Stopping Lisinopril (Page 5)

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I have been taking 10 mg/day of Lisinopril for 3 months and have developed a tightening in the chest and flu like symptoms. Within the past 3 weeks I have felt progressively worse and would like to stop. Is it ok to just quit or must I wean myself off?

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81

Of course one can google "lisinopril black box warning" and the wealth of information is more than I can digest easily, let alone use intelligently. Looking at contraindications or cautions, one can apply lab tests, or problems particular to the state of my own age, health problems, etc, etc. The only Black box warning I saw was for fetal related. Other information in the search results would be of interest to anyone, but it's still a matter of interpretation, and a good doctor is the best help one can get. On my level, all I can do is know when I get a reaction, and document it for, when and if, I am fortunate enough to find and afford competent medical help.

About the snake venom, it is most likely chemically similar to bee venom and I can attest to the effect of that, having been a bee keeper. I still recall my reaction to multiple bee stings. As the season continued each year, my tolerance to stings increased. but I can imagine snake venom can cause extreme hypotension varying from person to person. (And who knows what else)

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82

HAS ANYONE HAD BURNING MOUTH SYNDROME RELATED TO LISINOPRIL?
MY MD SAID IT COULD CAUSE IT AND I HAVE HAD IT FOR 1 AND 1/2 YEARS AND IT IS TERRIBLE. TRIED ALL OTHER BP MEDS BUT HAD SIDE EFFECTS AND UNFORTUNATELY IT IS THE ONLY ONE I CAN TAKE. BURNING TONGUE AND MOUTH IS AUFUL AND CONSTANT AND NO KNOWN
CURE. TAKING ELAVIL TO RELIEVE SOME OF THE PAIN.

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83

Sorry, that is one thing I didn't have. There has to be something that won't make you react so badly. They gave me a new one to lower my low side. I can't recommend as I just started. But I insisted on one NOT made with snake venom. So I have to see what happens if anything. I sure wish you well, PAIN SUCKS!!!!!!!

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84

My reaction to lisinopril is a paradox. I know that my reaction to lisinopril was not a case of misplaced cause, but the snake venom, either real or synthetic, leaves me up in the air, as to the medical mechanics involved. As a practicing bee keeper I knew that the venom of bees is much like other venoms mother nature bestows on her children as a defense in this turbulent world. The venom CAUSES LOW blood pressure. That is most probably the reason the originator of lisinopril chose snake venom for medication to lower blood pressure. But my reaction had the rapid rising of blood pressure as the most alarming of all the other symptoms. And so my personal paradox.
When I kept bees (over 100 colonies) it was not too unusual for folks with bad arthritis to come to me to get live bees for sting therapy. I've long been retired, and don't keep up with events in that world, but there was a doctor who kept snoopy type dogs who are prone to arthritis. She adapted the sting therapy to relieve their pain and according to her, the dogs welcomed the daily stings because it worked.
Still, some people are very allergic to a bee sting even to the possibility of death. The question is does lisinopril's snake oil account for reactions. I think yes, of course.
So much for my personal observations but When you say, "The bottom line is that Lisinopril DOES made people sick, it doesn't matter who makes it. The main ingredient is the same. And because people are different and doses are different people that react to the drug do it differently name brand or not."
I certainly agree with you.

btw: I do not subscribe to the overmedication so popular now. Looking (on line) at the dosage and types of medication doctors and nurse practitioners so casually hand out, makes me shudder.

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85

Thank you to everyone for sharing their lisinopril stories. I feel so stupid. I have taken this drug for years with no apparent side-effects. However, for the past year I have been experiencing odd, seemingly unrelated symptoms-headaches, blurred vision, tinnitus, tingling/burning lips and tongue and swelling lips and tongue. My, soon-to-be-former, doctor just recently agreed to refer me to an allergist. (Why didn't HE suspect the lisinopril?) This is after I requested blood work to see if I might have Lyme disease. (Western blot came back negative but I have yet to rule out Lyme and have a Lyme md appt in Sept.) I am so angry at myself for not even suspecting the lisinopril. As of today I have taken my last dose of this poison.

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86

I have been taking positional for around. 14 years. Know I have liver damage. What's next. I get a cough every now and then. Does anyone with liver problems have pain?

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87

Gooch, you aren't stupid. My mom has been taking it for years and it doesn't bother her. But by what you have said i would guess your tolerance to lisinopril has worn off. I took it for about 3 years before it made me real sick. As soon as I stopped taking it, I stopped being sick. They gave that junk to my dad a few months ago for a short time and he got sick right away from it. So I told my doctor no more pills with PRIL on the end of it.

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88

that is the same way I felt, getting worse and worse. I just stopped and the sickness went away in a couple of days. I did have the cough for a few months after, but it was not even close to how bad I was feeling.

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89

I stopped taking lisinopril 3 days ago. I didn't wean my self off. I stopped because I couldn't take the shortness of breath and tiredness..and the cough from the pits of hell. Should I continue to take my prescribed water pill?

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90

I don't think the water pill and lisinopril are related but I'm no doctor. Do some research on your own and if you aren't sure why you take the water pill ask your doctor OK.

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91

What kind of tiredness? Ever since I started taking it I ain't tired but like exhausted or drained.

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92

YES!!!! Been dealing with burning mouth syndrome for past 1 1/2 year... Dr gave me Constanzi Solution which is a special compounded medicine given to cancer patients (although I was told I don't have cancer) and it works great at first, but always returns. Now to hear of a tie-in with lisinopril doesn't surprise me at all!!! I am getting off of it immediately. Also have developed diabetes at this late age (almost 70) and have read how lisinopril can adversely affect blood sugar in addition to damaging liver & kidneys. Sad what the greedy drug industry puts out there to unsuspecting people.

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93

To SickofDrugPushingDrs, please be very cautious when taking whatever the next drug is. After lisinopril, I was prescribed losartan with the assurance that, since it is a different class of med, I probably wouldn't react. Reaction was swollen tongue and throat landing me in the ER. Next came chlonidine-totally different I was told. Greatly swollen upper lip and right leg. I was referred to a nephrologist who wondered why no doctor had ever even tried a diuretic and prescribed one. (It's been two weeks and I am praying it works.)

Good luck to you. I can sympathize with the burning tongue issue. Have you tried keeping grapes in the freezer and putting a few in your mouth? Or is that possible with your diabetes?

Oh, and don't let anyone tell you that you're imagining it. (If you can't "document" it, it might not really be happening and could actually be anxiety. That's what I was told by a doctor.) Let someone have burning tongue for awhile and see how anxious, frustrated, and depressed they might be. Hang in there. You're not alone.

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94

When I finally got off lisinopril, I stopped having bad reactions but still had three of them then that weren't severe. It took a while to get the stuff out of my system.
Next, I went to clonidine patch system that really did work for Blood pressure. My side effects for that were what everyone else called insomnia but what it amounted to was that it rescheduled my body's normal timing so that I was wide awake in bed, but actually fell asleep sometimes during the day. That continues to this day, but melatonin seems to help get me back to normal sleep cycles. (I wouldn't recommend clonidine to anyone, but in my case, it's the only thing that worked.)

Your swelling from clonidine is something new to me. For clonidine BE SURE you check out contraindications for anything else you take now or will take. There are apps online that will do that for you. Listen to your doctor, but DON'T accept his word as gospel.

A previous reply here said "You're not alone." Believe me he's right about that. Also, anxiety is a legitimate diagnosis, but some doctors use it much too often when it is not the case. Dump them.

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95

Hawthorne is a natural ace inhibitor an it strengthens the heart muscle. Skullcap is great for anxiety an supplying the heart with nutrients that are depleted by other blood pressure medicine. Always check with your doctor if you add herbs to your diet.

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96

Please share what "natural remedies" worked for him. Although all of our bodies are unique in our reactions (an idea that seems foreign to some medical doctors) many of us have been on a medication roller coaster for years and are willing to try other options. Thank you.

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97

Years ago I was prescribed Lisinipril/HCTZ. As an Asthmatic they forgot to take into account the use of inhalers (ALBUTEROL) which can raise BP.

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98

Lisinopril removes water from the body like a diuretic. That may be why people think this drug is similar to Lasix.

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99

Albuterol can also raise blood sugar levels. It's best to check with your doctor.

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100

Yessss! Today, Im finally off of BOTG HI BP meds, the last of which is Lisnopril. And my general practice doctor smile, and next we will be getting you off of the other generic drugs! Big pharma, bite my big one.

Starting eating lots of FRESH veggies, sauteing them, and a fresh veggie salad for BREAKFAST. Lots of natural probiotics in the veggies I choose.

Als go to the gym, sev times a weeks

And the arthritis in my knees has LESSENED!

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