Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 16)

Updated

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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301

Re: C (# 298) Expand Referenced Message

You're very determined & very fortunate to have any opioid medication at all. It's a terrible situation.

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302

Re: Sue (# 300) Expand Referenced Message

Hello Sue, you can find out about Kratom from Google. It's sold in "Tobacco" shops and online.. Hope this helps.

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303

Re: BiggerBrat (# 290) Expand Referenced Message

I saw my PCP and she put me back on my previous Norco dose. She was very understanding and said that she believes that since it has been workinfmg for me that there was no reason to take anything else. Gotta day, it is a relief to have them back! All the talks with several doctors who believed I suffered with hyper Algeria and that was the only reason I gave so much pain. But none of them could explain why I still had severe pain and worsening after being without it for a month.

Opioids work for the patients with chronic pain, and I hope all providers soon realize this.

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304

Re: BiggerBrat (# 255) Expand Referenced Message

There is not a crises when it comes to hard drugs cause they have done everything they could to stop it but it's still going strong. They would rather turn their heads and bully the doctors. Easier than rolling up on the boys. It's a power struggle to see how much money they can bring in. Just think, crime will go up..people will start to self medicate. ..so pretty much everybody will get a piece of the pie. Jails, rehabs, hospitals. .it keeps going and going. Seen this before but not to those extremes. .remember ludes?

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305

Re: chris (# 304) Expand Referenced Message

Exactly. I've been saying for a long time its all about money and politics, government grants by the billions. The numbers are blown all out of proportion and people don't want to take responsibility for their own "drug abuse" problems. It was incredibly easy to fabricate an "opioid crisis", and then have politicians dislocate their shoulders patting themselves on the back coming up with the "throw money at it solutions". I still ask people to give me just one single case of "opioid crisis". Lost count of people giving me examples of drug abuse but not a single example of "opioid crisis". I hate it when the newspapers come out with headlines saying another victim of the "opioid crisis" and then when I read the article it is all to clear drug abuse has occured. You could substitute any of hundreds of names for the drug cited in the news but you don't see the politicians making that distinction. For them, solving the "opioid crisis" amounts to votes and getting re-elected.

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306

Re: C (# 298) Expand Referenced Message

You mentioned in your post you were "lucky just mailed for a 90 day supply." where did you send the scripts to? mail order may be the way to go, I've not been lucky in finding any place to do so. And, what about trust? saying it was lost in the mail? argh!

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307

Re: Tom (# 288) Expand Referenced Message

Tom, this is NOT in reference to your post-I just wanted to throw this in here and yours was convenient...

This is a copy of an article from empr.com:

"These products may only be prescribed by DATA-certified clinicians. The first generic versions of Suboxone (buprenorphine and naloxone sublingual film) have been approved by the Food and Drug Administration (FDA) for the treatment of opioid dependence as part of a complete treatment plan that includes counseling and psychosocial support.

The treatment combines buprenorphine, a partial-opioid agonist, with naloxone, an opioid antagonist. The approval is part of the FDA's ongoing effort to reduce the opioid epidemic. In a press statement, FDA Commissioner Scott Gottlieb, MD said, The FDA is taking new steps to advance the development of improved treatments for opioid use disorder, and to make sure these medicines are accessible to the patients who need them. That includes promoting the development of better drugs, and also facilitating market entry of generic versions of approved drugs to help ensure broader access."

Personally, I find this infuriating. Nothing is ever mentioned about the chronic pain patient. EVER. What epidemic? Show me the numbers. Compare them to drunk drivers, babies born with alcohol related problems, etc., and it's legal. What an uphill battle. Surely we outnumber the addicts. If we banded together, came across as one voice, they'd have to hear us. (if you divide you conquer.) We are isolated in our pain, it doesn't have to be this way.

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308

Interesting article seems reasonable. Lets hope it takes on in medical and political venues...

Source: "Forced Opioid Tapering and Patient Safety". nationalpainreport.com. Web. October 10, 2018.

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309

Check out this website [druglibrary.org], you'll not be disappointed. Don't Doctors take the same oath?

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310

Re: BL (# 7) Expand Referenced Message

Chronic pain does kill. Look at all the suicides.

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311

Re: Mare (# 291) Expand Referenced Message

Don’t bother calling about weather or not they have opioids in stock I have tried that on several different times and locations and they are afraid to say one way or the other fearing of being robbed.Best of luck to you.

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312

Re: madashell (# 306) Expand Referenced Message

At work at the Time we were useing Express scripts .. they were good... Now we use cvscare but I go to the local savmore .. met with the owner and told him my delemia...

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313

Re: RIpainlobby (# 1) Expand Referenced Message

PM Dr's say it's DEA guidelines, isn't a guideline just that and negotiable? The doctor stated it was ILLEGAL to take opiates AND anxiety medication...

Source: "DEA Inflicts Harm on Chronic Pain Patients". lynnwebstermd.com. Web. April 6th, 2015

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314

Re: Anonymous (# 310) Expand Referenced Message

Chronic pain also causes severe sleep deprivation which if not controlled can also cause death. The sleep deprivation is what finally convinced my GP he had better provide me with a method to control the pain. Its a matter of deciding which is worse, a quality of life while taking a pain killer or collapsing and dying from sleep deprivation??

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315

I'm starting to think that our next step for pain relief will be taking a tongue depressor and biting down with the pain.

In fact get a tongue depressor, put bite marks THEN send it to your Senator. Maybe if there is enough in their office to start a fire under their BUTTS they will begin to understand that people are suffering in their senate district! Get all your friends to help!

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316

Hi, I agree with you on this. We are being put in a situation for Chronic Pain Warriors. That we should not have to defend ourselves because we take pain medication to ease our suffering. We are not addicts, we did not ask for the pain we endure. The addicts are the ones are over dosing to get high. They have not been describe a pain med through a Doctor. If they have they are not following dosage. Are also probably seeing many Doctors to get high and overdose. I have not talked to one Chronic Pain patient that abuses they meds. I believe if they take away pain meds from people with Chronic Pain many, many more people will take their own life. Instead of dealing with pain that brings us to our knees. Let the politicians go through the pain we do. Then lets see if a Advil helps them. Walk a mile in Chronic Pain shoes and see how we feel. You know that nice walk on the beach that you enjoy. Well guess what, you won't be able to do that. Stay with politics, and leave all who suffer alone. Leave us be, because we are Chronic Pain Warriors. Because know one else could do this. Like I said, we did not ask for the pain we have.

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317

Re: TG (# 4) Expand Referenced Message

Can’t I just say AMEN. I thought I was the only person who felt this way. I am 56 years old. A few years ago I was hit head-on by a drunk driver. The vehicle I was driving was a standard which meant I had a clutch. When he struck me we each were doing about 45-50 mph. With the force of the impact I straighten my legs and pressed on the brake panel with my right foot and the clutch pedal on my left. The rods that hold the paddles in place from the engine went through the paddles through my shoes through the bottoms of my feet and “Shish kebabed“ (skewered) my legs up to my knees. Besides that I broke my collarbone, my right arm, and my left thigh and after having eight surgeries and one flat and six and the other I have no Achilles’ heel and screws holding me together and trying to heal I got osteomyelitis which is an infection in your bones. As you can imagine they told me I would never walk again and to lotta pain and physical rehab I do walk today. My doctor is OK with my pain medication I've been on for years. I don’t see why the world is not. I feel like I’m not a crackhead, I’m not out on the corner selling my medication. Every day when I think of that I am so glad to see that there are others like me that want to stand up for our rights.

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318

Re: CJMoore in CT (# 315) Expand Referenced Message

Hello.... That sounds like a good idea. But they would probably raise the price on any type of tongue depressors because they'll think they're losing money on them and raise the prices. And then we couldn't even afford to buy those. LOL, Just a little humor to brighten up the day. I don't know what we're all going to do but we have to do something. But where do we even start as pain patients? And when is this nightmare going to end?

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319

Forget all that s***. These Dr's think they are God, they love wielding their super powers to Pain Clinic patients the most. They have the power to what drug, what size, dose etc... My sisters and my brother have been doing Chemist DDA cabinets since 1969! Before that we were getting all you could imagine from the countless air bases all over the world. The ???? Chinese have the best labs next to ours on the planet. I now live in Stockholm Sweden. My Chemist is an eccentric billionaire in Mozart område.

{edited for relevance}

So you see Miss, where there's a will there's a way. Unfortunately people must get hurt but it's time to change the pain meds law. Otherwise fly to Vietnam. Very very pure meds. Post to someone in the Canaries then repack onto you. As long as its under 99 grams total you will have it. I know some guy in the US and UK who gets three or four letters every week. Has done this now for over 8 yrs.

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320

Re: Jaffa (# 319) Expand Referenced Message

I don’t understand a word that you were saying what is the chemist DDA? Who’s flying to Vietnaam ? Who has the chemistry as a friend ? I don’t know what you’re taking that your whole post sounded crazy

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