Prolia Side Effects (Page 79)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Judy~found a med so you don't have to use silver nitrate sticks. There's an OTC version of Debacterol called OralMedic. Be really careful and not swallow any of it as it contains a little sulfuric acid and that we don't want in our bodies or throats. I don't know why a really good DDS would not recognize this on a tongue. They happen anywhere in the mouth and if they are not totally killed they will start growing again. I know the silver nitrate sticks are a total cure and it hurts because you are cauterizing the spots where they are. Yes! BIG OUCH but then get well. Pood

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Judy~I've been in the scientific field about all of my life if that helps. MD's don't know that much about Prolia as it is too new. Even Amgen now admits it is not what it was supposed to be according to an article in the NY Time. The only things I know of Prolia in the mouth are fungus which you don't have but could it be canker sores? Easily healed with a stick of silver nitrate. Hurts like H and than gets well. Are they so new that they don't know what an old fashioned canker sore is??? Hmmm, confused here~Pood

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Diana, that is not encouraging. Actually I could probably live with this eczema type rash , it's the sores and swollen taste buds in my mouth that are really upsetting me. I can't taste and if I taste at all it's very bitter. My mouth is constantly dry which keeps me awake at night. I also keep getting cold sores in my nose which never seem to heal. Have you been given any time frame on when your rash may go away? I do see both a dermatologist and ENT doctor in another week.

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Have this rash too, still. Almost 2 years post Prolia. Had fantastic skin before that shot.

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Poodle, you seem very well informed about prolia and medical conditions. Are you working in the medical or science field? The reason I ask is that I have spoken to doctors, pharmacists as well as a relative in the field and either they aren't giving me a straight answer about prolia or they really don't know. These are individuals who are well regarded in their fields. I have also spoken to a medical person from the company and the best answer I got from him was that, yes, my symptoms are some that have been noted! No answers as to whether they will disappear now that I have decided to stop any further injections. I would, if I continued, be due to have another injection in January. Guess I'll have to wait and see!! .

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It would be the same diagnosis tho as it affects the immune system and we all know what Prolia does to our immune system and so do Doctors that will tell the truth about this drug. Rheumatologists often give much more horrid drugs than Prolia and have an Immunologist on hand for help with a patient that has bad reactions. Have you asked yours where is the nearest Immunologist or do you work with an Immunologist? The others were MS which the Docs are now saying is an autoimmune disease so it could be the beginning of that too. You have to get her in and checked out correctly. best of luck~Pood

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Thank you much Pood for your help and thinking about my mom who is in pain all of her days! I am suffering deeply! I cant stand the idea of her feeling so bad. I need to fix her and find out what is wrong. I will look for an immunologist and Ill keep you posted. Please let me know if there is anything else you find out! She is not in a wheel chair, her neuropathy is not motor, just sensations. Pain, burning pain, prickling, numbness, and of coarse she cant stand shoes.

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Good luck to those who were harmed by prolia. If you haven't taken it don't ever take it. Remember your doctor is supposed to be the gateway between you and a drug that could cause you harm. Unfortunately they don't do that anymore and many take kickbacks for RX of drugs. You have to research carefully and say no to most drugs like this.

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You're kidding right. I will not be posting in this forum anymore since you're blaming hrs for promos that is totally Crazy! How about blaming done others as well? No chance of that I guess since that doesn't fit into your crazy agenda.

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Well, I looked up immunologists here - and there is four - but guess what they treat. Asthma. Sigh.

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RM~I did a total web search for your Mom's problems. That is the only one that showed up that made any sense to me at least. You will have to go to an Immunologist since it involves the immune system. Can you get Mother in a wheelchair to go to Billings, MT. We call it the 'banana belt' because they have nice weather in the winter. She is the only one I know of but she may know of more. Look her up and call her and ask. Be well~Pood

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I wish there was,a furiously mad icon to post re making money off our misery.

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You are inspiring me to look for an immunologist. After PT surgery I find much better health, except skin, and intermittent pain, could be nerves and vertebrae breaks having a hard time healing. But I'm pulling weeds, cleaning house to a point, much more active. Still having trouble sleeping, but situation at home not good Had baseline DEXA, do not have results yet. Blood calcium 10 which is better than last result I could find of 11.5. Taking Pro Bono with minerals, k, etc and one multi a day that has 1000 iu of calcium. Called Tampa, they said all good. Seeing pain doctor Thurs. although pain improved much. Primary isn't bugging me about taking more Prolia anymore. :) oh, and am able to walk, despite knees. Went to a department store Saturday. Shopped a bit. Probably 3 time in 4 years. Have bad aching In jaw....dentist said abcess but round of antibiotics no help. Of course after this going into 3 year ordeal of one Prolia injection I am on alert for necrosis. Will keep eye on it. But PT surgery made huge difference for me. The more research I do the more I'm finding I see Prolia and other similar high powered drugs can cause PT tumors. They work through altering PTH hormones. All tied in a package.

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Hi pood. Thanks! How did you find thia out and how can we relate it to prolia? CIPD? Is there anyone out there who also got it? Do you know how it is treated?

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Here are the phone numbers in the United States:

Amgen: 1-800-772-6436
Another Amgen #: 1-877-477-6542
FDA: 1-888-463-6332

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Heather, I have had something similar. Peeling itchy palms, crusty itchy skin on my legs, forearms and chest. I can't say it's a rash but it looks more like eczema . I finally phoned the Amgen helpline today and actually spoke to one of their medical people who verified that eczema type rashes are one of the side effects. I, too, developed this along withpainful sores in my mouth after my 3rd injection. I saw my doctor last week who prescribed prolia and she certainly didn't discount my suspicions. Needless to say, I refuse to have any more injections. I would suggest you contact your doctor and as well, the Amgen helpline. As I am Canadian I'm not sure what number it would be in the US if that's where you are. Good luck!

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I had my 3rd shot of prolia and due for my next one soon. I have an itchy rash on my neck and upper chest. Has anyone experienced this from the drug? I have been trying to figure out what is causing it. This is the only thing left to blame.

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Calling RM~I may have found out what is wrong with your mother. It is called CIPD which is an INFLAMMATION of peripheral nerves due to ABNORMAL IMMUNE RESPONSE. We are 100% sure that Prolia messes severely with the immune system so this could well be the cause. Again, you would need an Immunologist to give her the correct medications to get her immune system correct again. Check it out please. Pood.

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AMGEN Corp. has spent $7,581,000 lobbying Congress and the Podesta group got their share. Now we know for sure WHY Prolia is on the market and passed by the FDA. That number to Amgen is pennies.

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Kitty~I only had one that told me the truth and it was too late as I already had the injection. He said: "Be very careful now as your immune system is compromised." At that point I just replied that I always use alcohol on my hands and anti-bacterial soap. Uhhhh! What about the AIR Pood?????? About a week later the side effects started in.

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