Prolia Side Effects (Page 92)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Kitty, re calling an investigative reporter, I did send an email to one but never heard back! I'm now going to try another one. I think the problem here in Canada is that we're all too polite and afraid of rocking the boat! If I could even just speak to one reporter about my problems , one with a sympathetic ear, maybe they would listen and take some action!

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Poodle, re the tooth decay under your crowns, I too had exactly the same problem . I have a crown on an upper front tooth that was infected. Fortunately with antibiotics , removing the crown and drilling away any decay he was able to save it. However I did have to get a new crown.
Today I was back to see a specialist in oral medicine re dry mouth and oral lesions(she once had been an assoc professor , dentistry , u of Florida) . She has put me on a different anti- viral to see if it helps as well as a thin mouth tray and mouth paste(MI Paste) which I'm to use at night. It's supposed to help dry mouth which of course was a big factor in tooth decay. For the first time I've actually had a medical person tell me that she has had quite a few patients who have been on Prolia deal with the same problems we are all dealing with. She even suggested I stop using it! As if I hadn't already!! She also suggested that I ask the pharmacist to check further side effects from the drug company as the print- outs we receive don't cover everything! Finally I feel validated! Now if only all these side effects would dissipate !! It's now been 8 months since my last shot. How much longer will this poison stay in my body?

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I had one and only one Prolia shot. Never again. I suffered jaw bone pain and loss, verified by my dentist and a terrible skin disease called Folliculitis Decalvans. Within days, I started to get itchy bumps that were pustule like and many left bald spots. I went to 4 different Dermatologists before I was able to have this identified and am still being treated for it despite the fact that my Prolia shot was Feb 2016. This disease was also verified by my dr to be from this shot. I truly would rather suffer from my Osteoporosis than go through any more of Prolia's side effects. Stay clear, my friends, stay clear.

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Judy, I am years past it and still dealing with some side effects. I'm quite sure my back has broken in about 3 places as when the Dr. looked at the X-ray he just said "it's a mess". When I go to bed at night it is extremely painful and I am on pretty strong pain meds waiting for my total knee replacement. My brother bought me a 4 inch foam topper for my bed for Christmas but even it does not stop the pain. Last night the cramps started again so I took Magnesium and a large handful of salt. Then I could sleep peacefully. My hair is still a mess and I don't believe my Dr.'s statement about old age because I'm not that old yet. I sit around picking it off of my clothes, afghans, coats or anything near me. When I wash it, it clogs the drain so the water cannot go out. so I take out a handful. I don't know when we really do return to 100% normal. I had never had cramps before Prolia and my hair was thick and beautiful. I also had healthy teeth. Pood

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I really do not understand how it attacks teeth at the gum line. I was totally shocked as I wrote in a previous post, but I don't remember any teeth going bad from the gum line on it. I think that one is only found here among us. I still think you should call attorneys in your area since you have 7 implants and that's very expensive. Even if you get 50% of the money it's going to cost you back that would be a huge help. The lawyers take a 60/40 split and you get the 60. I'm sure you can find someone to help you go against Amgen for this KNOWN side effect. Hugs~

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Judy! I hope you find someone to listen! That's what I always wanted also, but no one, not my family (other than my husband), not the doctor who prescribed the killer drug for my dad, no one at the infusion center or hospital where the drug was administered! No one....They all just got mad including my brother who's wife is the office manager where my dad's doctor is. My dad died 8 months after the shot. You can look back at my posts if you want. October 2014ish.... Best of Luck to you. I'm still angry to this day.

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C Louise, today the oral specialist I saw did listen and validated what I was dealing with. I also spoke to the pharmacist today telling him all I was dealing with. He checked in his own drug info and also validated all my side effects! Fortunately I do have friends as well as family who are furious with the doctor who prescribed it and then when I told her my side effects , said it was all caused by anxiety ! My daughter is so angry that she wanted to confront the doctor about her callous remarks to me. Thank you for your support. I am so sorry about your father. Was there a reason given as to the cause of his death?

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Coincidence? I'm in the process of mega dental work too. Yes, the procedures to fix the gum line as well. Weird - coincidence? We will only know as more victims of this drug come forward. My jaws ache when I open them, chew, yawn...The Dentist has a big sign hanging in his office that he will not work on people who had any off of the osteo drugs, a list he has in prominent sight, after a certain period of time.

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In addition, it has just been found I have a huge hiatal hernia, the kind that is ballooned up on the side of the esophagus and it is full of ulcers. Anyone else? I guess I need to have it taken care of by surgery, before it gets worse. Battling anemia.

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Diana, what are your symptoms? I've also been having problems even though I've been on acid reflex meds for years. I've debated about seeing my doctor because I'm so sick of going in with a new complaint! I beginning to feel that maybe I'm just a hypochondriac! Thanks Prolia!

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I am so unhappy with my side effects, but mine are mild compared to what others are dealing with. I use collagen daily and bone broth protein. Try to stay on an anti-inflammatory diet.

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Funny that you mentioned your hernia. I thought I just had the loss of 7 teeth to deal with. I had my Prolia injection on December 31, 2015 and two weeks later I had a hernia episode and my stomach went up in my chest and I had to have surgery. Do you think the Prolia had anything to do with this?

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My mother had also been on acid reflex meds and she had to have them increased because of the Pro;ia.

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Judy! Thank you. Like so many others, one more of the nasty side effects dad got was breathing problems so of course he ended up being put on oxygen so the even though my dad hadn't seen his doctor for months who prescribed the Prolia (between being in the hospital, going to a nursing home and then coming home on hospice), that doctor is the one who gave the reason for dad's death. Simply listed it as something like breathing problems. Pretty disheartening. He should have had no part in signing dad's death certificate OR being able to list the reason for dad's death. Just seems like a big cover up to me.

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Jeanne, I'm also on acid reflex meds but didn't know if I should up the dose. I am constantly having discomfort in my stomach and belching. A lot. I see my doctor on Monday. I also have been having heart palpitations for some time and wondering if anyone else has?
Adding to my problems my younger sister has just been diagnosed with stage 1-2 pancreatic cancer and will be undergoing whipple surgery next week. As the oldest of 5 I find it so terribly upsetting and I feel so utterly helpless. Have been very weepy. I can't kiss it better like I did when she was a child.

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Hi
Do you know how long after prolia use your dentist requires one to wait before working in their dental issues? I am trying to figure out how long I should wait to start gum repair work and crown work and implants... I am scared to start but need to...
anyone have experience with this?

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Janet, it was 10 months after my Prolia to get my first implant. I had several teeth pulled today and needless to say, I am miserable.

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Yeah. Palpitations. Also diagnosed with ulcers and one of the largest hiatal hernias the dr has seen he said. Has to be fixed as it presses on heart and also ulcers. Related to Prolia? We will see how many more report.

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See previous posts. Many have complained about stomach problems. See post #1635 dated 12/19/16. Scroll thru old posts.

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I am so so soooo sad for you! I know I am so upset about my dental problems. Loosing my teeth makes me feel like a failure. And ugly... and it's so exonive. I don't even know what the final look and $$$ will even be. Right now I have a bridge that failed and 4 problem crowns, maybe more. I've been wearing a plastic retainer to hold everything in place for over a year... Thank you for sharing.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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