Chronic Pain Patients Must Get Organized To Lobby For Their Rights.

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Liberty Says:


People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.


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1
RIpainlobby Says:

I would love to see that happen. It is disgusting the way that we are treated and talked down to like a scolded 6 yr old. Im picking up my RX, not selling crack to babies!

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Linda Says:

I have chronic head pain and have been given Vicodin and pain patch for pain management - my doctor retired and I live in Springfield MO (the bible belt) and am treated like a scumming drug addict trying to find a doctor that will help me has become next to impossible - "a controlled substance" after all.

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3
Bev Says:

I agree have constant, chronic nerve pain and back muscle spasms from taking place of the muscles holding up the paralyzed arm, been 35 years - they want me to get the ephederal (sp?) shots-which I've never gotten help from-it's not inflamation.-I had a great pain doctor /neurologist but after my divorce could drive the 20 miles to see him--excruciating pain-crying all the way home, These new doctors are so afraid too give you what works-or maybe just want what puts more money in their pockets. Somedays I just sit here alone and cry. Movement makes it act over the limit-have no life any more-have thought of suicide-no pain after that but don't think I could do that. May try to see if that neurologist is still there & find a ride. I am not an addict-just want less pain and a better like!

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4
TG Says:

I just signed the petition "Barack Obama: Stop the DEA from interfering with chronic pain patients and their medical professionals." and wanted to see if you could help by adding your name. Our goal is to reach 100 signatures and we need more support. You can read more and sign the petition here:

change.org/p/barack-obama-stop-the-dea-from-interfering-with-chronic-pain-patients-and-their-medical-professionals?recruiter=226947221

Thanks!


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5
Sissy Says:

Amen. I have Parkinsons and have been prescribed Vicodin to take in conjunction with Advil for pain associated with the disease. When husband switched jobs and we now have Kaiser where no one will prescribe medication...only PT which I've had for years. My life can be likened to quickly becoming the tinman...immobile with a tear stained face. I friend wants to take me to a doctor in the Bahamas or Mexico, but I'm a very scared. Is it eve

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6
Mermaid Says:
via mobile

Amen!!! I agree with you 100%! Anything Government controls is " Out of Control". They can't manage a once a year transaction ( tax returns ) without a Complete Disaster at who's cost..!? Ours !!! Yes we must fight for our rights! Where do we begin! I know it seems like there's no way " I " or " you " could possibly solve this.. I do know this POWER IN NUMBERS!!

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7
BL Says:

This battle won't be won because chronic pain does not kill and drug addiction does. The cause of death on a death certificate for someone who has chronic painhas never nor will ever be chronic pain, because it does not kill. The argument holds no weight. The politicians view is that it is better for those with chronic pain to suffer than for those who are drug addicts to die.

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8
GRANDMA PAT Says:

I AGREE, BUT WHAT DO WE DO? I HAVE BEEN TRYING AND MOST OF US ARE SO ILL WE DONT HAVE THE ABILITY TO DO MUCH. I THINK WE ALL NEED SOME GOOD ATTORNEYS TO START LITIGATION AGAINST THOSE WHO REFUSE TO TREAT US. OR HAVE MIS TREATED US AND GO TO OUR REPS AND SEND MESSAGES LIKE THIS IS ONE, IS SOMETHING WE CAN ALL DO. IF I DIE IN THE NEXT FEW WEEKS IT WILL BE THEIR FAULT NOT MINE. IT IS MALPRACTICE.

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9
Cate Says:
via mobile

Chronic pain does kill.The cause of death on most death certificates will read heat failure complicated by respiratory failure if a secondary cause is given.If you are under a doctors care @the time of death I guessing heart failure. How ever if you have opiates in your system it may read complicated by opiates.sick but true .

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10
Stacey Says:

We need a civil rights attorney that has the kahunas to take this on! We re being discriminated against ,made to sign pain contracts under duress, submitted to illegal search and seizure and treated like criminals. I have chronic pancreatitis due to gallstones and it is horribly painful. I have lost respect for doctors who are not standing up for the patients. We have opiate receptors in our bodies for a reason and they have skewed the numbers to make it look as if there is an epidemic when there is none. Statistics from the CDC in 2014 was 14,000 over dose deaths (and that was not all from opiates) 14,000 from a population of 317 million in 2014 does not make an epidemic, there is more behind this than over doses! We need to remind these politicians who forgot WHO they work for that we 100 million strong pain patients do in fact VOTE!

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11
Willette Says:
via mobile

I agree 100%. If you have never lived whit Chronic pain how can you call it abuse? Visit some of yhe camcer patients & other people that are truely in pain 24 hours aday. Until you have lived it...don't judge people who are truly in pain Please!!

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12
Goatc Says:
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BL (# 7) --

Where i live it has not saved lives. The people that are cut off their pain meds are either going to the streets or killing themselves.

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13
Red Says:
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Goatc (# 12) --

Tragic!!!!! Nobody know like we that are in pain every single second of the day.
I just prayed before getting out of bed,Please give me the strength to get thru another painful day. I refuse too just give up. I didn't fight so hard too get this fat too let some inconsiderate Dr take it away! Have a blessed!!!!!

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14
Kelly Says:

Goatc (# 12) --

Living with pain 24/7 is not by choice. I have a very good Pain Management Doctor that I trust to do the best for me. I have had to go through multiple changes in medications over the years due to reactions to the med, the med becoming no longer effective, or side effects. It's not easy trying to keep control of my pain but I trust my Doctor to do what is best for me and he has. I must say he does control what I take and how I take them. He does not easily give out pain medications even though I have been with him for years. I am currently on hydrocodone and hysingla and they are working for me, keep my pain at a tolerable level most days.
My Doctor and I have a working relationship that is best for my health. He is a Doctor with years of training and practice. We do not need a politician, pharmacist, or dug store chain telling us what is best. Yes there are those that abuse the system, and Doctors that dole out prescriptions with out need but there are those of us that live by the rules.
I frequently receive advice from family and friends on how bad pain medications are for me and that there are alternatives. They don't know that I research alternatives and talk to my Doctors about reducing my use of pain killers but come back to what my Doctor prescribes for me, he knows best.

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15
Kristyne Says:

Thank you for a wonderful post, that touched my situation.
I appreciate you.

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Kelly Says:
via mobile

Kristyne (# 15) --

Kristine, I hope you have a Doctor as good as mine. Finding a Pain Management Doctor that has compassion and respect for their patient is hard to do in many cases. I have only had two over the last fifteen years and my first scared me with the ease he dispensed pain medication. I had to control how much I took. Looking back now it scares me even more. Having been on pain medications for so long I have fought addiction and to date still maintain a fine line between addiction and pain control. It can de done with the help of a good Pain Management Doctor.
The pharmacy we choose or the politicians we elect can’t and shouldn’t get into the mix. It is a delicate balance between a well trained Physician and the patient.

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17
PAM Says:

TG (# 4) --

I just tried to sign it and it is closed!!! Another one needs to be started! I do not know how to do that, maybe you can! I am all for it and I will be the first one to sigh it!!! Pam from Ohio.

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Red Says:
via mobile

Kelly (# 16) --

I agree with you 100%!,should be between you & your Dr,if their is truly compasion&trying too control the patients pain. It is pretty hard too find a "Good" Dr that is willing too work & try too help you control your pain without over dousing.

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19
Why Says:
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PAM (# 17) --

Hi, I'm also from Ohio. I guess I'm lucky I have a pretty good doctor. But the doctor I had before that, it was just unreal. I have been done so wrong as many women have been. So many women were raped and molested by this dr. And now we're going to have trouble getting our medications. Just unreal. #Sad


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20
Ed Says:

I live in Las Cruces, NM and there have been doctors that over prescribed in the past and now it is next to impossible to get the pain medicine needed for chronic pain. One doctor got convicted and others have just left. I have gone through just about all pain doctors in tis city and got no where. I now drive to El Paso,TX t get what I need plus the attitude of this doctor is so much better. This is just another example of what someone has to do to get comfortable enough to be able to do things. From what most others are saying about their problems I guess I can say I am lucky to find someone. Good luck to everyone.

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