Stopping Lisinopril (Page 5)
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I have been taking 10 mg/day of Lisinopril for 3 months and have developed a tightening in the chest and flu like symptoms. Within the past 3 weeks I have felt progressively worse and would like to stop. Is it ok to just quit or must I wean myself off?

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47

Thank you so much for sharing your experiences. Your insights did help me. I just want to give you a hug for all you have been through. I think you are amazing!

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46

I've cut my 10mg to 5 mg, but blood pressure is still borderline. I take vitamins C,D, coQ 10 and raw garlic. I hope I can be like Michael and be off of it soon!

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45

Hi I developed the same things it just took longer for me because I was on a low dose. I stopped taking it when I started to sweat for some reason (cold sweats). So after doing lots a research on the net I decided to just stop taking it. In two days I felt a thousand percent better. I don't know about anyone else but I still have some side effects from it even though I feel good. They have been going away little by little, mainly what I have left is the cough. But at least it doesn't hurt anymore! I never did find an answer to your question and it was the same as mine was. So I quit like i said.
I do take extra vitamin C and a Zinc pill as I did find out Lisinopril robs your body of Zinc. I hope I helped, good luck.

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44

I want to say thanks to all of you who took the time to post their reactions, or rather withdrawal symptoms from the blood pressure medication LISINOPRIL. I myself unfortunately have numerous other health problems, complications from drugs and many surgeries (all the surgeries were necessary) over many years of my life. Needless to say I hate all of the prescriptions I am on, have been for years and I am stuck with most for life. I keep reminding myself that things could always be worse. I pretty much 99 per cent am in constant pain every day of my life, so when I have wound up really sick with severe things Expecially the last six years it doesn't phase me Because that's how I feel all the time. But I looked up two drugs, one being the BP meds and their I read you comments about those side effects. The last two years or so my GP asked why none of my doctors, who are all specialists, ever put me on BP meds because it was always normal years before then the last two years and mine was always coming up like 184/114 and around that range. He said,"Adrienne, you mean to tell me not one of your doctors ever mentioned trying a BP medicine before? He told me I had to start and get it down because I was a few points lastly away from a stroke! He put me on three the past eight months and here come more unpleasant symptoms. I am carrying myself with water retention really bad. I am currently 209!!!! After having four beautiful boys at me heaviest I was 155. In these months no one could explain this water retention. So I gained this weight. A one week ago I stopped taking the LISINOPRIL and my vision has been very, very bad. I too have severe calf pain and leg pain, my excruciating migraines came back, dizziness was always another bad reaction I developed ( imagine the eye doctor asking me to read the eye chart they have and to continue until things were blurry looking and all I could see well enough to read was the first letter on top. The big "E" and that is it. I really have so many things wrong so to me instead of some bad days, it didn't phase me at all, the symptoms I wrote about because I already have them anyway, minus any dizziness. I just get myself through as much as I can one day at a time. This past September was worse than most of last year because the dizziness got much worse. I must have gotten so dizzy when I want to my kitchen sink to wash a glass, but this one time I actually blacked for about all of a few second because the drop from he sink to my floor is only three feet at most? When I hit the kitchen floor my body weight must have fallen on my right foot and I guess the horrible pain woke me up but my right foot hurt like hell. I didn't stop cursing for a few minutes because it's nothing new, but this time it was my foot that hurt me not a twisted ankle like I've had so many times, but you know within a few hours it goes away. I tried to get up, my youngest son Anthony helped get me up but it hurt like hell this time. So I hoped around from noon until about ten at night, took my son and a bunch of friends to the movies etc. long story short I still went through my whole day and the pain was getting worse. To the point that I not only couldn't step on it, was hoping around all day and night with my BFF who was with me. Long story but Zi finally asked her to go get herself and the kids some dinner I'm just going to stop at the ER and I told them I don't need a wheelchair, I could hop and when the ER Doctor looked at it he said something was definitely wrong because it was painful and so swollen I couldn't even fit a flip flop on my foot. I explained what happened send said it was just twisted or sprained and I had very busy plans so I figured I would get crutches to get around on the weekend. And he said just to be sure was it ok if someone took a quick X-ray so he could see how it was. He comes in a nicely sys, "well the good news is you didn't sprain it" and I was like good then it will just go away. He said but you do have three broken toes and fractured four of the bones in my foot". I said no when he wanted to admit me, but it would be five days before I came back to get admitted because I had to have surgery! Seriously??? Add it to the list. He wrapped the whole foot and lower leg sending me home with pain medicine and crutches and said, "ok" then I will see you next Tuesday back to the hospital so we can do surgery". Ok. Admitted on Tuesday, orthopedic doctor did surgery on Thursday. I have a big plate now on the top of my foot, along with pins and screws holding my foot in place. Got out about another five days later. To go home with yet another thing to my Add It to the list, list. Today, February 20th I still have a lot of pain and it still hurts. I also had to still use the crutches along with one of those big black boots for months and I couldn't drive for those first four months either. Just another problem, no big deal but a huge inconvenience for me. I used to set off those airport alarms just because of the surgical metal clips in my abdomen, now with all the permanent metal in my foot added, well you can guess. The permanent damage in my foot was another setback but my life can't be put on hold because of it. Another side effect caused my a BP medicine. It helped me realize or confirm that those symptoms I have been having for months, were worse and some were new. Especially the weight gain and my eyes got so much worse. Neither of which I had before the LISINOPRIL. It did way more harm than good, by a long shot. My mother always says I should write a book. And I believe in God, but my faith got weaker over the past few years. I feel I have finally had enough. I have to believe with all these serious things I have wrong, and all that has happened to me and still does that God wants me here for more than just my kids, but all I can explain is that he feels I'm strong enough to still be here AND that in some ways he wants me to be here because If I lived through so much, it was so somehow, someway I can help people through a lot, in many ways just to share my story to even help a few or one by sharing my whole history, I may be able to pass along information here and there that I could keep them from going through anything I did and not have them suffer the ways that I do, then that's what I do. I should be a doctor already because I teach them things they never even knew until I became their patient. And save them from going through a ton of crappy doctors by referring them to these wonderful specialists that I ended up with now, only after years of going through four to seven or eight of them before having the ones I do now. They are the only reason I am here today. And maybe that was the reason God wanted me her still. Was to just pass along my knowledge of so much, I can prevent them from being frustrated by referring them strait to mine. That alone makes a difference in their lives. My doctors always feel bad for me and all I go through because they care very much, but I said," well if I have to endure all I have now, and all I did in the past and it helps just one person NOT go through all that I have then it's OK." God Bless all of you. And thanks again for sharing your comments. I knew that this BP medication was making me feel worse, and I know a lot about my own body to know what's wrong with me way before my doctors do, then that is why I may even start a blog because I know I can share a lot and in the process help these people so they don't suffer like I do. I can't think of any other reason that I am still alive, so for now I help anyone when I can and still live one day at a time.

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43

Hi, I ended up with the same symptoms that you have and more (of course I took it longer). As soon as i quit taking it within two days I felt a 1000% better no joke. There are other blood pressure pills without pril on the end ask you doctor for one of those. I still have the side effects, but they are mild. So it takes time to get over those. Good Luck and i hope you feel better.

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42

I've been on lisinopril for 3 years and now I developed hives everyday and swelling of my lips. Welts all over. I recently nearly lost my life because my tongue and throat swell up and blocked my airways. I spent a night in icu. Lisinipril is a death pill.

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41

Oh yeah they told me all sorts of stuff also, nothing worked I stopped taking lisinopril and felt a thousand percent better. I do take low dose aspirin, it won't hurt you any. And with all the crap they put you through at a doctors office they wonder why your blood pressure is high, it's called STRESS.

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40

Thanks Michael. I have decided to taper off and try to get BP under control with diet and herbs. I'm tired of feeling tired and achy, and hope once off this, I will gain my health. Hope you're doing well too. Jo

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39

I am taking myself off as we speak. I began having temporary vision loss in one about 2 months after taking it. I am a 41 year old female who has never had HBP issues and after seeing a doctor for the very first visit ever for my annual check up, she prescribed me lisinopril that same day. I had a 176/108 and due to her concern, I filled the rx and started it that day without really thinking about anything- just trusting the doctor. After many expensive tests - a carotid doppler ultrasound, CT scan, EKG, EEG, MRA and an MRI w and w/out contrast- all coming back normal, I was stumped. I was ready to say good bye to the world thinking I may have a stroke, or like my grandfather suffer from a burst aneurysm. I get so mad thinking back about it now, I was very depressed, having nightmares of dying. With all these tests coming back normal I decided to take matters in my own hands. I am now about 3 days from being completely off Lisinopril and my reading this am was 126/92. I will be seeing my doc ( my new doctor of 6 months, not the one who prescribed me Lisinopril) tomorrow and letting her know what I have done and go from there. I still take an aspirin a day and want to stop this too.

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38

Hi Jo, I just old stopped taking it, no more strange aches and pains. There are other blood pressure medicines out there without snake venom in them. Ask for one of those.
I'm going to use a Chinese cure HAWTHORN, do a search on the net for it and see if you like it. Believe it or not doctors get paid by some companies to push their drug, and that really is a fact! From the research I've done any blood pressure medicine with PRIL on the end of it, is made from snake venom. Brown viper venom from Brazil for this one. From what I found the sides effects can start right away or months down the road like happened to me. My newest side effect before I stopped was I would break out in a cold sweat for no reason. All that crap is gone now, I just hope my eye gets back to normal, one day vision was great I woke the next day and couldn't see. Yak at me all you want OK, and take care.

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37

Thanks Michael, my doctor doesn't want me to be off completely, but I'm going to continue halving my doses and monitoring my BP. I want off! I wonder if my joint pains, systemic inflammation and high liver enzymes are do to this?! I will up my zinc too, thanks. I'm glad you're feeling better, and I strive to be off of lisinopril and feel good as well!

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36

Hi Jo, The only side effect I have from just quitting is that I feel a thousand percent better. I still have mild side effects from being on it so long i guess. One guy posted that junk robs your body of zinc so I've been taking that. My joints have stopped hurting also. And i can see out of my right eye much better again, before I couldn't see my hand in front of my face. Yeah that crap turned me into a couch potato also, it's hard to do things when you feel terrible. If I could get enough people together and we all chip in a little, I'd hire a lawyer and sue the hell out of the people that make lisinopril. I hope you get to feeling better.

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35

I was just asked by my primary care to stop taking my 20 mg per day Lisinopril dosage cold turkey, and though concerned about my heart and stroke risk now (I am 59 and not exactly healthy), research online seems to point to her concerns about my kidneys and liver being warranted. Both my potassium and kidney levels have been running very high (and my C reactive protein), and I recently went through back pain similar to a kidney stone attack, but the CT scan showed no stones. Since I do have a cyst on one kidney already, having a drug like Lisinopril potentially causing damage is certainly of concern - but so is high blood pressure.

As for the burning mouth, I find the comments on that interesting since I too have been dealing with on and off ulcers in my mouth, my tongue "burning" and this morning, my lips, mouth and tongue hurt - first 24 hours off the drug.

I also take 50,000 units of Vitamin D (prescription) twice per week for the person who asked someone else, it's due to my malabsorption issues.

Certainly hope we all find some correct, healing and helpful answers. Definitely hope my getting off Lisinopril is the right thing to do. "Getting off of" ... feels like I am a junkie! ;)

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34

Hello, everyone we are in the same boat I see. I have been on 10mg of Lisinopril for a few years. Last summer I started having a mild cough, that has progressively gotten worse. I feel fine except for that damn cough, it even wakes me like it did last night and last for at least half an hour. They treated me for bronchitis TWICE NOW. The pills helped for a week. No symptoms at all except for that terrible cough. I need to know if it's dangerous to just stop taking it? The cough is so bad that I'm worn out all the time.
Thanks

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33

I am in the same boat as you it seems. Been on lisinopril 20mg for 11 years. Cut to 10 mg a few months ago. I am concerned about the long term use liver damage, and also wonder if the weird health issues I have could be from this long term drug.
How are you now that you've stopped taking it? Do you do anything else to help your BP? I k ow I need to exercise, been a couch potato forever. Thanks!

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32

Are you still having the burning mouth symptom? Are you by chance taking high doses of vitamin d

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31

I have been off the drug for 3 weeks now. The reason I stopped was horrible muscle spasms that are still occuring. This medicine depletes your magnesium. Starting magnesium citrate today hopefully this works

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30

If in doubt always wean off a medication. Half the dose for a week, then 1/4 it for a week, then 1/4 every other day for a week, then stop.

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29

I have been on lisinopril for about 10 years and finally realized some thing that were going on were results of the drug.I have been on 20 mg for about 5 years of that time.I went off cold turkey because I didn't know not too.I have been off for about a week .Will the effects of the drug go away or will they be life long problems and am I in danger from going off cold turkey besides bp.

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28

You are the boss of your health not your doctor.

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