Ampyra Caused An Ms Exacerbation
UpdatedHi everyone. I was hopeful that Ampyra would help my walking, which has been challenged these past months (though I have had MS for 15 years). I took Ampyra as directed for 5 1/2 weeks and then my right side of my face palsied (or as my neuro. called it a "hemi-facial spasm"). I also suffered from double vision and no improvment w/ walking (if it was not worse?) I stopped taking Ampyra when all this happened, and thankfully the exaserbation passed in half the time it usually takes (3 weeks). I did report this to the FDA (I'll post where after I put this post up b/c I have to look in my email.) Anyway, I wish you all luck w/ Ampyra, just wanted you to be aware of my experiences.
3 Replies
The follow-up email to make a voluntary report to the FDA is: [email protected]
best to you!
It was very smart of you to share your experience with the FDA, they cannot keep track of such issues, if no one reports them and thanks for sharing the address for others.
https://rxchat.com/wiki/Ampyra/
So far, this medication appears to average about 50-50, some people have found it to work very well and others haven't, there doesn't seem to be any middle ground.
What has your doctor advised as your next step?
Hi Verwon,
My doctor is advising me to go on Gilenya, a disease modifying drug. But it is very expoensive, and I already take LDN (Low Dose Naltraxone) for this purpose, which I believe is working, as I have been taking it since 1/1/11 and until the Ampyra exacerbation, and since, I have had no new flair-ups! Do you take Ampyra? What is your experience with it? Take good care.
More Discussions:
Doctor puts me on cortisone antibiotics & med Neb treatments. This last flair was bad. Cortisone didn't work. He...
4 REPLIESAfter taking Solco Healthcare Losartan for many years, with no problems, I switched to another less expensive brand, Aur...
2 REPLIESwas able to walk unassisted early in the day but had to use a walker later in the day. Neuro prescribed Ampyra, but when...
6 REPLIESI had previously worked as a police officer for just short of 3 decades, and the last 15 years of that was as an underco...
4 REPLIESMy neuro is putting me on ampyra, and I am excited about this. My biggest MS problem is lack of balance. Anyone seen a d...
21 REPLIESHello, I am a 50 yr old male diagnosed with a 225 T level and was prescribed Androgel pump 1.62% in January 2014.I start...
5 REPLIESI was taking Losar H due to high bp (190/82). I started getting angiodema since it is an ACE inhibitor. Now I am taking ...
1 REPLYhave ptb and im on the 5moths of medication but since i start myrin i stop my pill which is diane35 then my period becom...
I am a pain killer addict. I was addicted to Lortabs for about 7-8 years. I began seeing a new doctor & was prescrib...
2 REPLIESI've been taking Naprelan for back pain and notice a side effect (swelling feet) after 4 days taking this medicine. ...