at your TV Guide to see if you get Fox Business channel. We also have doctors, pharmacist and well so many others! Check it out, join in on the fight to help us all win, it can and will be done! Yes, I know it will be a battle but with those backing us, we will beat this! If this gets posted then I will add more but your best bet is going to, 'Don't Punish Pain Rally' on facebook. And yes, I will ignore negative replies! You want results, check it out, join, if you cannot make the Rallies, you can always write or email Congress, your local news channel and so many more. Take care~

REPLY

Was this helpful? 5

What's being said here is valid but winded. Since 2014 that you think we need to get something, that I switched around to getting brand new comments. And let’s get some good petitions going. I’m not good at writing them but I’m good at getting people to sign them. I have that almost all my medicine and take it away and I’m in so much pain that my quality-of-life is gone. More than anything for us to get some medications and get our lives back. If somebody can tell me we get a petition to go or I don’t know. Dude, I’ve reached out to my congressman and I said that your things have to change, and only we can change them by voicing our indignation.

REPLY

Was this helpful? 0

Re: Sabrina (# 327)

I’m so sorry that you can’t find the right PM Dr. to prescribe the meds you have been taking for so many years. I also suffer from constant pain. I have DDD plus I no longer have a disc at the L3-L4 level. It’s just bone on bone rubbing or the vertebrae just slips out of place. I’ve also been diagnosed with stenosis & spondylitis. I have a pretty decent doctor but my meds were reduced about 2 years ago when the government & insurance companies started all the BS about people dying or drugs getting on the streets. Why the hell would I sell the only thing that makes my life tolerable. They need to get out in the streets & go after the drug pushers & leave the decent people who really need & rely on these meds to have a small bit of quality of life alone. I’m 58 yrs old & have been permanently disabled since I was 30 yrs old. Good luck. I hope your new doctor will turns out to be a decent & compassionate one. Please write a post after your appointment.

REPLY

Was this helpful? 2

Re: Mina (# 317)

P yeah well I've been through many of those type of accidents have lots of titanium metal inside of me and dr. gross in Long Island as just left gave me a nurse practitioner and told me not going to take me off 90 mg morphine daily just yet yasso that's b******* according to me total b*******I was originally on 300 milligrams of morphine sulfate daily drop down to 90 and as we all know morphine is so not the strong as it sounds oxycodone itself is probably the strongest so you tell

REPLY

Was this helpful? 0

Re: Mina (# 317)

Yeah, well I've been through many of those type of accidents. Have lots of titanium metal inside of me and dr. gross in Long Island has just left, gave me a nurse practitioner and told me not going to take me off 90 mg morphine daily just yet. So, that's b******* according to me, total b*******t. Was originally on 300 milligrams of morphine sulfate daily, dropped down to 90, and as we all know, morphine is so not the strong as it sounds. Oxycodone itself is probably the strongest, so you tell yeah adding to this I would like to go on methadone program and that program won't even accept me. They say I'm not a drug addict - I'm in pain but before I was going to doctor in Long Island, I was going to the methadone clinic for many years, and methadone is the best pain medication that you can can actually get. No matter what anybody says methadone is the best pain medication that is available.

REPLY

Was this helpful? 2

Re: Dead (# 333)

While this is the first time I've seen anyone say anything about methadone as a pain med on this blog, I have heard that its the best many other places and have wondered why it isn't prescribed for pain control if its as good as people say especially if it is supposed to be non-addictive??? I'm going to try to remember this to talk to my doctor about. As an experiment to myself I have started writing down the time when I take my Vicodin. My Rx says I can take a pill every 4 hours or as needed. I take as needed and have found I'm not taking as many as the Rx says I could take. I already knew this since my pills last me longer that the month but I wanted to see on paper how that worked out. Last year when I nearly died (twice) all the hospital would do was give me a single pill every 4 hours. Normally, when I feel pain during the day I can get up, move around and don't have as much intense pain or a need to take the Vicodin. While I was in the hospital and wasn't allowed out of bed I was nearly begging for a pill every 4 hours and that single pill wasn't that helpful but the hospital doctor wouldn't relent. So I'm back to telling people, what you and your doctor come up with to control your pain that works is what we all need to be doing without government interference. I'm "STILL" looking for anybody to give me an example of the opioid crisis and still getting examples of drug abuse that contribute to the "drug crisis" we've had in America for decades. The "opioid crisis" is a manufactured political raison d'etre so politicians can falsely make themselves heroes in the public eye. I've yet to meet a single politician that gives a rats patootie about my pain or the relief thereof.

REPLY

Was this helpful? 3

Re: GRANDMA PAT (# 8)

It started with a pharmacy that I had been going to for years: all of a sudden, they could not fill my script?? I have about 18 or more autoimmune diseases, and they have my records. They stopped filling my legitimate Dr.'s script from B&W in JP and let me find my own way! I'm 85 yrs old disabled, and can't leave my home without assistance, and they still treated me like an addict, even though I never asked my Dr. to add to my script or to change it in 2 1/2 years. I did tell them that the stress they were putting me through was adding to my pain. It was a trigger! Did they care? No!

REPLY

Was this helpful? 4

Re: BiggerBrat (# 335)

I have all ways believe d that. Why would they care. They don't, it's always about what they have to gain from whatever. What a load of bull. Don't know what they are thinking. But that doesn't matter either. It's still about them, we have nothing to do with the way they think. They don't work for us or with us. It's all about them. I hope this all comes back to to bite them at some point. I think it will or maybe it won't. It makes me sick

REPLY

Was this helpful? 0

Re: Dead (# 334)

Glad that it helped you, but methadone to me was a joke for pain relief..it was like taking sugar pills or something.

REPLY

Was this helpful? 1

Re: marin5 (# 336)

My Mother is 84 yrs old, fell and broke her shoulder. they gave her tylenol at the hospital for pain. God help us.

REPLY

Was this helpful? 4

Re: Kelly (# 14)

I'm happy for you. I could have said the same thing a few months ago. What will you do when your MD retires or ends being your MD for a multitude of reasons? You may believe you are sitting pretty at the moment. Most of us did too. The point of this conversation is we are suffering at the hands of ignorance and fear. It's when the only medication that works for your pain is stopped when you will be with the people here not extolling the virtue of their doctor - patient relationship, but crying out for help. Just as it is a mistake to believe it won't happen to you, those that will be faced with pain in the future and sitting idly telling grandma she takes too many pills, pain is waiting. People going for routine surgery need to expect to have much more pain than in the past. Our chronic pain can be so severe it is impossible to communicate to others it's significance. Most are ill and weak and our rights are being stomped on because we can't fight back. Anyone that can fight should be fighting. If not for yourself, then for others. It's the humane thing to do.

REPLY

Was this helpful? 3

Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON...

68 REPLIES

Has anyone else been prescribed Belbuca? I'm unable to have any other opiates prescribed to me and now I'm on th...

4 REPLIES

Here it is, your sincere effort to help us all get back our right to having our pain medications now!! sign this petitio...

248 REPLIES

can you help me find a doctor in bucks county p.a who gives methadone chronic pain ## is their any doctors in bucks coun...

2 REPLIES

I had signed an old petition "Stop the DEA from interfering with chronic pain patients and their medical professiona...

29 REPLIES

My dr said they were limiting prescribing oxys to just cancer patients, took me off oxy 30s and now im on 4mg hydromorph...

48 REPLIES

I WANT TO KNOW HOW CAN A PAIN CLINIC WHERE I AND OTHERS HAD CONTRACTS JUST DROP US AS PATIENTS OVER NIGHT WITH A 30 DAY ...

6 REPLIES

I am a widow , & I moved to mid-America& I left a daughter behind. My youngest goes to MSU. I am an Author. I wa...

2 REPLIES

Hi, I just started a petition on Care2: Demand that chronic pain sufferers get their medications now!!. I'm hoping t...

16 REPLIES

Thanks to all you drug abusers there has been an ongoing war on us legit chronic pain patients. Thanks to all who abuse ...

118 REPLIES